Handbook of Applied Disability and Rehabilitation Research (Springer Series on Rehabilitation)

313 Pages·2006·1.9 MB·English

by  Kristofer J. Hagglund PhD ABPP

Springer Series on Rehabilitation
Myron G. Eisenberg, PhD, Series Editor
Veterans Affairs Medical Center, Hampton, VA
Thomas E. Backer, PhD, Consulting Editor
Human Interaction Research Institute, Los Angeles, CA
2006 Handbook of Applied Disability and Rehabilitation Research
Kristofer J. Hagglund, PhD, ABPP, and Allen W. Heinemann, PhD,
ABPP, Editors
2006 Rehabilitation Caseload Management, Second Edition: Concepts and
Practice
Lee Ann R. Grubbs, PhD, CRC, CFLE, Jack L. Cassell, PhD, and S.
Wayne Mulkey, PhD, CRC, Editors
2005 Medical Aspects of Disability, Third Edition: A Handbook for the
Rehabilitation Professional
Herbert H. Zaretsky, PhD, Edwin E. Richter III, MD, and Myron G.
Eisenberg, PhD, Editors
2004 Families Living With Chronic Illness and Disability: Interventions,
Challenges, and Opportunities
Paul W. Power, ScD, CRC, and Arthur E. Dell Orto, PhD, CRC
2004 Counseling Theories and Techniques for Rehabilitation Health
Professionals
Fong Chan, PhD, Norman L. Berven, PhD, and Kenneth R. Thomas,
DEd, Editors
2004 Handbook of Rehabilitation Counseling
T. F. Riggar, EdD, and Dennis R. Maki, PhD, CRC, NCC, Editors
2004 Psychology of Disability, Second Edition
Carolyn L. Vash, PhD, and Nancy M. Crewe, PhD, Editors
Kristofer J. Hagglund, PhD, ABPP, is the Associate Dean of Health Policy
and Academic Affairs and Professor of Health Psychology and of Public
Affairs at the University of Missouri–Columbia. He is also the codirector
of the Center for Health Policy, a nonpartisan research and policy analy-
sis organization committed to improving health and health care. He was
a 2000–2001 Robert Wood Johnson Health Policy Fellow in the Office
of Senator Tom Harkin (D-IA), where he worked on legislation address-
ing mental health parity, the health care safety net, rural health care, and
patients’ rights. Dr. Hagglund was President of the Division of Rehabilitation
Psychology of the American Psychological Association in 2003–2004 and
was awarded the James Garrett Early Career Achievement Award by
the Division in 1997. Dr. Hagglund has an active research program and
has published more than 50 manuscripts in the areas of chronic illnesses
and disability, health care delivery systems, and health policy. He is the
co-principal investigator of the Missouri Model Spinal Cord Injury System
and a co-principal investigator of the Missouri Arthritis Rehabilitation
Research and Training Center, both funded by the National Institute on
Disability and Rehabilitation Research. He is also the co-principal investiga-
tor of a project addressing racial and ethnic health disparities that is funded
by the Missouri Foundation for Health. Dr. Hagglund obtained his doctoral
degree in clinical (medical) psychology from the University of Alabama at
Birmingham. He is a diplomate of the American Board of Professional
Psychology and a Fellow of the American Psychological Association.
Allen W. Heinemann, PhD, ABPP, completed his doctoral degree in clinical
psychology at the University of Kansas with a specialty focus in rehabilita-
tion. He completed an internship at Baylor College of Medicine in Houston
and was an assistant professor in the Department of Psychology at Illinois
Institute of Technology. Since 1985, he has worked at the Rehabilitation
Institute of Chicago where he directs the Center for Rehabilitation Outcomes
Research, a rehabilitation-focused health services research unit. He is also
associate director of research at RIC and professor in the Department of
Physical Medicine and Rehabilitation at the Feinberg School of Medicine,
Northwestern University. He serves on the Coordinating Committee
for Northwestern University’s Institute for Healthcare Studies. He is the
author of more than 110 articles in peer-reviewed publications and is
the editor of Substance Abuse and Physical Disability. He is the recipi-
ent of funding by the National Institute on Disability and Rehabilitation
Research, the National Institute on Alcohol Abuse and Alcoholism, Centers
for Disease Control, and the Social Security Administration. During 2004
and 2005, he served as president of the American Congress of Physical
Medicine and Rehabilitation and the Rehabilitation Psychology division of
the American Psychological Association. He is the recipient of the Division
22 (Rehabilitation Psychology–of the American Psychological Association)
Roger Barker Distinguished Career Award.
Handbook of Applied
Disability and
Rehabilitation Research
Edited by
Kristofer J. Hagglund, PhD, ABPP and
Allen W. Heinemann, PhD, ABPP
New York
Copyright © 2006 Springer Publishing Company, Inc.
All rights reserved.
No part of this publication may be reproduced, stored in a retrieval system,
or transmitted in any form or by any means, electronic, mechanical,
photocopying, recording, or otherwise, without the prior permission
of Springer Publishing Company, Inc.
Springer Publishing Company, Inc.
11 West 42nd Street
New York, NY 10036
Acquisitions Editor: Sheri W. Sussman
Production Editor: Emily Johnston
Cover design: Joanne E. Honigman
Composition: Apex Publishing
06 07 08 09 10/ 5 4 3 2 1
Library of Congress Cataloging-in-Publication Data
Handbook of applied disability and rehabilitation research / edited by
Kristofer J. Hagglund and Allen W. Heinemann.
p. ; cm. — (Springer series on rehabilitation)
Includes bibliographical references and index.
ISBN 0-8261-3255-3
1. People with disabilities Rehabilitation. 2. Rehabilitation—Research.
I. Hagglund, Kristofer J. II. Heinemann, Allen W. III. Series: Springer series on
rehabilitation (Unnumbered) [DNLM: 1. Disabled Persons—rehabilitation.
2. Health Services Research. 3. Rehabilitation—methods.
WB 320 H2355 2006]
RC451.4.H35H36 2006
362.4—dc22 2006015370
Printed in the United States of America by Maple-Vail Book Manufacturing
Group.
Contents
Contributors vii
Introduction: The Maturation of Psychology
in Disability and Rehabilitation Research xi
Allen W. Heinemann and Kristofer J. Hagglund
Acknowledgments xvii
SECTION I: COMMUNITY INTEGRATION
Introduction to Section I: Community Integration 3
ONE Community Integration Research:
An Empowerment Paradigm 5
Wayne A. Gordon, Margaret Brown, Allan I.
Bergman, and Ralph William Shields
TWO Considering Class, Culture, and
Access in Rehabilitation Intervention and Research 25
Catherine A. Marshall, Priscilla R. Sanderson,
Sharon R. Johnson, Barbara Du Bois, and
Joseph C. Kvedar
THREE Health Disparities: Focus on Disability 45
Martha E. Banks and Rosalie J. Ackerman
SECTION II: HEALTH, FUNCTION,
AND WELL-BEING
Introduction to Section II: Health, Function,
and Well-Being 73
FOUR Broadening Paradigms of Disability
Research to Clinical Practice: Implications for
Conceptualization and Application 75
Linda R. Mona, Rebecca P. Cameron, and
Amadee J. Fuentes
v
vi HANDBOOK OF APPLIED DISABILITY
FIVE Social Development and Adjustment of Children
With Neurodevelopmental Conditions 103
Seth Warschausky
SIX Psychosocial Aspects Related to Dual Diagnosis
of Substance Use Disorder and Disability 117
Mary McAweeney, Martin Forchheimer,
Dennis Moore, and Denise Tate
SECTION III: EMPLOYMENT
Introduction to Section III: Employment 141
SEVEN Employment and Disability Policy:
Recommendations for a Social Sciences
Research Agenda 143
Susanne M. Bruyère, William A. Erickson, Sara
A. VanLooy, Elaina Sitaras Hirsch, Judith A. Cook,
Jane Burke, Laura Farah, and Michael Morris
EIGHT Evidence-Based Employment Practices in
Vocational Rehabilitation 179
Christopher C. Wagner, Amy J. Armstrong,
Robert T. Fraser, David Vandergoot, and
Dale F. Thomas
SECTION IV: ASSISTIVE TECHNOLOGY
AND DESIGN
Introduction to Section IV: Assistive Technology
and Design 213
NINE Policy Issues in Evaluating and Selecting Assistive
Technology and Other Resources for Persons
With Disabilities 215
Marcia J. Scherer, Franklyn K. Coombs,
Nancy Hansen Merbitz, and Charles T. Merbitz
TEN Contextually Appropriate Design in Rural
Community Disability and Rehabilitation Science 243
Tom Seekins
ELEVEN Internet Resources for People With Disabilities:
Applications and Research Directions 263
Fong Chan, Steven R. Pruett, Susan M. Miller,
Michael Frain, and Kacie Blalock
Index 279
Contributors
Rosalie J. Ackerman, PhD Jane Burke, MS
ABackans DCP, Inc. University of Illinois
Akron, OH Chicago, IL
Amy J. Armstrong, PhD, CRC Rebecca P. Cameron, PhD
Virginia Commonwealth University California State University
Richmond, VA Sacramento, CA
Martha E. Banks, PhD Fong Chan, PhD
ABackans DCP, Inc. University of Wisconsin–Madison
Akron, OH Department of Rehabilitation
Psychology and Special Education
Allan I. Bergman Madison, WI
Brain Injury Association of America
Alexandria, VA Judith A. Cook, PhD
University of Illinois
Kacie Blalock, PhD, CRC Chicago, IL
North Carolina A & T State University
Greensboro, NC. Franklyn K. Coombs, MS, PE
Assistive Work Technology Services
Margaret Brown, PhD Georgia Department of Labor
Mount Sinai School of Medicine Rehabilitation Services
New York, NY Atlanta, GA
Susanne M. Bruyère, PhD Barbara Du Bois, PhD
Employment and Disability Institute Private Practice
Cornell University Prescott, AZ
School of Industrial and Labor
Relations–Extension Division
Ithaca, NY
vii
viii HANDBOOK OF APPLIED DISABILITY
William A. Erickson, MS Joseph C. Kvedar, MD
Cornell University Harvard Medical School
Ithaca, NY Boston, MA
Laura Farah, PhD Catherine A. Marshall, PhD, CRC
Law, Health Policy & Disability Center Department of Educational Psychology
University of Iowa Northern Arizona University
College of Law Flagstaff, AZ
Iowa City, IA
Mary McAweeney, PhD
Martin Forchheimer, MPP SARDI—Wright State University
University of Michigan School of Medicine
Department of Physical Medicine Kettering, OH
and Rehabilitation
Ann Arbor, MI Charles T. Merbitz, PhD, BCBA,
CRC
Michael Frain, PhD, CRC Chicago School of Professional
Florida State University Psychology
Boca Raton, FL Chicago, IL
Robert T. Fraser, PhD, CRC Nancy Hansen Merbitz, PhD
University of Washington Mental Health Resource Center
Seattle, WA (MHRC), Inc.
Pontiac, IL
Amadee J. Fuentes, BS
California State University Susan M. Miller, PhD, CRC
Sacramento, CA Florida State University
Tallahassee, FL
Wayne A. Gordon, PhD
Department of Rehabilitation Medicine Linda R. Mona, PhD
Mount Sinai School of Medicine Veterans Affairs, Long Beach
New York, NY Healthcare System
Behavioral Health
Elaina Sitaras Hirsch, BS Long Beach, CA
The Johns Hopkins School of Medicine
Baltimore, MD Dennis Moore, EdO
Wright State University School of
Sharon R. Johnson, MS, CRC Medicine
Minnesota Division of Rehabilitation SARDI Program
Services Dayton, OH
Contributors ix
Michael Morris, JD Denise Tate, PhD, ABBP
University of Iowa University of Michigan
Iowa City, IA Department of Physical Medicine
and Rehabilitation
Steven R. Pruett, PhD, CRC Ann Arbor, MI
University of Florida,
Gramsville, FL Dale F. Thomas, PhD, ABPP
University of Wisconsin–Stout
Priscilla R. Sanderson, PhD, CRC Menomonie, WI
Research Department of Health
Sciences David Vandergoot, PhD
College of Health Promotion Center for Essential Management
Native American Cancer Research Services
Partnership Long Island, NY
Northern Arizona University
Flagstaff, AZ Sara A. VanLooy, BA
Cornell University
Marcia J. Scherer, PhD, MPH Ithaca, NY
Institute for Matching Person &
Technology Christopher C. Wagner, PhD, CRC
Webster, NY Virginia Commonwealth University
Richmond, VA
Tom Seekins, PhD
The Rural Institute Seth Warschausky, PhD
Department of Psychology Department of Physical Medicine
The University of Montana and Rehabilitation
Missoula, MT Ann Arbor, MI
Ralph William Shields
New York, NY