LAO insert Summer 2012 ak jun 10

40 Pages·2012·6.31 MB·English

Ly m p h e d e m a
Matters
A publication of the Lymphedema Association of Ontario
Summer 2012 Volume 15 Issue 2
Executive Director’s Message

by Anna Kennedy
April marked the start of our new We are extremely thankful to the I feel very fortunate that the LAO
fiscal year and we have been busy Canadian Breast Cancer Foundation now has Shannon Moore working
ever since, planning and imple- for their generous support as lead fulltime as our Outreach and Event
menting our programs and activities sponsor for the event. They are also Planner. Shannon also helps keep
for the next twelve months. hosting the luncheon speaker, Pro- the office running smoothly, taking
fessor Miles Johnston, from Sunny- care of the day-to-day details so I
Planning is already well underway brook Research Institute and the can focus on new projects, funding
for our signature event, the annual University of Toronto. and advocacy work. Her skills and
fall conference, now in its 16th experience working for the LAO
year. Although the venues have The day will end with a special the- these past three summers as an
changed over the years and the atrical presentation of women about intern, have made her a valuable
audience continues to grow, our their experiences with breast cancer member of the LAO team.
focus has always remained the and lymphedema. Of course, no
same; education and awareness for LAO conference would be complete In addition, we also have a new
both patients, those at risk and the without our traditional “Ask the Ex- summer intern to help out with all
health professionals that support perts” panel, providing you with the of our outreach activities. Aly Parry
their care. opportunity to pose questions to is a fourth year student at Guelph
knowledgeable lymphedema clini- University. She will be helping us
This year’s conference theme is cians, educators and researchers. recruit new members, promote the
Empowering Patients and Profes- fall conference, provide donor
sionals, with a stronger focus on Online registration opens July 1st analysis, and help us reach more
session that are evidence-based. An on our website. Best pricing and doctors and physicians in Ontario.
excellent roster of international ex- workshop selection options are Funding for this summer contract
perts is lined up for plenary and available on a first-come-first- position has been made possible
workshop sessions with material served basis, so we encourage you again by our government’s Canada
that is relevant to patients, those at to act soon. Summer Jobs Program.
risk, and health professionals.
Fundraising is another big focus. We Of course we are always trying to
The conference is being held at the are encouraging members who can’t dispel the myth that we have a
Courtyard Marriott in downtown participate in the Toronto walk/run large team of staff and volunteers.
Toronto with a great room rate ne- on October 16 to create their own In reality we only have two full-time
gotiated for out-of-town guests. In event and gather sponsors and sup- staff, a small board of directors and
fact we encourage all conference porters. We are in desperate need too few volunteers to help in our
delegates to consider making a for funding to support plans to ex- many activities and projects. We
weekend of it, perhaps taking in a tend our outreach to every physi- need your help.
show and getting an early start to cian in Ontario.
your Christmas shopping.
continued on page 3
Summer 2012 Lymphedema Matters
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2 Lymphedema Matters Summer 2012
President’s Message

Lymphedema Association
by Kim Gagan
of Ontario

Committed to improving
Time seems to have passed quickly the health-
the lives of people
as the LAO is already working on care field as
living with lymphedema
the second insert for the new Path- Executive Di-
ways magazine. We are delighted rector of the
MEDICAL ADVISORY BOARD
to be leading the collaboration with LAO, CLF Board member and Editor
other provincial affiliates and the of Pathways.
Miles Johnson PhD
Canadian Lymphedema Framework
Toronto Sunnybrook Centre
on this project. The magazine is a Unfortunately, Anna is too busy get-
great example of how associations ting things done to be around for
Ian Dayes MD
dedicated to the same cause can the official acceptance of the medals
Hamilton Juravinski Centre
work together sucessfully and be- on June 27, as she will be out of the

Robert Harris RMT CDT come stronger and more resource- country attending the International
Vodder International School ful. Lymphoedema Framework confer-
ence in France. This will be an im-
Donna Lue Reise RN CDT We are ex- portant event for the LAO to net-
Talspar Nursing Services tremely proud work with international colleagues,
that Anna Ken- and stay abreast of new develop-
Martina Reddick RN CDT
nedy, the LAO’s ments in lymphedema research,
Eastern Health Services Executive Direc- diagnosis and treatment.
tor received an
Anne Blair RN
official letter I want to welcome all our new indi-
Odette Cancer Centre
from her Member vidual members, therapists, corpo-

International of Parliament, rate members and advertisers. It is
Donna Cansfield, your support that ensures that the

Saskia Thiadens RN CDT advising her that LAO’s programs and services can
United States-NLN she has been continue. I encourage all ADP fitters
chosen as a recipient of the Queen as well, reading this magazine to
Shetty Lee MD Elizabeth II Diamond Jubilee med- list their services and receive the
Austria-Wittlinger Clinic als. This medal is in recognition for benefits of becoming members of
Anna’s outstanding contribution to the LAO.
Neil Piller PhD
the community through her work in Please join us today.
Australia-Flinders University

BOARD OF DIRECTORS
Continued from page 1 Message from Shannon

Kim Gagan President
Leonna DiCasmirro In particular we are looking for a I can’t express enough my excite-
Vice-President chartered accountant who can act as ment and gratitude at the opportu-
Janice Goldberg Secretary our Board Treasurer. This role does nity to take on the role of Outreach
Fran Suran Acting Treasurer not require day-to-day bookkeeping, and Event Planner. It has been an
Directors at Large but rather would provide direction, honour working at the LAO the last
supporting me with some analysis three summers and I am looking
Ruby Kreindler, Sarah Wigan
and recommendations. forward to preparing for the fall

conference and our Charity
STAFF If you have any interest in market- Challenge fundraiser.
Anna Kennedy ing, communications or fundraising,
Executive Director we also ask you to contact us. We I am also here to help you with
would love to do even more at the anything you need, so do not hesi-
Shannon Moore LAO, but we are limited by our funds tate to give me a call in the office if
Outreach and Event Planner and resources. There are only so you have any questions, and espe-
many hours in the day to work on cially if you are interested in signing
Honorary Patron the priorities where we feel we can up for the conference or fundraising
Honourable David C. Onley make the most impact. for us this summer and fall!
Lieutenant Governor of Ontario
I hope you enjoy a great summer I look forward to hearing from all of

Charitable Registration number and I hope to see many of you at you and seeing you this fall!!
87165 5049 RR0001 our fall fundraiser and conference.
Summer 2012 Lymphedema Matters 3
Ontario Lymphedema Certified Therapists
Barrie/Orillia Guelph Midland/Penetang
Cathy Petzoldt PT Renata DeForest RMT Eryn Lorriman RMT
705-794-3772 519-993-2736 (cell) 705-549-1700 www.georgianbay
[email protected] [email protected] massagetherapy.ca

Beaverton Hamilton Milton
Sarah Cowley RN RMT Donna Lue Reise RN LANA Rae Baron RMT
705-426-2894 905-385-3176 or 905-523-4999 905-878-9041
[email protected] [email protected]
Brampton
Maureen Sawyer RPT Mississauga
Angela Hunt RMT LLCC
905-495-7308 905-389-086 [email protected] Nancy Scagnetti RN RMT
www.angeladhunt.com www.msphysio.ca Mobile Therapist 905-607-8422
[email protected]
Kingston/Brockville
Brantford
Jennifer Phillips RMT Kimberly Tweedie RMT
Pamela Monarch RMT
Kingston 613-340-0306 416-569-5349
519-751-7096 ext.3414
Brockville 613-342-3333 [email protected]
www.pammonarchrmt.com

Burlington Kitchener Newmarket
Kimberly Boersen-Gladman RMT Louise Danieli RMT Rebecca Wilkinson RMT ADP
519-569-8555
905-332-6542 905-830-9700
[email protected]
www.headtofootoasis.ca www.rebeccawilkinsonrmt.com

Janet Millward RMT
Ramona Herman RMT North Bay
Ayr, Ontario 519-632-9991
905-319-2454
Susan Woodman RMT LANA
[email protected]
[email protected]
705-497-0683
Crystal Sivill RMT [email protected]
Carlos Ospina, D. Ac., MLD
519-772-1010
647-705-8995 info@
Oakville
[email protected]
carlosospinahealthsolutions.com
Caroline Bieze RMT LLCC
Durham Region Swelling Solutions 905-339-3950
519-749-0102 www.lymphcare.com www.iahp.com/cbieze
Jason Mandalentsis RMT ALT
Catherine Burt RN RMT
289-388-6080
Melody Southgate RMT Nancy Shoemaker RN RMT
[email protected]
Rachelle Wright RMT CK LLCC CDT 905-465-2929
[email protected]
Phyllis Christian RMT Leamington
905-721-3828
Freda Yako-Malott RMT Ray Vickers RMT CK
Mobile Therapist (Durham Region)
519-324-9563 Oakville/Milton 905-699-3451
Etobicoke/West Toronto www.fredayakomalott.ca [email protected]

Alison Glasbey RPT London Oshawa/Port Perry
416-251-2300
Helen Murray RN London Lymphcare Heather Cirone PT
[email protected]
Centre 519-913-0181 Park Road Physio 905-438–1500
[email protected] [email protected]

Legend
All therapists listed have all been trained in a LANA approved school where they received a minimum of 135
hours of post graduate training before obtaining their certification. The therapists are either Registered Nurses
(RN), Physiotherapists (PT), Occupational Therapists (OT) or Registered Massage Therapists (RMT) and have pro-
vided proof of certification. Those who have certified in Aqua Lymphatic Therapy are indicated with ALT.

Disclaimer
Therapists pay a fee for listing their services. The LAO is not responsible for the services performed or rates
charged.

Fees
Hourly rates for lymphedema therapy can range from $70 to $140. Insurance plans will reimburse only to the
standard provincial rates of therapy that MLD is billed under. As an example, the Registered Massage Therapists
Association of Ontario’s standard 2011 rate is $93 for 60 minutes of treatment (including HST).
4 Lymphedema Matters Summer 2012
Ottawa
Marnie Gallant RMT Authorized Fitters
Catherine Croteau RMT 416-732-5218 or 416-482-4476
613-297-9325 [email protected]

www.croteaurmt.ca Coulter’s Pharmacy London
Sasha Goudriaan RMT
www.coulterspharmacy.com
Julie Dagenais-Watson RMT ADP 416-523-8364

613-255-2255 [email protected] Dell Pharmacy
www.cancerrehabmassage.com www.dellpharmacy.com
Pam Hammond RMT
Haley Rehab Clinic 416-928-9650 Spadina & Bloor
Frans Boutique Cambridge
613-422-5061 two locations Massage Therapy Clinic
www.fransmascetomyboutique.ca
www.haleyrehab.ca
Veronica Lelchuk RMT Mansuetta Medical Garments
Louise Killens RPT 416-315-0640
Toronto 416-591-0006
Mary Hutton RN [email protected]
[email protected] McNiece T.E.N.S. Inc. SW Ontario
Nadine Maraj-Nyiri RMT www.mcniecetens.ca
Owen Sound Mobile Therapist 416-569-2280

Danuta Valleau PT [email protected] Renaissance Woman Georgetown
519-534-1788 www.youngspharmacy.com
Petra Norris RN
[email protected]
416-841-3119 Toronto and Etobicoke
ShoppersHomeHealth Care
[email protected]
Sharon Evans www.shoppershomehealthcare.com

Kinexions 519-371-8314
Catherine Paterson RMT
[email protected] The Nu Me Boutique
[email protected]
www.numeboutique.com

Peterborough
Jo-Anne Racette RMT
Yurek Home Health London
Janice Simmonds RMT 416-465-8179
www.yurekpharmacy.com
Ashburnham Massage www.massageondanforth.com

705-876-8561
Ly Raha RMT Corporate Members
Pickering 416-446-5911

Anne-Marie Craigen RMT
Lucy Romano RMT 3M Canada
416-616-8672
647-342-1801 www.3m.com
[email protected]
[email protected]
Academy of Lymphatic Studies
Richmond Hill www.acols.com
Violetta Soffe RMT
Sophia Finkel HD RMT 416-727-0020 Bauerfeind
416-318-4135 Toronto & Richmond Hill [email protected] www.bauerfeind.com
267 Finch Ave W & 8905 Bathurst St
Toronto Lymphocare Centre BSN Medical - Jobst Inc.
St.Catharines 416-531-7612 or 705-458-2156 www.jobst.com
John Mulligan RMT LANA www.torontolymphocare.com
Canadian Bandage Shoppe
905-687-1828
www.cdnbandageshop.com
www.lymphedematherapist.com Niki Travers PT
647-701-5582 Spadina & Bloor Dr. Vodder School International
Cindy Schultz RMT Massage Therapy Clinic www.vodderschool.com
Port Health Clinic 905-684-6066
[email protected] Akari Yokokawa RMT JoviPak
416-792-4400 www.careforlymph.com www.jovipak.com
Thornbury www.mahayaforesthill.com
Juzo

Esther Epp-Kaethler RN Unionville www.juzo.com
519-599-6597
[email protected] Monica McCarron RMT Linotrade Ltd.
905-305-1411 [email protected]
Tillsonberg www.labalaba.ca
Lymphedema Depot

Jeanne Magashazi RMT www.lymphedemadepot.com
Waterloo
519-842-3702
[email protected] Janmari Baas Ross RMT Lymphedivas
519-884-4848 www.lymphedivas.com
Toronto [email protected]
Paradigm Medical Inc.
Sylvia Crowhurst RMT
Bernadette Tallon RMT www.paradigmmed.com
416-537-3555
519-884-4848 [email protected]
www.lymphaticdrainage.ca Pascoe Canada
New Hamburg 519-662-9331
www.pascoecanada.com
Ann DiMenna PT
Valco/Mediven
Mobile-Toronto and Area 647-500-4771
Attention CDT trained therapists www.valco. ca
www.anndimennaphysio.com

Contact us today to learn more Venosan
about listing your services HERE www.venosan.ca
Summer 2012 Lymphedema Matters 5
Lymphedema Support Groups
BRANTFORD - Meetings are held NORTH BAY - Lymphedema TORONTO - Sessions are held on
every second Tuesday of the month Educational Workshop is offered the second Thursday of the month
from 6:00-7:30 at St. Joseph’s Life- by Caring Treatments Massage and between 10:00 am and 12:00 pm
care Centre. Register by contact- Lymphedema Clinic and will run at Wellspring in Toronto.
ing Pam Monarch at 519-751- once a season. To register please To register, please call the LAO
7096 x3414 (Mon) or 519-756- call Susan Woodman at at 416-410-2250 or
2920 x255 (Tues and Wed) 705-497-0683 877-723-0033 toll free.

OSHAWA - The group meets every
KINGSTON - The group meets 5 or
third Thursday evening of the Reimbursement for
6 times a year between September
month usually from 7 p.m. to 9 Compression Garments
and June, usually on the last
p.m. 86 Colborne St. West.
Wednesday of a month. Contact
For more information or to
Sue Davies, Breast Cancer Did you know that 75% of the cost
register call Hearth Place at
Action Kingston at of compression garments are cov-
905-579-4833
613-531-7912 ered by the Assistive Devices Pro-
gram, Ontario Ministry of Health?
OTTAWA - Both information ses-
WATERLOO REGION - The group
We encourage you to contact ADP
sions and exercise programs. To
meets monthly in the Victoria
directly for detailed information
register please call Breast
Room, Victoria Place, 290 Queen
and to access the most current list
Cancer Action Ottawa at
Street South, Kitchener on the last
of vendors and authorizers in your
613-736-5921 or visit
Tuesday of each month at 7pm.
area. Call 416-327-8804 or 1-800-
www.bcaott.ca for information.
Call Melody Southgate, RMT,
268-6021 toll free or check their

CDT at 519-749-0102
website at www.health.gov.on.ca

6 Lymphedema Matters Summer 2012
Charity Challenge 2012 Campaign Launch
JOIN US! PLAN YOUR OWN FUNDRAISER
We a pleased to announce the This year we are offering Charity Challenge fundraising tool kits for all
launch of our 2012 Charity those who want to start their own event! Included in your fundraising
Challenge fundraising campaign! package will be:

On October 16th, 2012 we will be (cid:138) Customized pledge
walking and running for our 4th forms for your walk/run
year in the Toronto ScotiaBank or event
Marathon to raise money for our (cid:138) LAO T-shirts to wear
organization. Last year in Toronto at your event*
with the help of affiliate fundrais- (cid:138) Technical, administra-
ing initiatives in Belle River, Niag- tive and marketing sup-
ara and Thunder Bay, we were port to get your event up
able to raise $25,000. For 2012, and running
our goal is to top that, and raise (cid:138) Online donation
$30,000! But we can’t do it with- management and charita-
out your support. ble receipting
(cid:138) Lymphedema
We encourage everyone who is information pamphlets to hand out to participants and possible
interested in joining us this fall to sponsors when seeking support!
contact us and start fundraising!
* with a minimum $35 pledge per fundraising participant
For more information on how to join or start your own team, contact Shannon at 416-410-2250

Lymphedema
Annual membership now
Matters offers two valuable
subscriptions for one price

is the official publication of the

Lymphedema Association
Membership has
of Ontario (LAO).

Advertising its privileges
Queries about rates and deadlines for
advertising should be directed
to the LAO office.
Pathways-Canada’s Lymphedema Magazine is a full colour publi-

cation featuring articles and medical updates about lymphedema
Disclaimer
on a national and international level.
The LAO does not guarantee,
warrant or endorse any product or
Lymphedema Matters continues to provide those living in Ontario
service advertised in this publication.
with relevant news from the Lymphedema Association and fea-

tures local resources for patients and professionals.
Lymphedema Association
of Ontario An annual membership fee also includes discounts to educational
4161 Dundas Street West events such as the annual lymphedema conference and informa-
Toronto, Ontario M8X 1Y2
tional webinars plus free information pamphlets for distribution.
Toll Free: 1-877-723-0033

Fax: [phone] Consider supporting us with your membership today.
[email protected] www.lymphontario.ca
www.lymphontario.ca
Summer 2012 Lymphedema Matters 7
Plenary Sessions and Workshops
(cid:132) The Chronic Care Model
Register before
(cid:132) The Science of Compression
September 14
(cid:132) Lymphedema Basics-101
(cid:132) Self-Care Management for best pricing and
(cid:132) Challenging Case Studies workshop selection
(cid:132) Creating Your Own Case Studies
(cid:132) Additional Treatment Options
(cid:132) Hospital Program Clinicians Session
(cid:132) Exercise and Lymphedema
(cid:132) Ethnodrama-Theatrical Presentation

(cid:132) Ask the Expert Panel
Become a member today
to receive reduced
Special CBCF luncheon
conference rates and a
guest speaker
subscription to Pathways
Professor Miles Johnston
Advances in Lymphatic Research
Featuring International Experts

(cid:132) Anna Towers (cid:132) David Keast NEW this year
(cid:132) Robert Harris (cid:132) Margie McNeely You can now register online
(cid:132) Andreas and Hildegard Wittlinger of through our website
the Vodder Akademie in Austria
www.lymphontario.ca
plus additional workshop facilitators
Take advantage of the SPECIAL LAO CONFERENCE RATE of $119
when booking your stay at the Courtyard Downtown Marriott
With such a low hotel price, why not make a weekend out of it!
Book your reservation by calling 416-924-0611 before
September 25, 2012 as rooms are subject to availability
8 Lymphedema Matters Summer 2012
Atlantic Clinical
Lymphedema Network
Summer 2012
Update from the ACLN
Thirteen members of the Atlantic Clinical Lymphedema Network (ACLN)
met in Moncton on May 26 and 27 for a two day advanced fitters course
and annual meeting hosted at the Georges Dumont Hospital. One of the
therapists from Newfoundland joined the Sunday meeting via
teleconference.
Saturday, Lynn Vaillancourt of Valco Products in Montreal, presented a
session on appropriate fitting positions and fitting challenges. She
discussed the new compression garment fabrics (Medi Sensoo), the
latest colours and the Juxta-fit products. As well, many difficult to fit
case studies were presented for legs, arms, genital and pediatrics with
active discussion around problem solving. The new representative for
Valco in Atlantic Canada, Charlotte Scott, attended as she had
previously been a garment fitter.
In the afternoon, Louise Godin and Sophie Doiron presented a summary
of the Breast Cancer Rehabilitation Course they attended in Chicago
taught by Julia Armstrong from Australia. New techniques for treating
lymphatic cording and breast edema were reviewed and demonstrated.
Sunday, the ACLN reviewed the accomplishments of the previous year:
• Developed a common education booklet to be printed at individual
institutions
• Produced an ACLN banner and logo for awareness raising events
• Many members provided in-services and educate to the public and
health care professionals about lymphedema and treatment
• Produced an ACLN insert and participated in Pathways magazine
distribution
We discussed and redefined our purpose and goals for the coming year:
• To host a course for advanced lymphedema treatment techniques in
2013
• Continue our networking through quarterly teleconferences
• Attempt to identify members of the public interested in participating
in a stakeholders meeting aimed at pursuing an Atlantic Lymphedema
Association
Getting together face-to-face gives us an opportunity to share ideas,
experiences and support each other. It was another successful ACLN
weekend!
Andrea Tilley, PT CDT, New Brunswick
ACLN - page 1
Atlantic Clinical Lymphedema Network Summer 2012
Breast Cancer Retreat Gander, NL Update from Central Health, NL
Central Health is one of four regional
The thirteenth Annual Breast Cancer
health authorities in Newfoundland and
Retreat for Newfoundland and Labrador
Labrador. In November, 2011, it opened a
was held in Gander, NL. Approximately
community based lymphedema
180 wonderful women from our province
management program that would accept
attended the three day event. The agenda
referrals of both cancer and non cancer
for the event included a two hour question
related lower extremity lymphedema. The
and answer period with a medical panel,
clinic, located in Grand Falls-Windsor is
reconstruction options following breast
staffed by a certified lymphedema
cancer surgery, the role of a Cancer
therapist who provides services
Patient Navigator, hair and nail care
throughout the region of Central Health.
following breast cancer, understanding
The program has focused on three main
your pathology, lymphedema, massage
components: program promotion,
therapy and dragon boating, just to name
operating a lymphedema clinic, and
a few. The fashion show was a hit as well
community support. There has been
as the “Laughter is the Best Medicine”
several education sessions provided across
session with well known NL comedian Amy
the region to health care providers
House.
including physicians to promote education
and awareness of lymphedema and its
The session on lymphedema was delivered
management.
by Beverly Lanning and Jean Ann Ryan,
both Lymphedema Nurse Coordinators The clinic provides assessment, treatment
from Central and Eastern Health. Topics and management according to best
included what is lymphedema, stages of practices for patients referred to the clinic.
lymphedema, best practice guidelines for In keeping with a community focus, the
the prevention of lymphedema and program aims to train “champions” such
treatment based on Manual Lymphatic as continuing care nurses in the provision
Drainage, Compression Therapy, Exercise of care for lower extremity lymphedema.
and Skin Care. This session was one of the This would include being able to educate
highest attended at the retreat and many their patients in lymphedema and risk
women had wonderful questions at the reduction practices, as well, nurses will
end of the session. learn the application techniques for
compression bandaging. The Regional
Congratulations to the organizers of the Lymphedema Nurse will provide the
retreat and a special thank you to the resources and tools to assist with
people of Gander for showing such warm lymphedema management in the
hospitality. community with a goal to have patients
self manage this chronic health condition.
Jean Ann Ryan, RN BN CDT
Lymphedema Coordinator
Bev Lanning, RN CLT-LANA
Eastern Health, Newfoundland
Regional Lymphedema Nurse
Central Health, Newfoundland
ACLN - page 2