Health promotion for people with intellectual and developmental disabilities

250 Pages·2014·20.966 MB·English

by  Cousins, Wendy, Taggart, Laurence

Health Promotion for People with
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r The book considers a variety of challenges faced by those with intellectual disabilities, from b ill G
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strategies for health promotion including family interventions, health promotion in schools, s ca
community health programmes, health checks and physical activity. tion
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Dr Laurence Taggart is a registered nurse for people with intellectual disabilities and a ing
H nursing lecturer. He is a member of the Research Centre for Intellectual and Developmental s, L
Disabilities at the University of Ulster. He is the 2013-2014 Chair of the International Associa- LC
i tion for the Scientific Study of Intellectual Disabilities special interest group on health. Ta . No
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l Dr Wendy Cousins is a chartered psychologist, university lecturer and a member of the a e re
E Research Centre for Intellectual and Developmental Disabilities at the University of Ulster. rt a distribu
Contributors: Jim Blair, Penny Blake, Malin Broberg, Michael Brown, Eddie Chaplin, Bob Davis, n te
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u Karen Nankervis, Ruth Northway, Renee Proulx, Janet Robertson, Cathy Ross, Jasmina Sisirak, ou dified
c ESachmroojnenn sStleeivni nL,a Dnatmviadn S-.d Sete Vwaalkr.t, William F. Sullivan, Beverley Temple, Hana Válková, Henny van sin in an
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Edited by y
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Laurence Taggart and Wendy Cousins t © M
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Open University Press y [ F
McGraw-Hill Education a
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McGraw-Hill House lty
Shoppenhangers Road of N
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email: [email protected] i Un
world wide web: www.openup.co.uk ive
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and Two Penn Plaza, New York, NY 10121-2289, USA .6
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First published 2014 ] a
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Copyright © Laurence Taggart and Wendy Cousins, 2014 /1
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All rights reserved. Except for the quotation of short passages for the purposes of criticism and ]. C
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review, no part of this publication may be reproduced, stored in a retrieval system, or transmitted, y
in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, righ
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without the prior written permission of the publisher or a licence from the Copyright Licensing M
Agency Limited. Details of such licences (for reprographic reproduction) may be obtained from the cG
Copyright Licensing Agency Ltd of Saffron House, 6-10 Kirby Street, London, EC1N 8TS. raw
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A catalogue record of this book is available from the British Library ill G
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ISBN-13: 978-0-335-24694-6 l Ed
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ISBN-10: 0-335-24694-X ca
eISBN: 978-0-335-24695-3 tion
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Library of Congress Cataloging-in-Publication Data s, L
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CIP data applied for C
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Typeset by Aptara, Inc. t to
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Fictitious names of companies, products, people, characters and/or data that may be used herein ted
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(in case studies or in examples) are not intended to represent any real individual, company, product r m
or event. od
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Praise for this book y [ F
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“This timely and important book synthesises current knowledge about health promotion inter- i U
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ventions for people with intellectual disabilities. Written by leading researchers and practitio- iv
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ners, it should be on the bookshelves of everyone concerned with addressing the stark inequalities rsity
in health experienced by people with intellectual disabilities around the world.” 5
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Eric Emerson, Professor of Disability Population Health, 2.1
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Centre for Disability Research and Policy, University of Sydney, Sydney, Australia 8
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and Emeritus Professor of Disability and Health Research, 17
Centre for Disability Research, Lancaster University, UK. ] at [0
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“The editors and authors have done practitioners a great favour in bringing together in one vol- 8/1
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ume a comprehensive account of how children and adults with intellectual disabilities can be ]. C
supported to lead healthier lives. The increased risks they face across many health conditions op
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are precisely defined as are the evidence-based strategies that can be used from an early age to rig
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promote better and longer lives. No more can it be said: “we didn’t know what to do!” t ©
Roy McConkey, Professor of Developmental Disabilities, M
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University of Ulster, N. Ireland, UK. ra
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“I highly recommend this book to anyone working directly with people with an intellectual disabil- ill G
ity as well as professionals, academics and students who strive to promote issues and improve the lo
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lives of people with intellectual disabilities and their families. The book pulls together national l E
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and international expertise and translates knowledge gained from research into practical advice u
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including useful, accessible tools. Using these simple, common sense resources should signifi- tio
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cantly contribute to improved health and well-being and tackle the unacceptable inequalities H
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which current exist in terms of access to positive healthcare for these individuals.” ld
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Agnes Lunny OBE, Chief Executive of Positive Futures, N. Ireland, UK. gs, L
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Contents y [ F
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List of contributors ix i U
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Foreword xiv ersity
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Introduction 1 .15
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Laurence Taggart and Wendy Cousins 17
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PART 1 /18
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The health and health promotion needs of people with 6]. C
intellectual disabilities 5 o
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1 Health issues for people with intellectual disabilities: the evidence base 7 t ©
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Robert Davis, Renée Proulx, and Henny van Schrojenstein Lantman-de Valk c
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2 Health promotion and people with intellectual disabilities 17 -H
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Beth Marks and Jasmina Sisirak lo
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PART 2 ca
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Health promotion evidence applied to practice 31 n
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3 Vision, hearing, and oral health 33 in
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Michael Brown and Linda Goddard L
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4 Framing food choices to improve health 44 t to
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Jasmina Sisirak and Beth Marks e re
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5 Obesity 55 istrib
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Eamonn Slevin and Ruth Northway d o
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6 Diabetes 69 ifie
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Laurence Taggart, Michael Brown, and Thanos Karatzias in
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7 Epilepsy 77 a
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Penny Blake and Mike Kerr ith
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viii Contents n
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8 Cardiovascular disease 88 y [ F
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Jim Blair and Cathy Ross cu
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9 Cancer 100 f N
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Laurence Taggart and Renée Proulx rsin
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10 Sexual health 108 ian
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Gillian Eastgate and Judith Moyle ai U
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11 Mental health 117 rsity
Eddie Chaplin and Jane McCarthy 5.6
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12 Substance abuse 128 .1
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Laurence Taggart and Beverley Temple ] a
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13 Ageing 138 8
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Tamar Heller, Dora Fisher, and Beth Marks ]. C
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PART 3 t ©
Health promotion in context 149 M
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14 Health promotion within families 151 -H
Malin Broberg and Beverley Temple ill G
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15 Health promotion in schools 160 l Ed
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Laurence Taggart and David Stewart tio
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16 Physical activity, exercise, and sport 174 ld
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Karen Nankervis, Wendy Cousins, Hana Válková, and Tadhg Macintyre s, L
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17 The role of healthcare professionals 183 . N
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Robert Davis and Nick Lennox b
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18 Health checks 194 istrib
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Nick Lennox and Janet Robertson te
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19 Ethics 204 o
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William F. Sullivan and John Heng ified
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20 Evaluating health promotion programmes 211 y w
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Paul Fleming and Wendy Cousins w
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Index 221 erm
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List of contributors y [ F
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Editors: i U
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Laurence Taggart rsity
Laurence Taggart is a registered nurse for people with intellectual disabilities and a nursing lecturer. 5.6
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He is leader of the Research Centre for Intellectual and Developmental Disabilities at the University .1
5
8
of Ulster, Northern Ireland. His main research interests focus on the physical and mental health of .1
1
people with intellectual disabilities, health promotion, the needs of carers and innovative service 7] a
developments. He is the 2013–2014 Chair of the International Association for the Scientific Study t [0
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of Intellectual and Developmental Disabilities (IASSIDD) special interest group on health. /1
8
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Wendy Cousins ]. C
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Wendy Cousins is a chartered psychologist and an associate fellow of the British Psychological p
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Society. Her research and publication activity is chiefly concerned with the health and social care rig
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of vulnerable populations. She is a member of the Research Centre for Intellectual and Develop- t ©
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mental Disabilities at the University of Ulster, Northern Ireland where she is course director for c
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degree programmes in health and wellbeing. ra
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Contributors: ill G
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Jim Blair l Ed
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Jim Blair is consultant nurse in intellectual disabilities at Great Ormond Street Hospital London, ca
England and Honorary Principal Lecturer / Associate Professor in intellectual disabilities at tion
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Kingston University and St. George’s University of London, England. o
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Penny Blake s, L
Penny Blake is an intellectual disability psychiatrist working in Swansea, Wales. She has a particular LC
interest in teaching and educating students and health professionals about intellectual disabilities. . N
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Malin Broberg be
Malin Broberg is a clinical psychologist and her research is focused on the wellbeing of children red
with intellectual disabilities and their families. She works as an associate professor with teaching istrib
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and research roles at the Department of Psychology at the University of Gothenburg, Sweden. te
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Michael Brown r mo
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Michael Brown is reader in health and social care research at the Faculty of Health, Social and ifie
Life Sciences at Edinburgh Napier University, Scotland and nurse consultant with specialist intel- d in
lectual disability health services with NHS Lothian. He has an interest in research and education an
y
relating to access to health, health inequalities, and health improvement. w
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Eddie Chaplin ith
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Eddie Chaplin is the research and strategy lead for the Behavioural and Developmental Psychia- t p
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try Clinical Academic Group at the South London and Maudsley NHS Foundation Trust, England. rm
issio
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