Excellence in Patient Support Cathy Yelf, Chief Executive #MacConf Communications …….”What is said in the clinic, stays in the clinic!” Professor Jonathan Gibson Communication ….in the context of the AMD clinic. • Is there a problem? • What is the nature of the problem? • Our research on our patients’ experiences • Value of qualitative research • Possible solutions Is there a problem? College Statement on intra-ocular injections by non-medical health care professionals 01/05/2013 “The College appreciates that, for many patients, the administration of anti-VEGF agents by intra-ocular injection is far from trivial.” In a general ophthalmic clinic with full nursing support, 15 to 20 minutes should be allocated for each patient and adequate space must be left on the clinic template for emergency/ urgent referrals. Specialist clinics with multiple steps in the OPD pathway require longer times per patient. The clinic session should last 3-3.5 hours depending upon local circumstances and there should be adequate time to allow for dictation of clinic letters and phone calls to GPs and to other specialists. Our research - Patients’ perceptions of an AMD service • Dr Amy Burton (née Bennion) PhD Dr.Amy Burton, Senior Lecturer in Health thesis Psychology University of Staffordshire • Project for Thomas Pocklington Trust Dr.Rachel Shaw, Reader in Psychology • Semi-structured interviews with Aston University patients attending the AMD clinic at Solihull Hospital and quantitative QoL tests Professor Jonathan Gibson, Consultant Ophthalmologist, Aston University and HEFT Overview • The NHS setting • Our research • Local support services • Measures of quality of life (QoL) • What measures fail to uncover • The value of qualitative methods • Patient perceptions & experiences • Conclusions & recommendations Solihull Hospital •Macular Clinic – motivated staff, informed patients •Excellent ECLO – Rebecca Marsden •Inspirational local Macular Society •Snapshot in 2011-2013 Researching patients en-masse …but you can’t see the wood for the trees The value of qualitative methods …and learn about the specifics of what matters to individuals We begin to shed light on things
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