Improving the Lives of People with Dementia through Technology: Interdisciplinary Network for Dementia Utilising Current Technology

264 Pages·2022·3.362 MB·English

by  Martin Orrell, Déborah Oliveira, Orii McDermott, Frans R. J. Verhey, Fania C.M. Dassen, Rose-Marie Dröes

Improving the Lives of People With
Dementia Through Technology
This book explores the practical application of recent improvements in technology for
people living with dementia and highlights the positive outcomes on care, quality of
life and services on patients through exploration of 15 research projects to redefine the
future of dementia care.
Using research compiled in collaboration with leading universities and organisations
across Europe, this book demonstrates how INDUCT’s (Interdisciplinary Network for
Dementia Utilising Current Technology’s) findings resulted in implications for practical
cognitive and social factors to improve the usability of technology, evaluating the
effectiveness of specific contemporary technology, and tracing facilitators and barriers
for implementation of technology in dementia care.
Featuring a unique training programme along with a wide range of patient-
public involvement, this state-of-the-art volume will be essential reading for
researchers, academics and scholars in the fields of dementia and mental health
research, gerontology, psychology and nursing.
Martin Orrell is Director of the Institute of Mental Health, University of Nottingham,
United Kingdom.
Déborah Oliveira is Lecturer and Researcher on long-term care, dementia, and
stigma, Federal University of Sao Paulo (UNIFESP), Sao Paulo, Brazil, and Universidad
Andrés Bello, Chile.
Orii McDermott is Senior Research Fellow at the Institute of Mental Health,
University of Nottingham, United Kingdom.
Frans R. J. Verhey is Professor of Geriatric Psychiatry/Neuropsychiatry at Maastricht
University, the Netherlands.
Fania C.M. Dassen is Project Manager at the Alzheimer Center Limburg, Maastricht
University, the Netherlands.
Rose-Marie Dröes is Emeritus Professor of Psychosocial Care for people with dementia
and head of the research group ‘Care and support in dementia’ at the Department of
Psychiatry of Amsterdam University Medical Centers, the Netherlands.

Improving the Lives of People
With Dementia Through
Technology
Interdisciplinary Network for Dementia
Utilising Current Technology
Edited by Martin Orrell,
Déborah Oliveira, Orii McDermott,
Frans R. J. Verhey, Fania C.M. Dassen
and Rose-Marie Dröes
First published 2023
by Routledge
4 Park Square, Milton Park, Abingdon, Oxon OX14 4RN
and by Routledge
605 Third Avenue, New York, NY 10158
Routledge is an imprint of the Taylor & Francis Group, an informa business
© 2023 selection and editorial matter, Martin Orrell, Déborah Oliveira, Orii
McDermott, Frans R. J. Verhey, Fania C.M. Dassen and Rose-Marie Dröes;
individual chapters, the contributors
The right of Martin Orrell, Déborah Oliveira, Orii McDermott, Frans R. J. Verhey,
Fania C.M. Dassen and Rose-Marie Dröes to be identified as the authors of the
editorial material, and of the authors for their individual chapters, has been asserted in
accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988.
All rights reserved. No part of this book may be reprinted or reproduced or
utilised in any form or by any electronic, mechanical, or other means, now known
or hereafter invented, including photocopying and recording, or in any information
storage or retrieval system, without permission in writing from the publishers.
Trademark notice: Product or corporate names may be trademarks or registered
trademarks, and are used only for identification and explanation without intent to infringe.
British Library Cataloguing-in-Publication Data
A catalogue record for this book is available from the British Library
Library of Congress Cataloging-in-Publication Data
Names: Orrell, Martin, editor. | Oliveira, Deborah, editor. | McDermott,
Orii, editor. | Verhey, F. R. J. (Franciscus Rochus Jozef), 1955– editor. |
Dassen, Fania, editor. | Dröes, R. M. (Rose-Marie), 1956– editor.
Title: Improving the lives of people with dementia through technology :
interdisciplinary network for dementia utilising current technology /
edited by Martin Orrell, Déborah Oliveira, Orii McDermott,
Frans R.J. Verhey, Fania Dassen, and Rose-Marie Dröes.
Description: Abingdon, Oxon ; New York, NY : Routledge, 2023. |
Series: Aging and mental health research | Includes bibliographical
references and index.
Identifiers: LCCN 2022025970 (print) | LCCN 2022025971 (ebook) |
ISBN 9781032226675 (hardback) | ISBN 9781032265933 (paperback) |
ISBN 9781003289005 (ebook)
Subjects: LCSH: Dementia. | Dementia—Patients—Care—Technological
innovations. | Self-help devices for people with disabilities. | Assistive
computer technology.
Classification: LCC RC521 .I493 2023 (print) | LCC RC521 (ebook) |
DDC 616.8/31—dc23/eng/20220824
LC record available at https://lccn.loc.gov/2022025970
LC ebook record available at https://lccn.loc.gov/2022025971
ISBN: 978-1-032-22667-5 (hbk)
ISBN: 978-1-032-26593-3 (pbk)
ISBN: 978-1-003-28900-5 (ebk)
DOI: 10.4324/9781003289005
Typeset in Bembo
by Apex CoVantage, LLC
Contents
List of Figures viii
List of Tables x
About the Editors and Contributors xi
1 An introduction to the INDUCT programme 1
MARTIN ORRELL, DÉBORAH OLIVEIRA, ORII MCDERMOTT,
FRANS R.J. VERHEY, ROSE-MARIE DRÖES
PART 1
Key components of the INDUCT network 15
2 The unique training programme of INDUCT 17
FANIA C.M. DASSEN, SARA LAUREEN BARTELS, HANNAH CHRISTIE,
LIEVE VAN DEN BLOCK, MARJOLEIN DE VUGT, FRANS R.J. VERHEY
3 Perspectives on public involvement activities 30
ANA DIAZ-PONCE, DIANNE GOVE, SÉBASTIEN LIBERT,
CHRIS ROBERTS, HELEN ROCHFORD-BRENNAN, GEORGINA
CHARLESWORTH, PAUL HIGGS, JEAN GEORGES
PART 2
Improving the usability of technology in everyday life 43
4 Digital diaries to understand and support everyday life
in ageing and dementia 45
SARA LAUREEN BARTELS, ROSALIA J.M. VAN KNIPPENBERG,
CAMILLA WALLES MALINOWSKY, MARJOLEIN DE VUGT,
FRANS R.J. VERHEY
vi Contents
5 Social participation and everyday technology use: a
mixed-methods study among people living with and
without dementia 56
SOPHIE N. GABER, LOUISE NYGÅRD, ANNA BRORSSON, ANDERS KOTTORP,
GEORGINA CHARLESWORTH, SARAH WALLCOOK,
CAMILLA WALLES MALINOWSKY
PART 3
Evaluation of the effectiveness of technology 71
6 Conditions of technology use and its interplay in the
everyday lives of older adults with and without dementia 73
SARAH WALLCOOK, LOUISE NYGÅRD, ANDERS KOTTORP,
GEORGINA CHARLESWORTH, CAMILLA WALLES MALINOWSKY
7 Thinkability: a new app for cognitive stimulation for
people with dementia 86
HARLEEN KAUR RAI, JUSTINE SCHNEIDER, MARTIN ORRELL
8 Participatory visual arts activities for people with
dementia: a review 100
ALINE CAVALCANTI BARROSO, HARLEEN KAUR RAI, LÍDIA SOUSA,
MARTIN ORRELL, JUSTINE SCHNEIDER
9 Exergaming as meaningful activity for people with
dementia: evaluation of effect and implementation 127
JOEKE VAN DER MOLEN-VAN SANTEN, MARIAN SCHOONE-HARMSEN,
CARLIJN HENDRIKS, ANNEMIEKE VAN STRATEN, ROSE-MARIE DRÖES,
FRANKA MEILAND
10 Development and evaluation of FindMyApps: fulfilling
the needs and wishes of people with dementia to
maintain Social Health 137
KIM BEENTJES, YVONNE KERKHOF, DAVID NEAL, GIANNA KOHL,
STEVE COURSE, LUCAS VROEMEN, MAUD JL GRAFF, ROSE-MARIE DRÖES
11 Internet-based interventions for family carers
of people with dementia 150
ANNE MARGRIET POT, KIEREN EGAN, KATRIN SEEHER
Contents vii
PART 4
Implementation of technology in dementia care 161
12 Implementing eHealth interventions in dementia care:
lessons learned 163
HANNAH CHRISTIE, LIZZY M. M. BOOTS, HUIBERT J. TANGE,
FRANS R. J. VERHEY, MARJOLEIN DE VUGT
13 Implementation and usefulness of cognitive
stimulation computer-based GRADIOR software 173
ANGIE A. DIAZ-BAQUERO, EIDER IRAZOKI, LESLIE MARÍA
CONTRERAS SOMOZA, JOSÉ MIGUEL TORIBIO-GUZMÁN,
ESTHER PARRA, MARÍA VICTORIA PEREA BARTOLOMÉ,
HENRIËTTE G. VAN DER ROEST, MANUEL A. FRANCO MARTÍN
14 The role of Electronic Patient Records (EPR) for
planning and delivering dementia care in nursing homes 184
KATE SHIELLS, OLGA ŠTĚPÁNKOVÁ, ANGIE A. DIAZ-BAQUERO,
VLADMÍRA DOSTÁLOVÁ, IVA HOLMEROVÁ
15 PACE steps to success program – palliative healthcare
technology for nursing home residents with and
without dementia 198
ROSE MIRANDA, ELISABETH HONINX, TINNE SMETS,
LIEVE VAN DEN BLOCK
16 A complex healthcare technology to improve advance
care planning (ACP) in nursing homes 210
ANNELIEN VAN DAEL-WENDRICH, LARA PIVODIC,
LIEVE VAN DEN BLOCK, JONI GILISSEN
17 Conclusion: Best Practice Guidance human
interaction with technology in dementia 232
ROSE-MARIE DRÖES, MARTIN ORRELL, FRANS R.J. VERHEY
Index 245
Figures
1.1 Management and Research plan 7
1.2 Management Structure 12
2.1 Training Programme of INDUCT 18
4.1 Example of a smartphone interface with ESM questions 47
4.2 Case example of subjectively experienced cognitive problems
in a person with MCI 49
4.3 Example of a momentary cognition task: the mobile Digit
Symbol Substitution Task to assess information processing
speed in everyday life. (Explanation: At the top of the
screen, numbers from 1 to 9 with corresponding symbols are
presented for encoding. In the middle of the screen, different
numbers are displayed one-by-one for each trial. At the
bottom of the screen, participants had to select the symbol
that corresponds to the number presented in the middle.
Within a 30-sec timeframe, participants have to correctly
complete as many trials as possible.) 50
6.1 Illustration showing the approximate relative challenge of
EICTs and SSTs from less to more challenging. Fig. 1a: Gives
the range of the challenge relating to all functions on each
EICT device. Fig. 1b: Outlines the international variation in
SST challenge between Sweden, the United States and the
United Kingdom 76
7.1 Development of Thinkability 88
7.2 Screenshots of Prototype 1: home screen (left) and the Sounds
activity (right) 92
8.1 Narrative synthesis process 102
8.2 Study process selection 104
9.1 A person doing exergaming (interactive cycling) 128
10.1 The process of development and evaluation of FindMyApps 139
10.2 Development of the FindMyApps selection tool in three sprints 142
16.1 Overview of the ACP+ study design 214
Figures ix
16.2 Overview of the ACP+ intervention components and timeframe 218
16.3 Estimated marginal means for ACP self-efficacy and ACP
knowledge at T0 and T1 in intervention and control groups 223
17.1 Navigation page of the web-based Best Practice Guidance for
Human Interaction with Technology in Dementia 234