F A M I L I E S A D U LT S O F W I T H A U T I S M http://avaxhome.ws/blogs/ChrisRedfield of relatedinterest DyslogicSyndrome WhyMillionsofKidsare‘Hyper’,Attention-Disordered, LearningDisabled,Depressed,Aggressive,Defiant,orViolent–and WhatWeCanDoAboutIt BernardRimland ISBN9781843108771 AutismHeroes PortraitsofFamiliesMeetingtheChallenge BarbaraFirestone PhotographsbyJoeBuissink ISBN9781843108375 FromIsolationtoIntimacy MakingFriendswithoutWords PhoebeCaldwell WithJaneHorwood ISBN9781843105008 FindingYouFindingMe UsingIntensiveInteractiontogetintouchwithpeoplewhoseseverelearningdisabilities arecombinedwithauristicspectrumdisorder PhoebeCaldwell ISBN9781843103998 TheCompleteGuidetoAsperger’sSyndrome TonyAttwood ISBN9781843104957 F A M I L I E S A D U LT S O F W I T H A U T I S M Stories and Advice for the Next Generation JessicaKingsleyPublishers LondonandPhiladelphia Disclaimer:Theinformationinthisbookisnotintendedasaprotocolforthetreatmentof individualpatientsandisnotasubstituteforprofessionalmedicalhelp. Firstpublishedin2008 byJessicaKingsleyPublishers 116PentonvilleRoad LondonN19JB,UK and 400MarketStreet,Suite400 Philadelphia,PA19106,USA www.jkp.com Copyright©JessicaKingsleyPublishers2008 Forewordcopyright©StephenM.Edelson2008 Allrightsreserved.Nopartofthispublicationmaybereproducedinanymaterialform (includingphotocopyingorstoringitinanymediumbyelectronicmeansandwhetheror nottransientlyorincidentallytosomeotheruseofthispublication)withoutthewritten permissionofthecopyrightownerexceptinaccordancewiththeprovisionsofthe Copyright,DesignsandPatentsAct1988orunderthetermsofalicenceissuedbythe CopyrightLicensingAgencyLtd,SaffronHouse,6–10KirbyStreet,LondonEC1N8TS. Applicationsforthecopyrightowner’swrittenpermissiontoreproduceanypartofthis publicationshouldbeaddressedtothepublisher. Warning:Thedoingofanunauthorisedactinrelationtoacopyrightworkmayresultin bothacivilclaimfordamagesandcriminalprosecution. LibraryofCongressCataloginginPublicationData Familiesofadultswithautism:storiesandadviceforthenextgeneration/editedbyJane JohnsonandAnneVanRensselaer;forewordbyStephenM.Edelson.--1stAmericanpbk.ed. p.cm. ISBN978-1-84310-885-6(pb:alk.paper) 1. Autism. I.Johnson,Jane,1966-II.Van Rensselaer,Anne. RC553.A88F362008 616.85'882--dc22 2007031526 BritishLibraryCataloguinginPublicationData ACIPcataloguerecordforthisbookisavailablefromtheBritishLibrary ISBN9781843108856 ISBNpdfeBook9781846427664 PrintedandboundinGreatBritainby AthenaeumPress,Gateshead,TyneandWear Thinkof measyourfuture.Iamwhereyouwillbemanyyearsfromnow, whenyouknowhowitallplayedoutand“whatwillbe”hasturnedinto “whatwas.” Andyouwillhavecometotermswithit,notperhapsinthewayyouthought youwould,butyou’llnolongerfeeltrappedinamorassofangstandguilt. You will have resolved your child’s future and your own. You’ll know you’ve given full measure and the measure you’ve given has never been pointless. EustaciaCutler,motherof TempleGrandin (FromAThorninMyPocket;TempleGrandin’sMother TellstheFamilyStory,byEustaciaCutler) Contents Foreword, by Dr. Stephen M. Edelson 11 Chapter 1 Helen Landalf 15 Chapter 2 Joan H. Goble, MD 22 Chapter 3 Jean and Michael Curtin 24 Chapter 4 Katie Dolan 31 Chapter 5 John Henley 33 Chapter 6 Gerda McCarthy 38 Chapter 7 Toby Arenberg 41 Chapter 8 Raymond Gallup 44 Chapter 9 Julie Gallup 48 Chapter 10 Clara Claiborne Park 50 Chapter 11 Carol Croke 53 Chapter 12 Matthew DeLuca 56 Chapter 13 Jinny and Bill Kemmel 58 Chapter 14 Elaine Woodruff 63 Chapter 15 Ann Laferty-Snowhook 66 Chapter 16 Jordan Snowhook 71 Chapter 17 Elizabeth Snowhook 72 Chapter 18 Kim Oakley 73 Chapter 19 Irina Lobkovitz 88 Chapter 20 Kristin Zhivago 92 Chapter 21 Sue Swezey 95 Chapter 22 Edith P. Gray 114 Chapter 23 Beth Sposato 117 Chapter 24 Sharon Lettick Crotzer 129 Chapter 25 Ruth C. Sullivan 133 Chapter 26 Toshiko Lyons 137 Chapter 27 Sally Graham 144 Chapter 28 Lawrence Stream 146 Chapter 29 Maxine Richards 152 Chapter 30 Arlene J. Paster 155 Chapter 31 Mary Laird Flanagan 158 Chapter 32 Dr. and Mrs. William K. Henry 161 Chapter 33 Francine M. Bernstein 166 Chapter 34 Dorothy Beavers 173 Chapter 35 Jim Cockey 178 Chapter 36 Audrey Flack 187 This book is dedicated to our hero, Bernie Rimland.
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