Families and Communities Responding to AIDS Families and Communities Responding to AIDS Edited by Peter Aggleton, Graham Hart and Peter Davies First published 1999 by UCL Press 11 New Fetter Lane London EC4P 4EE and 29 West 35th Street New York, NY 10001 USA This edition published in the Taylor & Francis e-Library, 2001. The name of University College London (UCL) is a registered trade mark used by UCL Press with the consent of the owner. © Peter Aggleton, Graham Hart, Peter Davies and contributors, 1999 All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers. British Library Cataloguing-in-Publication Data A catalogue record for this book is available from the British Library. Library of Congress Cataloging in Publication Data A catalogue record for this book has been requested ISBN: 1-85728-999-4 HB 1-85728-965-X PB ISBN 0-203-01923-7 Master e-book ISBN ISBN 0-203-17321-X (Glassbook Format) Social Aspects of AIDS Series Editor: Peter Aggleton (Institute of Education, University of London) AIDS is not simply a concern for scientists, doctors and medical researchers, it has important social dimensions as well. These include individual, cultural and media responses to the epidemic, stigmatization and discrimination, counselling, care and health promotion. This series of books brings together work from many disciplines including psychology, sociology, cultural and media studies, anthropology, education and history. The titles will be of interest to the general reader, those involved in education and social research, and scientific researchers who want to examine the social aspects of AIDS. Recent titles include: Power and Community: Organizational and Cultural Responses to AIDS Dennis Altman Moral Threats and Dangerous Desires: AIDS in the News Media Deborah Lupton Last Served? Gendering the HIV Pandemic Cindy Patton Crossing Borders: Migration, Ethnicity and AIDS Edited by Mary Haour-Knipe Bisexualities and AIDS: International Perspectives Edited by Peter Aggleton Sexual Interactions and HIV Risk: New Conceptual Perspectives in European Research Edited by Luc Van Campenhoudt, Mitchell Cohen, Gustavo Guizzardi and Dominique Hausser AIDS: Activism and Alliances Edited by Peter Aggleton, Peter Davies and Graham Hart AIDS as a Gender Issue Edited by Lorraine Sherr, Catherine Hankins and Lydia Bennett Drug Injecting and HIV Infection: Global Dimensions and Local Responses Edited by Gerry Stimson, Don C. Des Jarlais and Andrew Ball Sexual Behaviour and HIV/AIDS in Europe: Comparisons of National Surveys Edited by Michel Hubert, Nathalie Bajos and Theo Sandfort Men Who Sell Sex: International Perspectives on Male Prostitution and AIDS Edited by Peter Aggleton The Dutch Response to HIV: Pragmatism and Consensus Edited by Theo Sandfort Social Aspects of AIDS Series Editor: Peter Aggleton Institute of Education, University of London Editorial Advisory Board Dominic Abrams, University of Kent at Canterbury, UK Dennis Altman, La Trobe University, Australia Maxine Ankrah, Makerere University, Uganda Mildred Blaxter, University of East Anglia, UK Manuel Carballo, Nyon, Switzerland Judith Cohen, University of California, San Francisco, USA Anthony Coxon, University of Essex, UK Peter Davies, University of Portsmouth, UK Gary Dowsett, La Trobe University, Australia Jan Grover, Oakland, California, USA Graham Hart, MRC Medical Sociology Unit, Glasgow, UK Mukesh Kapila, Department of International Development, UK Hans Moerkerk, Ministry of Foreign Affairs, The Hague, The Netherlands Cindy Patton, Temple University, USA Diane Richardson, University of Sheffield, UK Werasit Sittitrai, UNAIDS, Geneva, Switzerland Ron Stall, University of California, San Francisco, USA Robert Tielman, Utrecht, The Netherlands Simon Watney, London, UK Jeffrey Weeks, South Bank University, UK Contents Figures ix Tables x Introduction by Peter Aggleton and Graham Hart 1 Chapter 1 Getting on with Life: The Experience of Families of Children with HIV Infection 5 Mary Boulton, Katy Pepper, Sam Walters, Eddy Beck and David Miller Chapter 2 African Refugee Children and HIV/AIDS in London 21 Martha Chinouya-Mudari and Margaret O’Brien Chapter 3 Solidarity and Stress: Gender and Local Mobilization in Tanzania and Zambia 35 Janet M. Bujra and Carolyn Baylies Chapter 4 Gender, Disclosure, Care and Decision Making in KwaZulu-Natal, South Africa 53 Gill Seidel and Rosalind Coleman Chapter 5 Narratives of Care, Love and Commitment: AIDS/HIV and Non-Heterosexual Family Formations 67 Brian Heaphy, Jeffrey Weeks and Catherine Donovan Chapter 6 Everyone on the Scene is so Cliquey 83 Paul Flowers and Graham Hart Chapter 7 Coming Together: Social Networks of Gay Men and HIV Prevention 99 Kevin Eisenstadt and Philip Gatter Chapter 8 Observing the Rules: An Ethnographic Study of London’s Cottages and Cruising Areas 121 Peter Keogh and Paul Holland vii Contents Chapter 9 Sydney Gay Men’s Agreements about Sex 133 Paul Van de Ven, Judy French, June Crawford and Susan Kippax Chapter 10 Young Gay Men and HIV Risk 147 Danielle Campbell, Paul Van de Ven, Garrett Prestage, June Crawford and Susan Kippax Chapter 11 A New Method of Peer-Led HIV Prevention with Gay and Bisexual Men 163 Jonathan Shepherd, Glenn Turner and Katherine Weare Chapter 12 Sexual Risk Taking and HIV Testing: A Qualitative Investigation 185 Susan Beardsell Chapter 13 Treatment Education: A Multidisciplinary Challenge 199 Will Anderson and Peter Weatherburn Notes on contributors 213 Index 219 viii Figures Figure 4.1 Antenatal HIV seroprevalence, Hlabisa 1992–1997 54 Figure 4.2 Age–sex distribution of reported AIDS cases in South Africa 1994 55 Figure 8.1 Relation between interaction and determination of site 128 Figure 8.2 Relation between sexual behaviour and determination of site 129 Figure 8.3 Factors influencing sexual behaviour 131 Figure 13.1 HIV: sources of treatment information and their importance 205 Figure 13.2 Knowledge of HIV medicine and therapy 207 ix
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