Instruments for Clinical Health-Care Research PDF
Preview Instruments for Clinical Health-Care Research
Page i Instruments for Clinical HealthCare Research Page ii Biotherapy: A Comprehensive Overview Rieger Bone Marrow Transplantation: Administrative and Clinical Strategies Buchsel/Whedon Bone Marrow Transplantation: Principles, Practice, and Nursing Insights Whedon Oncology Nursing Society's Building a Legacy: Voices of Oncology Nurses Nevidjon Cancer and HIV Clinical Nutrition Pocket Guide Wilkes Cancer Chemotherapy: A Nursing Process Approach, Second Edition Barton Burke/Wilkes/Ingwersen Cancer Nursing Principles and Practice, Fourth Edition Groenwald/Frogge/Goodman/Yarbro Cancer Pain Management, Second Edition McGuire/Yarbro/Ferrell Cancer Symptom Management Groenwald/Frogge/Goodman/Yarbro Cancer Symptom Management: Patient SelfCare Guides Groenwald/Frogge/Goodman/Yarbro Chemotherapy Care Plans: Designs for Nursing Care Barton Burke/Wilkes/Ingwersen A Clinical Guide to Stem Cell and Bone Marrow Transplantation Shapiro/Davison/Rust A Clinical Guide to Cancer Nursing: A Companion to Cancer Nursing, Third Edition Groenwald/Frogge/Goodman/Yarbro Comprehensive Nursing Review, Second Edition Groenwald/Frogge/Goodman/Yarbro Contemporary Issues in Breast Cancer Hassey Dow Handbook of Oncology Nursing, Second Edition Gross/Johnson Hospice and Palliative Care: Concepts and Practice Sheehan/Forman Oncology Nursing Society's Instruments for Clinical HealthCare Research, Second Edition FrankStromborg/Olsen Memory Bank for Chemotherapy, Second Edition Preston/Wilfinger Oncogenes, Second Edition Cooper Oncology Nursing Drug Reference Wilkes/Ingwersen/Barton Burke Oncology Nursing Homecare Handbook Barton Burke Oncology Nursing in the Ambulatory Setting Buchsel/Yarbro Oncology Nursing Society's Suffering: Human Dimensions of Pain and Illness Ferrell Women and Cancer Moore et al. Page iii Instruments for Clinical HealthCare Research Second Edition Editors Marilyn FrankStromborg, RN, EdD, FAAN, JD Chair and Presidential Research Professor School of Nursing Northern Illinois University DeKalb, Illinois Sharon J. Olsen, RN, MS, AOCN Instructor The Johns Hopkins University School of Nursing Baltimore, Maryland With Foreword by Nola J. Pender, RN, PhD, FAAN Page iv World Headquarters Jones and Bartlett Publishers 40 Tall Pine Drive Sudbury, MA 01776 9784435000 [email protected] www.jbpub.com Jones and Bartlett Publishers International Barb House, Barb Mews London W6 7PA UK Jones and Bartlett Publishers Canada P.O. Box 19020 Toronto, ON M5S 1X1 CANADA Copyright (c) 1997, 1992 by Jones and Bartlett Publishers, Inc. All rights reserved. No part of the material protected by the copyright notice may be reproduced or utilized in any form, electronic or mechanical, including photocopying, recording, or by any information storage and retrieval system, without written permission from the copyright owner. Library of Congress Catalogingin Publication Data Instruments for clinical healthcare research / editors, Marilyn Frank Stromborg, Sharon J. Olsen; with foreword by Nola J. Pender. 2nd ed. p. cm. (Jones and Bartlett series in oncology) Rev. ed. of: Instruments for clinical nursing research. c1988. Includes bibliographical references and index. ISBN 0763703168 1. Nursing assessment. I. FrankStromborg, Marilyn. II. Olsen, Sharon J. III. Instruments for clinical nursing research. IV. Series. [DNLM: 1. Nursing. 2. Researchmethods. WY 20.5 159 1997] RT48.I57 1997 610.73'072dc21 DNLM/DLC for Library of Congress 973049 CIP Production Editor: Marilyn E. Rash Editorial Production Service: Tower Graphics Typesetting: Publishers' Design and Production Services, Inc. Cover Design: Hannus Design Associates Printing and Binding: Hamilton Printing Company Printed in the United States of America 01 00 99 98 10 9 8 7 6 5 4 3 2 Page v Were there none who were discontented with what they have, the world would never reach anything better. Florence Nightingale This book is dedicated to my mother, Rosanne KrcekFrank, R.N., M.S., Professor Emeritus, School of Nursing, Northern Illinois University, DeKalb, Illinois. She taught nursing for 17 years at the NIU School of Nursing, and led the way toward advanced practice nursing years before the term had been coined. Striving for excellence was her creed in the classroom as well as in life. Marilyn FrankStromborg Page vii CONTENTS Foreword xi Nola J. Pender Preface xiii Contributors xvii I. Overview 1 1. Evaluating Instruments for Use in Clinical Nursing Research 3 Sharon F. Jacobson 2. Tool Adaptation for Socioeconomically Disadvantaged Populations 20 Sally P. Weinrich, Marilyn D. Boyd, and Barbara D. Powe 3. Measurement issues with Children and Adolescents 31 Debra P. Hymovich 4. Measurement issues with the Elderly 44 Joyce H. Rasin 5. Measurement issues Concerning Linguistic Translations 54 Claudette G. Varricchio 6. Physiologic Measurement Issues 64 Freda G. DeKeyser and Linda C. Pugh II. Instruments for Assessing Health and Function 73 7. Measuring Function 75 Therese Richmond, Ruth McCorkle, Lorraine Tulman, and Jacqueline Fawcett 8. Measuring Cognitive Status 86 Marquis D. Foreman 9. Single Instruments for Measuring Quality of Life 114 Geraldine V. Padilla and Marilyn FrankStromborg 10. Multiple Instruments for Measuring Quality of Life 135 Hannah Dean 11. Social Support: Conceptualization and Measurement Instruments 149 Ada M. Lindsey 12. Measuring Coping 177 Jo Ann Wegmann 13. Measuring Hope 189 Martha H. Stoner 14. Instruments to Measure Aspects of Spirituality 202 Jan M. EllerhorstRyan 15. Measuring Body Image 213 Julie F. Robertson and Judy M. Diekmann Page viii 16. Measuring Sexuality: Physiologic, Psychologic, and Relationship 225 Dimensions Saundra E. Saunders, Susan Heame Kaempfer, and Susan Gross Fisher 17. Measuring Dietary Intake and Nutritional Outcomes 247 Nancy A. Stotts and Nancy Bergstrom 18. Measuring Sleep 264 Felissa L. Cohen 19. Attitudes Toward Chronic Illness 286 Rebecca F. Cohen 20. Selecting a Tool for Measuring Cancer Attitudes 303 Nancy Burns 21. Measuring Family Outcomes 319 Betty R. Ferrell and Michelle Rhiner 22. Measuring Anxiety 329 Patricia M. Grimm 23. Measuring Depression 342 Jeannie V. Pasacreta III. Instruments for Assessing HealthPromotion Activities 361 24. Measuring Healthy Lifestyle 363 Ann Malone Berger and Susan Noble Walker 25. Measuring SelfCare Activities 378 Marilyn J. Dodd 26. Instruments for Measuring Breast SelfExamination 389 Victoria Champion 27. Measuring InformationSeeking Behaviors and DecisionMaking 401 Preferences Caroline BagleyBurnett and Bettyann Heppler IV. Instruments for Assessing Clinical Problems 421 28. Measuring Alterations in Taste and Smell 423 Roberta Anne Strohl 29. Measuring Bowel Elimination 435 Susan C. McMillan and Linda BartkowskiDodds 30. Measuring Cardiac Parameters 445 Susan J. Quaal 31. Measuring Physiologic Parameters in Obstetric Nursing 459 Jana Lauderdale 32. Measuring Dyspnea 470 Mary L. Scott 33. Measuring Fatigue 482 Barbara F. Piper Page ix 34. Measuring Mobility and Potential for Falls 497 Ann Marie Spellbring and Judith W. Ryan 35. Measuring Nausea, Vomiting, and Retching 509 Verna A. Rhodes and Roxanne W. McDaniel 36. Assessing the Oral Cavity 519 Sharon Ann Hyland 37. Measuring Pain 528 Deborah B. McGuire 38. Measuring Skin Integrity 565 Barbara J. Braden and Rita A. Frantz 39. Assessing Vaginitis 583 Marcia M. Grant and Sue B. Davidson Index 601 Page xi FOREWORD Consumers' demand for accountability in health care has increased the need for relevant, reliable, and valid instruments for measuring the actual outcomes of care. Evaluating only the procedures that direct care or the processes through which care is provided will no longer suffice without also assessing whether the care given makes a difference in the lives of care recipients. In an era of cost consciousness and economic constraint, tools for assessing a wide array of nursesensitive biopsychosocial outcomes will be essential as attempts are made to document the impact of care delivered by a wide array of health professionals. Databases must be put in place so that the data collected in the everyday activities of patient care, such as history taking or psychosocial and physical assessment, can be used in research as well as for collaborative decision making by the patient and healthcare professionals. The patient's level of health, adequacy of functioning, healthpromotion activities, and the presence or absence of clinical problems are areas that must be rigorously measured in comprehensive nursing assessment. This book provides a rich compilation of research instruments for use in clinical research to measure phenomena of critical concern to nursing. An important feature of this second edition of Instruments for Clinical HealthCare Research is to focus on creating or adapting tools for use with vulnerable populations, such as the socioeconomically disadvantaged, children, and the elderly. Furthermore, a separate section focuses on assessing healthpromotion activities, an area frequently neglected in other health measurement handbooks. A chapter on evaluating family outcomes expands measurement issues to address aggregates. You will find this new edition a valuable resource for both the development and use of "stateofthescience" instrumentation in nursing research and clinical practice. The roster of contributing experts is impressive. As nurses become increasingly responsible for delivering primary care and tertiary care in various settings, measuring the outcomes of care will be essential. This book will be one of the references you will turn to often to provide you with the latest information on measuring health parameters and the clinical status of individuals of all ages to whom you provide care. NOLA J. PENDER, RN, PHD, FAAN PROFESSOR AND ASSOCIATE DEAN FOR ACADEMIC AFFAIRS AND RESEARCH SCHOOL OF NURSING THE UNIVERSITY OF MICHIGAN
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