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End-of-Life Care and Addiction: A Family Systems Approach PDF

296 Pages·2009·1.47 MB·English
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End-of-Life Care and Addiction A Family Systems Approach Suzanne Young Bushfield, PhD, MSW, is a Licensed Clinical Social Worker who has worked with families for over 25 years in the fields of end-of-life care, healthcare,andmentalhealth.Sheisasocialworkeducatorandresearcher,and worksasanAccreditationSpecialistfortheCouncilonSocialWorkEducation. Suzanne has served on the faculties of the University of North Dakota, Lewis Clark State College in Idaho, Arizona State University, and New Mexico State University,andhasparticipatedintheCSWE–Gero-EdCenterinitiativesfunded by the John A. Hartford Foundation. Brad DeFord, PhD, M Div, writes about aging, addiction, spiritual development, andend-of-lifecare.Throughhisprivatepractice,Thresholds,heisacertified transitionsconsultantandlifecoach.HeisalsocertifiedasaLevelOneHospice Manager through The National Hospice and Palliative Care Organization (NHPCO). Brad has been a church pastor, a hospice chaplain, and the leader anddeveloperofabereavementprogram.For6yearsheservedastheLeaderof theSpiritualCaregiverSectionoftheNationalCouncilofHospiceandPalliative Professionals (NCHPP). Brad holds advanced degrees from Union Theological Seminary in New York and the Divinity School of the University of Chicago. End-of-Life Care and Addiction A Family Systems Approach SUZANNE YOUNG BUSHFIELD, PhD, MSW BRAD DeFORD, PhD, M Div New York Copyright2010SpringerPublishingCompany,LLC Allrightsreserved. Nopartofthispublicationmaybereproduced,storedinaretrievalsystem,ortransmit- tedinanyformorbyanymeans,electronic,mechanical,photocopying,recording,or otherwise, without the prior permission of Springer Publishing Company, LLC, or authorization through payment of the appropriate fees to the Copyright Clearance Center, Inc., 222 Rosewood Drive, Danvers, MA 01923, 978-750-8400, fax 978-646- 8600,[email protected]. ThroughoutthisvolumevariousexcerptsappearfromOpeningOurHearts,Transforming Our Losses, copyright 2007, by Al-Anon Family Group Headquarters, Inc. Reprinted bypermissionofAl-AnonFamilyGroupHeadquarters,Inc.Permissiontoreprintthese excerpts doesnot mean thatAl-Anon Family GroupHeadquarters, Inc.has reviewed orapprovedthecontentsofthispublication,orthatAl-AnonFamilyGroupHeadquar- ters,Inc.necessarilyagreeswiththeviewsexpressedherein.Al-Anonisaprogramof recovery for families and friends of alcoholics—use of these excerpts in any non Al- AnoncontextdoesnotimplyendorsementoraffiliationbyAl-Anon. SpringerPublishingCompany,LLC 11West42ndStreet NewYork,NY10036 www.springerpub.com AcquisitionsEditor:JenniferPerillo ProductionEditor:PamelaLankas Coverdesign:DavidLevy Composition:InternationalGraphicServices EbookISBN:978-0-8261-2142-4 09101112/54321 The author and the publisher of this Work have made every effort to use sources believedtobereliabletoprovideinformationthatisaccurateandcompatiblewiththe standardsgenerallyacceptedatthetimeofpublication.Theauthorandpublishershall notbeliableforanyspecial,consequential,orexemplarydamagesresulting,inwhole or in part, from the readers’ use of, or reliance on, the information contained in this book.ThepublisherhasnoresponsibilityforthepersistenceoraccuracyofURLsfor externalorthird-partyInternetWebsitesreferredtointhispublicationanddoesnot guaranteethatanycontentonsuchWebsitesis,orwillremain,accurateorappropriate. LibraryofCongressCataloging-in-PublicationData Bushfield,Suzanne. End-of-life care and addiction : a family systems approach / Suzanne Bushfield, BradDeFord. p.cm. Includesbibliographicalreferencesandindex. ISBN978-0-8261-2141-7(alk.paper) 1.Substanceabuse—Socialaspects.2.Addiction—Socialaspects.3.Terminalcare. 4.Families.I.DeFord,Brad.II.Title. HV4998.B872010 362.17’5—dc22 2009036398 PrintedintheUnitedStatesofAmericabyHamiltonPrinting I would like to dedicate this book to my own family, whose emotional process has made me who I am today. —B. D. Iwouldliketodedicatethisbooktomyhusband,Bob;andmyfamilywho havealwaysencouraged andsupportedme,andfromwhom Ifirstlearned what it means to be part of a family system. —S. Y. B. We also dedicate this book to those who work with families facing end- of-life and addiction. —B. D. & S. Y. B. This page intentionally left blank Contents Preface ix Acknowledgments xiii 1 Death and Addiction: A Family Affair 1 2 Addiction Treatment: What Every End-of-Life 19 Care Professional Should Know 3 The Physiological, Psychological, and Spiritual Effects 39 of Addiction 4 A Systems Approach to Dying: What Every Hospice Team 65 Needs to Know About Family Systems Theory 5 Applying Family Systems to the End-of-Life Care of Addicts 93 and Their Families 6 The Challenges of Caring for the Dying: The Teamwork of 119 Families and Hospice 7 ApplyingFamilySystemstotheBereavementCareofFamilies 147 With Addiction Emotional Process 8 The Hospice Team as a Family System: Systems Aspects to 173 End-of-Life Care 9 Hospice Teams and Addiction Emotional Process 197 10 The Spiritual Care of Addiction and Dying 223 Afterword: When the Hospice Journey Meets the Road to Recovery: Taking 12 Steps Toward the End of Life 251 Index 267 vii This page intentionally left blank Preface This book began with a simple observation we repeatedly encountered in our work with hospice teams: Providing care to patients and their families was different somehow when those patients and/or families hadhistoriesofaddiction.Wenoticedthatcertaindiscernablepatterns were repeated, to the extent that when a family entered hospice care, someone on the team thought the new family was similar to another family we had served not long before. “This Jones family? They are an awfullotliketheSmiths,”wouldcharacterizethetypicalcasepresenta- tion. And we would worry that we were not treating each family as its own discrete entity—but sure enough, soon the Joneses would indeed begin looking to us very much like the Smiths. In our effort to understand what we were experiencing, certain discoveries emerged. For one thing, the medical model, common in hospice care, did not help us discover the uniqueness of each family. In part this is because the medical model is reductive: It only told us who the patient was according to the conclusions of his or her disease process. The medical model led us to have certain expectations of the persons who came onto our hospice services—mostly that they would die in a way appropriate to the course of the disease taking their life. There was, we supposed, a comfort in this—not for the person or the family, but for us, the members of the hospice team. Somehow being among so much death and dying was made more comfortable if, in some way, the processes we witnessed were predictable. Unfortunately,thatpredictabilityledtodisinterest.Theendofsome people’slivesbecame“hohum”forusbecauseoftheroutine.However, whenadiseasetookanunexpectedturn,suddenlythereweremoments of interest again. We were interested because the way that particular person was dying was “different,” and that difference caught our attention. ix

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"Bushfield and DeFord offer us an excellent, informed and sensitive work that speaks both of the erosion of family systems due to addiction and the complications that arise when these victimized families face end-of-life care." --Illness, Crisis and Loss With a growing elderly population comes an in
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