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Genes and Insurance: Ethical, Legal and Economic Issues PDF

316 Pages·2009·1.38 MB·English
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This page intentionally left blank Autonomy, Informed Consent and Medical Law Alasdair Maclean analyses the ethical basis for consent to medical treatment, providing both an extensive reconsideration of the ethical issues and a detailed examination of English law. Importantly, the analysis is given a context by situating consent at the centre of the healthcare professional–patient relationship. This allows the develop- mentofarelationalmodelthatbalancestheagencyofthetwoparties withtheirobligationsthatarisefromthatrelationship.Thatrelational model is then used to critique the current legal regulation of consent. To conclude, Alasdair Maclean considers the future development of thelawandcontraststhemodelofrelationalconsentwithNeilManson andOnoraO’Neill’srecent proposalforamodelof genuineconsent. Having qualified in medicine and worked clinically in both England andNewZealand,AlasdairMacleanstudiedlawandbecamealecturer inmedicallawattheUniversityofGlasgow.Heisnowaseniorlecturer attheUniversity ofDundee. Cambridge Law, Medicine and Ethics This series of books was founded by Cambridge University Press with Alexander McCall Smith as its first editor in 2003. It focuses on the law’s complex and troubled relationship with medicine across both the developed and the developing world. In the past twenty years, we have seen in many countries increasing resort to the courts by dissatisfied patientsandagrowinguseofthecourtstoattempttoresolveintractable ethical dilemmas. At the same time, legislatures across the world have struggled to address the questions posed by both the successes and the failures of modern medicine, while international organisations such as the WHO and UNESCO now regularly address issues of medical law. It follows that we would expect ethical and policy questions to be integral to the analysis of the legal issues discussed in this series. The seriesrespondstothehighprofileofmedicallawinuniversities,inlegal and medical practice, as well as in public and political affairs. We seek to reflect the evidence that many major health-related policy debates in the UK, Europe and the international community over the past two decadeshaveinvolvedastrongmedicallawdimension.Organretention, embryonic stem-cell research, physician-assisted suicide and the allo- cation of resources to fund healthcare are but a few examples among many. The emphasis of this series is thus on matters of public concern and/or practical significance. We look for books that could make a dif- ference to the development of medical law and enhance the role of medico-legal debate in policy circles. That is not to say that we lack interest in the important theoretical dimensions of the subject, but we aim toensure that theoretical debate is grounded in the realities of how the law does and should interact with medicine and healthcare. General Editors Professor Margaret Brazier, University of Manchester Professor Graeme Laurie, University of Edinburgh Editorial Advisory Board Professor Richard Ashcroft, Queen Mary, University of London Professor Martin Bobrow, University of Cambridge DrAlexanderMorganCapron,Director,EthicsandHealth,WorldHealth Organization, Geneva Professor Jim Childress, University of Virginia Professor Ruth Chadwick, Cardiff Law School Dame Ruth Deech, University of Oxford Professor John Keown, Georgetown University, Washington, DC Dr Kathy Liddell, University of Cambridge Professor Alexander McCall Smith, University of Edinburgh Professor Dr Mo(cid:1)nica Navarro-Michel, University of Barcelona Marcus Radetzki, Marian Radetzki, Niklas Juth Genes and Insurance: Ethical, Legal and Economic Issues 978 0 521 83090 4 Ruth Macklin Double Standards in Medical Research in Developing Countries 978 0 521 83388 2 hardback 978 0 521 54170 1 paperback Donna Dickenson Property in the Body: Feminist Perspectives 978 0 521 86792 4 Matti H€ayry, Ruth Chadwick, Vilhj(cid:1)almur A(cid:1)rnason, Gardar A(cid:1)rnason The Ethics and Governance of Human Genetic Databases: European Perspectives 978 0 521 85662 1 Ken Mason The Troubled Pregnancy: Legal Wrongs and Rights in Reproduction 978 0 521 85075 9 Daniel Sperling Posthumous Interests: Legal and Ethical Perspectives 978 0 521 87784 8 Keith Syrett Law, Legitimacy and the Rationing of Health Care 978 0 521 85773 4 Alasdair Maclean Autonomy, Informed Consent and Medical Law: A Relational Challenge 978 0 521 89693 1 Autonomy, Informed Consent and Medical Law A Relational Challenge Alasdair Maclean CAMBRIDGE UNIVERSITY PRESS Cambridge, New York, Melbourne, Madrid, Cape Town, Singapore, São Paulo Cambridge University Press The Edinburgh Building, Cambridge CB2 8RU, UK Published in the United States of America by Cambridge University Press, New York www.cambridge.org Information on this title: www.cambridge.org/9780521896931 © Alasdair Maclean 2009 This publication is in copyright. Subject to statutory exception and to the provision of relevant collective licensing agreements, no reproduction of any part may take place without the written permission of Cambridge University Press. First published in print format 2009 ISBN-13 978-0-511-50840-0 eBook (NetLibrary) ISBN-13 978-0-521-89693-1 hardback Cambridge University Press has no responsibility for the persistence or accuracy of urls for external or third-party internet websites referred to in this publication, and does not guarantee that any content on such websites is, or will remain, accurate or appropriate. This book is dedicated to my mother and the memory of my father.

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The authors of this study emphasize the effectiveness of collectively funded public insurances as opposed to genetic information regulation within the private insurance sector. Genetics has provided tools to determine individuals' risk of future disease, which is of key interest for insurance compan
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