Made to Hear: Cochlear Implants and Raising Deaf Children PDF
Preview Made to Hear: Cochlear Implants and Raising Deaf Children
Made to Hear This page intentionally left blank MADE TO HEAR Cochlear Implants and Raising Deaf Children LAURA MAULDIN A Quadrant Book University of Minnesota Press Minneapolis • London Quadrant, a joint initiative of the University of Minnesota Press and the Institute for Advanced Study at the University of Minnesota, provides support for interdisciplinary scholarship within a new, more collaborative model of research and publication. http://quadrant.umn.edu. Sponsored by the Quadrant Health and Society group (advisory board: Susan Craddock, Jennifer Gunn, Alex Rothman, and Karen- Sue Taussig) and by the Center for Bioethics at the University of Minnesota. Quadrant is generously funded by the Andrew W. Mellon Foundation. Portions of chapters 1 and 2 were published in different forms in “Parents of Deaf Children with Cochlear Implants: A Study of Technology and Community,” Sociology of Health and Illness: A Journal of Medical Sociology 34, no. 5 (2012): 1– 15. A different version of chapter 4 was published as “Precarious Plasticity: Neuropolitics, Cochlear Implants, and the Redefinition of Deafness,” Science, Technology, and Human Values 39, no. 1 (2014): 130–5 3. Portions of chapter 5 were published in “Cochlear Implants and the Mediated Classroom- Clinic: Communication Technologies and Co- operations across Multiple Industries,” Disability Studies Quarterly 31, no. 4 (2011), http://dsq-sds.org/article/ view/1713. Copyright 2016 by the Regents of the University of Minnesota All rights reserved. No part of this publication may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording, or otherwise, without the prior written permission of the publisher. Published by the University of Minnesota Press 111 Third Avenue South, Suite 290 Minneapolis, MN 55401-2520 http://www.upress.umn.edu Library of Congress Cataloging-in-Publication Data Names: Mauldin, Laura, author. Title: Made to hear : Cochlear implants and raising deaf children / Laura Mauldin. Description: Minneapolis : Univ of Minnesota Press, 2016. | Series: A quadrant book | Includes bibliographical references and index. Identifiers: LCCN 2015031932| ISBN 978-0-8166-9724-3 (hc) | ISBN 978-0-8166-9725-0 (pb) Subjects: LCSH: Hearing impaired children—Means of communication. | Deaf children—Family relationships. | Hearing disorders in children—Rehabilitation. Cochlear implants—Social aspects. | BISAC: SOCIAL SCIENCE / People with Disabilities. | SCIENCE / Philosophy & Social Aspects. | MEDICAL / Audiology & Speech Pathology. Classification: LCC HV2391 .M38 2016 | DDC 649/.1512—dc23 LC record available at http://lccn.loc.gov/2015031932 Printed in the United States of America on acid- free paper The University of Minnesota is an equal- opportunity educator and employer. 22 21 20 19 18 17 16 10 9 8 7 6 5 4 3 2 1 To the memory of my loving grandmother, Helen This page intentionally left blank Science is politics by other means. • SandraHarding,Whose Science? Whose Knowledge? Thinking from Women’s Lives For the ethnographer in a medical setting, health care workers are an exotic tribe. . . . At worst we are voyeurs seeking cheap thrills; at best we are witnesses reporting on the most profound dilemmas of the human condition. • CharlesBosk,The Fieldworker as Watcher and Witness This page intentionally left blank CONTENTS Abbreviations xi Introduction Medicalization,DeafChildren,andCochlearImplants 1 1ADiagnosisofDeafness 27 How Mothers Experience Newborn Hearing Screening 2EarlyIntervention 55 Turning Parents into Trainers 3CandidatesforImplantation 77 Class, Cultural Background, and Compliance 4TheNeuralProject 107 The Role of the Brain 5SoundinSchool 135 Linking the School and the Clinic Conclusion ThePowerandLimitsofTechnology 153 Acknowledgments 175 Notes 179 Bibliography 187 Index 203
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