DOCUMENT RESUME EC 305 912 ED 412 697 Bailey, Don; Applequist, Karen AUTHOR Parent Perceptions of Home Visitors: A Comparative Study of TITLE Parents Who Are American Indian and Non-Indian Parents. North Carolina Univ., Chapel Hill. INSTITUTION Special Education Programs (ED/OSERS), Washington, DC. SPONS AGENCY 1997-00-00 PUB DATE NOTE 44p. H023B30006 CONTRACT Research (143) PUB TYPE Reports EDRS PRICE MF01/PCO2 Plus Postage. American Indians; *Cultural Influences; *Disabilities; Early DESCRIPTORS Childhood Education; *Early Intervention; Family Characteristics; Family Programs; *Navajo (Nation); *Parent Attitudes; *Participant Satisfaction; Young Children ABSTRACT This final report discusses the outcomes of a research project that examined the nature of the relationship between 52 Navajo caregivers' perceptions of the early intervention service system and specific program, provider, and family variables. The project also investigated perceptions of 16 early intervention personnel regarding barriers to, and strategies for, providing early intervention services to eligible families in the Navajo Nation. Results found caregivers had greater satisfaction with early intervention services in programs perceived to be more family centered. Those individuals who were less educated or more traditional generally rated the program as being less family centered. Provider variables such as ethnic matching between the provider and caregiver, and the educational level of the provider, failed to relate strongly to either measure of satisfaction. Ninety-six percnt of the caregivers had no preference with regard to the ethnic/racial background of the provider. The acculturation status had a strong and statistically significant positive relationship with satisfaction with family-related aspects of services. Overall, caregivers were quite positive about early intervention services and seemed to be unable to identify anything needing improvement. Service providers identified travel time issues as a significant barrier to providing services. (Contains 40 references.) (CR) ******************************************************************************** Reproductions supplied by EDRS are the best that can be made from the original document. ******************************************************************************** Parent Perceptions of Home Visitors: A Comparative Study of Parents who are American Indian and Non-Indian Parents Project Directors: Don Bailey Karen Applequist University of North Carolina at Chapel Hill CB 8180 Chapel Hill, NC 27593 H023B30006 U.S. DEPARTMENT OF EDUCATION Office of Educational Research and Improvement EDUCATIONAL RESOURCES INFORMATION CENTER (ERIC) ai This document has been reproduced as received from the person or organization originating it. Minor changes have been made to improve reproduction quality. Points of view or opinions stated in this document do not necessarily represent official OERI position or policy. 2 Err COPT AVEILAME Introduction Early intervention programs face a wide range of challenges and must make adaptations in their models of service delivery in an effort to be responsive to the resources, priorities, and concerns of families living in the Navajo Nation. The federal directive (Part H of the Individuals with Disabilities Education Act, IDEA) to bring the family to the center of the service system requires close scrutiny of what constitutes best practice for Navajo families. Families whose lives are influenced by the interaction of geographical realities, a rich and varied cultural context, and the prevailing theme of poverty demand approaches that are flexible and responsive to the uniqueness of each family. Overview The policy of assimilation imposed on the Navajo people by the United States government has resulted in a dissonance exemplifying what Festinger (1957) describes in his treatise on cognitive dissonance. He states that "dissonance could arise because of cultural mores. The dissonance exists simply because the culture defines what is consonant and what is not" (Festinger, 1957, p. 14). Policies of assimilation forced American Indians to reject their own culture and adopt the majority one. Compher (1989) could have been writing about the case of the American Indian when he wrote: Major discord occurs as the majority culture imposes its values of competition, individualism, and productivity upon cultures, which, by and large, are more socially and expressively oriented. Dissonance is most evident for the individual or family where it relates to other necessary systems of the society which are usually controlled by the majority culture. (Compher, 1989, p. 63) 3 Some suggest that efforts to reduce cultural dissonance in the provision of human services be directed beyond the practice of individual professionals to the design of the service system. This was recognized in a recent forum centered upon the American Indians with developmental disabilities: "Programs designed along the dominant cultural patterns are known to be non-conducive to American Indian and Alaskan Native participation". (ADD Commissioner's Institute, 1993, p.4). The significance of the cultural context is underscored in the developing system of services for families of infants and toddlers with special needs (Anderson, Fienchel, & Schrag, 1989). In his qualitative evaluation of early intervention programs conducted prior to the passage of Part H of the Individuals with Disabilities Education Act (IDEA), Mallory (1980) revealed that programs were most likely to serve those families who could adapt to the demands of the program regarding family form and cultural values. It is imperative that the system of services be continuously examined to determine whether it is in concert with the cultural context of the family, or if early intervention becomes a new culture imposed on the family. Understanding the need to develop programs consonant with the culture of the American Indian led to the formation of a Blue Ribbon Panel charged with the development of guidelines for the delivery of services to Navajo children with special needs and their families (Agosta, O'Neal, & Toubben, 1987). In their report, the conceptual framework for early intervention services for Navajos is outlined. Underlying values proposed by the panel focus on the provision of services within the context of the Navajo family, recognizing the role of individual family members as well as cultural beliefs and practices of the Navajo. To understand how well these 4 3 guidelines have been followed, it is critical to assess the consonance between the family and the service system for Navajo families. As the complex interplay of culture, family, and human services is more fully appreciated, the necessity for service systems that are responsive to the unique resources, concerns, and priorities of each and every family is imperative. The only effective measure of that responsiveness is to involve those individuals whose culture is markedly different from the dominant culture, as in the case of the Navajo, in the process of assessing the consonance between the early intervention system of services and the families it serves. Statement of Purpose The purpose of this study is to determine the nature of the relationship between caregiver perceptions of the service system and specific program, provider, and family variables, and to investigate perceptions of early intervention personnel regarding barriers to, and strategies for, providing early intervention services to eligible families on the Navajo Nation. Research Questions 1. What is the relative contribution of program variables (family centeredness, intensity, travel time), provider variables (ethnic match between provider and caregiver, educational level of the provider), and child/caregiver variables (disability, duration in services, caregiver education, acculturation, and socioeconomic status) to caregiver satisfaction with early intervention services for Navajo families receiving services under Part H? 2. What are Navajo caregiver perceptions of the early intervention system of services? 3. What are the perceptions of service providers regarding the system of early intervention services for Navajo families? 5 A Review of the Literature The Navajo People and Their Land Approximately 148,451 Navajos reside on the Navajo reservation and trust lands (see Figure 1), 25,351.4 square miles in Arizona, New Mexico, and Utah (Rodgers, 1993). Their existence is characteristically rural with an estimated 6.37 people per square mile (Rodgers, 1993) compared to 70.3 in the entire country, 32.3 in Arizona, and 12.5 in New Mexico (U.S. Department of Commerce, 1992). Many people live in remote areas accessible only by dirt roads, which are frequently impassable during the winter months. Hence, many Navajos are far removed from marketplaces, schools, health services, and employment opportunities. This isolation plays a major role in the lives of many Navajos, and ultimately impacts the provision of human services. During the last decade, this country has witnessed an increase in Navajo population by 38%, while the Caucasian population increased 5% (Tsosie, 1992). It is estimated that 58.8% of Navajo people over the age of 25 have not graduated from high school, 28% are unemployed (Rodgers, 1993), and 57.9% of the Navajo people live below the federal poverty line (Tsosie, 1993). The overarching theme of poverty on the Navajo Nation has considerable impact upon the people, and many of the characteristics suggested by Lewis (1966) in his classic description of the "Culture of Poverty" are played out in the Navajo Nation (e.g., higher rates of fertility, lower levels of education, and higher unemployment rates). 6 5 Figure 1. Map of the Navajo Nation. Navajo Reservation Hopi Reservation Cultural Influences Family structure and childrearing practices. Nuclear families are the exception rather than the rule, most families extend to include aunts, uncles, grandparents, and nieces and nephews. Historically, Navajo society has been matrilineal; in many families the aunts and grandmothers assume caregiving responsibilities of the young children. As soon as they are able, the young child is given responsibility. Children seldom receive harsh discipline, and learn early on to be responsible for their own behavior. Caregivers generally model behavior rather than attempt to shape it. Milestones in the life of the young child include the first smile and the naming ceremony, and these are celebrated by everyone in the family. Family perceptions and attitudes. Joe (1980) found that people frequently lack names for disabling conditions and consider the symptoms of 7 6 an illness or disability more important than its cause. Disease etiology is typically seen as either natural, as in the case of a broken bone, or supernatural, involving sorcery or breaking of a taboo. After the birth of a child with special needs, the family may arrange for a sing or healing ceremony for the child. Joe (1982) indicates that many families who have a ceremony feel they have hope even if little change is seen in the child. Language and communication styles: Many individuals are bilingual, frequently using their native language in the home or community and adopting English when seeking assistance through the educational, medical or social service systems. The communication style of the Navajo differs significantly from the Anglo. Upon meeting one another they extend a hand in greeting, showing respect by using a weak grasp. The speaker does not address one person specifically, rather communicates generally to others. They do not interrupt others or attempt to control the conversation. Longer pauses often occur, and greater silence is tolerated (Phillips, 1983). Navajos have undergone considerable cultural conflict in recent history that has major implications for those who are providing human services to families. Each individual, and each family responds uniquely to the demands of the dominant culture. Understanding and respecting an individual's cultural identity and their degree of acculturation can serve to reduce dissonance between that individual and the individual or program providing services. Early Intervention for Navajos The Navajo Nation has been faced with a unique dilemma in its implementation of Part H services. The Nation contains lands in three different states, each having its own definitions for eligibility for services and 8 7 respective service systems. Recognizing the need to identify a plan for implementing Part H, the Navajo Nation created its own early intervention program, known as "Growing in Beauty". The Assistant Director of Growing in Beauty reported that a total of 1,262 Navajo infants and toddlers with disabilities had been identified by April 15, 1994, and 708 of those children had Individualized Family Service Plans (Seanez, 1994). Cultural Dissonance within Human Services Harry (1992) enumerates several potential sources of dissonance which may occur between professionals and families of infants and toddlers with special needs. These include the meaning of disability, concepts of family structure and family identity, and finally, parenting style. Anderson, Fenichel and Schrag (1989) provide a similar perspective and add a very important dimension, the interaction style between the professional and the family. Various approaches have been adopted in an attempt to reduce cultural dissonance. Out of the vast literature on cross-cultural counseling it has been learned that particular characteristics of the counselor can influence the counseling interaction and ultimately the outcome. In the case of the American Indian, it has been learned that trustworthiness is valued over ethnicity in counselors (Heinrich, Corbine, & Thomas, 1990). Dauphinais (1981) found Indians preferred more subtle, non-directive approaches where Anglos preferred more direct approaches. The quality of the relationship between helper and client has been found to be highly correlated with overall outcome (Beck & Jones, 1973). Rouse (1989) found the temperament, values, and beliefs of the early interventionist were the best predictor of change in the maternal commitment to the mother/child interaction. 9 8 In recent years there has been much written about becoming culturally competent as a professional. Becoming culturally competent is critical to the non-Indian professional working with Navajo families, particularly with the present shortage of qualified Navajo professionals (Johnson, 1991). In fact, it is this shortage of qualified personnel that led to the employment of paraprofessionals on the Navajo Nation. In spite of the obvious benefit of hiring paraprofessionals during personnel shortages (Savino, Kennedy, & Brady, 1968), another perhaps more important benefit is the value of employing indigenous persons to serve as liaison between professional staff and the community (Koerber, 1979). Another approach to reducing cultural dissonance utilized by programs providing service to families on the Navajo Nation is the home visiting model. Instead of requiring families to take their children to clinical settings, the provider visits the family in their home, within their own context. Employment of the home visiting model has received support for indigenous populations (Lamer, 1990), including the Navajo (Roach & Resnick, 1992). Assessing Cultural Consonance Utilization of services is an important indicator of satisfaction with or acceptance of services. Because utilization can be influenced by many factors, one should be cautious as to its use as the sole marker of acceptance of the services. Weiss (1988) discusses the important role parent perceptions play in understanding the interplay between the service delivery system and the family. Slaughter (1988) suggests that in the case of racially diverse communities, parent perceptions should be sought before program goals are developed, as a formative rather than summative process. I @