Exploring the mental health of living kidney donors Lotte Timmerman Exploring the Onderzoek naar de mental health geestelijke gezondheid of living van levende nierdonoren kidney donors Lotte Timmerman © 2015, Lotte Timmerman, Rotterdam, the Netherlands book design Martijn de Wilde print Gildeprint fnancial support for printing Astellas Pharma bv, Nederlandse Transplantatie Vereniging, Nierstichting, ZonMw isbn 978 94 6233 096 2 All rights reserved. No part of this thesis may be reproduced or transmitted in any form or by any means, without prior written permission of the author or the copyright-owners of previously published articles. Exploring the Mental Health of Living Kidney Donors Onderzoek naar de geestelijke gezondheid van levende nierdonoren Proefschrift ter verkrijging van de graad van doctor aan de Erasmus Universiteit Rotterdam op gezag van de rector magnifcus prof.dr. H.A.P. Pols en volgens besluit van het College voor Promoties. De openbare verdediging zal plaatsvinden op woensdag 2 december 2015 om 15:30 uur door Lotte Timmerman, geboren te Zierikzee. promotiecommissie promotoren Prof. dr. W. Weimar Prof. dr. J.J. van Busschbach overige leden Prof. dr. J.N.M. IJzermans Prof. dr. A.W.M. Evers Prof. dr. A.V. Ranchor copromotor Dr. E.K. Massey contents 1 Introduction 7 2 Predonation psychosocial evaluation of living kidney and 17 liver donor candidates: a systematic literature review 3 Who has extreme expectations of donation? 47 Exploring the psychological profle of living kidney donors 4 Exploring knowledge about dialysis, transplantation, 63 and living donation among patients and their living kidney donors 5 Psychologic functioning of unspecifed anonymous living 87 k idney donors before and after donation 6 An argument to abolish legal restrictions on unspecifed 105 living kidney donation 7 Mental health among living kidney donors: 111 a prospective comparison with matched controls from the general population 8 The impact of the donors’ and recipients’ medical 135 p rocess on living kidney donors’ mental health 9 Predicting mental health after living kidney donation: 159 the importance of psychological factors 10 Discussion 189 11 Summary | Samenvatting 205 12 Appendices 221 1 Introduction 7 8 Exploring the mental health of living kidney donors