Global Perspectives on Disability Activism and Advocacy: Our Way PDF
Preview Global Perspectives on Disability Activism and Advocacy: Our Way
Global Perspectives on Disability Activism and Advocacy This book explores the diverse ways in which disability activism and advocacy are experienced and practised by people with disabilities and their allies. Contributors to the book explore the very different strategies and campaigns they have used to have their demands for respect, dignity and rights heard and acted upon by their communities, by national governments and the international community. The book, with its contemporary global focus, makes a significant contribution to the field of disability and social justice studies, particularly at a time of major social, political and cultural upheaval. Global Perspectives on Disability Activism and Advocacy offers a significant intervention within the field of disability at a time of major social upheaval where actors, advocates and activists are seeking to hold onto existing claims for rights, equality and disability justice. Karen Soldatic is an Associate Professor, School of Social Sciences & Institute Fellow, Institute for Culture and Society, Western Sydney University. She was awarded a Fogarty Foundation Excellence in Education Fellowship for 2006–2009, a British Academy International Fellowship in 2012, a fellowship at The Centre for Human Rights Education at Curtin University (2011–2012), where she remains an Adjunct Fellow, and an Australian Research Council DECRA Fellowship (2016–2019). Her research on global welfare regimes builds on her 20 years of experience as an international, national and state-based senior policy analyst, researcher and practitioner. She obtained her PhD (Distinction) in 2010 from the University of Western Australia. Kelley Johnson holds honorary professorial appointments at Deakin University and University of New South Wales (UNSW) in Australia. She is an internationally known scholar who has been a researcher and advocate with disabled people for more than 20 years in Australia and internationally. Her recent previously held positions include Director, Social Policy Research Centre at UNSW, and Director of the Norah Fry Research Centre in Bristol, UK. Kelley has an ongoing commitment to inclusive research which involves disabled people undertaking research on issues that are important in their lives. Her research interests include deinstitutionalization, community participation of disabled people, sexuality and relationships, and rights with a particular focus on the Convention on the Rights of Persons with Disabilities. Interdisciplinary Disability Studies Series editor: Mark Sherry The University of Toledo, USA Disability studies has made great strides in exploring power and the body. This series extends the interdisciplinary dialogue between disability studies and other fields by asking how disability studies can influence a particular field. It will show how a deep engagement with disability studies changes our understanding of the following fields: sociology, literary studies, gender studies, bioethics, social work, law, education, or history. This ground-breaking series identifies both the practical and theoretical implications of such an interdisciplinary dialogue and challenges people in disability studies as well as other disciplinary fields to criti- cally reflect on their professional praxis in terms of theory, practice and methods. Disability and Neoliberal State Formations Karen Soldatic Manifestos for the Future of Critical Disability Studies Volume 1 Edited by Katie Ellis, Rosemarie Garland-Thomson, Mike Kent and Rachel Robertson Interdisciplinary Approaches to Disability Volume 2 Edited by Katie Ellis, Rosemarie Garland-Thomson, Mike Kent and Rachel Robertson Disability and Social Representations Theory The Case of Hearing Loss Vinaya Manchaiah, Berth Danermark, Per Germundsson and Pierre Ratiaud Identity (Re)constructions After Brain Injury Personal and Family Identity Chalotte Glintborg Global Perspectives on Disability Activism and Advocacy Our Way Edited by Karen Soldatic and Kelley Johnson For a full list of titles in this series, please visit www.routledge.com/series/ ASHSER1401 Global Perspectives on Disability Activism and Advocacy Our Way Edited by Karen Soldatic and Kelley Johnson First published 2020 by Routledge 2 Park Square, Milton Park, Abingdon, Oxon OX14 4RN and by Routledge 52 Vanderbilt Avenue, New York, NY 10017 Routledge is an imprint of the Taylor & Francis Group, an informa business © 2020 selection and editorial matter, Karen Soldatic and Kelley Johnson; individual chapters, the contributors The right of Karen Soldatic and Kelley Johnson to be identified as the authors of the editorial material, and of the authors for their individual chapters, has been asserted in accordance with sections 77 and 78 of the Copyright, Designs and Patents Act 1988. All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers. Trademark notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. British Library Cataloguing-in-Publication Data A catalogue record for this book is available from the British Library Library of Congress Cataloging-in-Publication Data A catalog record has been requested for this book ISBN: 978-0-8153-7649-1 (hbk) ISBN: 978-1-351-23749-9 (ebk) Typeset in Times New Roman by Deanta Global Publishing Services, Chennai, India For Helen Errington and Daisy Serong, whose lives as advocates influenced the way we thought about social change and justice. Contents List of contributors x Acknowledgements xvi 1 Introduction: Doing it our way: Disability, activism and advocacy 1 KAREN SOLDATIC AND KELLEY JOHNSON PART I Remembering and remembrance 13 2 ‘We’re being treated as second-class citizens’: Community, family and learning disability activists campaigning for dignity in death 15 NIGEL INGHAM 3 ‘Madhouse’: Performance artists with learning disabilities sharing the history of institutions 35 SUE LEDGER AND JAN WALMSLEY WITH MEMBERS OF ACCESS ALL AREAS 4 The importance of disabled people being seen on our screens 52 SARAH BARTON 5 Advocacy from within 66 MOIRA RAYNER PART II Movement organizations and leadership 81 6 Action makes a difference: Creating inclusive spaces through advocacy work in Sāmoa 83 JULIANN ANESI viii Contents 7 Kamalawathie: Gender, disability and leadership in Sri Lanka 97 NIROSHINI KANDASAMY AND KAREN SOLDATIC 8 Research, advocacy and activism: A necessary interaction? 114 KELLEY JOHNSON, ROB HOPKINS AND GERARD MINOGUE 9 Peer education: A platform for sexuality rights advocacy for women with intellectual disabilities 126 PATSIE FRAWLEY AND AMIE O’SHEA PART III Activism across multiple identities 143 10 Our lives, our story: The journey of the voiceless towards advocacy in Nepal 145 PRATIMA GURUNG 11 Sex trafficking, activism and disability 161 MARK SHERRY 12 The onset of austerity in the United Kingdom and start of a disability activism 179 ELEANOR LISNEY 13 Queer-crip.blog: A virtual ethnographic comparison of social media movement-building techniques used by queer and disabled activists 193 ZAHARI RICHTER PART IV Agitating the state 203 14 Disability masked avengers: The Bolshy Divas 205 KATIE ELLIS 15 Advocacy in Jordan: A paradigm shift from the medical model to the rights-based approach 221 MUHANNAD ALAZZEH Contents ix 16 Transforming disability law and policy in Peru: The role of civil society 232 ALBERTO VÁSQUEZ ENCALADA 17 The fight to be steadfast: Bolivian disability activists 245 MARIANNE HEDLUND PART V Working transnationally 261 18 Advocating for independent living in the European Union: Where there’s money, there’s a way? 263 INES BULIC COJOCARIU 19 Towards an Afrocentric disability activism: Opportunities and challenges of transnationalizing disability advocacy in Africa 281 PRIVILEGE HAANG’ANDU 20 Troubling activisms: Canada and transnational disability activism 298 DEBORAH STIENSTRA 21 When academia meets activism: The place of research in struggles for disability rights 315 PAULA CAMPOS PINTO Conclusion 328 KELLEY JOHNSON AND KAREN SOLDATIC Index 335
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