Learning to Live with High Functioning Autism: A Parent's Guide for Professionals PDF
Preview Learning to Live with High Functioning Autism: A Parent's Guide for Professionals
Learning to Live with High Functioning Autism of related interest Pretending to be Normal Living with Asperger’s Syndrome Liane Holliday Willey Foreword by Tony Attwood ISBN 1 85302 749 9 Asperger’s Syndrome A Guide for Parents and Professionals Tony Attwood ISBN 1 85302 557 1 Finding Out about Asperger’s Syndrome, High Functioning Autism and PDD Gunilla Gerland ISBN 1 85302 840 1 Parents’ Education as Autism Therapists Applied Behaviour Analysis in Context Edited by Mickey Keenan, Ken P. Kerr and Karola Dillenburger Foreword by Professor Bobby Newman ISBN 1 85302 778 2 Eating an Artichoke A Mother’s Perspective on Asperger’s Syndrome Echo Fling Foreword by Tony Attwood ISBN 1 85302 711 1 The Self-Help Guide for Special Kids and their Parents Joan Matthews and James Williams ISBN 1 85302 914 9 Our Journey Through High Functioning Autism and Asperger Syndrome A Roadmap Edited by Linda Andron ISBN 1 85302 947 5 Asperger’s Syndrome, the Universe and Everything Kenneth’s Book Kenneth Hall ISBN 1 85302 930 0 Learning to Live with High Functioning Autism A Parent’s Guide for Professionals Mike Stanton Jessica Kingsley Publishers London and Philadelphia All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road, London, England W1T 4LP. Applications for the copyright owner’s written permission to reproduce any part of this publication should be addressed to the publisher. Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. The right of Mike Stanton to be identified as author of this work has been asserted by him in accordance with the Copyright, Designs and Patents Act 1988. First published in the United Kingdom in 2000 by Jessica Kingsley Publishers Ltd 116 Pentonville Road London N1 9JB, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright © 2000 Mike Stanton Second impression 2001 Third impression 2002 Library of Congress Cataloging in Publication Data Stanton, Mike, 1952- Learning to live with high functioning autism: a parent’s guide for professionals / Mike Stanton p. cm. Includes bibliographical references and index. ISBN 1-85302-915-7 (pbk : alk paper) 1. Asperger’s syndrome. I. Title. RC553.A88 S83 2000 616.89’82--dc21 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library ISBN-13: 978 1 85302 915 8 ISBN-10: 1 85302 915 7 Printed and Bound in Great Britain by Athenaeum Press, Gateshead, Tyne and Wear Contents ACKNOWLEDGEMENTS 10 AUTHOR’S NOTE 11 1 Introduction 13 2 A Parent’s Tale 17 3 Understanding Autism 21 The nature of autism 21 The range of autistic spectrum disorders 22 Definitions and diagnoses 24 4 Diagnosis 27 Difficulties with diagnosis 27 A signpost not a label 29 Our experiences 31 5 Conflict and Partnership 37 Parental responses – the worrier 38 Parental responses – the warrior 39 Breakdown and conflict 39 Partnership 44 6 Brothers and Sisters 47 7 Early Years 51 Miracle cures 51 Missing diagnoses 53 Early intervention 54 8 Childhood 59 9 Adolescence 63 Peer group changes 63 Changes to themselves 64 Adults change 65 10 Adult Life 67 Autism is for life 67 Avoiding unfortunate situations 69 Investing in autism 70 11 Myths and Insights 73 I cannot tell a lie 73 People with autism are self absorbed 75 Bursting the autistic bubble 76 ‘That’s not autism. All kids do that.’ 77 Aint misbehavin’ 78 Beam me up, Scottie! 79 Thinking like a human 80 Mild autism? 81 12 Challenging Behaviour 83 Asperger syndrome, temper tantrums and panic attacks – what it is like 83 Meltdown 86 Responding to challenging behaviour 87 I3 Mind Your Language 91 They may not realize you are talking to them 91 They may miss out on non verbal clues to meaning 92 Too much stress can overload the system 92 Hearing is not always reliable 93 Problems with meaning 93 Taking things literally 95 Being pedantic 96 Alternatives 97 I4 Difficulties at School 99 The need for partnership 99 The difficulties schools face 100 Remedial versus prosthetic models of support 101 Study skills 102 Problems with writing 103 Bullying 104 Too clever by half ? 106 I5 The Way Forward 109 Recipe for success 109 Integration and inclusion – the least restrictive environment 109 Getting it right 112 Friendship circles and buddy systems 113 Transition to secondary school 114 Diversity and choice 115 Flexi-schooling 116 The range of available interventions 118 I6 Conclusion 121 REFERENCES AND RESOURCES 123 To Dee, Matthew and Katie, this is your book as much as it is mine. Thank you for sharing it with me.
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