Dying, Bereavement and the Healing Arts bythesameauthor WritingWorks AResourceHandbookforTherapeuticWritingWorkshopsandActivities EditedbyGillieBolton,VictoriaFieldandKateThompson ForewordbyBlakeMorrison ISBN9781843104681 TheTherapeuticPotentialofCreativeWriting WritingMyself GillieBolton ForewordbySirKennethCalman ISBN9781853025990 ofrelatedinterest TheExpressiveArtsActivityBook AResourceforProfessionals SuzanneDarleyandWendeHeath PhotographybyMarkDarley ForewordbyGeneD.CohenMDPhD ISBN9781843108610 MusicTherapyinPalliativeCare NewVoices EditedbyDavidAldridge ISBN9781853027390 MusicTherapyinChildren’sHospices Jessie’sFundinAction EditedbyMercédèsPavlicevic ForewordbyVictoriaWood ISBN9781843102540 AttendingtotheFact–StayingwithDying HilaryElfickandDavidHead EditedbyCynthiaFuller ForewordbyAndrewHoy ISBN9781843102472 PalliativeCare,SocialWorkandServiceUsers MakingLifePossible PeterBeresford,LesleyAdsheadandSuzyCroft ForewordbyDorothyRowe ISBN9781843104650 CreativeWritinginHealthandSocialCare EditedbyFionaSampson ForewordbyChristinaPatterson ISBN9781843101369 WritingMyWayThroughCancer MyraSchneider ISBN9781843101130 Dying, Bereavement and the Healing Arts Edited by Gillie Bolton Foreword by Baroness Professor Ilora Finlay of Llandaff Jessica Kingsley Publishers London and Philadelphia ‘Kindersterben’byKatheKollwitz(p.52),copyright©2006ArtistsRightsSociety(ARS),New York/VGBild-Kunst,Bonn.Reproducedwithpermission. Excerpt(p.150) from‘AnotherReasonIDon’tKeepAGunintheHouse’fromTheApplethat AstonishedParisbyBillyCollins,copyright©BillyCollins.Reprintedwiththepermissionofthe UniversityofArkansasPress,www.uapress.com. Excerpt(p.150)from‘Parkinson’sDisease’fromImperfectThirstbyGalwayKinnell,copyright© 1994GalwayKinnell,reprintedbypermissionofHoughtonMifflinCompany.Allrights reserved. ‘Deathrow?’,‘Charnelhouse?’and‘Preconceptions,misconceptions’(pp.159–60)byMitzi Blennerhassett,reproducedwithpermissionofRadcliffePress. Firstpublishedin2008 byJessicaKingsleyPublishers 116PentonvilleRoad LondonN19JB,UK and 400MarketStreet,Suite400 Philadelphia,PA19106,USA www.jkp.com Copyright©JessicaKingsleyPublishers2008 Forewordcopyright©BaronessProfessorIloraFinlayofLlandaff2008 TherightofMarkCobbtobeidentifiedasauthorofChapter18hasbeenassertedbyhimin accordancewiththeCopyright,DesignsandPatentsAct1988. Allrightsreserved.Nopartofthispublicationmaybereproducedinanymaterialform (includingphotocopyingorstoringitinanymediumbyelectronicmeansandwhetherornot transientlyorincidentallytosomeotheruseofthispublication)withoutthewrittenpermission ofthecopyrightownerexceptinaccordancewiththeprovisionsoftheCopyright,Designsand PatentsAct1988orunderthetermsofalicenceissuedbytheCopyrightLicensingAgency Ltd,SaffronHouse,6-10KirbyStreet,LondonEC1N8TS.Applicationsforthecopyright owner’swrittenpermissiontoreproduceanypartofthispublicationshouldbeaddressedtothe publisher. Warning:Thedoingofanunauthorisedactinrelationtoacopyrightworkmayresultinbotha civilclaimfordamagesandcriminalprosecution. LibraryofCongressCataloginginPublicationData ACIPcatalogrecordforthisbookisavailablefromtheLibraryofCongress BritishLibraryCataloguinginPublicationData ACIPcataloguerecordforthisbookisavailablefromtheBritishLibrary ISBN9781843105169 ISBNpdfeBook9781846426803 PrintedandboundinGreatBritainby AthenaeumPress,Gateshead,TyneandWear Dying, Bereavement and the Healing ArtsisdedicatedtoJuliaDarling, MicheleAngeloPetroneandJessicaGeorge,whobroughtthehealingof art toothers Acknowledgements Dying, Bereavement and the Healing Arts is a picture embroidered by many hands overalongtime.Istartedresearchingthevitalroleoftherapeuticwritingandthe arts in palliative care 20 years ago. Many, many people generously contributed jewel-coloured silk to the needlepoint of understandings which underpin this book.Ithankallthosepatients,medicalandhealthcareprofessionals,andspiri- tual leaders. I am very grateful to the book’s contributors, patients, survivors, artistsandprofessionals:theyhavegiventhelightandlifeoftheirexperienceand expertise.SomeofthepiecesrewrittenforDying,BereavementandtheHealingArts were first published in TheHealer’sArt section of the international medical and healthcarejournalProgressinPalliativeCare,whichIeditedformanyyears.Weare gratefultoCaitlinMeadows,managingeditorofthejournal,forhersupportof thesectionandpermissiontopublishtheamendedpieces.Inadditionmygrateful thanksgotoSamAhmedzaiwhohelpedstartmeonthisparticularembroidery, Bill Noble, Kate Billingham, Rosie Field, Ilora Finlay, Deborah Padfield. The workwould notexisthoweverwithoutcanvas,needles,embroideryframe,and the love and inspiration needed for artistic endeavour: I thank Dan Rowland, AliceRowlandandStephenRowland. Contents FOREWORD 9 BaronessProfessorIloraFinlayofLlandaff PREFACEPOEM:NEST 11 PenelopeShuttle 1. Introduction:Dying,BereavementandtheHealingArts 13 GillieBolton 2. ADeathPhotographed:MichaelWillson’sStory 22 PaulSchatzbergerandGillieBolton 3. Arts,ElectronicMedia,Movement:RosettaLife 28 FilipaPereira-StubbsandChrisRawlence 4. TheatreforProfessionalDevelopment 39 AshleyBarnes 5. VisualArtforProfessionalDevelopment 51 SandraBertman 6. HealingArtsinPalliativeCare 57 ChristinaMasonwiththeassistanceofChrisDavis,GinaLangley,BridgetLeeandCinzia Verduci 7. ImaginationandHealthinCancerCareandPalliativeCare 67 JohnGraham-Pole 8. VisualArtinCancerCareandPalliativeCare 72 AnnaLidzey,MicheleAngeloPetrone,JulieSandersandGillieBolton 9. MakingMusicinChildren’sHospices 88 LesleySchatzberger 10. HealingWritinginPalliativeCare 98 SheelaghGallagher,KateD’Lima,KaichiroTamba,HilaryElfick,withDavidHeadand GillieBolton 11. CreatingTheTuesdayGroup:APalliativeCarePlay 113 BobbieFarsidesandSueEckstein 12. ThePowerofMusic 120 DianaGreenman,FransMeulenbergandMikeWhite 13. WritingthroughBereavement 126 RiverWolton,HaifaAlSanousi,AmyKuebelbeck,JudyClintonandRobertHamberger 14. ALegacyofUnderstanding 139 MonicaSuswin 15. ReadingtoHelpPractitionersandPatients 148 TedBowmanandRoganWolf 16. Artists:Survivors 156 TimJeeves,MitziBlennerhassetandMicheleAngeloPetrone 17. Professionals:Artists 164 SteveSeagull,TimMetcalf,OliverSamuel,KieranWalshandChristopherJohns 18. SpiritualandArtisticCare:MemorialServices 176 MarkCobbandGilesLegood 19. TheArtof Care 186 YvonneYi-WoodMak,AnnWilliams,CorineKoppenolandSineadDonnelly 20. ReflectionsTowardstheFuture 200 NigelHartley LISTOFCONTRIBUTORS 204 REFERENCES 207 SUBJECTINDEX 212 AUTHORINDEX 215