Illinois' Family Assistance and Home-Based Support Services Programs : helping people with severe mental disabilities

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1362 .2
ILLI
ILLINOIS STATE LIBRARY
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MAR 1 6 ?000
ILLINOIS DOCUMENTS
ILLINOIS’
FAMILY ASSISTANCE
AND
HOME-BASED SUPPORT
SERVICES PROGRAMS
Helping people with
severe mental disabilities
Many children and adults with
severe mental disabilities want to
live in their own homes rather
than group or institutional
settings. Their families often
make sacrifices to make this
possible. Two Illinois programs
can help meet the special service
needs and unusual expenses
connected with living at home.
WHAT THE PROGRAMS ARE
The Home-Based Support Services Program
tailors services to help adults with disabilities live
at home. The Family Assistance Program
makes monthly cash payments to families of
children with severe disabilities.
The Illinois Department of Human Services accepts
applications and selects as many individual and
family participants as funding will allow.
Funds typically are appropriated for the programs
during the spring session of the General Assembly.
If funding is sufficient to allow enrollment of
additional persons, new persons are selected by a
random drawing during the summer. If such a
drawing is held in a given year, families and
individuals whose applications are received by
May 31 of that year are eligible.
Persons not selected are notified annually by mail
and are asked whether they wish to remain on the
waiting list for future funding. If you have
responded to such a mailing during the past year,
there is no need to reapply. If you believe you are
eligible and have not applied, you may use the
application form attached to this brochure.
HOW THE PROGRAMS
CAN HELP
The Family Assistance Program pays a monthly
stipend to help with the costs of caring for a child
(age 17 or younger) with a severe mental disability.
Participating families receive approximately $5,000
to $7,000 yearly.
The Home-Based Support Services Program
pays for services to help adults (age 18 or older)
become more independent living on their own or
with their families. Participating adults are
entitled to services worth approximately $17,000
to $19,000 per year.
Who is Eligible?
Eligible disabilities
(These are fully defined in

state statute 405 ILCS 80.)
■ Severe autism (children or adults) - a lifelong
disability beginning in early childhood with
severe disturbances in social interactions,
communication, imaginative activity, and
activities and interests.
■ Severe or profound mental retardation (children
or adults) - a lifelong disability which results in
a significantly sub-average intellectual function¬
ing (IQ of 40 or below) and a severe or pro¬
found impairment in adaptive behavior.
■ Severe and multiple impairments (children or
adults) - all of the following conditions begin¬
ning before age 18:
A developmental disability which constitutes a
substantial handicap attributable to mental
retardation, cerebral palsy, epilepsy, autism or a
similar condition, and is expected to continue
indefinitely.
Multiple handicaps in physical, sensory,
behavioral or cognitive functioning which
constitute a severe or profound impairment.
Development substantially less than expected
for the age in cognitive, affective or psychomotor
behavior.
■ Severe mental illness (adults) -
both of the following:
A primary diagnosis of schizophrenia, delusional
disorder, schizo-affective disorder, bipolar affec¬
tive disorder, atypical psychosis or major depres¬
sion (recurrent).
Functioning substantially impaired in areas
such as self-maintenance, social functioning,
activities of community living or work skills.
■ Severe emotional disturbance (children) -
both of the following:
A primary diagnosis which meets criteria of a
mental illness or emotional disturbance with
onset in childhood or adolescence. (Not included
in this definition are adjustment disorders,
mental retardation, autism or other disorders
based on physical impairment or
alcohol/substance abuse.)
Severe long-term functional impairment
substantially limiting two or more major life
activities such as self-care, receptive and
expressive language, learning and social
interaction and self-direction.
Eligible Residency
Participants may not live in a nursing home or in
a facility licensed under the Child Care Act, but
children and adults planning to move home with
the program’s help can qualify.
Children must:
■ live with a biological, adoptive or foster parent or
■ live with a legal guardian.
Adults may:
M live full-time in their own home or apartment,
■ live in a private home with a relative or guardian
or
■ live together with as many as three unrelated
adults (not service providers).
Income Eligibility
Adults must be eligible for federal Supplemental
Security Income (SSI) or Social Security Disability
Income (SSDI).
The household income for the eligible child must
be less than $50,000 per year after deductions.
(Look on your Income Tax Form for your family’s
“taxable income.” If the child is a foster child,
only his or her income is considered.)
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USING PAYMENTS FOR
CHILDREN
Each participating family decides how to spend the
money it receives. Families may use the money
for such things as respite care, child care, therapy,
medical expenses, family counseling, home
remodeling to meet the child’s needs or for a
special vehicle or other equipment.
PURCHASING
Services for Adults
Participating adults are linked to a local
community agency where a professional helps
them select services designed to allow them to stay
home, learn new skills, even get a new job. These
services might include:
■ home health services
■ personal care services (help with dressing, etc.)
■ Training and assistance in self-care (help with
learning how to dress, cook meals, etc.)
■ habilitation and rehabilitation services
■ services related to finding a job, supported
employment
■ respite care
■ crisis management
Adults may also use the funds to purchase medi¬
cine, nutritional supplements, adaptive equipment,
modifications to make their home more accessible
or other items.
SELECTION PROCESS
Because the money for these programs is limited,
only some of the eligible persons who apply will
be selected - by a random selection method - to
participate when funds become available. Families
or individuals chosen through the random selec¬
tion must submit additional information to verify
the severity of the disability.
If you believe you or your family member may be
eligible for one of these programs, tear off and fill
out the attached application form.
Questions?
If you have a question about the Home-Based
Support Service Program or the Family
Assistance Program, please call 1-800-843-6154,
extension 3, weekdays. Speech or hearing
impaired persons can access this number by
using the Illinois Relay Center Service at
1-800-526-0844 TTY.
UNIVERSITY OF ILLINOIS-URBANA
3 0112121932112
Programs, activities and employment opportunities in the Illinois
Department of Human Services are open and accessible to any
individual or group without regard to age, sex, race, sexual
orientation, disability, ethnic origin, or religion. The department is an
equal opportunity employer and practices affirmative action and
reasonable accommodation programs.
IL 462-1235FH (N-2-00)
Family Assistance and Home-Based Support Services
Printed by the Authority of the State of Illinois
P.O. # 0363, 50,000 copies