=METRES= EC 301 186 ED 345 425 Nathanson, Jeanne H., Bd. AUTHOR Early Intervention. TITLE Office of Special Education and Rehabilitative INSTITUTION Services (ED), Washington, DC. 92 PUB DATE NOTE 37p. OSERS News in Print, Room 3129, Switzer Building, 330 AVAILABLE FRON (free). C St., S.W., Washington, DC 20202-2524 Collected Works - Serials (022) PUB TYPE OURS News in Print; v4 n3 Win 1992 JOURNAL CIT MF01/PCO2 Plus Postage. EDRS PRICE Agency Cooperation; *Attention Deficit Disorders; DESCRIPTORS Compliance (Legal); Deafness; *Disabilities; Drug Therapy; *Early Intervention; Educational Legislation; Elementary Secondary Education; Federal Legislation; Hyperactivity; Interdisciplinary Approach; Parent Participation; Parent School Relationship; Program Implementation; Rehabilitation; Special Education; Substance Abuse; Urban Education ABSTRACT This theme issue focuses on early intervention. The (1) "Deaf Infants, Hearing four articles presented on this theme are: and others), Mothers: A Research Report" (Kathryn P. Neadow-Orlans, development; reporting findings on effects of auditory loss on early (2) "Naintaining Involvement of Inner City Families in Early Looking beyond Intervention Programs through a Program of Incentives: Brinket, and others) Family Systems to Societal Systems" (Richard P. family services; (3) stressing the need for an integrated approach to Serving "Interdisciplinary Interagency Training for Professionals others), Chemically Dependent Families" (Vicki Krodenski, and interdisciplinary and describing a California program providing (4) "Policy interagency training to work with this population; Implementation of Services for Infants and Toddlers with others), describing a Developmental Delays" (James Gallagher, and Individuals with project to track implementation of Part H of the attention deficit Disabilities Education Act. A special suteection on of State disorders include the following articles: "A Clarif!nation the Needs of and Local Responsibility under Federal Law To Address (a Department of Education Children with Attention Deficit Disorders" Meeting the Needs of policy memorandum); "OSEP's Initiatives for (Ellen Schiller and Jane Children with Attention Deficit Disorders" and Hauser); and "Attention Deficit Disorders: Academic Functioning (DB) Stimulant Medication" (Steven R. Forness). *********ft************************************************************* te made Reproductions supplied by EDRS are the best that can * from the original document. *********************************************************************** ( \11\1 -1\1) P != I'. ) I fJ r =,4 d I ) r Muter 1992 Warne III Number 3 Early Intervention s. DiftAarlOtlif 011111ICATION Oft* 42/ Ethashona4 aossovat ono mapromem EDUCATIONAL RESOURCES INFORMATION CENTER /MCI Gritto docomoom hos boom NiveNteird O$ ferAPPled kOnt MO perm+ cs etionszation Ofteseleting 13 Moor 4:1140009 MAD Mos motif to onetowo footoduchon Sootily pa./ 1;:. .sert', :). lit from the A Message Assistant Secretary Robert R. Davila, Ph.D governors in 1990: by the year NUL often fragmented system of services to Part H of the Individuals with all children in America will start infants and meet the unique needs of Disabilities Education Act school ready to learn. In support of toddlers with disabilities, through an (IDEA). originally passed in this national choral have identified emphasis on interagency cooperation 1986. states that the Congress the support of early intervention ser- and ieTVice coordination. At the same found an urgent and substan- vim as a key area for USERS during time. Congress authorized grants for the next few years. Very simply. this tial need to: preschool services for children ages means that USERS will support activi- three through five. for the purpose of enhance the development (1) ties that encourage the earliest and ensuring provision of a free appropri- of infants and toddlers with mast effective provision a services eligible ate public education to each disabilities and to minimize for infants and young children with child with disabilities. disabilities to ensure that all children their potential for developmen- Since 1975. the nation's special enter school ready to learn. education laws have steadily exiyanded tal delay; As part of our early intervention the variety and availability of services (2) reduce the educational efforts, we will work with states to for children and youth with disabilities including costs to our society, in ensure their continued participation from birth through age 21. Preschool schools, by mini- our Nation's Part H and preschool programs. Fed- be programs are now or soon will eral funding priorities related to this mizing the need for special available for every child with a dis- initiative will continue to provide education and related services ability. Each state is in the process of technical assistance to early interven- implementing early intervention ser- after infants and toddlers with tion projects. develop creative and vices for infants and toddlers with dis- disabilities reach school age: effective learning plans and curricula abilities and their families. State and (3) minimize the likelihood of for young children, and support early local school authorities and others institutionalization of individ- detection programs. Priorities that have been extremely responsive and support training for family members. uals with disabilities and maxi- resourceful in working toward ensur- teachers, and other early childhood ing the availability of high quality ser- mize the potential for their professionals will hell. ensure that vices for young children with independent living in society: infants and toddlers with disabilities disabilities and their families. and will receive services from well- These programs are fousided on the (4) enhance the capacity of trained providers. principle that every child has poten- The real benefit of effective educa- families to meet the special iial. including children with disabili- tion and rehabilitation, including lies. Research has shown that early needs of their infants and tod- early intervention programs, is in the intervention and preschool programs dlers with disabilities. opportunity for children and adults for children can make a difference with disabilities to achieve their full with disabilities by easing the transi- and Toddlers n creating the Infants I potential. Expectations for outcomes tion from home to elementary school Program. the with for people with disabilities are higher and maximizing their opportunities for Congress provided families with a than ever before. and I hope they will interaction with their nondisabled vision and a promise of a cool dinated become even higher. I have often peers. These programs empower par- the system of services to help ensure spoken of OSERS mission of provid- information ents. too, by providing the growth and development of th..ir ing opportunities for people with dis- and services they need to attend to disabilities. This young children with abilities to achieve their individual their child's unique needs. design program was special in its potential and maximum participation Early intervention programs have because it focused on the family's role and pmductivity in society. Early helping meet the an important role in of nurturing young children with dis- intervention will help make this goal a first of our nation's education goals. abilities. The legislation sought to sup- reality. t adopted by President Bush and the together an port that role by drawing ti Inter /992 1. A Message from the Assistant Secretary Robert R. Davila, Ph.D. Early Intervendan 4 Deaf Infants. Hearing Mothers: A Research Report Robert H. Matilark. Ph.D. Kathryn P. Meadow-Orians. Ph.D. Volume IV, Number 3 Lynne Sanford Koester. Ph.D. Wimer 1992 Patricia F.. Spencer, Ph.D. 8 Maintaining Involvement of Inner City Families in Early . . . Intervention Programs Through a Program of Incentives: Lamar Alexander Stcreavy Looking Beyond Family Systems to Societal Systems United States Department of Wynetta Frazier. Ph.D. Richard P. Brinker, Ph.D. Education Abigail Baxter Plat Interdisciplinary-Interagency Training for Professionals 18 Robert R. Davila . . . Serving Chemically Dependent Families Assistant Secrriary Office of Special Education and Jody Howard, M.D. Vkkie Kropenske, P.H.N.. M.S.N. Rehabilitative Savices Mary Beth Sorensen. M.S.W., LC-S.W. Edelstein. M.S.W., L.C-S.W. B. Susan Annette Moore. M.A. Racheliel) ler. M.D. Jeanne H. Nathansw Policy Implementation of Services for Infants and 23 Editor Toddlers with Developmental Delays Gloria Harbin. Ph.D. James Gallagher. Ph.D. Richard Clifford, Ph.D. Carer art Jane Eckiand, Ph.D. Pbuong Tran Patricia Funny,: Ph.D. Age 12 Grade 6 OSERS News In Print is published AN OSERS NEWS IN PRINT SPECIAL SECTION quarterly and is available free of on Attention Deficit Disorders charge. Contributors of articles for this issue expressed th.rir own points of view, which may not necessarily A Clarification of State and Local Responsibility reflect the position or policy of the Under Federal Law to Address the Needs of U.S. Department of Education. The 27 Children with Attention Deficit Disorders information in this publication may be reproduced without further per- mission: a credit line would be appre- 30 ciated. Please address comments to: OSEP's Initiatives for Meeting the Needs of Children . . . OSERS News In Print. Room with Attention Deficit Disorders Editor. 3129. Switzer Building. 330 C Street, Jane Hauser Ellen Schilles. Ph.D. S.W.. Washington, D.C. 20202-2524, 202/732-1723. 32 Attention Deficit Disorders Academic Functioning and Stimulant Medicine Steven R. Forness. Ed.D. li infer 19442 4 3 DEAF INFANTS, MOTHERS: HEARING A Rmarch Report Kathryn P. Meadow-Orians, Ph.D. a Robert H. MacTurk, Ph.D. PatTicia E. Spencen 1Ph.D. Lynne Sanford Koester, Ph.D Center for Studies in Education , and Human Development Gallaudet Research Institute Gallaiglet University Washington. DC 20002 Introduction Tn the past decade. there has been an ilenormous expansion in knowledge ,2 about infants development in the first of life. particularly in relation to ykntr their capacities to regulate social and emotional interaction, to respond to objects and to their parents, and to influence their environment by these responses. Knowledge about the pro- also has cess of language acquisition grown exponentially. hrter i 4 ) lo retlillpy ,6 4,0 a age. The 15-month contact was a Infant Mastery Motivation. Deaf Infants who are deaf, however. and hearing infants did not differ in home visit during which the mother have been studied very little. and their persistence in efforts to master was interviewed. Other contacts were available research reports include only objects. either at nine or at twelve in a laboratory at one of the five a few subjects. A major reason tOr this research sites, tin addition to Gal- months of age. However. social gaze gap is a continuing deli.), in the detec- laudet University. participating behaviors directed to the examiner m- tion of congenital deafness. Despite in the mother at nine months predicted research groups were based at the Uni- advances in diagnostic procedures and mastery motivation (persistencef at versity of Texas at Dallas: the Univer- practices, hearing loss is generally not sity of Pittsburgh: the University of twelve months for the deaf t hut not the identified before the age of eighteen hearing) infants. Ma.ssachusetts. and Amherst/Boston: months. As early intervenfion special- Georgia State University. Atlanta.) ists address the requirements for pro- Infant Social Coping Skills. At age iding serlices to children from birth nine months, hearing infants were At the 9-month visit, mothers and to age three, as mandated in the FAiu- more likely to elicit responses from infants were videotaped in a standard cation For All Handicapped Children their mothers during the Still-Face sit- Face-to-Face interaction format, with Act. P.L. 99457. the absence of devel- uation. while deaf infants were more two three-minute intervals of normal opmental research on infants who are likely to exhibit self-comforting interaction separated by a Still-Face deaf creates serious problems. behaviors. This was interpreted as mothers were where episode reflecting a tendency to internalite instructed to be non-responsive. Mas- In response to this situation, the their discomfort, compared to the tery Motivation was assessed by the research summariled here was hearing infants' more av've efforts to presentation of four age-appropriate designed to investigate the impact of repair the disrupted interaction. toys. An interview was conducted and hearing loss on earl y. mother-infant questionnaire data on family stress and interaction. on infants' motivation to At eighteen months there were no support were collected. learn about objects. their social coping differences in the deaf and hearing skills. and their early language. These infants' quality of attachment to their During the 12-miimrli visit. Mastery developmental domains were viewed Motisation was assessed a second mothers. On the basis of more specific in the context of the family stress cre- sub-categories of behavior, infants time: mothers and children partici- ated by the diagnosis of deafness and who were deaf responded to separa- pated in a fifteen-minute unstructured the network of social support available tion by exhibiting greater tivmdawe at play session, and in the "Strange Situ- to parents. The purposes of the study the reunions, compared to the hearing ation.- a standard laboratory proce- %ere to provide information to behav- infants. dure for assessing infants' attachment ioral scientists about the influence of to their mothers through a series of Infant Communicative Abilities. loss on earls development. auditor brief separations and reunions. Hearing infants and infants who were and to pros ide a basis for informed deaf did not ditTer in their production At eighteen months. mothers and intenention to parents and educators. of prelinguistic visual-gestural com- children were again engaged in the munication. in the quantity of socal Strange Situation and in twenty min- communication, or i.. frequency of utes of rice play. Another interview Stud, Design and Methods: intentional communication either at was conducted and additional ques- en!. twelve or at eiehteen months. !leafing normaiiy-developing tionnaire data collected. -1-%% infants with hearing loss were infants' socal productions were more sophisticated and their use of formal recruited from Ilse inetropolitan areas: language was more athanced. com- infants with normal hearing were Findings: pared to the infants who were deaf. matched with that group for sex and On several measures. families with Howes' cr. there was gr,:.at sariation mother \ education. Infants' hearing infants who were deaf or had hearing losses were diagnosed by the age of within the two groups. The language loss reported significantly higher lev- performance of some individual se% en months: fifteen had a hearing els of stress and higher levels of soda! infants who were deaf exceeded that 1oss in the severe io protOund range. support. Differences in stress levels of some Individual hearing infants. Ilse had a less severe loss. Families were accounted for primarily by stress intim. white, middle- were prtmaril Mother-Infant interactions. related to care of the newborn child: At class, and college-educated. nine, twelve, and eighteen months. differences in support levels were mothers with infants who were deaf Data were collected w hen infants accounted for by services provided by exhibited a positive adaptation to 12-. 15-. and 18-months of were intervention specialists. '1": Ith r It 5 1 ; research group. We deduce that fami- of the variance in imeractions of dyads infants' auditory deprivation by pm- lies without the advantages of access with deaf infants at eighteen months. iding more s isual cues than did to appropriate health care are likely to Of special note is the ,trong positive mothers with hearing infants. How- experience even greater delays in impact of family socia. support on the with ever. at nine months. mothers diagnosis than the advantaged, white, quality of interactions in mothers and hearing infants were judged to be middle class families. Thus, a key tee- deaf infants. (in the more responsive to their babies mnmendation is that state-wide efforts Face-to-Face format). and at eighteen Infants' Language Level. The sec- he made to establish at-risk registries months, mothers with hearing infants ond outcome measure was an infant and hearing screening programs. were judged to be more sensitive to Language Level Index from the eigh- their babies tin the free play setting) Legislation to support this is in place teen-month communication data. Two compared to mothers with deaf tP.L. 99-457), and many states have predictor variables were identified for infants. Spoken language of mothers begun their work in this direction. This this measure: mother-infant Affective with hearing infants was more comin- cannot he done too soon if infants who Match and mothers' visual-tactile visual attention at ;ear On infants benefits are deaf are to receive the dear Responsiveness tboth from Face-to- twelve and eighteen months, com- that come from an eany diagnosis. Face data at nine months). These vari- pared to the spoken language of moth- ables aecounted for 37 percent of the ers with infants who were deaf. for in language level variance the hearing infants. but none of the Development of Social Interaction Recommendation 2. variance in the deaf infants' language and Language from Nine to Eighteen Pediatricians and other health Based on results of levels. Months of Age. professionals should be alert previous research. we had predicted that the groups of hearing mothers for early suggestions of with deaf and with hearing infants Recommendations impaired hearing and should would display varying patterns of refer infants for thorough interaction and mastery motivation at Recommendation I. and that auditory assessments as soon ages nine and twelve months, Increased support for early these patterns would predict differ- suspected. as hearing loss is identification, of and interven- mother-infant ences in the quality of interaction and in infants language Our findings suggest that early diag- tion with, deaf infants, nosis is even more important tor levels at eighteen months. We also including the establishment of infants who are deaf than previous predicted that these patterns of interac- statewide Child Find systems tion and language development would work had indicated. Health profession- be specified by family stress and als likely to have early contact with early hearing or registries and infants and their families must know social support. screening programs. that hearing can he tested reliably dur- Quality of Mother-Infant Interac- ing the first weeks of life. Referrals to The single most important recommen- tion. Based on qualitative ratings of early intervention programs immedi- dation 4C! can make is the broadening mothers and infants at eighteen ately' after diagnosis is critical. of programs for early identifkation months. a global score was assigned to and intervention with infants who are reflect the overall quality of dyadic deaf. Although the technology exists interaction. Four predictor variables for diagnosis even before the age of Social Sup- Recommendation 3. were identified: family nine months. iwo and one-half years Mas- port: infant Social Smile during Training programs for health of strenuous effort in five major infant tery assessment at nine months: professionals should expand metropolitan areas were required to (ia/e Avert during the Still-Face recruit the twenty infants who were their emphasis on skills in epimide of Face-m-Face interaction at deaf that were targeted for this project. nine months: dadic Responsiveness interacting with and counsel- Child-Find activities apparently are during normal Face-to-Face interac- ing parents of infants with professionals not as advanced as most vari- tion at nine months). These four would like to believe. Particularly evi- ables accounted for slightly less than disabilities. dent is the absence of infants from one-third tif the findings (that is. the One of the most significant findings poor. disadvantaged. minority group. variance) in interactions of dyads with families in our from this research is the strong Tell- or single-parent hearing infants. hut most (79 percent; '1 tionship between social support received by mothers of infants who are deaf and the quality of their inter- actions with those infants. The source of support differentiating mothers with infants who are deaf from mothers with hearing infants was that provided hy professionals. We interpret this set e, of results as a clear reflection of the importance of professionals' support for families in the early stages of their adaptation to the diagnosis of deaf- ness. and as a clear mandate to early intervention specialists to continue and to expand their pnwision of emo- tional support/counseling to families of Infants who are deaf. Recommendation 4. Parents should receive realis- tic, clear informatioh about their infant's ability to per- ceive language in the audito0 cially infants who are deaf This research was supported by the mode, and be informed about Division of Maternal and Child with parents who are deaf" implications for choice of Health. Bureau of Health Care Delis - and deaf infants from disad- communication mode. ery and Assistance IGrant #MC.1- 110563i and hy the Gallaudet vantaged families. Research Our research showed that infants with Research Institute. Copies of the Final focused specifically on deaf scxere to profound hearing losses Report ("Interaction and Support: could acquire expressive language at a infants' processing of visual Mothers and Deaf infants-) may he normal rate when they were provided information and signaling obtained for a fee from the National language in a modality they could per- Technical Information Service. U.S. strategies during social inter- ceis e. In order to make informed deci- Department of Commerce. Spring- sions about language methods, parents action is also recommended. field. VA 22161 need to have: la) information from intensise auditory assessments, made This research group has been on a regular basis and providing mea- awarded a grant 01023C10077) from sures of infants' ability to perceive Conclusion the Office of Special Education and sound with and without amplification: This research provides a rich database Rehabilitative Services for analysis of hi Information from assessments of and intriguing new information ahout comparable data from deaf and hear- progress in communication/language the importance of family stress and ing ilifants with deaf parents: -Mater- deselopment on a regular basis: and. Responsiveness and Child support for the development of infants nal (ci information about language meth- Competency in Deaf and Hearing with deafness and their early interac- ods available to parents. tions with mothers. Additional Children.- r,onald F. Moores. Princi- research is needed, however, to pro- pal Investigator, Kathryn P. Meadow- Or fans. Co-Principal Investigator. vide information enabling infants with Recommendation 5. Robert H. Mac Turk, Patricia E. deafness and their parents to accom- Additional research is needed modate successfully to the infants' Spencer. Lynne Sanford Koester. with other populations. espe- auditory hiss. t Research Scientists. Winter /992 7 Maintaining City Involvement of Inner Families in Early Through Intervention Program a Incentives: Program of Family Looking Beyond Societal Systems to Systems city families with an infant who is dis- Introduction abled. The problem that we have faced partnership re problem with the in providing early intervention to between families and early inter- infants with disabilities and their fami- vention programs envisaged in the lies who live in poverty is that signifi- Education of the Handicapped Act Richard P. Brink% PhD. child's cant life stresses place the Amendments of 196 is that it pre- developmental needs land hence the beliefs of sumes some congruence in Wynetta Frazle4 Ph.D. need for the early intervention pro- professionals and parents. Families gram) at a lower priority than we have Abigail Baxten Ph.D. living in poverty in the inner cities of experienced to be the case when fami- America may not have many similari- lies come from middle and higher ties with professionals and paraprofes- socioeconomic backgrounds. sionals employed in early intervention Institute for the Study of programs. Hence. the belief that pro- The purpose of this paper is to Developmental Disabilities fessionals wish to work as partners review efforts to increase the involve- with a family from the inner city and College of Education early ment of inner city families in University of Illinois at Maw whose child is developmentally dis- intervention through the expansion of abled may not be held by such fami- intervention services to include ser- lies. Neither may the perception of the vices to families in an effort to reduce child's disability be shared by early barriers to their involvement in inter- intervention professionals and inner Rimer 1992 8 -§1 ention set-% ices tor their children. First. we %sill briefly restos the need to expand the perspective of interven- tion beyond the developmental needs t the child ssnh disabilities. Then ue ill briefly review a protect designed to provide individualiied incentives to osercome barriers to participation in earls inters ention and pre.ent some prelumnarx data trom this effort. w ill Inbe the need for a Finally. systems perspectise and illustrate this ith brief tkscriptions of some neetl of the tamilies insolsed in the experi- mental Incentises program. 4gooP" .Zeitictance to Become nvoked in Eariv intervention Me Early Childhood Research and of the hitenennon Program Institute tor Studs ot Deselopmental t msersity ol Illinois at (Tneago has been in esisience tor Over mous years. Although the program is located in the inner sits. until a tew ear, auo Most ot the clients were Middle dass. non-ilifilotIR families trom the suburbs. It was lear I rt H11 tin lti% men( skith hospliat that. although proerams f4illow-11p mans inner sits families were being eferred to I ..CR IP. not mans were sue- '4\ essfulls enrolling their inlants with 4 10011, ,lisahrlines nd participating in the eekl% program. Scseral studies con- !TRIP confirmed the poth- lucte,t lentils me and set-% me infants lem iii sith imin the inner CO. In a pilot study 01 des Clopmental screening in IV+ 44 Chli:i1110 Btlard iii t)nls 4 percent of the imants identified Rriimkcr. 1-raner. agers tor further consideration ot the Health s.linics. as suspect or delayed developmemaii detelopmental status. Sesenty- \orman. 14044,1m our staff ancelot. \sere actually csaluated to confinit fti cases were referred to case man- screened 5-0 infants between the atles disconfirm the problem. agers tor further study. Of these. tints. tit lour and 1%% OM -tour months for eleven families remained in contact deseloomental delays usine the Infant The screening ellon illustrates two with ease managers and agreed to Monitoring System. a parent-question- aspects of the mechanism by which Of multidisciplinary es aluations. naire des eloped hy Bricker 11484). kiss income families become disen- 1(1 percent of the population tints the infants screened. 115 (2,0 percent) franchised from available 'ens ices. for dc.'laed identified as suspect agreed to any fur- were identified as suspect of the families demon- . many Fitst ther es aluation. Of those int:tots deselopment. Atter screening. 20 per- strated that obtaining a full desehip- whose families agreed to evaluation he sem ot the suspect cases could not mental 71..essment was a loss priority onh the were actualls esaluated. located hs the clinics or case man- friri 1,0Q: '