Handbook of Intellectual and Developmental Disabilities PDF
Preview Handbook of Intellectual and Developmental Disabilities
Handbook of Intellectual and Developmental Disabilities Issues on Clinical Child Psychology Series Editors: Michael C. Roberts, University of Kansas—Lawrence, Kansas † Lizette Peterson, University of Missouri—Columbia, Missouri CHILDREN AND DISASTERS Edited by Conway F. Saylor HANDBOOK OF ADOLESCENT HEALTH RISH BEHAVIOR Edited by Ralph J. DiClemente, William B. Hansen, and Lynn E. Ponton HANDBOOK OF BEHAVIORAL AND EMOTIONAL PROBLEMS IN GIRLS Edited by Debora Bell, Sharon L. Foster, and Eric J. Mash HANDBOOK OF CHILD ABUSE RESEARCH AND TREATMENT Edited by T. Steuart Watson and Frank M. Gresham HANDBOOK OF CHILDREN’S COPING: Linking Theory and Intervention Edited by Sharlene A. Wolchik and Irwin N. Sandler HANDBOOK OF DEPRESSION IN CHILDREN AND ADOLESCENTS Edited by William M. Reynolds and Hugh F. Johnson HANDBOOK OF INTELLECTUAL AND DEVELOPMENTAL DISABILITIES † Edited by John W. Jacobson, James A. Mulick, and Johannes Rojahn HANDBOOK OF MENTAL HEALTH SERVICES FOR CHILDREN, ADOLESCENTS, AND FAMILIES Edited by Ric G. Steele and Michael C. Roberts HANDBOOK OF PSYCHOTHERAPIES WITH CHILDREN AND FAMILIES Edited by Sandra W. Russ and Thomas H. Ollendick HANDBOOK OF RESEARCH IN PEDIATRIC AND CLINICAL CHILD PSYCHOLOGY Edited by Dennis Drotar HANDBOOK OF SCHOOL MENTAL HEALTH: Advancing Practice and Research Edited by Mark D. Weist, Steven W. Evans, and Nancy A. Lever INTERNATIONAL HANDBOOK OF PHOBIC AND ANXIETY DISORDERS IN CHILDREN AND ADOLESCENTS Edited by Thomas H. Ollendick, Neville J. King, and William Yule MENTAL HEALTH INTERVENTIONS WITH PRESCHOOL CHILDREN Edited by Robert D. Lyman and Toni L. Hembree-Kigin SCHOOL CONSULTATION: Conceptual and Empirical Bases of Practice William P. Erchul and Brian K. Martens SUCCESSFUL PREVENTION PROGRAMS FOR CHILDREN AND ADOLESCENTS Joseph A. Durlak A continuation Order Plan is available for this series. A continuation order will bring delivery of each new volume immediately upon publication. Volumes are billed only upon actual shipment. For further information please contact the publisher. Handbook of Intellectual and Developmental Disabilities Edited by John W. Jacobson NYS Office of Mental Retardation and Developmental Disabilities Albany, New York James A. Mulick The Ohio State University Columbus, Ohio Johannes Rojahn George Mason University Fairfax, Virginia James A. Mulick Johannes Rojahn Department of Pediatrics and Psychology Department of Psychology The Ohio State University George Mason University Columbus, OH 43205 Fairfax, VA 22030 USA USA Dedication John W. Jacobson conceived of this book, recruited most of the contribu- tors, and served as the Senior Editor until his untimely death from rapidly progressing lung cancer on May 8, 2004. The book was about two-thirds done at that point. He had recognized that this project, and a related work on controversial issues in developmental disabilities treatment that was actually nearly ready for submission when he died (Jacobson, Foxx, & Mulick, 2005), needed to be turned over to his coeditors for completion. The work of completing this book was daunting for a single editor and progress floundered, so Professor Johannes Rojahn of George Mason University was recruited to serve as coeditor. Professor Rojahn had collaborated with both Jacobson and Mulick on many projects in the past, shared many of the same philosophical and scientific values that guided the original selection of topics and contributors, and agreed that the work was both important and sorely needed for the field. The happy result of this collaboration is before you, and simply would not have been there without the dedicated work of Professor Rojahn and his students in moving the project forward to completion. But the book is fundamentally a result of Jacobson’s vision, vast knowledge of the field, and many professional relationships with the best minds currently working in this area. Jacobson was a civil servant, behavior analyst, scholar, editor, teacher, professional, futurist, and advocate for science and rational services for people with disabilities. His many contacts included leaders in govern- ment, professional psychology, and academe. He was generous with his time, frequently helping researchers to improve their research designs and parents to find and access high quality services for their children with de- velopmental disabilities. He helped when he was asked, whether or not he knew previously the person requesting his assistance. He was genuinely friendly whenever friendship was offered to him. So many people sought his guidance in so many fields related to developmental disabilities, psy- chology, and applied research that his absence is sorely felt on at least three continents by scientists, professionals, and consumers of disability services alike. He was an internationalist and organizer, and consequently he earned recognition and leadership positions in learned societies, in- cluding the Association for Behavior Analysis International, the American vi DEDICATION Psychological Association, the National Association for the Dually Diag- nosed, the International Association for the Scientific Study of Intellectual Disabilities, and the American Association on Mental Retardation. There are many facets to his scientific and professional legacy, but perhaps none so fitting as a representative summary of his true avocation and life’s work as this contribution to the next generation of scientists and profession- als; hence, we, the editors and contributors will always think of this work in his memory as Jacobson’s Handbook of Intellectual and Developmental Disabilities. James A. Mulick Johannes Rojahn REFERENCE Jacobson, J. W., Foxx, R. M., & Mulick, J. A. (Eds.). (2005). Controversial therapies for de- velopmental disabilities: Fad, fashion, and science in professional practice. Mahwah, NJ: Author. Contributors James P. Acquilano, Comprehensive Geriatric Assessment Clinic, Finger Lakes Developmental Disabilities Service Office, 620 Westfall Road, Rochester, New York 14620. Michael G. Aman, The Nisonger Center, Ohio State University, 1581 Dodd Drive, Columbus, Ohio 43210. Jennifer Norins Bardon, Center for Social Development and Education, University of Massachusetts—Boston, 100 Morrissey Boulevard, Boston, Massachusetts 02125. James W. Bodfish, Department of Psychiatry, University of North Carolina at Chapel Hill, J. Iverson Riddle Developmental Center, UNC Human Development Research Institute, 300 Enola Road, Morganton, North Carolina 28655. John Borkowski, University of Notre Dame Department of Psychology, University of Notre Dame, Notre Dame, Indiana 46556. Eric M. Butter, Department of Pediatrics, Columbus Children’s Hospital and The Ohio State University, 700 Children’s Drive, Columbus, Ohio 43205. Shannon S. Carothers, University of Notre Dame Department of Psychology, University of Notre Dame, Notre Dame, Indiana 46556. Janis G. Chadsey, Department of Special Education, University of Illinois at Urbana—Champaign, 1310 S. 6th Street, Champaign, Illinois 61820. Mary Clair, Department of Psychology, Drexel University, 245 N 15th Street, MS 515, Philadelphia, Pennsylvania 19102-1192. Robin S. Codding, May Institute, One Commerce Way, Norwood, Massachusetts 02062. Philip W. Davidson, Pediatrics Department, Strong Center for Developmental Disabilities, Golisano Children’s Hospital at Strong, Box 671, URMC, 601 Elmwood Avenue, Rochester, New York 14642. vii viii CONTRIBUTORS Paula K. Davis, Rehabilitation Institute, Southern Illinois University, Carbondale, Illinois 62901-4609. Shoumitro Deb, Neuropsychiatry & Intellectual Disability, Division of Neuroscience, Department of Psychiatry, University of Birmingham, Queen Elizabeth Psychiatric Hospital, Mindelsohn Way, Birmingham B15 2QZ United Kingdom. Sharon Duffy, Graduate School of Education, UC Riverside, Riverside, California 92521. Erin Dunn, May Institute, One Commerce Way, Norwood, Massachusetts 02062. Maureen S. Durkin, Population Health Sciences, University of Wisconsin – Madison, 789 WARF, 610 Walnut Street, Madison, Wisconsin 53726. Elisabeth M. Dykens, Vanderbilt Kennedy Center for Research on Human Development, Department of Psychology and Human Development, Vanderbilt University, Peabody Box 40, 230 Appleton Place, Nashville, Tennessee 37205. Jaelyn R. Farris, University of Notre Dame Department of Psychology, University of Notre Dame, Notre Dame, Indiana 46556. Bonnie Forman, Thursday’s Child, Brooklyn, New York 11209 William I. Gardner, Rehabilitation Psychology Program, 432 N. Murray Street, University of Wisconsin – Madison, Madison, Wisconsin 53705. Joanne Gerenser, The Eden II Programs, Staten Island, New York. Christopher Gillberg, Department of Child and Adolescent Psychiatry, St. George’s Hospital Medical School, University of London and Queen Silvia’s Children’s Hospital, University of Go¨teborg, Kungsgatan 12, SE 411 19 Gothenburg, Sweden. Beth Glasberg, Douglass Developmental Disabilities Center, Rutgers, The State University of New Jersey, 151 Ryders Lane, New Brunswick, New Jersey 08901-8528. Frances Page Glascoe, Pediatrics Department, Vanderbilt University, 25 Bragg Drive, East Berlin, Pennsylvania 17316. Laraine Masters Glidden, Department of Psychology, St. Mary’s College of Maryland, 18952 E. Fisher Road, St. Mary’s City, Maryland 20686–3001. Marc Goldman, Private Practice, 2310 Snowcrest Trail, Durham, North Carolina 27707. Michael J. Guralnick, Center on Human Development and Disability, Psychology and Pediatrics Department, University of Washington, Box 357920, Seattle, Washington 98195-7920. CONTRIBUTORS ix Sandra L. Harris, Douglass Developmental Disabilities Center, Rutgers, The State University of New Jersey, 151 Ryders Lane, New Brunswick, New Jersey 08901-8528. Sigan L. Hartley, Dept. 3415, University of Wyoming, 1000 E. University Avenue, Laramie, Wyoming 82071. Linda J. Hayes, Psychology Department, University of Nevada—Reno, Reno, Nevada 89557. Robert M. Hodapp, Vanderbilt Kennedy Center Research Program on Families, Department of Special Education, Vanderbilt University, Peabody Box 328, 230 Appleton Place, Nashville, Tennessee 37205. Sarah Christine Voss Horrell, Dept., 3415, University of Wyoming, 1000E. University Avenue, Laramie, Wyoming 82071. Kimberly S. Howard, University of Notre Dame Department of Psychology, University of Notre Dame, Notre Dame, Indiana 46556. Matthew P. Janicki, Technical Assistance Department, RRTC on Aging and Developmental Disabilities, University of Illinois at Chicago, 1640 West Roosevelt Road, Chicago, Illinois 60608. James M. Kauffman, Department of Curriculum, Instruction, and Special Education, University of Virginia, 405 Emmet Street South, PO Box 400273, Charlottesville, Virginia 22904-4273. Tamara L. Klein, Department of Psychology, Drexel University, 245 N 15th Street, MS 515 Philadelphia, Pennsylvania. Richard J. Landau, Dykema Gossett PLLC, 2723 South State Street, Suite 400, Ann Arbor, Michigan 48104. Timothy J. Landrum, Department of Curriculum, Instruction, and Special Education, University of Virginia, 617 West Main Street, Charlottesville, Virginia 22904. Robin Gaines Lanzi, Georgetown University Center on Health and Education, 3700 Reservoir Rd., NW, St. Mary’s Hall, Suite 134, Georgetown University, Washington, District of Columbia 20057. Rinita B. Laud, Department of Psychology, Louisiana State University, Baton Rouge, Louisiana 70803. James K. Luiselli, Applied Research, Clinical Training, and Peer Review, Internship Program in Clinical Psychology, The May Institute, Inc., Randolph, Massachusetts. William E. Maclean Jr., Dept., 3415, University of Wyoming, 1000E. University Avenue, Laramie, Wyoming 82071.
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