International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence PDF
Preview International Perspectives on End-of-Life Law Reform: Politics, Persuasion and Persistence
international perspectives on end-of-life law reform Muchhasbeenwrittenaboutwhetherend-of-lifelawshouldchangeandwhatthatlaw shouldbe.However,thebarriersandfacilitatorsofsuchchanges–lawreformperspec- tives–havebeenvirtuallyignored.Whydosomanyattemptstochangethelawfailbut others are successful? International Perspectives on End-of-Life Law Reform aims to address this question by drawing on ten case studies of end-of-life law reform from the United Kingdom, the United States, Canada, the Netherlands, Belgium and Australia. Writtenbyleadingend-of-lifescholars,thebook’schaptersblendperspectivesfromlaw, medicine,bioethicsandsociologytoexaminesustainedreformeffortstopermitassisted dyingandchangethelawaboutwithholdingandwithdrawinglife-sustainingtreatment. Findingsfromthisbooknotonlyshedlightonchangingend-of-lifelawbutalsoprovide insight more generally into how and why law reform succeeds in complex and contro- versialsocialpolicyareas. ben p. white isProfessorofEnd-of-LifeLawandRegulationintheAustralianCentre forHealthLawResearchintheFacultyofBusinessandLaw,QueenslandUniversityof Technology. His research expertise focuses on end-of-life decision-making, and as a formerlawreformcommissioner,hehashadalong-standinginvolvementinlawreform. lindywillmottisProfessorofLawintheAustralianCentreforHealthLawResearch (of which she was a foundation Director) in the Faculty of Business and Law, QueenslandUniversityofTechnology.Shehasextensivelyresearchedintheend-of-life field,andhashadbroadpracticalexperienceasalawreformcommissioner. CAMBRIDGE BIOETHICS AND LAW This series of books – formerly called Cambridge Law, Medicine and Ethics – was foundedbyCambridgeUniversityPresswithAlexanderMcCallSmithasitsfirsteditorin 2003. It focuses on the law’s complex and troubled relationship with medicine across boththedevelopedandthedevelopingworld.Inthepasttwentyyears,wehaveseenin manycountriesincreasingresorttothecourtsbydissatisfiedpatientsandagrowinguseof the courts to attempt to resolve intractable ethical dilemmas. At the same time, legisla- turesacrosstheworldhavestruggledtoaddressthequestionsposedbyboththesuccesses andthefailuresofmodernmedicine,whileinternationalorganisationssuchastheWHO and UNESCO now regularly address issues of medical law. It follows that we would expect ethical and policy questions to be integral to the analysis of the legal issues discussed in this series. The series responds to the high profile of medical law in universities, inlegal andmedical practice,as wellas inpublic andpoliticalaffairs. We seektoreflecttheevidencethatmanymajorhealth-relatedpolicyandbioethicsdebates in the UK, Europe and the international community over the past two decades have involved a strong medical law dimension. With that in mind, we seek to address how legalanalysismighthaveatrans-jurisdictionalandinternationalrelevance.Organreten- tion, embryonic stem cell research, physician-assisted suicide and the allocation of resources to fund health care are but a few examples among many. The emphasis of thisseriesisthusonmattersofpublicconcernand/orpracticalsignificance.Welookfor booksthatcouldmakeadifferencetothedevelopmentofmedicallawandenhancethe roleofmedico-legaldebateinpolicycircles.Thatisnottosaythatwelackinterestinthe important theoretical dimensions of the subject, but we aim to ensure that theoretical debateisgroundedintherealitiesofhowthelawdoesandshouldinteractwithmedicine andhealthcare. SeriesEditors ProfessorGraemeLaurie,UniversityofEdinburgh ProfessorRichardAshcroft,City,UniversityofLondon BooksintheSeries MarcusRadetzki,MarianRadetzkiandNiklasJuthGenesandInsurance:Ethical,Legal andEconomicIssues RuthMacklinDoubleStandardsinMedicalResearchinDevelopingCountries DonnaDickensonPropertyintheBody:FeministPerspectives MattiHäyry,RuthChadwick,VilhjálmurÁrnasonandGardarÁrnasonTheEthicsand GovernanceofHumanGeneticDatabases:EuropeanPerspectives J.K.MasonTheTroubledPregnancy:LegalWrongsandRightsinReproduction DanielSperlingPosthumousInterests:LegalandEthicalPerspectives KeithSyrettLaw,LegitimacyandtheRationingofHealthCare:AContextualand ComparativePerspective AlasdairMacleanAutonomy,InformedConsentandMedicalLaw:ARelationalChange HeatherWiddowsandCarolineMullenTheGovernanceofGeneticInformation:Who Decides? DavidPriceHumanTissueinTransplantationandResearch:AModelLegalandEthical DonationFramework MattiHäyryRationalityandtheGeneticChallenge:MakingPeopleBetter? MaryDonnellyHealthcareDecision-MakingandtheLaw:Autonomy,Capacityandthe LimitsofLiberalism Anne-MareeFarrell,DavidPriceandMuireannQuigleyOrganShortage:Ethics,Law andPragmatism SaraFovargueXenotransplantationandRisk:RegulatingaDevelopingBiotechnology JohnCoggonWhatMakesHealthPublic?ACriticalEvaluationofMoral,Legal,and PoliticalClaimsinPublicHealth MarkTaylorGeneticDataandtheLaw:ACriticalPerspectiveonPrivacyProtection Anne-MareeFarrellThePoliticsofBlood:Ethics,InnovationandtheRegulationofRisk StephenW.SmithEnd-of-LifeDecisionsinMedicalCare:PrinciplesandPoliciesfor RegulatingtheDyingProcess MichaelParkerEthicalProblemsandGeneticsPractice WilliamW.LowrancePrivacy,Confidentiality,andHealthResearch KerryLynnMacintoshHumanCloning:FourFallaciesandTheirLegalConsequence HeatherWiddowsTheConnectedSelf:TheEthicsandGovernanceoftheGenetic Individual AmelAlghrani,RebeccaBennettandSuzanneOstBioethics,MedicineandtheCriminal LawVolumeI:TheCriminalLawandBioethicalConflict:WalkingtheTightrope DanielleGriffithsandAndrewSandersBioethics,MedicineandtheCriminalLaw VolumeII:Medicine,CrimeandSociety MargaretBrazierandSuzanneOstBioethics,MedicineandtheCriminalLawVolume III:MedicineandBioethicsintheTheatreoftheCriminalProcess SigridSterckx,KasperRausandFreddyMortierContinuousSedationattheEndofLife: Ethical,ClinicalandLegalPerspectives A.M.Viens,JohnCoggonandAnthonyS.KesselCriminalLaw,PhilosophyandPublic HealthPractice RuthChadwick,MairiLevittandDarrenShickleTheRighttoKnowandtheRightNot toKnow:GeneticPrivacyandResponsibility EleanorD.KinneyTheAffordableCareActandMedicareinComparativeContext KatriLõhmusCaringAutonomy:EuropeanHumanRightsLawandtheChallengeof Individualism CatherineStantonandHannahQuirkCriminalisingContagion:LegalandEthical ChallengesofDiseaseTransmissionandtheCriminalLaw SharonaHoffmanElectronicHealthRecordsandMedicalBigData:LawandPolicy BarbaraPrainsackandAlenaBuyxSolidarityinBiomedicineandBeyond CamilliaKongMentalCapacityinRelationship:Decision-Making,Dialogue,and Autonomy OliverQuickRegulatingPatientSafety:TheEndofProfessionalDominance? ThanaCristinadeCamposTheGlobalHealthCrisis:EthicalResponsibilities JonathanIves,MichaelDunnandAlanCribbEmpiricalBioethics:Theoreticaland PracticalPerspectives AlanMerryandWarrenBrookbanksMerryandMcCallSmith’sErrors,Medicineandthe Law(secondedition) DonnaDickensonPropertyintheBody:FeministPerspectives(secondedition) RosieHardingDutiestoCare:Dementia,RelationalityandLaw RuudterMeulenSolidarityandJusticeinHealthandSocialCare DavidAlbertJones,ChrisGastmansandCalumMacKellarEuthanasiaandAssisted Suicide:LessonsfromBelgium MuireannQuigleySelf-Ownership,PropertyRights,andtheHumanBody:ALegal Perspective FrançoiseBaylisandAliceDregerBioethicsinAction JohnKeownEuthanasia,EthicsandPublicPolicy:AnArgumentagainstLegislation (secondedition) AmelAlghraniRegulatingAssistedReproductiveTechnologies:NewHorizons BrittavanBeers,SigridSterckxandDonnaDickensonPersonalisedMedicine,Individual ChoiceandtheCommonGood DavidG.KirchhofferandBernadetteJ.RichardsBeyondAutonomy:Limitsand AlternativestoInformedConsentinResearchEthicsandLaw MarkusWolfensbergerandAnthonyWrigleyTrustinMedicine:ItsNature,Justification, Significance,andDecline CatrionaA.W.McMillanTheHumanEmbryoinvitro:BreakingtheLegalStalemate BenP.WhiteandLindyWillmottInternationalPerspectivesonEnd-of-LifeLawReform: Politics,PersuasionandPersistence International Perspectives on End-of-Life Law Reform politics, persuasion and persistence Edited by BEN P. WHITE Queensland University of Technology LINDY WILLMOTT Queensland University of Technology UniversityPrintingHouse,Cambridgecb28bs,UnitedKingdom OneLibertyPlaza,20thFloor,NewYork,ny10006,USA 477WilliamstownRoad,PortMelbourne,vic3207,Australia 314–321,3rdFloor,Plot3,SplendorForum,JasolaDistrictCentre,NewDelhi–110025,India 103PenangRoad,#05–06/07,VisioncrestCommercial,Singapore238467 CambridgeUniversityPressispartoftheUniversityofCambridge. ItfurtherstheUniversity’smissionbydisseminatingknowledgeinthepursuitof education,learning,andresearchatthehighestinternationallevelsofexcellence. www.cambridge.org Informationonthistitle:www.cambridge.org/9781108489775 doi:10.1017/9781108779364 ©CambridgeUniversityPress2021 Thispublicationisincopyright.Subjecttostatutoryexception andtotheprovisionsofrelevantcollectivelicensingagreements, noreproductionofanypartmaytakeplacewithoutthewritten permissionofCambridgeUniversityPress. Firstpublished2021 AcataloguerecordforthispublicationisavailablefromtheBritishLibrary. LibraryofCongressCataloging-in-PublicationData names:White,Ben,1975May10–editor.|Willmott,Lindy,editor. title:Internationalperspectivesonend-of-lifelawreform:politics,persuasion,andpersistence/edited byBenjaminPeterWhite,QueenslandUniversityofTechnology;LindyWillmott,Queensland UniversityofTechnology. description:Cambridge,UnitedKingdom;Newyork,NY:CambridgeUniversityPress,2021.| Series:Cambridgebioethicsandlaw|Includesindex. identifiers:lccn2021025353(print)|lccn2021025354(ebook)|isbn9781108489775(hardback)| isbn9781108747516(paperback)|isbn9781108779364(epub) subjects:lcsh:Righttodie–Lawandlegislation.|Euthanasia–Lawandlegislation.| Assistedsuicide–Lawandlegislation.|Bioethics.|Lawreform.|BISAC:LAW/MedicalLaw& Legislation|LAW/MedicalLaw&Legislation classification:lcck3611.e95i582021(print)|lcck3611.e95(ebook)|ddc344.04/197–dc23 LCrecordavailableathttps://lccn.loc.gov/2021025353 LCebookrecordavailableathttps://lccn.loc.gov/2021025354 isbn978-1-108-48977-5Hardback CambridgeUniversityPresshasnoresponsibilityforthepersistenceoraccuracy ofURLsforexternalorthird-partyinternetwebsitesreferredtointhispublication anddoesnotguaranteethatanycontentonsuchwebsitesis,orwillremain, accurateorappropriate. Contents Preface page ix About the Editors xi Listof Contributors xiii Table of Cases xix Table of Statutes, Bills and Regulations xxv 1 End-of-LifeLaw Reform: Context and Challenges 1 Ben P. White and Lindy Willmott 2 The Path from Rodriguez to Bill C-14and Beyond: Lessons about MAiD LawReform from Canada 17 Jocelyn Downie andKate Scallion 3 The Extension of the BelgianEuthanasia Law toMinors in2014 40 Kasper Raus, Luc DeliensandKenneth Chambaere 4 The Role of Scientific Evaluationsof the Dutch Termination ofLife onRequestand Assisted Suicide(Review Procedure) Act: Old Law, New Boundaries 63 Agnesvan der Heide, Johan Legemaate,Johannes (Hans) J.M. van Delden andBregje Onwuteaka-Philipsen 5 The Challenging Path toVoluntary Assisted Dying Law Reform in Australia:Victoria as aSuccessful Case Study 84 Lindy WillmottandBen P. White 6 Should Assisted DyingRequire the Consent of aHigh Court Judge? 113 Penney Lewis vii viii Contents 7 Aid in Dyingin the United States: Past, Present and Future 145 David Orentlicher 8 The MedicalRegulatoras Law Reformer: Québec’s Act Respecting End-of-LifeCare 165 MonaGupta 9 ExtrajudicialResolution of MedicalFutility Disputes: Key Factors in Establishing and Dismantling the Texas AdvanceDirectives Act 180 ThaddeusMason Pope 10 Challenging Mandatory Court Hearings for People in Vegetative and Minimally Conscious States: How to Change the Law 202 Celia Kitzinger andJennyKitzinger 11 Withholdingand Withdrawing Life-Prolonging Treatment and the Relevance of Patients’ Wishes: Reforming the Mental Capacity Act2005 232 Emily Jackson 12 International Perspectives onReforming End-of-Life Law 250 Ben P. White, Lindy Willmott,Jocelyn Downie,PenneyLewis, Celia Kitzinger, JennyKitzinger,Kenneth Chambaere, ThaddeusMason Pope, Luc Deliens,Mona Gupta, Emily Jackson, Agnesvan der Heide, Eliana Close,Katrine Del Villar and Jodhi Rutherford Index 277
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