In Essence Journal of the International Federation of Professional Aromatherapists Exploring unusual Good practice in essential oils palliative care Aromatherapy How aromatic helps improve compounds work quality of life on the body Volume 14 Number 2 Autumn 2015 2211sstt AAnnnniivveerrssaarryy INTERNATIONAL JOURNAL OF www.positivehealth.com clinical aromatherapy The leading Complementary Health Magazine PositiveHealth Online Integrated Medicine for the 21st Century Editor: Rhiannon Lewis Associate Editor: Gabriel Mojay A unique resource for enhancing clinical practice Written by practitioners for practitioners A Few Recent Topics • So You Think You’ve Mastered Mindfulness ... Now What? • • Of Refine•d Wisdom & Positive Change How to Find Your ‘Mojo’ y ! a & Keep It! Teen Suicide Prevention & Awareness – I AM NOT OK d • o Chronic Fatigue Syndrome aka Myalgic Encephalomyelitis (ME) t • • e ME, CFS, Now SEID The Sequence Specific Homeopathic DNA b i r Remedy System Responds to Discovery of New Form of Asthma c • s Reflexology: The Feet are an Underestimated Part of the Body u b • • S Journey & Survival through Mantle Cell Lymphoma Links • between IBS & SIBO Colloidal Silver – Antimicrobial, Antifungal & • Antiviral Mechanisms with Clinical Actions Forensic Nutrition • Sciatic Pain Relief & Post Microdisceptomy Rehabilitation Using • Pilates 6 Yoga Stretch Routines for the Casual Runner Promote your Practice or Services on the PH Website with a Practitioner Listing – an affordable way to advertise [email protected] www.positivehealth.com Base Products Makers of an extensive range of finest quality aromatherapy base formulations • Range of wholesale products, including paraben free • Suitable for client customization or ‘specials’ made to customer specification • Over 20 years experience formulating to Aromatherapy and Herbal principles • NEW – Starter kit for trainees For full information Tel: +44 (0) 1561 378811 Fax: +44 (0) 1561 378292 e–mail: [email protected] Web site: www.bodyandface.co.uk Body & Face St Cyrus Ltd., Units 4–6 Laurencekirk Business Park, Aberdeen Road, Laurencekirk, Kincardineshire AB30 1EY U.K. 2 In Essence Vol.1 4 No. 2 — Autumn 2015 Editor’s letter Editor Pat Herbert Editorial Board Autumn 2015 Sue Charles, Sue Jenkins Scientific Adviser Bob Harris I n one of his sermons the Elizabethan poet and cleric John Guidance for authors Donne commented that “in Heaven it is always autumn” because God’s mercies are “ever in maturity”. So perhaps In Essence welcomes editorial we should look upon this sombre season not as one of contributions which can be short items (news, letters, reviews) of 100–300 sadness and endings but of ripeness and fruition. We hope words or feature articles or case studies you find much to enjoy in the mellow maturity of this au- of 1000–3000 words. tumn season and its vibrant colour and soft light. Contributions can be sent by email to When In Essence changed to an online journal some two the following address: years ago we know that many of you, for a variety of reasons, [email protected] or typed clearly on A4 paper, double–spaced, and sent were not happy with the change. So we are delighted that the IFPA Council has to the IFPA office (address below). decided to return to a printed version and we hope you enjoy receiving your hard copy journal once again. Technical details We open this edition with an article by Lora Cantele who helped set up a pilot Advertisement artwork: Please ensure programme for children with life-limiting illnesses in a children’s home in Illinois, that all display advertisement artwork USA (page 9). She explains how she uses aromatherapy for the children’s physical, is supplied as CMYK PDFs or JPEGS at 300dpi. If you are unable to supply mental, emotional and spiritual needs and to improve their quality of life. artwork in these formats please note On page 17 Jacqueline Von Kaenel shares her experience of 12 years’ work- that the IFPA offers a design and layout service (fee payable) – please contact ing in palliative and end of life care and, for therapists new to this area of work, the IFPA office for details. she highlights the major lessons she has learnt about working both with patients and with their families. Illustrations and Photographs: If illustrations are to be used from Over our past two issues we have featured articles by Hannah Boot focusing previously published material, the on whether aromatherapy can help people with rheumatoid arthritis. In the third author must seek permission to reproduce from the original publishers and concluding article she draws together what she learned from her research and authors. Photographs to and highlights potential areas for future study. accompany an article should be sent by In your practice do you stick to a small selection of essential oils that you email as a colour JPEG or TIFF file. If scanning from an original image or know well? On page 20 Sue Jenkins challenges you to try some oils you may not photograph, please use the following have considered before and highlights their characteristics, properties, and uses. settings: 300dpi, colour, 100% size. On page 26 Ray Gransby, in his regular feature on legislation affecting The contents of this journal are the aromatherapy, highlights a regulation that is often ignored by aromatherapists copyright of the International and explains why it is important. Ray’s articles in each edition since Winter 2013 Federation of Professional Aromatherapists (IFPA) but do not are an excellent reference resource if you need to update yourself on regulations necessarily represent its views. affecting your practice. The information provided by advertisers Also in this edition we have a report by Anita James on Robert Tisserand’s or included in inserts in In Essence is the London seminar held earlier this year (page 24). The two-day event at the Univer- sole responsibility of the advertisers and, while accepted in good faith by sity of Westminster focused on essential oil chemistry and pharmacology, high- IFPA and the Editorial Board, is not lighting the actions of aromatic compounds in the body. endorsed by, and does not necessarily represent, IFPA opinion. Contacts Editorial Pat Herbert Editor Tel: 01825 890247 [email protected] Advertising Tel: 01455 637987 Jacqueline Von Lora Cantele, a Anita James is an [email protected] Kaenel, formerly registered aromatherapist a nurse, has been aromatherapist and holistic Design and online edition an aromatherapy in the United practitioner who Riverhead Publishing practitioner for States, works in runs an [email protected] 12 years, both private established www.riverhead.co.uk working extensively in practice and in paediatric practice and an IFPA- palliative and end-of-life hospice and palliative care. accredited school in In Essence is published by the care. In her article she shares In this issue she gives a Derbyshire. She has served International Federation of Professional her experience of working fascinating account of how several terms of office on the Aromatherapists (IFPA), IFPA House, with patients and their aromatherapy is helping to IFPA Council. In this edition 82 Ashby Road, Hinckley, Leicestershire families in a palliative care improve the quality of life of she reports on what she LE10 1SN, United Kingdom. Tel: 01455 637987 Fax: 01455 890956 unit, highlighting seven children with life-limiting learned at Robert Tisserand’s [email protected] points for effective practice illnesses in an Illinois stimulating seminar held in www.ifparoma.org in this area of work. Children’s Home. London this summer. In Essence Vol.1 4 No. 2 — Autumn 2015 3 3 Editor’s letter s Welcome to our Autumn issue In Essence t Journal of the International Federation of Professional Aromatherapists 5 News n Including message from IFPA Council Chair e 8 Meeting members Exploring unusual Good practice in Welcome to a new group established in the Isle of Man essential oils palliative care t Aromatherapy How aromatic helps improve compounds quality of life work on the body n 9 Improving quality of life for children with life- Volume 14 Number 2 Autumn 2015 Cover photograph: Helianthus annuus limiting illnesses C. Deprez-Price - www.riverhead.co.uk o How Lora Cantele uses aromatherapy for a range of physical and psychological needs 13 Rheumatoid arthritis: Can aromatherapy help? C Hannah Boot analyses her case study results, highlighting areas for future research 16 Research notes 17 Lessons learned in palliative care Jacqueline Von Kaenel shares her experience of working with aromatherapy in palliative and end of life care 20 Extending your essential oil repertoire Sue Jenkins challenges you to explore some more unusual oils 24 The therapeutic foundations of essential oils Anita James reports on an inspiring and motivating seminar Passion flower essential oil helps children in extreme stress – see page 9 26 Getting to grips with regulations Stay up to date with the rules, advises Ray Gransby 27 Information sources online 28 Memories of Veronica Sibley Remembering a much-loved aromatherapist, teacher and friend 30 News in brief 30 News from the CNHC Topical issues from the Complementary and Natural Healthcare Council 31 Bookshelf Anita James is inspired by a beautiful new book on hydrolats 32 List of IFPA–accredited schools 34 Continuing Professional Development Robert Tisserand makes a welcome 37 Events return to London – see page 24 4 In Essence Vol.1 4 No. 2 — Autumn 2015 NEWS LETTER FROM THE CHAIR IFPA Council Chair: Florance Notarius A warm five years, look at it with suspicion. welcome And after ten years, throw it away and Secretary: Jane Rothery to this start all over.” Autumn On Council we certainly do not Treasurer: Sarah Beart edition of In Es- plan to ‘throw it away’ and ‘start over’ sence which, by but it has been recognised for some Liz Bailey popular request, time that some aspects of the IFPA’s or- you are reading in ganisation and management need to Jeni Broughton hard copy. Many members have con- be updated and made more effective. tacted the IFPA Council over the past I would like to thank you for your Louise Carta two years requesting the return of a support since I took over as Acting printed edition and we are delighted Chair in September, and for your Dave Jackson that we have finally been able to confidence in confirming me in the make it happen. post at the 2015 AGM. It has been a Emily Song I hope this summer has been a privilege to serve as Chair during this good one for you all and that you time of transition. However, as I know Advisor to the Council: Sue Charles found time to relax and enjoy some you appreciate, the role of Chair is a sunny days. For all of us on Council demanding one and I regret that, for the summer has been a busy time as personal and business reasons, I am New directions we have been working hard on the unable at present to continue in this reorganisation of our Federation. We role and to give it the commitment it As Sue Charles explains in her letter have made some progress, such as requires. I am therefore handing over (opposite) she is currently unable to re-introducing a printed In Essence, to our Vice Chair Florance Notarius continue in the demanding role of and we will shortly be launching the who I know will continue the good IFPA Council Chair due to personal new website. We are also currently work we have begun. and business commitments. Florance working with, and learning from, a You will be receiving news of Notarius, previously Vice Chair, has consultant with experience of working Federation developments, both in the taken on the role. with charities on reorganisation and e-newsletter and in this journal, as Florance said: “On behalf of the governance. they unfold over the coming months. IFPA Council, I would like to thank We know there is considerable Rest assured that all Council’s decisions Sue for her tremendous contribution, work ahead to fulfil the promises we will be made in the best interests of both to the Federation and to the made at the Annual General Meeting the IFPA and its members and with Council, over many years. Her loyalty (AGM) but all Council members feel the aim of consolidating the Federa- and commitment have been exem- very positive and upbeat about the tion’s reputation and role in the world plary, especially her dedication to the encouraging start we have made. In of aromatherapy, both at home and role of Conference Chair, and latterly, an article in The New York Times in abroad. So do watch this space! to the role of Chair. 1958 Alfred W Perlman wrote: “After “We are pleased to report that you've done a thing the same way for Sue Charles Sue will continue to be involved with two years, look it over carefully. After Chair, IFPA Council the IFPA, serving as an Advisor to the IFPA Council, and we plan to mark her outstanding service to the Federation with a Fellowship award at an IFPA Lavender essential oil helps relieve event in the near future. “Since the 2015 Annual General intensity of post-operative pain Meeting in May, the Council has been considering how best to protect the A recent clinical trial aimed to evalu- every 15 minutes with supplemental IFPA’s role, and its representation in the ate whether lavender aromatherapy oxygen; the control group received world of professional aromatherapy could relieve sternotomy pain after only supplemental oxygen. The and complementary healthcare, in the coronary artery bypass graft surgery. results indicated that aromatherapy years ahead. This will inevitably mean Fifty patients who had undergone can be effective in postoperative pain changes to the IFPA’s structure and surgery were randomly divided into reduction and is less expensive than management. I hope you will support two equal groups. sedative drugs. Free access to the us as we work to bring the Federation The case group received two full article at www.ncbi.nlm.nih.gov/ of the future to fruition, both nation- drops of two per cent lavender oil pubmed/26261829 ally and internationally.” In Essence Vol.1 4 No. 2 — Autumn 2015 5 NEWS Call for practitioner case studies Farewell and thank you The Complementary & Natural treatments with clients that you Healthcare Council (CNHC) is work- think could be of relevance to com- ing with the Professional Standards missioners and employers. These The IFPA Council and many members Authority to create an online hub might be treatments provided to who knew her were greatly saddened of information for commissioners, clients with long-term conditions to hear of the recent death of Teddy employers and referrers of services. where you are working alongside Fearnhamm after a long illness. Sue It will showcase practitioners on ac- their existing treatment plan, Charles, a close friend, remembers: credited registers who deliver health or where your work has had an “Teddy trained with Pierre Fran- and care services. impact on people with conditions chomme and, for many years, ran The CNHC is looking for exam- such as obesity, depression and the English Société l'Institut Pierre ples from CNHC registrants that can anxiety, dementia or pain. Franchomme. be presented as case studies in the The case study must demonstrate “She was a well-known and following areas: outcomes measured through evalua- much valued and respected figure in • You deliver your CNHC-registered tion, for example by use of Measure the aromatherapy world. Teddy was therapy/discipline within NHS or Yourself Medical Outcome Profile also highly influential in the develop- care services, GP practices, in edu- (MYMOP), Patient Reported Out- ment of the aromatherapy profes- cational or social service settings, come Measures (PROMs) or similar. sion in the UK. A very lovely, polite or receive referrals in these areas If you think your work might be and gracious lady, she always had a • You work with clients in the con- suitable to be presented as a case radiant smile on her face, no matter text of a voluntary or community study please email [email protected]. what was going on in her life. service. For example, if you work or uk with the subject line ‘CNHC Case “Teddy will be sadly missed by volunteer at a local hospice, mental Studies’, providing a brief overview her many friends and colleagues health service (eg Mind), dementia of your service or individual case throughout the wider world of or other local community service. study (removing any client names) aromatherapy. She will be especially • You have case studies of individual and why you think it is relevant. missed by me because she was such a good friend. Our thoughts and hearts go out to her family at this very sad and difficult time.” Aromatherapy in cancer care A summary of information for health US National Cancer Institute’s compre- New MSc in Advanced professionals about the use of aromath- hensive source of cancer information. erapy and essential oils in the treat- The summary, which is regu- Complementary ment of people with cancer is avail- larly reviewed and updated, does not able online. It is published by the PDQ provide formal guidelines or recom- Medicine Cancer Complementary and Alternative mendations for making health care Medicine Editorial Board, USA. decisions. It reflects an independent The Complementary & Natural Health- The PDQ Cancer Information Sum- review of the literature and does not care Council advise that practitioners mary, which is intended as a resource represent a policy statement of the wishing to develop or enhance their re- to inform and assist clinicians caring for US National Cancer Institute or the search skills may be interested in a new cancer patients, provides comprehensive, National Institutes of Health. You can online Masters degree in Advanced peer-reviewed, evidence-based informa- access the full text free at www.ncbi. Complementary Medicine (research tion. PDQ (Physician Data Query) is the nlm.nih.gov/pubmed/26389313 and practice) developed by the North- ern College of Acupuncture, York. The part-time programme, which Essential oils for menopause is quality-assured by Middlesex University, is open to complemen- A recent study looked at the use aromatherapy oils, and Chinese tary therapists with a first degree or of self-prescribed complementary medicines. equivalent (support will be given to and alternative medicine (CAM) The results showed that aroma- practitioners without a first degree to for menopause-related symptoms. therapy oils were more likely to be assess equivalence). The study, carried out at the Fac- used by menopausal women experi- The next programme for this new ulty of Health, University of Tech- encing night sweats and by women MSc starts in September 2015. To find nology Sydney, Australia, looked with hysterectomy experiencing out more visit www.chinese-medicine. at use of vitamins/minerals, yoga/ anxiety. See www.ncbi.nlm.nih.gov/ co.uk and search on ‘Practitioner meditation, herbal medicines, pubmed/26365446 courses’. 6 In Essence Vol.1 4 No. 2 — Autumn 2015 NEWS Potential of essential Essential oil courses at oils as therapeutic The Royal Marsden Hospital agents The Royal The day is divided into two Marsden sessions, the first focusing on ad- Many studies have shown that es- Hospital has vanced blending theory, illustrated sential oils exhibit a large spectrum of recently an- with case examples, the second on biological activities in vitro and they nounced its practical formulation development. could have potential for alternative 2016 pro- Different blending and treatment treatments, say researchers at the Uni- gramme of strategies, along with formulation versità degli Studi di Sassari in Italy. courses on concepts, will be used to maximise They recently studied the chemi- essential oils therapeutic effectiveness. Although cal composition, cytotoxicity, anti- for com- the course focuses particularly on microbial and antifungal activity of plementary challenges encountered in cancer 36 essential oils, first analysing their therapists. It will be led by Rhian- and palliative care, the key con- phytochemical and cytotoxic charac- non Lewis of Essential Oil Resource cepts can be extended to aroma- teristics, then evaluating the antimi- Consultants, well known for their therapists working in all clinical crobial activity of the less-toxic oils Advanced Clinical Aromatherapy environments. on Gram-positive, Gram-negative teaching programme. A comprehen- Due to the programme’s in- and fungi strains. sive booklet outlining all the course tensity and structure this event is The results showed low cytotox- content is included and certificates of strictly limited to 20 delegates Cost: icity in seven essential oils and good attendance will be issued. £160 per delegate. Details at: www. activity against Gram-negative and • 25 January Essential Oils Update royalmarsden.nhs.uk/essmasterclass Candida spp. strains. day: For aromatherapists who have 27-28 January Essential Oils Two- The researchers say that, based on previously attended the two-day Day Introductory Course: This their results, essential oils could be pro- Introductory Course in Essential course, which aims to improve posed as a novel group of therapeutic Oils. (You are not eligible to at- aromatic interventions for people agents. They conclude that further tend this event unless you have with cancer, is for aromatherapists experiments are necessary to confirm completed the two-day course in a already working with essential oils their pharmacological effectiveness, previous year.) The day will focus in a cancer care environment. Due and to determine potential toxic ef- on changes therapists have imple- to the course structure, it is not fects and the mechanism of their activ- mented in their practice as a result possible to book a single day. Cost: ity in in vivo models. See www.ncbi. of attending the two-day course. £230 per delegate (£200 early bird nlm. nih.gov/pubmed/26214364 There will also be opportunities rate if booked by 30 September to network and share knowledge 2015). Details at: www.royal- and to learn about new develop- marsden.nhs.uk/essintro ments in this field of treatment. • 29 January Essential Oils for Rest, Mentoring and Cost: £125 per delegate (£100 early Recovery and Repair in Cancer and bird rate if you book before 30 Palliative Care: This class is de- clinical supervision September 2015). Details at: www. signed for aromatherapists work- royalmarsden.nhs.uk/essupdate ing in cancer care, palliative care At the IFPA 2015 Annual General • 26 January Essential Oils Mas- and other clinical settings who are Meeting in May several members ter Class - Advanced formulation looking to improve efficiency when expressed their willingness to offer skills for cancer care: maximising working with patients who have mentoring and clinical supervision to therapeutic effectiveness in clinical sleep disturbance and/or fatigue aromatherapy students and newly aromatherapy. This masterclass will related to their personal journey qualified therapists. Following on take a practical, problem-solving with a potentially life-limiting dis- from this the IFPA Council would like approach to using clinical aromath- ease, its treatment and its impact to compile a register of experienced erapy interventions for key chal- on the body and mind. Cost: £125 therapists, to appear on the website, lenges faced by cancer patients. It per delegate (£100 early bird rate in the newsletter and in In Essence. aims to extend therapists’ existing if booked by 30 September 2015). If you are able to offer your time experience, knowledge and skills so Details at: www.royalmarsden.nhs. to help provide this service (support that they can confidently combine uk/essrest can be given by email, telephone or research findings and essential oil To book any of the courses listed face-to-face) and would like to be chemistry with a holistic approach above go to www.royalmarsden.nhs. included in the register, please email in order to formulate safe, person- uk/studydays, phone 020 7808 2921 or [email protected] alised and effective remedies. email [email protected]. In Essence Vol.1 4 No. 2 — Autumn 2015 7 MEETING MEMBERS Around the regions A new IFPA group in the Isle of Man has made a very successful and positive start T he IFPA Council is always “Most importantly, we expressed delighted to hear about new a desire to have fun together in a regional groups starting up so learning capacity, to counterbalance we are very pleased to be able the serious work we end up being to bring you news of a group recently involved with on occasions. established in the Isle of Man. Group “The outcome of our formation co-ordinator Liz Bailey takes up the is that our guest asked to join with story and explains the impetus for the us for all future meetings as she too new group (pictured): was looking for therapist support, “We are fortunate to have four requirements and allowed regional CPD and a sense of breaking profes- registered IFPA aromatherapists on this meetings to qualify for two CPD points sional isolation. Other therapists have small island. The Isle of Man has a land- per gathering, it prompted us to step now heard of us and have joined in mass measuring only 33 by 15 miles. forward and register the group. on our subsequent meeting in July, “However, its position in the mid- “And what a positive experience and a presentation in August on the dle of the Irish Sea can be challenging it has been! We had our first regional Bach Flower remedies. We seem to for those of us who are in need of group meeting on 24 May this year have struck a chord with this island’s Continuing Professional Development and we invited a guest speaker. Our therapist community! (CPD) and further training. A combi- speaker was a registered five element “I have no doubt that Regional nation of bad weather, which can limit acupuncturist who spoke about her Groups are a tremendous way for the travel, and the cost of getting on and work and approach to treatment. IFPA to become more integrated with off the island has made accumulating its membership and to give a vibrancy CPD points stressful. Wealth of experience to its existence. It has enabled us here “So, over the last year we have “We shared experiences and gained on the Isle of Man to feel more in been meeting on a regular basis as insight regarding a holistic approach contact with ongoing learning and a source of therapist support and to to the client, on an emotional, physi- a part of something bigger than just meet the need to counter the sense of cal and energetic level. We identified ourselves.” isolation which can happen to any of the volume of knowledge that we If you would like to know more us when we are working alone. When have within the group and the possi- about the new Isle of Man group con- the IFPA took another look at its CPD bilities for CPD as a result of sharing it. tact Liz Bailey via [email protected]. GROUP NAME / LOCATION ORGANISER TELEPHONE EMAIL ADDRESS Aberdeen Group Beverley Skinner 01779 821051/07726 531498 [email protected] AromaForum, Stockport, Cheshire Justine Jackson 0161 439 7453/07974 207033 [email protected] Aroma Network, Watford, Herts Jayashree Kothari - [email protected] Bucks, Beds & Northants Regional Group Helen Nagle-Smith 01908 312221/07966 248859 [email protected] Complementary Therapies Network, Northern Ireland Helen McIntyre 02838 38310065 [email protected] Central Regional IFPA Group, Midlands Cheryl Smith 0121 378 4487 [email protected] Chinese Aromatherapists in UK X Song 07738 704701 [email protected] Fragrant Grapevine, Edinburgh Carolyn Hood 0131 447 4862 [email protected] Hebden Bridge/Calderdale Group, West Yorkshire Clare Whitworth 07790 761702 [email protected] Hong Kong Regional Group, Hong Kong Annie Lee (00) 9626 9567 [email protected] Isle of Man, Regional Group Elizabeth Bailey 07624 380380 [email protected] Japan Group, Japan Miki Hayashi - [email protected] One Tree, Buckinghamshire Liz O'Neill 07946 638151 [email protected] Sakura Kai, Tokyo Miki Hayashi (0081) 035498 5128 [email protected] Saturday Aromatherapy Club, Hinckley, Leicestershire Penny Price 01455 251020 [email protected] Shanghai Group, Shanghai Jia Lui 86189 3008 9105 [email protected] South London Aromatherapy Network Louise Abbott-Little 07957 192265 [email protected] Sussex Regional Group, Burgess Hill Wendy McCallum 01444 443876 [email protected] West London Aromatherapy Network, Twickenham Yvonne Humphries 07719 096314 [email protected] West Yorkshire Aromatherapy Group, Bradford Liane Sara-Gray 07766 655279 [email protected] TBA, Ballyhearne, Eire Noelene Cashin Cafolla (0353) 094903 0950 8 In Essence Vol.1 4 No. 2 — Autumn 2015 Improving quality of life for children with life-limiting illnesses Five years ago Lora Cantele helped set up a programme providing complementary therapies to children with life- limiting illnesses. She explains how she uses aromatherapy for a range of physical and psychological needs H ospice care in the United • Marklund Children's Home had the family/state approval States has expanded over the for pilot study admission years to include the use of massage, pet therapy, Reiki, Diagnosis and music therapy. Aromatherapy is The diagnosis of each child varied. Severe Hypoxic Ischemic used more widely in hospices in the UK Encephalopathy (HIE) was common to most of the children than in the USA. in the programme. Other diagnosed conditions included: The focus of aromatherapy in hos- birth trauma/anoxia, brain malformations, chronic airway pice care is to provide pain management obstruction with co-morbidities, congenital hydrocephalus, and comfort for those with terminal illnesses. It is not used lumbar spina bifida, sub-acute sclerosing panencephalitis, so often for those who are dealing with life-limiting ill- lethal chromosomal abnormalities, and Cerebro-Oculo- nesses in palliative care. Facio-Skeletal Syndrome (COFS). Aromatherapy plays an important role in helping relaxation, alleviating stress and anxiety, and giving Aims of the programme emotional support. Used in a palliative setting, it provides The main goal of the programme was to increase the qual- relaxation and comfort and improves quality of life. ity of life for the children in the study by using new and Hope's Circle of Friends has developed a pilot pro- existing tools to document measurable outcomes. Other gramme to provide complementary therapies to children aims were to: with life-limiting illnesses at the Marklund Children's • provide an increase in staff education and satisfaction Home, in Bloomingdale, Illinois. and to enhance retention of employees In 2010, Hope's Circle of Friends contacted me to • show the cost-effectiveness of palliative care and sus- enhance their existing programme at the Marklund Chil- tainability of the programme dren’s Home with the use of aromatherapy. Aromatherapy • decrease the use of medication is used in a holistic manner to provide comfort and relief • make the programme replicable in other settings for a variety of physical, mental, emotional, and spiritual • stimulate parent involvement and support needs of the children and to improve quality of life. • provide a research report/articles to be published on pertinent study aspects Qualification criteria The aromatherapy goals were to reduce agitation In order to qualify for the study, the participants in the and pain, improve physical issues where possible, and to programme had to meet the following criteria: improve the emotional state of the children. • The child had to be significantly medically-fragile • Aged between three and 15 years Determining when to use aromatherapy • Possess at least two significant symptoms that cause Each child's case was reviewed and assessed individually. ‘distress’ (ie pain, seizures, contractures, gastrointestinal Considerations included: medication changes, doctor visits, maladies, chronic/acute wound care needs, respiratory hospital stays, changes in physical therapy, child's emo- distress/frequent infections) tional state, current challenges, current successes, medical In Essence Vol.1 4 No. 2 — Autumn 2015 9 Photograph: E.nielsen - https://commons.wikimedia.org/wiki/File:Passiflora_incarnata_flower_and_bud.jpg Passion flower (Passiflora incarnata) essential oil was used primarily for children exhibiting extreme stress interventions, Complementary and Alternative Medicine tional state, sleep patterns, challenges and successes were (CAM) interventions, the child's ability to meet individual- also discussed. ised goals in Physical Therapy (PT), and motor skills. Aromatherapy was used to ease issues where it was Introducing aromatherapy reported to have been successful in previous studies ie The existing programme included a weekly massage, using relieving stress, physical issues and wound care. It was also an unscented massage lotion. Some children received a considered when the staff was at a loss and willing to try back massage, while for others it was their hands and arms, anything that had the potential to help. depending on the child and his/her condition. Aromath- erapy was initially introduced through massage. Interdisciplinary team Each child had a blend created specifically for their The Interdisciplinary Team comprised Marklund staff needs. Eight drops of the blend were used in 50ml un- nurses, physical therapist, paediatric neurologist, massage scented massage lotion. The massage therapist reported therapist, facility administrator, specialists (as necessary), that the massages were 50 per cent more effective when and professionals from Hope’s Friends including pro- essential oils were added to the unscented massage lotion. gramme principal, hospice and palliative care nurses, medi- Due to the increased effectiveness of the addition of the cal advisor, social worker, aromatherapist and chaplain. essential oils, the children received daily aromatherapy The Interdisciplinary Team would meet two to three hand massages at school and aromatherapy lotion was ap- times monthly to discuss each child’s case and progress. The plied again after bath. paediatric Neurologist came in every two to three months to do a spasticity test on the children and the DisDAT (Dis- The children ability Distress Assessment) tool was used to assess distress. Each child had his/her own essential oil blend or synergy, Through caregiver descriptions, a unique communica- to be used in different preparations as appropriate. tion level could be assessed, further defining ‘distress’ or Each had a massage lotion for their weekly massage, a ‘contentment’. The DisDAT tool (www.disdat.co.uk) was lotion at school for hand massages, a lotion for after-bath particularly successful because it was designed primarily use, and an inhaler (kept in a pouch on the back of their for those who are nonverbal and cognitively impaired. wheelchair) for easy access to be used when needed. While it is not a scoring tool, it assisted the team in noting Many of the children had a guarded posture due to the instinctive assessments of those who know the chil- their condition. Muscle contractures were common among dren best. Once distress was identified, the team could the children as they would hold their arms tight to their intervene with clinical decisions (medication, massage or chests with fists tucked under their chins and their heads aromatherapy) to improve the child’s condition. down. Essential oils were blended and diluted in lotion Additional information regarding the child’s emo- and massaged onto the arms and hands of the children 10 In Essence Vol.1 4 No. 2 — Autumn 2015
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