DOCUMENT RESUME EC 305 521 ED 406 815 Rosin, Peggy; And Others AUTHOR Pathways: A Training & Resource Guide for Enhancing Skills TITLE in Early Intervention Service Coordination [Training Guide and Videotape]. Wisconsin Univ., Madison. Waisman Center. INSTITUTION Office of Special Education and Rehabilitative Services SPONS AGENCY (ED), Washington, DC. PUB DATE 96 269p.; Developed through the Pathways: Service Coordination NOTE Inservice Project. Videotape not available from EDRS. H024P3001 CONTRACT Non-Classroom Guides General (020) Collected Works PUB TYPE -- Non-Print Media (100) (055) MF01/PC11 Plus Postage. EDRS PRICE *Agency Cooperation; Conflict Resolution; Delivery Systems; DESCRIPTORS *Disabilities; Due Process; *Early Intervention; Educational Legislation; Federal Legislation; *Individualized Family Service Plans; Infants; Interpersonal Communication; Interprofessional Relationship; Leadership Styles; Parent Participation; Preschool Education; Problem Solving; Professional Development; *Teamwork; Toddlers *Individuals with Disabilities Education Act Part H IDENTIFIERS ABSTRACT Service coordination in early intervention for infants and toddlers with disabilities is the focus of this training guide and accompanying videotape. Section 1 describes service coordination as defined by Part H of the Individuals with Disabilities Education Act, the various models or approaches to service coordination, the history of early intervention service coordination, and positive and negative aspects of service coordination. Section 2 details the individualized family service plan (IFSP) process and the four phases of service ccordina*inin. The philosophy underlying the IFSP process is discussed and strategies for working with families and the early intervention team are provided. Procedural safeguards in the IFSP are also reviewed. Section 3 provides strategies for enhancing communication with families who have children with special needs. This part also addresses teamwork, interagency communication, strategies for working with conflict, and leadership styles and skills. A problem-solving technique and "real life" scenarios are presented in section 4. Each section in the guide includes group activities and individual activities based on the information provided and lists of additional resources. The videotape depicts four scenarios that illustrate some of the challenges faced in the provision of early intervention service coordination; a video guide summarizes the scenarios and offers questions for group discussion. (Each section contains references.) (CR) ******************************************************************************** Reproductions supplied by EDRS are the best that can be made from the original document. ******************************************************************************** U.S. DEPARTMENT OF EDUCATION Office of Educational Research and Improvement INFORMATION EDU ATIONAL RESOURCES CENTER (ERIC) his document has been reproduced as received from the person or organization originating it. Minor changes have been made to improve reproduction quality. this Points of view or opinions stated in document do not necessarily represent official OERI position or policy. ,f1 ,.. A Training and Resource Guide [PithWaYi I 00 .:r -41 A for Enhancing Skills in W Early Intervention Service Coordination Written by: Peggy Rosin Meredith Green Liz Hecht Linda Tuchman Sue Robbins Editing, Design & Technical Assistance: Patricia Mitchell Production Assistance: Melanie Schneider and Heidi Duschak Developed by the Pathways: Service Coordination Inservice Project of the Waisman Center Early Intervention Program Project DirectorGeorge Jesien, Ph.D. it coFT AVANFABLE © 1996 Waisman Center, University of Wisconsin-Madison This training guide was developed through the Pathways: Service Coordination Inservice Project, supported by the Office of Special Education and Rehabilitation Services grant # H024P3001, awarded by the United States Department of Education. The opinions expressed herein do not necessarily reflect the position or policy of the U.S. Department of Education, and claims no official endorsement of the U.S. Office of Education. To order this guide, call or write: Early Intervention Program George Jesien, Ph.D., Director Waisman Center, Room 231 1500 Highland Avenue Madison, WI 53705-2280 Telephone: (608) 265-2063 E-mail: [email protected] Fax: 608-263-0529 http://www.waisman.wisc.edu/earlyint/pathways.htm REVIEWERS Ann (ampbell Portage, Wisconsin Portage Project, CESA #5 Karen Wollenberg Portage, Wisconsin CESA #5 Jeannie Wan less Wisconsin Dells, Wisconsin Parent Advisory Review Panel Roxann Bornemann Antigo, Wisconsin Lang lade Health Care Center Sheila Durand La Crosse, Wisconsin Birth to 21 Program, Gundersen Lutheran Jill Haglund Madison, Wisconsin Department of Public Instruction Jill Barmore Madison, Wisconsin Bridges for Families Program, Waisman Center Kelly Misko Muskego, Wisconsin Parent Advisory Review Panel Paul Meszaros, Ph.D. Ladysmith, Wisconsin Parent Advisory Review Panel, Mount Senario College Vickie Johnson Milwaukee, Wisconsin Milwaukee Women's Center Pam Winton, Ph.D. Frank Porter Graham Child Development Center, University of North Carolina- Chapel Hill Sarah Rule, Ph.D. Logan, Utah Center for Persons with Disabilities George Jesien, Ph.D., Director Early Intervention Program, Waisman Center, University of Wisconsin Madison V 4 ACKNOWLEDGMENTS families and the very real needs they face. We hope Service coordination in early intervention is a com- this work honors the complexity and worth of the plex and multifaceted topic. The thoughts, ideas, work they do day in and day out. reactions and efforts of many people helped us to more fully reflect the intricacies of service coordi- Much of the training content in the guide is based nation and we hope make this guide more practi- on two field test courses that were conducted in cal and useful to others. The content and training the first two years of the project. The courses were activities are based on a series of field tests and designed for both returning practitioners who feedback from numerous groups representing the wanted to enhance their skills and new students different audiences for which the material is in- who were about to enter the early intervention field. tended. The participation of each group enriched Professor Ann Haim of the University of Wiscon- our experience and the development process. We sin in Milwaukee was the first faculty member to would like to acknowledge and thank those that work with us in offering the course. Her help in have helped us and to represent the needs of par- organizing the sequence of content and flexibility ents, providers, faculty, and policy makers in the in adapting the course material to the needs of stu- development of the guide. dents set the tone for the entire course develop- ment process. Professor David Franks at the Uni- Parents, their participation and feedback, have been versity of Wisconsin at Eau Claire helped to pro- central to our vision of effective service coordina- vide the inspiration and support to take the course tion. The Parent Advisory and Review Panel pro- to another level. Because of his pioneering and vided ongoing feedback from the beginning of the adventurous spirit we were able to develop a si- project with input into the project's design and in multaneously taught course in Eau Claire and each development step along the way. We would Madison using compressed video technology. Pro- also like to thank the families who allowed us to fessors Mel Morganbesser and Marsha Seltzer pro- use their pictures to brighten the pages of the guide. vided the support necessary to make the effort pos- The people in the photos do not correspond to those sible in Madison. Steve Siehr of Dolt in Madison mentioned in the text. provided the technical support and guidance to navigate the complexities of distance technologies. A training guide is only as useful as the degree to which it reflects the daily experience of parents Lastly, it was critical for us that the content in the and providers and the degree to which it provides guide reflect emerging best practices in early in- practices and information that are directly appli- tervention and the spirit and letter of Part H of the cable to their work together. The Community Vali- Individuals with Disabilities Education Act (IDEA) dation Team made up of providers in the State which has established service coordination as a helped immeasurably to assure that content was mandated service for all eligible families. The State closely tied to practical service realities. Further and National Advisory members provided invalu- input was provided by the volunteer training sites. able insight and information from a broader per- The Milwaukee Women's Center, the Lang lade spective to inform our work. County Birth To Three Program, the Portage Project of Cooperative Educational Service Agency We hope that all who have worked with us in the 5 and the Bridges for Families Program in Madi- development of this guide see the impact of their son gave of their time and expertise. They provided efforts and feel part of the sense of pride that we us a window to the daily efforts of providers and all feel in its production and dissemination. VII CONTENTS REVIEWERSv ACKNOWLEDGMENTSvii OVERVIEW 3-1 OVERVIEW OF THE GUIDE AND THE PATHWAYS: SERVICE COORDINATION PROJECT GUIDE OVERVIEW-3 PROJECT REVIEW-4 SECTION I EARLY INTERVENTION SERVICE COORDINATION: DEFINITIONS, MODELS, VIEWS, AND VISIONS OBJECTIVESII SERVICE COORDINATION: DEFINITIONSII MODELS OR APPROACHES TO SERVICE COORDINATION/4 SERVICE COORDINATION: VIEWS AND A VISION/6 References-19 Discussion Questions-20 Activities-2I Resources-23 Appendices-27 SECTION II 39-141 THE PATHWAYS FRAMEWORK FOR ENHANCING SERVICE COORDINATION SKILLS AND KNOWLEDGE INTRODUCTION 39 CHOOSING THE PATHWAY GETTING STARTED IN THE IFSP PROCESS-45 THE JOURNEY PROVIDING FOLLOW ALONG TO FAMILIES-57 DETOURS ALONG THE WAY: UNEXPECTED, IMMEDIATE NEEDS OR CRISES-65 CHANGING PATHWAYS: FACILITATING TRANSITIONS-67 References-70 Discussion Questions-71 Activities-72 Resources-80 Appendices-85 ix SECTION III 14S-184 PERSONAL AND INTERPERSONAL SKILLS FOR SERVICE COORDINATION INTRODUCTION -145 COMMUNICATION: THE BASICS-145 Activities-152 References/Resources-155 Appendices-155 TEAMWORK-157 Discussion Questions-162 ActivitiesI62 Resources -163 ENCOUNTERING CONFLICT OR CRISIS-164 Discussion Questions-167 Activities-167 Resource -168 TAKING CARE OF YOURSELF-169 Questions for Reflection/ 75 Activities175 Discussion Question/ 75 Resources-176 Appendix176 LEADERSHIP AND CHANGE AGENT SKILLS178 Activities-182 References-184 SECTION IV PUTTING IT ALL TOGETHER: INTEGRATING THE SKILLS AND KNOWLEDGE USED IN SERVICE COORDINATION INTRODUCTION-187 CHOOSING THE RIGHT PATHWAY: GETTING STARTED IN THE IFSP PROCESS-189 ActivitiesI93 Readings and ResourcesI94 THE JOURNEY: PROVIDING FOLLOW ALONG TO FAMILIESI95 Activities-198 Readings and Resources-199 DETOURS ALONG THE WAY: UNEXPECTED, IMMEDIATE NEEDS OR CRISES-200 Activities-202 Readings and Resources-203 CHANGING PATHWAYS: FACILITATING TRANSITIONS-204 Activities-208 Readings and Resources-209 References-209 Appendices-213 XI Patirrvid EPA OVERVIEW OVERVIEW OF THE GUIDE AND THE PATHWAYS: SERVICE COORDINATION PROJECT GUIDE OVERVIEW The Guide's Purpose: t<; Reasons You Need This Guide Service coordinationas defined by the Infant/ Toddler Section (Part H) of the Individuals with Disabilities Education Act (IDEA)can be carried out by providers from a wide range of disciplines and experiences. Yet service coordination repre- sents a relatively new role for practicing provid- ers, students intending to work in the field of early intervention, and parents of infants and toddlers with special needs. This guide provides informa- tion, activities, and practical resources to help these individuals increase their skills and knowledge to meet the challenges of early intervention service coordination. The Guide's Suggested Uses: A Multifaceted Resource This guide is useful for parent and service provider inservice training and for interdisciplinary and dis- cipline specific preservice courses. Pathways staff has used the content, activities, and materials for a Inservice Training variety of successful training adaptations. The Trainers providing service coordination inservice guide's content and activities can be tailored for for health, education, and social services person- participants who have varying levels of knowledge and skills. We encourage trainers to structure ac- nel will find this guide to be an invaluable resource. The guide can be used in part or in its entirety, tivities to make the best of the abilities each par- although we have designed the sections to be self- ticipant brings to the training. contained. It can serve as a basis for inservice train- ing, self-study by individuals new to the field of We have designed trainings to include parents in early intervention service coordination, or for pro- the content delivery. Parent participation is invalu- gram staff development (e.g., problem solving us- able; they add their perspective and experience to ing the stories in Section IV or distributing the discussion. Parents as presenters in the training guide's resources for staff and families). We en- sessions are highly rated in all evaluations of the courage inservice trainers to apply the content and Pathways trainings. We highly recommend recruit- activities in ways that meet their needs and the ing parents as participants as well as presenters. needs of the participants. Preservice Training Faculty from a variety of departments associated with early intervention will find the guide a useful PATIIWAll OVERVIEW 3 9 source for curricula development and student train- PROJECT OVERVIEW ing. The content and activities are appropriate for interdisciplinary courses as well. The guide can assist faculty in their development or preparation Pathways: Service Coordination of lectures, course modules, or semester-long courses. Guide content can be infused into exist- Project ing courses related to infants and toddlers with special needs and their families. A series of federally funded projects, Pathways assists states in meeting their need for qualified and appropriately trained personnel to carry out their role as service coordinators in early interven- The Guide's Language: The Words tion. Pathways staff work collaboratively with par- ents, early intervention providers, community agen- We (hose cies and programs, state agency personnel, and higher education faculty. We describe people in a positive way throughout this guide. How we talk reflects how we think and vice versa. Therefore, we used "people first" lan- guage, mentioning the person before a description foundation Principles of that person (e.g., an infant with Down syn- As illustrated in Figure 1, Pathways is grounded drome). With respect to gender, we alternated be- in a participant-centered orientation and builds tween the use of he and she (except where a spe- upon parent-professional partnerships. The partici- cific person is referred to in the text) to avoid the pant-centered orientation is achieved by tailoring awkward he/she. We intend the term "parent" to experiences to meet individual needs and by offer- be inclusive of caregivers (e.g., mother, father, fos- ing options so that participants exercise control and' ter parent, grandparent), just as the term "family" guidance over their learning. Parent-professional includes all members that the family defines as partnership is fostered through the employment of members. parents as staff and consultants, parent and profes- sional teams in training and field experiences, and In naming groups, we selected terms that are cur- the inclusion of parents and professionals in all rently and generally acceptable. However, prefer- project activities. Parents are viewed as experts on ences for naming a cultural group is a personal the needs of their families and children. Their par- choice by group members and people from the ticipation in the design, planning, and implemen- same culture may have different preferences. We tation of project activities helps insure that all ma- acknowledge race and ethnicity and the language terials and training practices fully recognize the that surrounds these concepts are controversial and critical, varied, and changing roles of parents. in flux. The words chosen today may not be ac- ceptable tomorrow. Throughout the guide we em- Collaboration serves as the foundation of the Path- phasize that EACH PERSON AND EACH FAM- ways training approach. There is a bi-directional ILY IS INDIVIDUAL. Every attempt was made to flow of information and resources into and out of communicate with the guide's reader in a way that the project (see Figure 1). Information flows into is respectful of diversity. the project from parents and service providers who are participants in training or technical assistance, state and national Advisory Group members, early intervention programs providing services to fami- lies, representatives from relevant state agencies, and university faculty. Information related to the service coordination content, activities, and mate- rials is revised based on their input and flows out again to those involved in the input phase and to broader-based groups across the state and nation. 4 OVERVIEW PATHWAYS 10