How should modern medicine's dramatic new powers to sustain life be employed? How should limited resources be used to extend and improve the quality of life? In this collection, Dan Brock, a distinguished philoso- pher and bioethicist and coauthor of Deciding for Others (Cambridge, 1989), explores the moral issues raised by new ideals of shared decision making between physicians and patients. The book develops an ethical framework for decisions about life- sustaining treatment and euthanasia, and examines how these life-and- death decisions are transformed in health policy when the focus shifts from what is best for a patient to what is just for all patients. Professor Brock combines acute philosophical analysis with a deep un- derstanding of the realities of clinical health policy. This is a volume for philosophers concerned with medical ethics, health policy professionals, physicians interested in bioethics, and undergraduates taking courses in biomedical ethics. Life and Death Cambridge Studies in Philosophy and Public Policy GENERAL EDITOR: Douglas MacLean The purpose of this series is to publish the most innovative and up-to-date research into the values and concepts that underlie major aspects of public policy. Hitherto most re- search in this field has been empirical. This series is primarily conceptual and normative; that is, it investigates the structure of arguments and the nature of values relevant to the for- mation, justification, and criticism of public policy. At the same time it is informed by empirical considerations, ad- dressing specific issues, general policy concerns, and the methods of policy analysis and their applications. The books in the series are inherently interdisciplinary and include anthologies as well as monographs. They are of par- ticular interest to philosophers, political scientists, sociolo- gists, economists, policy analysts, and those involved in public administration and environmental policy. Other books in the series Mark Sagoff The Economy of the Earth Henry Shue (ed.) Nuclear Deterrence and Moral Restraint Judith Lichtenberg (ed.) Democracy and the Mass Media William A. Galston Liberal Purposes Elaine Draper Risky Business R. G. Frey and Christopher W. Morris (eds.) Violence, Terrorism, and Justice Ferdinand Schoeman Privacy and Social Freedom Paul B. Thompson The Ethics of Trade and Aid Life and Death Philosophical essays in biomedical ethics DAN W. BROCK BROWN UNIVERSITY M CAMBRIDGE W UNIVERSITY PRESS CAMBRIDGE UNIVERSITY PRESS Cambridge, New York, Melbourne, Madrid, Cape Town, Singapore, São Paulo, Delhi, Dubai, Tokyo, Mexico City Cambridge University Press The Edinburgh Building, Cambridge CB2 8RU, UK Published in the United States of America by Cambridge University Press, New York www.cambridge.org Information on this title: www.cambridge.org/9780521428330 © Cambridge University Press 1993 This publication is in copyright. Subject to statutory exception and to the provisions of relevant collective licensing agreements, no reproduction of any part may take place without the written permission of Cambridge University Press. First published 1993 A catalogue record for this publication is available from the British Library Library of Congress Cataloguing in Public Data ISBN 978-0-521-41785-3 Hardback ISBN 978-0-521-42833-0 Paperback Cambridge University Press has no responsibility for the persistence or accuracy of URLs for external or third-party internet websites referred to in this publication, and does not guarantee that any content on such websites is, or will remain, accurate or appropriate. Information regarding prices, travel timetables and other factual information given in this work are correct at the time of first printing but Cambridge University Press does not guarantee the accuracy of such information thereafter. Contents Sources and acknowledgments page vii Introduction 1 PART i: PHYSICIANS AND PATIENTS MAKING TREATMENT DECISIONS 1 Informed consent 21 2 The ideal of shared decision making between physicians and patients 55 3 When competent patients make irrational choices (Coauthored by Steven A. Wartman) 80 PART II: LIFE-AND-DEATH DECISIONS IN THE CLINIC 4 Moral rights and permissible killing 95 5 Taking human life 123 6 Death and dying 144 7 Forgoing life-sustaining food and water: Is it killing? 184 8 Voluntary active euthanasia 202 Contents PART III: LIFE-AND-DEATH DECISIONS IN HEALTH POLICY 9 The value of prolonging human life 235 10 Quality of life measures in health care and medical ethics 268 11 The problem of low benefit/high cost health care 325 12 Justice and the severely demented elderly 356 13 Justice, health care, and the elderly 388 14 Truth or consequences: The role of philosophers in policy-making 408 Index 417 VI Sources and acknowledgments These essays were written, each as an independent, self- contained work, over a period of nearly fifteen years, though most are from the latter half of that period. They have been selected from a substantially larger group of essays in biomedical ethics that I have written during this period. In the introduction which follows I will show briefly how the essays are related and state the themes of the larger coherent whole of which they form a part, but I want here to make clear the principles by which they were selected. While a few of these essays address general issues in moral philosophy concerning taking and saving lives, the large ma- jority are from my work in biomedical ethics; other work in moral philosophy, such as a number of papers on utilitar- ianism, has been omitted. Even within my work in biomed- ical ethics, however, I have included my more philosophical essays within the broad theme of life and death, and omitted essays addressed more to practical cases or policy issues. Biomedical ethics is a paradigm of an interdisciplinary field, and my intent here is to provide one example of what the discipline of philosophy has to contribute to its work. The point is not, of course, that there is a clear and clean dis- tinction between the strictly philosophical contributions or contributors to the field and the contributions or contributors from other disciplines. Rather, these essays were written in the belief that many of the underlying philosophical issues, sometimes staples of moral philosophy, have not received enough attention in the biomedical ethics literature in the Vll Sources and acknowledgments face of the dramatic pull of individual cases where life and death are at stake. It is my disciplinary belief, and no doubt bias, that our thinking on the dramatic cases and policy issues of life and death that command professional and public at- tention can be deepened by careful attention to these more philosophical issues. In this respect, by selecting the more philosophical papers, I have at the same time selected what for nonphilosopher readers may be some of my more difficult and less easily accessible work in biomedical ethics. It is left to the reader to judge, of course, whether the more difficult point of entry is warranted by the subsequent philosophical analyses to be encountered. A number of other essays have been omitted because they largely cover ground already rel- atively easily accessible in book form in my book, coauthored with Allen Buchanan, Deciding for Others: The Ethics of Sur- rogate Decision Making, published in 1989 by Cambridge Uni- versity Press. Some readers will recognize a close affinity between some of the views developed in these essays and two of the reports of the President's Commission for the Study of Ethical Prob- lems in Medicine and Biomedical and Behavioral Research, Making Health Care Decisions and Deciding to Forego Life- Sustaining Treatment. This is not because I have shamelessly borrowed from those reports, but because I served as staff philosopher on the Commission in 1981-82 with special re- sponsibility for some of the more philosophical sections of these two reports. These reports, like the rest of the Com- mission's work, were truly team efforts and I do acknowledge with gratitude that I did shamelessly accept the good influ- ences of the other very talented members of that staff. Many of the essays in this volume represent my attempts to explore some of the philosophical issues underlying the Commis- sion's work in more detail than was possible in the Com- mission's reports, though other staff members are not responsible for what I have done with those issues here. The essays appear here largely as originally published. I have edited a few papers to remove some repetition, but only when doing so did not prevent each essay from standing Vlll