living a good life with arthritis

230 Pages·2016·4.67 MB·English

Rosa (Roos) Ymkje Arends holds a Master of Science in Psychology and com- L LIVING A GOOD LIFE
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pleted her Ph.D. at the Department of Psychology, Health and Technology at the IN
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University of Twente, The Netherlands. Her Ph.D. thesis focuses on the role of A WITH ARTHRITIS
goal management for the psychological health of people with arthritis. G
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The thesis describes the relationship between goal management and psycholo- O
D MANAGING PERSONAL GOALS TO IMPROVE
gical adaptation to arthritis and the development and evaluation of a goal ma- L
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F PSYCHOLOGICAL HEALTH
nagement programme for people with arthritis and mild depressive symptoms. E
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LIVING A GOOD LIFE WITH ARTHRITIS
Managing personal goals to improve
psychological health
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Thesis, University of Twente, 2016
ISBN: 978-94-91602-69-6
© R.Y. Arends, 2016
Cover design: Sinds 1961 Grafisch Ontwerp, Ede (www.sinds1961.nl )
Printed by: Printservice Ede, Ede, The Netherlands
The studies presented in this thesis were financially supported by Stichting Reumaonderzoek
Twente and the Institute of Behavioural Research of the University of Twente.
The printing of this thesis was financially supported by Sanofi Genzyme, NHL Hogeschool,
and Essenburgh Training & Consultancy.
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LIVING A GOOD LIFE
WITH ARTHRITIS
Managing personal goals to improve psychological health
PROEFSCHRIFT
ter verkrijging van
de graad van doctor aan de Universiteit Twente,
op gezag van de rector magnificus,
prof. dr. H. Brinksma,
volgens besluit van het College voor Promoties
in het openbaar te verdedigen
op donderdag 6 oktober 2016 om 16.45 uur
door
Rosa Ymkje Arends
geboren 24 oktober 1984
te Kollumerland en Nieuwkruisland
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Dit proefschrift is goedgekeurd door:
Prof.dr. M.A.F.J. van de Laar, promotor
en
Dr. C. Bode en Dr. E. Taal, copromotoren

Samenstelling promotiecommissie
Promotor Prof. dr. M.A.F.J. van de Laar Universiteit Twente,
Medisch Spectrum Twente
Copromotoren Dr. C. Bode Universiteit Twente
Dr. E. Taal Universiteit Twente
Commissie Prof. dr. R. Geenen Universiteit Utrecht
Dr. M.S.E. van Hout Medisch Spectrum Twente
Prof. dr. A.V. Ranchor Rijksuniversiteit Groningen
Prof. dr. P.L.C.M. van Riel Radboud Universitair Medisch Centrum
Prof. dr. R. Sanderman Universiteit Twente,
Rijksuniversiteit Groningen
Prof. dr. G.J. Westerhof Universiteit Twente
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Contents
1 General introduction 7
PART I 27
The relationship between goal management and psychological adaptation
to arthritis
2 The role of goal management for successful adaptation to arthritis 29
3 The longitudinal relationship between patterns of goal management and 53
psychological health in people with arthritis: The need for adaptive flexibility
4 Exploring preferences for domain-specific goal management in patients with 79
polyarthritis: What to do when an important goal becomes threatened?
PART II 103
The effect of a goal management programme on the psychological health of
people with arthritis and mild depressive symptoms
5 A goal management intervention for polyarthritis patients: Rationale and 105
design of a randomized controlled trial
6 A goal management intervention for patients with polyarthritis and mild 135
depressive symptoms: A quasi-experimental study
7 A mixed-methods process evaluation of a goal management intervention 157
for patients with polyarthritis
8 Summary and discussion 187
Dutch summary (Nederlandse samenvatting) 213
Acknowledgements (Dankwoord) 219
About the Author 225
List of publications 227
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1
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1
General introduction
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GENERAL INTRODUCTION
Introduction
A few years ago, Jeannette was diagnosed with rheumatoid arthritis. After some difficult
years, the inflammation finally went into remission due to proper medical treatment.
During this rough period, she abandoned her job as a secretary at an estate agency. Once
the arthritis went into medical remission, Jeannette’s energy finally returned, but not to her
former level. Since the beginning of her illness, Jeanette has worried about her husband
Jan and their two adolescent daughters. When the oldest daughter moved out to live with
her boyfriend, Jeannette could not resist calling her several times a day, checking to ensure
that she was all right or in need of help or advice. Jeannette’s controlling behaviour was
increasingly causing tension in the family.
For years, Jeannette and Jan had been playing tennis with friends every week and enjoying
coffee afterwards. Unfortunately, they had to more often cancel this engagement due to
Jeannette’s rheumatic disease. Jeannette became more unhappy after leaving her job, and
with the loss of this social activity and contact, she felt as if she were losing a grip on her life
and didn’t know how to stop it.
One day while running errands, Jeannette accidentally met her old tennis friends. During
the conversation that followed, she realised that they could plan less intensive activities
together such as taking a walk or visiting a museum. The friends responded with enthusiasm
to her suggestion and they immediately set a date for the following week. Back home,
Jeannette browsed the internet searching for suitable activities and by accident visited the
website of the town’s historical windmill. Seeing a call for new volunteers for their adjacent
shop, she at first hesitated – It might be too hard with her arthritis? – but then contacted
them and made an appointment.
A few weeks later, she now feels completely at home in the friendly group of volunteers at
the mill’s shop. Although being the youngest volunteer, she enjoys the new social contacts
and the chance she has to contribute. The atmosphere at home has significantly improved as
Jeannette’s need to control her family members has diminished. She has less time to spend
worrying and feels less need to track her husband and daughters all day. In addition, she has
her own stories to tell after a day at the shop. Her eldest daughter sometimes even calls her
to chat when she has not heard from Jeannette for some days.1
1 Adapted from: Arends, Bode, Taal & van de Laar, 2012. Doelbewust! Trainershandleiding & Deelnemers­
materiaal [Right on Target. Trainer’s Guide and Participants’ Material]. Universiteit Twente & Reumacentrum
Twente.
9
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