ERIC ED332470: Young People and Disability: Selected Experiential Literature. Project Parents in Partnership.

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by  ERIC

DOCUMENT RESUME
ED 332 470
EC 300 333
Vasa, Stanley F.; And Others
AUTHOR
Young People and Disability: Selected Experiential
TITLE
Literature. Project Parents in Partnership.
INSTITUTION
Nebraska Univ., Lincoln. Dept. of Special Education
and Communication Disorders.
Jan 91
PUB DATE
NOTE
30p.; Document contains small print.
PUB TYPE
Reference Materials - Bibliographies (131)
EDRS PRICE
MF01/PCO2 Plus Postage.
DESCRIPTORS
*Adjustment (to Environment); Adolescent Literature;
Child Advocacy; Child Rearing; Children; Childrens
Literature; *Disabilities; Educational Experience;
*Experience; Fiction; *Individual Development;
*Nonfiction; Personal Narratives; Social
Experience
ABSTRACT
This bibliography is an annotated listing of
experiential literature focusing on young people and disability. It
includes selected fiction and nonfiction works, written between 1975
and 1990, which present positive portrayals of young people with
special needs. The bibliography is organized by sections according to
major disability categories, then divided into fiction and
nonfiction, and then divided by reading level (adult, young adult,
intermediate, and primary). Disability categories include, behavior
disorders; deaf-blind; general disability issues; hearing
impairments; mental retardation; multihandicaps; orthopedic
irpairments; other health impairments; specific learning
disabilities; speech/language impairments; and visual impairments.
(JDD)
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Reproductions supplied by EDRS are the best that can be made
from the original documant.
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Young People and
Disability:
Selected Experiential Literature
BEST COPY AVAILABLE
Department of Special Education and Communication
Disorders
Teachers College
University of Nebraskailincoin
"PERMISSION TO REPRODUC!'i THIS
January, 1991
MATERIAL. HAS BEEN GRANTED BY
TO THE EDUCATIONAL. RESOURCES
INFORMATION CENTER (ERIC)."
2
Young People and Disability:
Selected Experiential Literature
Project Parents in Partnership
Stanley F. Vasa, Projezt Director
Lori Moseman, Project Coordinator
Judy Riordan, Instructional Development Specialist
Department of Special Education and Communication Disorders
Barkley Memorial Center
Teachers College
University of Nebraska-Lincoln
Introduction
This bibliography is an annotated listing of experiential literature focusing on young people and disability.
It includes selected fiction and non-fiction works written between 1975 and 1990 which present positive
portrayals of young people with special needs. It would be helpful for educators and fal.lilies in
understanding the experiences of persons with various disabilities.
The bibliography le organized by sections according to reading levels and major disability categories.
These listings have further been divided into fiction and non-fiction worics. Reading level categories
which have been utilized and should be considered when selecting books for younger readers are:
Adult (over age 16),
Young Adult (approximately ages 12-16 ),
intermediate (approximately ages 9-11), and
Primary (approximately ages 5-8)
The disability categories in this bibliography are organized to include fiction and non-fiction listings for the
following:
Behavior Disorders
Deaf-Blind
General Disability issues
Hearing impairments
Mental Retardation
Multihandicaps
Orthopedic impairments
Other Health impairments
Specific Learning Disabilities
Speech/Language impairments
Visual impairments
Acknowledgements
This bibliography on young people and disability is the result of work by many individuals. Those who
participated in its dovelopment include Sue Stelzer, Sue Phillips, Marsha Yelden, Michelle Wilson, and
Joyce Cramer. In addition, we thank Mary Jackron and Sally Snyder at the Nebraska Lbrary Commission
for their consultative assistance and Interim Dirwtor Sylvia Hermone and the staff at the Keene Memorial
Library in Fremont for obtaining copies of books for review.
2
Table of Contents
BEHAVIOR DISORDERS, FICTION
.5
BEHAVIOR _DISORDERS, NONFICTION
.5
NONFICTION
DEAF-BLIND,
6
GENERAL DISABILITY ISSUES, NONFICTION
HEARInIG IMPAIRMENTS, FICTION
.9
HEARING IMPAIRMENTS, NONFICTION
0
1
MENTAL RETARDATION, FICTION
2
1
3
MENTAL RETARDATION, NONFICTION
.1
MULTIHANDICAPS, FICTION
5
1
NONFICTION
6
MULTIHANDICAPS,
1
ORTHOPEDIC IMPAIRMENTS,
FICTION
6
1
ORTHOPEDIC IMPAIRMENTS, NONFICTION
8
.
1
0
OTHER HEALTH IMPAIRMENTS, FICTION
2
OTHER HEALTH IMPAIRMENTS, NONFICTION
2
1
.
SPECIFIC LEARNING DISABILITIES, FICTION
4
2
SPECIFIC LEARNING DISABILMES, NONFICTION
4
2
SPEECH/LANGUAGE IMPAIRMENTS, FICTION
6
2
SPEECH/LANGUAGE IMPAIRMENTS, NONFICTION
6
2
VISUAL IMPAIRMENTS, FICTION
7
2
VISUAL IMPAIRMENTS, NONFICTION
8
2
3
Selected Experiential Literature
Young People and Disability:
BEtibmcm DISORPgRS. FICTION
YOUNG ADULT
Bauer, M. D. (1980). Tangled butterfly. New York: Houghton Mifflin/Clarion Books.
The problems of Michelle, an adolescent with a psychiatric disorder, are explored.
Cheatham, K. F. (1982). The beat way out. New York: Harcourt Brace Jovanovich.
Thirteen-year-old Haywood's emotional and academic problems, and the special program and teacher that help
him regain control are chronicled.
Freeman, G. (1982). Out from under. Scarsdale, NY: Bradbuni Press.
The feelings of 15-yeae-old Emily as she dealq with adolescent dilemmas, including her best friend's obsession
with suicide, are highlighted.
Hentoff, N. (1976). Thl&school is dtbdiarne crazy. New York: Delacorte Press.
Peer pressure experienced by Sam, a ycung hyperactWe boy, is presented.
Hyland, B. (1987). The girl with the crazy brother. New York: Franklin Watts.
Dana, a high school student whose family moves from Boston to California, Copes with her brother's mental .
health problems.
Marsden, J. (1987). Egmugh.121211/wi. Boston: Joy Street Books
How a young Australian girl who has been disfigured uses a pGdonal journal to understand her feelings is
portrayed.
Thitjanauxakaizakifigit
New York: Viking Press.
O'Neal, Z. (1980).
Carrie's mental health problems, and her family's response to her disorder are highlighted.
VanLeeuwen, J. (1979). Seems like this road goes on forever. New Yort Dell Publishing.
The story of how psychotherapy heOs Mary Alice, a 17-year-old who has emotional and behavioral problems
which have affected her life, is presented.
INTERMEDIATE
Heide, F. (1976). GnswIng anywato Philadelphia: J.B. Lippincott.
Family, school, and the social impacts of Florence's emotional problems are explored in this first-person
account.
131.11ADOILMSDIUMBIA11011.0.1.01
ADULT
Carlisle, W. (1984). Siblings of the mentally ill. Sareloga, CA: R & E Publishers.
The experiences and special needs of a group of brothers and sisters of adolescents with mental health
problems are discussed.
Craig, E. (1983). ifjagggldjigallagriss.grgs New Yoric: Simon & Schuster.
The author's experiences with severeY disturbed children during a summer at Camp Hopewell are recounted.
(1981). .Sonigbody eise'sjilds. New York: G.P. Putnam & Sons.
Hayden, T.
A teacher's detailed account of a year's work with four children who have emotional and behavioral disorders is
presented.
Hayden, T. (1982). Qatilad. New York: Avon.
The stories of students with emotional and behavioral disabilities are tokl by their teacher.
Hayden, T. (1988). Just another kid. New York: G.P. Putnam & Sons.
A teacher's experiencGs with a class of children diagnosed as emotionally disturbed are shared.
Love, H. (1987). Behavloratdisorders In children: A book for parents. Springfield, IL: Charles C. Thomas.
A basic overview of the assessment and diagnosis of behavior disorders and information on classroom
management and prevention are Included.
5
fl
(1981). City kid. Boston: Little, Brown & Company.
MacCracken, M
.
The personal account of a year teaching in a specie/ mental health project for elementary students Is chronicled.
MacCracken, M. (1976). Lovev: A yew special child. New York: J.B. Lippincott.
Hannah, a troubled child in a special class for students with emotional and behavioral problems, is profiled by her
teacher.
McElroy, E. (Ed.). (1988). Children and adolescents with mental illness. Kensington, MD: Woodbine House.
A comprehensive review of diagnosis, therapy, treatment programs, and special education services for young
people with mental health problems Is provided.
Reaves, J., & Austin, J. (1990). flow to find help for a troubled kid: Aparent's guide to programs and services for
adplescenta. New York: Henry Holt & Company.
In this resourne for parents of troubled adolescents, Information on evaluation, school programs, the juvenile
justice system, treatment centers, hospitals, and model programs is presented.
Rothenberg, M. (1977). Children with emerald eyes. New York: E.P. Dutton & Company.
Case histories of several children with severe mental health problems are shared by a treatment specialist.
Rubin, T. I. (1987). 1,1prii. New York: MacMillan.
Therapy given to Jonii, a child with behavioral and emotional problems, is documented by his psychiatrist
.
(1987). Lia.andpitid. New York: MacMillan.
Rubin, T. I.
The lives of two children with emotional problems and the treatment they receive are detailed by their
psychiatrist.
Sheehan, S. (1983). 11.therjutoplace on earth for me? Boston: Houghton Mifflin.
A look at one schizophrenic teen's experiences In the mental health care system Is provided.
YOUNG ADULT
Craig, E. (1983). B we could hear the grass grow. New York: Simon & Schuster.
The author's experiences with children having emotional and behavioral problems during a summer at Camp
Hopewell are recounted.
atvaaroyiing_upliiihmentaLis n_mur_famjighame
Dinner, S. (1989). /kW
New York: Lothrcp, Lee
.
& Shepard Books.
A child psychiatrist's knowledge about symptoms, treatments, and the impact of mental illness on lam*
members is shared.
Green, P. (1978). Walkie-talkit Reading, MA: Addison-Wesley.
A summer friendship between a 14-year-old behaviorally disturbed boy and another handicapped child is related
by a special education teacher/author.
Hyde, M. (1983). whaja:grayrAbidffstanthnguingaudjahaykz Philadelphia: Westminister Press.
Causes, symptoms, and treatments of behavior and mental health problems are discussed.
DEAF-BLIND. NONFICTIM
ADULT
Covert, A., & Frederick, B. (Eds.). (1987). Transition for persons with deaf-blindness_and other profound handicaps.
Monmouth, OR: Teaching Research Publications.
Papers and recommendations from the 1986 National Conference on the Transition of Profoundly/Multiply
Handicapped Deaf-Blind Youth are presented.
McInnis, J., & Treffy, J. (1982). Dfta213linfijniant _andAchildren. Toronto, Ontario: University of Toronto Press.
InformaCon on social and emotional skills, communication, gross and fine motor 'abilities, perception, cognitive
understanding, mobility, orientation, and life skill training for deaf-blind children are included.
INTERMEDIATE
Tames, R. (1989). Helen Keller. New Yok Franklin Watts.
The life of Helen Keller, who overcame her deaf and blind handicaps with the he0 of her teacher, Annie Sullivan,
is chronicled.
6
PRIMARY
New York: Viking Kestrel.
Kudlinskl, K (1989). Hale
.
Hell
An account of Helen Keller's life is presented In this work from the "Women of Oir ime" book series.
GENER8L DISABILITY IMES,ADNEICTION
ADULT
Anderson, W., Chitwood, S., & Hayden, D. (1990). Negotiet,..4 the special education_maza. (2nd ed.). Rockville,
MD: Woodbine House.
A program which helps parents be educational advocates, a chapter on transition, and information on PL 99-457
are included in this guide for parents of special needs children.
Cassie, D. (1984). So who's perfect? Scottdale, PA: Herald Press.
Interviews featuring lifespan experiences of a group of indMduals with special needs are shared.
Des Jardins, C. (1980). HoliQuandaulyilainsualfayst. Chicago: Coordinating Council for Handicapped
Children.
Information and training on assertiveness, due process, and coping with bureaucracies are provided in this
handbook for parents.
Dickman, I., & Gordon, S. (1985). One miracle at a time: How to get help for your disabled childfrom the evade=
of other parents. New York: Simon & Schuster.
Compiled by the father of a hardicapped son, the collective views of 550 parents of handicapped children about
immediate reactions upon diagnosis, "working the system", parent groups, educational placements, financial
Information, advocating for rights, institutionalization, and sexuality are presented.
Fewell, R., & Vadasy, P. (1986). Eignith mikappasishildrinalaktandigaraluraniiliaffugail.
Austin: Pro-Ed.
A collection of literature reviews, original research, and personal narratives which highlight the need for lifespan
support in families affected by disability are provided.
Goldfard, L., Brotherson, M., Summers, J., & Turnbull, A. (1986). MitgIng.theshsfingigLsksbility.sm_qhrpnic
illness: A farnikguide. Baltimore: Paul H. Brookes.
Problem soMng; evaluating strengths, needs, and values; resource readings; and fists of organizations which
support families facing challenges of disability or illness are included.
Granger, L., & Granger, B. (1986). Thfkingig.ifugh2E. New York: E.P. Dutton & Company.
A parent's personal experience with the special education system is retold.
- 1
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.11
A ;IL,
Levin, J., & Scherienberg, L. (1986).
1'
L.
I
=1,.
thiLyakliluggablimalfamingggy. Minneapolis: Ablenet.
Ways in which automated learning aids can be used in school, home, and work settings are outlined and
resource listings of adaptable toys and device manufacturers are included.
Levin, J., & Sherienberg, L (1987). Selections and use of simple technology in home. school. work. and community,
maws. Minneapolis: Ablenet.
Information on technologies to assist students with disabilities in learning and independence is presented along
with resource listings and case studies of special needs learners.
Melon, C., & Wood, S. (1988). Business and social etiquette with disabled people. Springfield, IL: Charles C.
Thomas.
Advice on business and social etiquette including issues such as architectural barriers, lending assistance, and
personal space are addressed.
Meyer, D., Vadasy, P., & Fewell, R. (1985). Liviagyith a brother or sister with special needs. Seattle: University of
Washington Press.
Feelings of family members concerning handicapped members, general information concerning causes and
characteristics of handicaps, and education and suppon services are discussed.
Cambridge, MA: ABT
handicapped
Mopsik, S., & Agard, J. (1980).
Books.
Information on resources, legislation, litigation, parent-school partnerships, evaluations, individualized
education programs, related services, review processes, and disputes is included.
7
Powell, T., & Ogle, P. (1985). licotheriedilgerl'asmielgedstenegli2aeLfamilks. Baltimore: Paul H.
Brookes.
The significance of nondisabled siblings In families where there Is a special needs child Is emphasized, and
strategies for parents and professionals to utilize in building positive sibling relationships are shared.
Routburg, M. (1986). On becoming a special parent: A mini-suppod group in a book Chicago: Parent/Professional
Publications.
Suggestions are given to parents with disabled children on topics including respite care, sibling relationships,
grandparents, medications, special education services, due process, and Individualized education programs.
.11:
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:ie.
,
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Russell, L. (1983). Ail:
Evanston, IL: First
itiL
-
.
Publications.
Legal and financial considerations for families with handicapped children, such as Issues of guardianship,
trusts, government benefits, taxes, insurance, and financial planning, are detailed.
Segal, M. (1988). klime..erit wAtiklye. New York: Newmaiket.
The views of a developmental psychologist who is also the parent of a handicapped child are given on Issues of
adjustment to the diagnosis of disability, playing and learning, decision making, toys and equipment, diagnostic
procedures, developmental assessments, and disability organizations.
:
:
Shore, K. (1986).
New York:
. I op.op
.
;.
i : :
:11
Teachers College Press.
Information is provided for parents and professionals Involved in special education regarding evaluation,
program implementation, and conflict resolution.
Simons, R. (1987). After the tears: Parents talk about raiging a child_with a disability. New York: Harcourt Brace
Jovanovich.
Issues of emotions, adjustment, marital stress, family needs, and working with school systems
are shared through the personal perspectives of parents of children with disabilities.
Taylor, S., & Biklen, D. (1980). Understanding the lair. Syracuse, NY: Human Policy Press.
Information on the legal system, researching the law, and building a legal case are presented for advocates
Interested In developmental disabilities issues.
Turnbull, A., & Turnbull, H. (1978).
ViEarentsigialLaufAts samiliesaherAideltibelakwayinkrz. Columbus:
Charles Merrill.
Frustrations expedenced by professionals who are parents of a handicapped child aro highlighted.
Wakefield, T. (1978). Some mothers I know: Uving with handlcaoped children. London: Routledge & Kagan Paul
Four stories about families with children who have disabilities are presented by a staff person at a day school for
students with adjustment problems.
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Weiner, F. (1986).
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10
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disabilitiakiliakjamilisa..antirjaligla. New York: St. Martin's Press.
Disabled people's views about their defeats, discouragements, and successes in a society that sometimes
devalues them are featured.
YOUNG ADULT
Allen, A. (1981). sports for the handicapped, New York: Walker & Gampany.
Autobiographical stories of how young people with a variety of Intellectual, orthopedic, and visual prr alert's have
adapted sports to their special needs are presented.
Berger, G. (1978). kelmingjlisabilities and handicao. New York: Franklin Watts.
An introduction to children with learning difficulties and individual chapters on mental retardation, learning
disabilities, speech and language problems, hearing losses, visual impairments, emotional problems, and
orthopedic impairments are Included.
Haskins, J. (1978). Who are the handicapped? Garden City, NY: Doubleday.
Symptoms and related problems of disabilities are presented In this resource book which includes photos of
famous persons with special needs.
Maloff, C., & Wood, S. (1988). Business and social etiquette with disabled oeoole. Springfield, IL: Charles C.
Thomas.
Advke on business and social etiquette Including issues such as architectural barriers, lending assistance, and
personal space are addressed.
8
Siegel, D. (1978). Winners. New York: Julian Messner.
Case studies of eight different young people who cope with limitations due to orthopedic, emotional, visual,
auditory, and other health impairments are presented.
White, P. (1988). Disabled people: Understandina social issues. New York: Gloucester Press.
The importance of viewing people with special needs as individuals with their own unique goals, ambitions,
needs, desires, and plans for living as part of the community is illustrated through text and photographs.
INTERMEDIATE
Adams, B. (1979). Like it is: Facts and feelings about handicaps from kids who know. New York: Walker &
Company.
Firsthand accounts of what it is like to have a handicapping conditions such as hearing and speech problems,
visual impairment, orthopedic impairment, mental retardation, learning disabilities, and behavior disorders are
discussed and augmented by photographs.
Borger, G. (1978). Lefuning.slisabillliaLiaaskso. New York: Fr&nklin Watts.
An introduction to children with learning difficulties ant.' individual chapters on mental retardation, learning
disabilities, speech and language problems, hearing bsses, visual impairments, *motional problems, and
orthopedic impairments are included.
Exley, H. (Ed.). (1984). What it's like to be me. (2nd ed.). New York: Friendship Press.
Artwork and writings of children and teens focusing on their personal experiences and adjustment to disabilities
are shared.
Harries, J. (1981). Thaviriumphed over their handicaps. New York: Franklin Watts.
Biographical sketches about six successful people who have handicaps, including Ray Charles, Kitty O'Nell,
and Ted Kennedy, Jr, are featured.
Kamien, J. (1979). Whal,g you cauldn't?kbock about special needs. New York: Scribner.
Information about a variety of disabilities is provided via a question format in which the readers are asked to
imagine they have a particular handicapping condition.
Meyer, D., Vadasy, P., & Fewell, R. (1985). Living with a brother or sister with special needs. Seattle; University of
Washington Press.
Feelings of fami6, members concerning handicapped members, general information about causes and
characteristics of handicaps, and education and support services are discussed.
eplignalbrogienuntalsters. New York: Lothrop, Lee &
Rosenberg, M. (1988).
IrEnifingimayj,k
Shepard Books.
Black-and-white photographs and text are used to describe three brother-sister relationships where one sibling
has special needs.
PRIMARY
Brown, T. (1984). figniftgatisardid,juslikam. New York: Holt, Rinehart & Winston.
Actual photographs of handicapped children in a variety of leisure activities are presented.
Rosenberg, M. (1988). Eingung.gminjuiri. New York: Lothrop, Lee &
Shepard Books.
Black-and-white photographs and text are used to describe three brother-sister relationships where one sibling
has special needs.
IA.ABINSUMEAIRMULTA_Firagel
ADULT
Flanigan, S. (1988). Allga. New York: St. Martin's Press.
Set in rural Georgia, the friendsh0 between Ellie and a deaf neighbor girl named Alice is featured.
YOUNG ADULT
Flanigan, S. (1988). Aka. New York: St. Martin's Press.
Set in rural Georgia, the friendship between Ellie and a deaf neighbor girl named Alice is featured.
Guccione, L. (1989). Tell me how the wind sounds. New York: Scholastic.
The relationsh0 between ,Imanda and Jake, who Ls deaf, is presented in a text which uses quotation =dm and
type fonts to differentiate conversations spoken in English, sign, or a combination of the two languages.
9
0