Living with a long-term illness : the facts

218 Pages·2006·0.66 MB·English

by  Frankie Campling, Michael Sharpe

living with a long-term illness
the facts
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living with a
long-term illness
the facts
FRANKIE CAMPLING
A person with a long-term illness
MICHAEL SHARPE
Professor of Psychological Medicine and
Symptom Research, University of
Edinburgh, Scotland, UK
1
3
Great Clarendon Street, Oxford OX2 6DP
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British Library Cataloguing in Publication Data
Data available
Library of Congress Cataloging in Publication Data
Campling, Frankie.
Living with a long-term illness : the facts / Frankie Campling, Michael Sharpe.
p. cm.
1. Chronic diseases—Treatment. 2. Chronically ill—Rehabilitation.
3. Self-care, Health. I. Sharpe, Michael, 1941– . II. Title.
RC108.C36 2006
616⬘.044—dc22
2005023507
Typeset by Newgen Imaging Systems (P) Ltd., Chennai, India
Printed in Great Britain
on acid-free paper by
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ISBN 0–19–852882–5 (Pbk.) 978–0–19–852882–1 (Pbk.)
10 9 8 7 6 5 4 3 2 1
acknowledgements
We are very grateful to those people, clinicians, health professionals and
patients, who read the manuscript or who discussed the project with us,
and gave us such valuable comments and suggestions. These include Lois
Bennett, Hilary Briars, Diane Cox—reader in occupational medicine,
Joanna Howard, Tim Jack—director of pain relief unit, Kurt Kroenke—
professor of medicine, Michael von Korff—health services researcher,
Roisin McClosky—general practitioner, Vanessa Strong—research nurse
and David Weller—professor of general practice, though many others have
given us really helpful assistance.
Most of all though, we want to thank all the people with a long-term
illness with whom we have worked over the last 15 or more years. They
have taught us so much about what it is like to suffer from such an illness,
their problems, and what they have found helpful. This book is dedicated
to them.
Whilst every effort has been made to ensure that the contents of this book are
as complete, accurate and up to date as possible at the date of writing, Oxford
University Press is not able to give any guarantee or assurance that such is the
case. Readers are urged to take appropriately qualified medical advice in all
cases. The information in this book is intended to be useful to the general reader,
but should not be used as a means of self-diagnosis or for the prescription of
medication.
contents
Introduction xi
section 1
Long-term illness and you
1 What is long-term (chronic) illness? 3
2 Long-term illness as a journey 7
3 Gathering information and becoming an ‘expert patient’ 13
4 Managing disease 21
5 Managing illness 27
6 Keeping going with a self-management programme 35
7 Using complementary/alternative medicine (CAM) 43
section 2
Managing physical/biological problems
8 Managing fatigue 49
9 Managing pain 59
10 Using activity and exercise 69
11 Improving your sleep 73
12 Managing bladder and/or bowel problems 77
13 Looking after your general health 79
14 Eating well and wisely 83
the facts | vii
living with a long-term illness | the facts
section 3
Managing emotional issues
15 Setting goals for yourself 89
16 Dealing with problems 93
17 Building pleasure into your life 99
18 Living with uncertainty 103
19 Managing your thinking 105
20 Managing your self-esteem 109
21 Managing your emotions 113
22 Managing severe anxiety, panic or depression 125
23 Getting psychological help 133
section 4
Managing interpersonal problems
24 Relationships and communication 141
25 Caring and being cared for 149
26 Improving your personal relationships 155
27 Your relationship with your doctors 161
section 5
Managing practical problems
28 Improving your quality of life 171
29 Getting practical and financial assistance 177
30 Thinking about the future 181
Summary 185
viii | the facts
contents
Appendix 1
The DISCERN instrument 187
Appendix 2
Further information 195
Appendix 3
Papers from medical journals 199
Index 201
the facts | ix