Food Allergies Comments on Food Allergies: Enjoying Life with a Severe Food Allergyfrom readers: ‘This book is packed with detailed and useful information.’ Sarah Campbell, Homoeopath (and mother of three with eczema) ‘... essential reading for any allergy sufferer or their friends and family.’ Reviewer from London, featured on the Amazon website ‘It is a really useful book and full of sense.’ Hazel Gowland, Allergy Action ‘This is the most comprehensive help for food allergy sufferers that I have ever read.’ Maureen Jenkins, Trustee and Member of the Health Advisory Panel of Allergy UK,and Allergy Nurse Consultant, Sussex Allergy Service ‘... and this edition is really excellent’ Michelle Berriedale-Johnson, Editor of Foods Matter REVIEWS OF THE FIRST EDITION ‘The author suffers from food allergy, but is also a state registered dietician with professional expertise on the subject. The result is a really detailed and useful book on the medical science of food allergy but, perhaps more importantly, the day-to-day practicalities of diagnosis and management of food allergy. The text is clear and comprehensive, and there is detailed description of the different types of special diets. Eating in or eating out: the author provides information that can be viewed as an oasis of accuracy on a topic about which much inaccuracy exists. Particularly useful is also the large section with addresses and web-sites for those wishing more information.’ Practice Nurse Journal ‘Required reading for those with food allergies.’ David Reading, OBE, Director, The Anaphylaxis Campaign ‘Tanya Wright has amalgamated her personal experience of severe food allergy with her expertise as a specialist dietitian to produce this unsurpassed guide to living with food allergy. I challenge anyone to find a question about the subject of food allergy that is unanswered in this wonderful book.’ Maureen Jenkins, Nurse Adviser and Coordinator of Training, British Allergy Foundation ‘This excellent book will be a godsend for people who have food allergies, their carers and clinicians. I am often asked to recommend a single text which might help patients, carers and professionals to understand food allergy and the practical aspects of dealing with it. Tanya Wright’s book would seem to be the perfect choice.’ Nursing Times Food Allergies Enjoying Life with a Severe Food Allergy Second edition Tanya Wright, BSc (Hons), RD Registered Dietitian, working for Buckinghamshire Hospitals NHS Trust as Specialist Dietitian and Allergy Coordinator for adults and children attending the Allergy Clinic Medical adviser: Dr Joanne Clough DM, FRCA, MRCP, FRCPCH CLASS PUBLISHING (cid:129) LONDON Text © Tanya Wright 2001, 2007 © Class Publishing (London) Ltd 2001, 2007 All rights reserved. Without limiting the rights under copyright reserved above, no part of this publication may be reproduced, stored in or introduced into a retrieval system, or transmitted, in any form or by any means (electronic, mechanical, photocopying, recording or otherwise), without the prior written permission of the above publisher of this book. Tanya Wright has asserted her right as set out in Sections 77 and 78 of the Copyright, Designs and Patents Act 1988 to be identified as the author of this work wherever it is published commercially and whenever any adaptation of this work is published or produced including any sound recordings or files made of or based upon this work. Printing history First published 2001 Second edition 2007 The information presented in this book is accurate and current to the best of the author’s knowledge. The author and publisher, however, make no guarantee as to, and assume no responsibility for, the correctness, sufficiency or completeness of such information or recommendation. The reader is advised to consult a doctor regarding all aspects of individual health care. The author and publishers welcome feedback from the users of this book. Please contact the publisher. Class Publishing, Barb House, Barb Mews, London W6 7PA, UK Telephone: (020) 7371 2119 Fax: (020) 7371 2878 Email: [email protected] Visit our website: www.class.co.uk A CIP catalogue record for this book is available from the British Library ISBN 13: 978 1 85959 146 8 ISBN 10: 1 85959 146 9 10 9 8 7 6 5 4 3 2 1 Edited by Gillian Clarke Designed and typeset by Martin Bristow Index by Vicki Robinson Printed and bound in Finland by WS Bookwell, Juva Contents Foreword by David Reading, OBE, Director, The Anaphylaxis Campaign xi Foreword by Maureen Jenkins, Trustee and Member of the Health Advisory Panel of Allergy UK, and Allergy Nurse Consultant, Sussex Allergy Service xiii Author’s note xv Acknowledgements xvii About the author xix About the medical adviser xix Introduction 1 BACKGROUND 1 Food Allergy 5 What is allergy? 5 Who can develop allergies? 6 How common is allergy? 6 Why are allergies increasing? 7 Food hypersensitivity 8 Treatment 10 Summary 10 2 Food Allergy Tests 11 What to do if you think you have a food allergy 11 Diagnosis of a food allergy 12 Testing for a suspected food allergy 13 Alternative diagnostic therapies 17 Following the diagnosis of a food allergy 17 Testing for latex allergy 18 Referral to an allergy specialist 18 3 Will My Allergy Improve over Time? 21 Immunotherapy (desensitisation) 21 Vaccine 21 Growing out of it 22 v vi FOOD ALLERGIES 4 Anaphylaxis 23 What are the causes of anaphylaxis? 23 At what age can anaphylaxis start? 24 What actually happens in the body? 24 What are the symptoms? 25 What factors increase the severity and speed of an allergic reaction? 25 What is the treatment? 25 Which medication – and when? 30 Treatment when taking other medication 31 Management of a severe attack 32 How can you prevent further reactions? 33 The Anaphylaxis Campaign 35 The pharmacy and the ‘little red book’ 35 Frequently asked questions 36 5 Your Anaphylaxis Contingency Plan 37 Emergency pack 37 General preparation 39 Identification (ID) 40 6 Food Allergy and Going to School 42 Pre-school 42 Medical questionnaire 42 Setting up an action plan 43 Health and safety in school 44 Records 46 Food at school 47 School activities 48 7 Food Allergy in Young Adults 50 College students living-in 51 Extra tips 51 ENJOYING FOOD 8 The Dietitian’s Role 55 Getting a referral 55 Seeing the dietitian 56 CONTENTS vii 9 Food Labelling 59 Product changes 59 Food allergen labelling laws 59 Alcoholic drinks 60 ‘May contain’ issues 60 The Food and Drink Federation 62 The Food Standards Agency 62 Trading Standards 62 Supermarket food-allergen labelling 63 Food outlets 63 Cosmetics labelling 64 10 Special Diets 66 Cow’s milk- and dairy-free diet 67 Dairy-free diet and nutrition 69 Replacement foods 74 Egg-free diet 80 Egg allergy 80 Foods containing eggs 81 Vaccines 84 Alternatives for eggs 84 Egg-free foods 85 Peanut-free and nut-free diets 85 Other names for peanut 86 Peanut derivatives 87 Peanut oil 87 Other nut allergies 87 ‘May contain’ warnings on food labels 89 Is peanut or nut allergy on the increase? 89 How dangerous is peanut/nut allergy? 89 Reducing the danger of a severe reaction 90 Eating out with a peanut/nut allergy 90 Mistaken peanut derivatives 91 Alternative peanut/nut-free treats 92 Lupin allergy 93 Sesame-free diet 93 Sesame seed allergy 93 Sesame oil 94 You should know 94 Shellfish-free and fish-free diets 95 viii FOOD ALLERGIES Fish-free diet 95 ‘Hidden’ fish 96 Shellfish-free diet 97 Scromboid poisoning 98 Wheat-free and gluten-free diets 98 What is the difference between wheat-free and gluten-free? 99 Avoiding wheat 99 Wheat substitutes 100 Avoiding gluten 101 Labelling 102 Special dietary products 102 Soya-free diet 105 Eating out 106 Toiletries 106 Alternative foods 106 Oral allergy syndrome 108 Latex–fruit–pollen syndrome 108 Kiwi allergy 109 Celery allergy 110 Mustard allergy 110 Sulphites 110 Multiple food allergies 111 11 Allergy Prevention: pregnancy, breast-feeding, formula milks and weaning 112 Atopy 112 The father’s diet 112 Advice for the mother 113 Formula milks for the allergic infant 114 If cow’s milk formula is unsuitable 115 Weaning 118 12 Cross-reactivity and Food Families 122 Common cross-reactions between foods in the same group 122 Common cross-reactions between foods in different groups 123 13 Eating In 127 How can I make my diet more appetising? 127 Where to find out about ‘special diet’ products 128 Finding suitable replacement foods 129 CONTENTS ix 14 Eating Away from Home 132 Basic guidelines for eating out 133 Special occasions 135 Going into hospital 135 Severe food allergy 135 15 Cross-contamination 137 Food manufacture 137 Food preparation 137 Personal contact 140 ENJOYING LIFE 16 Holidays and Travelling 143 Travelling or holidaying in the UK 143 Travelling or holidaying abroad 144 Planning for an emergency 147 Other issues 149 Summary 149 17 Help for People on Special Diets 152 Free prescriptions 152 Prepayment certificate (‘season ticket’) for prescriptions 153 Over-the-counter medicines 153 Non-cow’s milk formula on prescription 154 Gluten-free products 154 Whole-egg replacer 154 State benefits 154 Non-financial sources of help when on a special diet 155 18 Career and Leisure Choices 156 Food allergy 156 Other allergy 156 Other choices 157 Leisure 158 Glossary 159 Abbreviations 164