« Measuring Up IMPROVING HEALTH SYSTEM PERFORMANCE Measuring Up IN OECD COUNTRIES Proceedings of the Ottawa Conference, November 2001. IMPROVING HEALTH SYSTEM How can we measure the performance of different health systems, and how can we use such information to support on-going health system improvement? Those are the central questions PERFORMANCE addressed in this volume. Health policy makers have a growing interest in finding ways of encouraging health systems to improve their performance, where performance is measured against IN OECD COUNTRIES quality, efficiency or equity goals. Improving performance has the potential to reduce the tensions between rising demands and limited resources. There is also a growing demand for accountability among funders and providers of health services. M e This book highlights the core elements of a possible performance measurement framework to assess a health systems at the international and national levels. It also addresses further challenges which s u remain: how do we overcome the lack of health outcome measures? How do we better align r i n performance information and incentives with policy objectives? And how do we reconcile the g traditional professional self-regulation approach with greater public accountability for health care U quality? p ^ IM P R O V IN G H E A L T H S Y S T E M ^ P E R F O R M A N C E IN OECD's books, periodicals and statistical databases are now available via www.SourceOECD.org, our online library. O E This book is available to subscribers to the following SourceOECD themes: C D Social Issues/Migration/Health C O U Ask your librarian for more details of how to access OECD books online, or write to us at N [email protected] T R ^ IE S www.oecd.org ISBN 92-64-19676-5 81 2002 01 1 P -:HSTCQE=V^[\[[: © OECD, 2002. © Software: 1987-1996, Acrobat is a trademark of ADOBE. All rights reserved. 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Measuring Up IMPROVING HEALTH SYSTEM PERFORMANCE IN OECD COUNTRIES ORGANISATION FOR ECONOMIC CO-OPERATION AND DEVELOPMENT THE ORGANISATION FOR ECONOMIC CO-OPERATION AND DEVELOPMENT (OECD) Pursuant to Article 1 of the Convention signed in Paris on 14th December 1960, and which came into force on 30th September 1961, the Organisation for Economic Co-operation and Development (OECD) shall promote policies designed: – to achieve the highest sustainable economic growth and employment and a rising standard of living in Member countries, while maintaining financial stability, and thus to contribute to the development of the world economy; – to contribute to sound economic expansion in Member as well as non-member countries in the process of economic development; and – to contribute to the expansion of world trade on a multilateral, non-discriminatory basis in accordance with international obligations. The original Member countries of the OECD are Austria, Belgium, Canada, Denmark, France, Germany, Greece, Iceland, Ireland, Italy, Luxembourg, the Netherlands, Norway, Portugal, Spain, Sweden, Switzerland, Turkey, the United Kingdom and the United States. The following countries became Members subsequently through accession at the dates indicated hereafter: Japan (28thApril1964), Finland (28th January 1969), Australia (7th June 1971), New Zealand (29th May 1973), Mexico (18th May 1994), theCzech Republic (21st December 1995), Hungary (7th May 1996), Poland (22ndNovember 1996), Korea (12th December 1996) and Slovak Republic (14th December 2000). The Commission of the European Communities takes part in the work of the OECD (Article 13 of the OECD Convention). Publié en français sous le titre : Être à la hauteur MESURER ET AMÉLIORER LA PERFORMANCE DES SYSTÈMES DE SANTÉ DANS LES PAYS DE L’OCDE © OECD 2002 Permission to reproduce a portion of this work for non-commercial purposes or classroom use should be obtained through the Centre français d’exploitation du droit de copie (CFC), 20,rue des Grands-Augustins, 75006 Paris, France, tel. (33-1) 44 07 477 0, fax (33-1) 46 34 67 19, for every country except the United States. In the United States permission should be obtained through the Copyright Clearance Center, Customer Service, (508)750-8400, 222 Rosewood Drive, Danvers, MA 01923 USA, or CCC Online: www.copyright.com. All other applications for permission to reproduce or translate all or part of this book should be made to OECD Publications, 2,rue André-Pascal, 75775 Paris Cedex 16, France. FOREWORD This report examines progress and challenges in the effective measurement and application of performance indicators to improve health systems. Measuring and improving health system performance is a key priority for OECD countries. In May2001, OECD Ministers noted that “health systems are an important element in social cohesion and represent the largest service sector in many OECD countries. Their efficiency, effectiveness and equity consequences, their impact on public finances, and their ability to meet the challenges of medical advances, ageing populations and rising expectations require creative policy approaches”. Annual healthcare costs in OECD countries have topped US$2.3trillion –almost 10 per cent of GDP. Health systems play a crucial role in promoting people’s well-being. They are also major employers of skilled workers and an important source of demand for high-tech industries such as pharmaceuticals, diagnostic and imaging products and biotechnology. However, OECD health systems are coming under increasing pressure, and additional funding alone will not be enough to respond to steadily rising demands. There is an on-going need to improve the cost-effectiveness of health care spending. In response to requests from Member governments, the OECD launched in2001 a new Health Project. The main theme of this project is performance measurement and improvement in OECD health systems. Through comparing experiences across OECD countries, the project will seek to address the challenge of deciding the appropriate amount of resources to be devoted to health care as well as ways in which these resources should be financed and allocated. As part of this new Health Project, the OECD and Health Canada held a conference entitled “Measuring Up: Improving health system performance in OECD countries”, on 5-7November2001 in Ottawa. The conference brought together more than 400participants from OECD countries and other international organisations, to discuss good practices in measuring key components of health system performance and to share experiences on how best to report and use performance measures to build more effective health systems. The conference assembled not only experts and policy-makers, but also representatives from civil society and key actors directly involved in the functioning of health care systems, be they patients, health care professionals or managers of health care institutions. The views of these different actors in health care systems were factored into the conference deliberations through the active participation of a “Commentary Panel” which provided useful inputs at different points during the meeting. The conference ended with a Ministerial Roundtable discussion, which provided an opportunity for Ministers from several OECD countries to share views about the political challenges their countries face in developing and applying performance measures. This report contains the main papers presented at the conference together with the highlights of the Ministerial Roundtable. The Ottawa Conference was an important milestone in OECD’s work on health system performance. It provided a marvellous opportunity to discuss practical ideas on ways to measure and improve the efficiency and equity of health care systems. It also demonstrated strong political commitments to international co-operation in developing performance measurement frameworks that support on-going health systems improvement. Donald J. Johnston Allan Rock Secretary-General of the OECD Former Minister of Health, Canada 3 © OECD 2002 Measuring Up: Improving Health System Performance in OECD Countries Acknowledgements The OECD would like to thank all those who contributed to the Ottawa conference and to this volume. It would like to express particular gratitude to the Government of Canada and the former Canadian Minister of Health, Allan Rock, for hosting this conference. Thanks go to Denis Gauthier, David Kelly, David Hoye, and François Sauvé in Health Canada and to Peter Scherer, Jeremy Hurst, Stéphane Jacobzone and Gaétan Lafortune in the OECD Secretariat for their contributions in planning and organising this conference. Special thanks go also to Peter Smith from the Centre for Health Economics at the University of York in the United Kingdom, for assuming the responsibility of Editor of these conference proceedings. The contributions of Geoff Anderson from the Department of Health Policy, Management and Evaluation at the University of Toronto in Canada and Tom Reilly from the Agency for Healthcare Research and Quality in the United States as members of the Conference Advisory Group, are also gratefully acknowledged. 4 © OECD 2002 TABLE OF CONTENTS Editor’s Preface by Peter Smith.......................................................................................................................................................................... 7 Part I Overview of Issues and Challenges Chapter 1. Measuring Health System Performance: Problems and Opportunities in the Era of Assessment and Accountability by C. David Naylor, Karey Iron and Kiren Handa................................................................................................ 13 Chapter 2. Performance Measurement and Improvement in OECD Health Systems: Overview of Issues and Challenges by Jeremy Hurst................................................................................................................................................... 35 Part II Performance Measurement and Performance Management from the Perspective of Various Actors: A Review of Experiences in Selected Countries Chapter 3. Improving Value for Money in the United Kingdom National Health Service: Performance Measurement and Improvement in a Centralised System by Clive H. Smee.................................................................................................................................................. 57 Chapter 4. Improving Accountability in a Decentralised System: A Swedish Perspective by Nina Rehnqvist................................................................................................................................................ 87 Chapter 5. Providing Performance Information for Consumers: Experience from the United States by Thomas Reilly, Gregg Meyer, Carla Zema, Christine Crofton, David Larson, Charles Darby and Katherine Crosson ......................................................................................................................................... 97 Chapter 6. Can a Tulip Become a Rose? The Dutch Route of Guided Self-Regulation Towards a Community-Based Integrated Health Care System by Niek Klazinga, Diana Delnoij and Isik Kulu-Glasgow....................................................................................... 117 Chapter 7. Towards Integrated and Coherent Health Information Systems for Performance Monitoring: The Canadian Experience by Michael Wolfson and Richard Alvarez............................................................................................................... 133 Part III Performance Measurement Activities at the International Level: How can International Comparisons Assist National Policy-Making? Chapter 8. Opening the Black Box: What Can Be Learned from a Disease-based Approach? Stephane Jacobzone, Pierre Moise and Lynelle Moon.............................................................................................. 159 5 © OECD 2002 Measuring Up: Improving Health System Performance in OECD Countries Chapter 9. The Evolution of WHO’s Approach to Health System Performance Assessment by David B. Evans................................................................................................................................................. 197 Chapter 10. Measuring and Improving Patients’ Experiences: How Can we Make Health Care Systems Work for Patients? by Angela Coulter and Paul Cleary....................................................................................................................... 211 Chapter 11. Equity in the Use of Physician Visits in OECD Countries: Has Equal Treatment for Equal Need Been Achieved? by Eddy van Doorslaer, Xander Koolman and Frank Puffer.................................................................................... 225 Part IV Best Practices in Measuring Different Dimensions of Health System Performance Chapter 12. Measuring the Quality of Hospital Care: The State of the Art by Gérard de Pouvourville and Étienne Minvielle................................................................................................... 251 Chapter 13. Measuring the Quality of Long-term Care in Institutional and Community Settings by Naoki Ikegami, John P. Hirdes and Iain Carpenter............................................................................................ 277 Chapter 14. Developing Composite Indicators for Assessing Health System Efficiency by Peter Smith...................................................................................................................................................... 295 Part V Applying Performance Indicators to Health System Improvement Chapter 15. Applying Performance Indicators to Health System Improvement by Sheila Leatherman............................................................................................................................................ 319 Part VI Summary and Conclusions Chapter 16. Measuring Up: Lessons and Potential by Jean-François Girard and Étienne Minvielle...................................................................................................... 337 Part VII Ministerial Roundtable: Leadership, Successes and Challenges Chapter 17. Measuring Health System Performance and the Impact on Political Decision-Making: The Views of OECD Ministers by Julio Frenk (Minister of Health, Mexico), John Hutton (Minister of State for Health, United Kingdom), Bernard Kouchner (Minister of Health, France), Allan Rock (Minister of Health, Canada), Edward Sondik (on behalf of Tommy Thompson, Secretary of Health and Human Services, United States)...................................... 351 6 © OECD 2002 EDITOR’S PREFACE by Peter Smith* The concern with measuring the performance of health systems and health care is not recent. In the 1860s Florence Nightingale pioneered the systematic collection, analysis and dissemination of comparative hospital outcomes data in order to understand and improve performance. Fifty years later, Ernest Codman promoted the need for scrupulous collection and public release of surgical outcome data (Spiegelhalter, 1999). However, there were many practical, professional and political impediments to making such principles operational. It is only in the last ten years that the vision of using large-scale data sources to help improve health system performance has become a reality. A number of developments have led to this recent transformation. Most importantly, the accelerating advances in medical technology have led to enormous potential for new interventions and methods of delivering and organising health care, with a concomitant pressure on expenditure levels. There is therefore an urgent need to check that innovations – of whatever sort– promote system objectives and avoid adverse side-effects. At the same time, popular expectations have become ever more demanding, not least in the accountability and transparency they demand of their health systems. In this respect, performance information serves as a fundamental tool of communication. Finally, developments in information technology have revolutionised the capacity to capture almost instantaneously many measures of process and outcome in a way that was until recently unimaginable. The interest in system performance was given added impetus by the World Health Report 2000 produced by the World Health Organisation, entitled “Health systems: improving performance” (World Health Organisation, 2000). The debate initiated by WHR2000has been dominated by responses to the league tables of national health system performance presented in its statistical annexes. However the main body of the report raises fundamental issues associated with defining, measuring and promoting health system performance. In this context, performance data have two broad functions: to identify in general “what works” in promoting the objectives of the health system; and to identify the functional competence of specific practitioners or organisations. These correspond, respectively, to the research and managerial roles of performance data. In whichever role, such data can then be used to promote continuous improvement, by enabling policy makers to adopt the most cost-effective technologies, and helping practitioners to identify opportunities for personal or organisational improvement. This volume seeks to reflect the current “state of the art” in performance measurement across OECD health systems. It is organised into seven sections, reflecting different perspectives on the performance measurement process. PartI sets the scene. Naylor, Iron and Handa (Chapter1) summarise progress to date, emphasizing the simple but powerful truth that we cannot manage what we do not measure. Hurst (Chapter2) surveys the issues and challenges faced by OECD countries as they seek to measure and improve their health system’s performance. He pays particular attention to the role of international comparisons, in which the pioneering work of the OECD has played a central role (OECD, 2001). * Centre for Health Economics, University of York. 7 © OECD 2002 Measuring Up: Improving Health System Performance in OECD Countries PartII of the book summarises developments in five contrasting OECD countries. Smee (Chapter3) describes the move towards a philosophy of “performance management” in the English National Health Service, the archetypal centralised health system, an approach that relies heavily on the massive compulsory provision of reliable, comprehensive and timely performance data. In contrast, Rehnqvist (Chapter4) presents the Swedish case, in which responsibility for the health system is devolved to local government, and the provision of performance data relies on clinically led collaboratives known as quality registers, to which subscription is voluntary. The US health system has a uniquely strong focus on consumers and the market, and Reilly, Meyer and colleagues (Chapter5) summarise experience with public release of performance data to inform consumer choice. They report that –although consumers appear to take little notice of such data – the public release nevertheless stimulates important improvement efforts by providers. A more formal approach to performance management amongst providers is the Dutch experience with “guided” self-regulation, presented by Klazinga, Delnoij and Kulu-Glasgow (Chapter6). They notethat the key challenge is to translate the undoubted progress made in clinically based performance measurement to the more ambitious agenda of managing whole system performance. Finally, Wolfson and Alvarez (Chapter7) summarise the enormous progress made towards integrating information systems in Canada, and the promise it holds for performance monitoring. Part III examines the methodological issues raised when seeking to make international performance comparisons. Jacobzone, Moise and Moon (Chapter8) describe one of the OECD approaches towards international comparison, which concentrates on micro data for specific conditions. The intention is to use the natural experiment of international variations to secure an improved understanding of the links between technology adoption and clinical outcome. Evans (Chapter9) describes some of the methodological issues pursued by the World Health Organisation since publication of World Health Report 2000, in particular the problem of securing comparability when interpreting survey results from different countries. Coulter and Cleary (Chapter10) examine the complex issue of measuring the patient’s experience. They emphasize the importance of this dimension of health care, but notethe methodological difficulties involved in developing reliable and comparable indicators of system responsiveness. Van Doorslaer, Koolman and Puffer (Chapter11) summarise their work on the important issue of measuring horizontal equity, in the sense of equal treatment for equal need. They confirm that –even in health systems that explicitly seek to promote equity and solidarity– there exist important unexplained variations in treatment associated with income levels. In PartIV the book turns to a series of key measurement issues. De Pouvourville and Minvielle (Chapter12) describe the rich experience of seeking to develop indicators of hospital performance, based mainly on US research. The principal methodological challenges are to develop adequate patient outcome measures and to adjust satisfactorily for variations in the complexity of the hospital’s case-mix. Long term care for people with physical or mental disability is a key policy issue for many OECD countries, and the provision of good quality performance data is a prerequisite for the development of effective policy. The advantage in this sector is that –compared with hospitals– the client groups are relatively homogeneous, and Ikegami, Hirdes and Carpenter (Chapter13) report a great deal of progress on a range of quality indicators. To conclude part four, Smith (Chapter14) examines the issues that arise when seeking to combine individual indicators into a single composite measure of system performance. There may often be a need to construct such composites, but to date the methodology underlying such efforts has been weak. Although most of the papers in the first four parts of the book concentrate on methodological topics, many make reference to the key issue of how performance data can be used to secure health system improvement. It is not enough merely to produce the performance data. They must be embedded in a system that uses them to best effect (and avoids unintended dysfunctional consequences). In PartV, Leatherman (Chapter15) outlines the range of levers that exist to secure performance improvements, grouped into five categories: external oversight, professional development and education, empowering consumers, incentives, and regulation. She concludes that the gaps in our evidence base make it 8 imperative to employ a blend of approaches that give rise to complementary effects. © OECD 2002