Guide for Advanced Nursing Care of the Adult with Congenital Heart Disease

325 Pages·2022·9.026 MB·English

by  Serena Francesca Flocco, Hajar Habibi, Federica Dellafiore, Christina Sillman

Guide for Advanced
Nursing Care of the Adult
with Congenital Heart
Disease
Serena Francesca Flocco
Hajar Habibi
Federica Dellafi ore
Christina Sillman
Editors
123
Guide for Advanced Nursing Care of the
Adult with Congenital Heart Disease
Serena Francesca Flocco • Hajar Habibi
Federica Dellafiore • Christina Sillman
Editors
Guide for Advanced
Nursing Care of the Adult
with Congenital Heart
Disease
Editors
Serena Francesca Flocco Hajar Habibi
ACHD Unit, Pediatric and Adult Cardiology, Adult Congenital Heart Disease
Congenital Centre Royal Brompton NHS Foundation Trust
IRCCS Policlinico San Donato London, UK
Milan, Italy
Christina Sillman
Federica Dellafiore Adult Congenital Heart Disease Program
Department of Public Health Experimental Sutter Heart and Vascular Institute
and Forensic Medicine Section of Hygiene Sacramento, CA, USA
University of Pavia
Pavia, Italy
ISBN 978-3-031-07597-1 ISBN 978-3-031-07598-8 (eBook)
https://doi.org/10.1007/978-3-031-07598-8
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Foreword
Do we need a textbook on the nursing care of adult congenital heart disease (ACHD)
patients? Surely those of us who look after this complex family of patients are aware
of how important collaboration and a multidisciplinary approach are; therefore the
answer is yes, we need it.
In this volume Serena Flocco and co-editors coordinated a great panel of authors
from many centers that encourage all of us to think more deeply about how impor-
tant nursing approach is to these patients.
Epidemiology, anatomy, and pathophysiology are treated exhaustively and give
a complete overview of the problem.
The first step in taking care of ACHD patients is to help them and their families
to skip from childhood to adulthood; therefore the excellent chapter dedicated to
transition is a milestone for nursing training because the nurses should lead this
process.
The care of our ACHD patients is a lifelong story; therefore Part III of the text-
book is very important indeed because the authors focus on curing these patients in
different settings like the outpatient clinic, the hospital ward, the cath lab, and the
critical area.
The fourth part is dedicated to a complex subject of heart failure, outlining a hot
topic like cardiac transplantation.
ACHD patients need also to be helped during their daily life steps: planning or
trying to avoid pregnancy, when they want to exercise, sport, etc. These points are
treated in very comprehensive Parts V and VI.
Not surprisingly, there is a part completely dedicated to patients’ education with
particular attention to the hot topic of their health engagement; this part is funda-
mental because counseling may improve their quality of life.
The textbook concludes with a chapter devoted to nursing care in the final stage
of their life which is a very delicate issue; a combined approach with both physician
and nurse is the best option for developing an advanced care planning program dedi-
cated to it.
The truly final part of this amazing editorial job is the one that remembers all of
us of the important role of all the nurses in taking care of our CHD patients during
the SARS-COV 2 pandemic, and the implication for them.
Overall, this excellent source of information and discussion will stimulate all the
readers interested in the cure of ACHD patients to think beyond the frequent limits
v
vi Foreword
of our management suggesting a different and more scientific manner to approach
them. This textbook is a valuable help approaching the complex challenge that these
patients represent for all of us.
ACHD Unit, Pediatric and Adult Congenital Centre Massimo Chessa
IRCCS Policlinico San Donato, Vita Salute
San Raffaele University
Milan, Italy
Contents
Part I Epidemiology, Anatomy and Pathophysiology
1 Incidence of Congenital Heart Disease and Relevance
in Adulthood . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3
Basma Abdelkader Hammad, Alexandra Arvanitaki,
and Michael A. Gatzoulis
2 Cardiac Defects . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
Basma Abdelkader Hammad and Michael A. Gatzoulis
Part II Transition from Pediatric to Adult Care
3 Transitional Care for Young People . . . . . . . . . . . . . . . . . . . . . . . . . . . . 31
Hajar Habibi
4 Advancing High-Value Transitional Care: The Central Role
of Nursing and Its Leadership . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 45
Serena Francesca Flocco and Rosario Caruso
5 Building a Transition Program . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 55
Christina Sillman
Part III The Role of the Advance Nurse Practitioner in the Care
of ACHD Patients in Different Care Setting
6 Nursing Care in the Outpatient and Hospital Setting . . . . . . . . . . . . . . 71
Alexander Corless
7 Nursing Care in the Cath Lab . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 97
Biagio Castaldi, Katiuscia Marchioro, and Piergiorgio Donolato
8 Nursing Care in the Critical Setting . . . . . . . . . . . . . . . . . . . . . . . . . . . . 115
Emily Dong, Tara Dade, and Anitra Romfh
vii
viii Contents
Part IV Advanced Heart Failure in ACHD
9 Management of Acute Heart Failure . . . . . . . . . . . . . . . . . . . . . . . . . . . . 141
Paolo Ferrero
10 Mechanical Circulatory Support Strategies . . . . . . . . . . . . . . . . . . . . . . 151
Mauro Cotza
11 Heart Transplantation: The Challenging Journey of an ACHD . . . . . . 167
Ilaria Balì, Luana Tiso, Elisa Barzon, Micaela Turato,
Vladimiro Vida, and Chiara Tessari
Part V A dult Congenital Heart Disease and Pregnancy
12 Congenital Heart Disease During Pregnancy . . . . . . . . . . . . . . . . . . . . . 187
Silvia Favilli and Gaia Spaziani
13 Contraception, Family Planning, and Pregnancy Management:
The Nurse Specialist Role . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 203
Sara Corzine and Mary Cannobio
Part VI Physical Activity and Sport
14 Rehabilitation’s Point Break: Changing for Improving . . . . . . . . . . . . 225
Barbara Baroni and Davide Girelli
15 Promotion of Daily Physical Activity and Exercise
for Adults with Congenital Heart Disease. . . . . . . . . . . . . . . . . . . . . . . . 239
Hajar Habibi
Part VII Patient Self-Care and Nursing Role for Patients’ Education
16 Connecting Dots for Framing Health: The Self-Care Process . . . . . . . 255
Federica Dellafiore, Cristina Arrigoni, and Barbara Riegel
17 Patient Education to Self-Management . . . . . . . . . . . . . . . . . . . . . . . . . 263
Arianna Magon, Deena Barber, and Theresa Faulkner
18 The Health Engagement of Adult Congenital Heart
Disease Patients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 287
Rosario Caruso
19 The Essential Impact of Counseling in Improvement of Quality
of Life in ACHD Patients . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 293
Maria Giovanna Russo, Marina de Marco, Assunta Merola, and
Berardo Sarubbi
Contents ix
Part VIII End-of-Life Care: Nursing Care in the Final Stage of Life
20 Advance Care Planning and Advance Directives . . . . . . . . . . . . . . . . . . 313
Caroline Scribner and Kristina Fontecha
Part IX Coronavirus Disease 2019 (COVID‐19) Pandemic
Implications in ACHD
21 COVID-19 and Adult Congenital Heart Disease . . . . . . . . . . . . . . . . . . 329
Ivana Babić and Margarita Brida
Part I
Epidemiology, Anatomy and Pathophysiology