Disability/Postmodernity: Embodying Disability Theory PDF
Preview Disability/Postmodernity: Embodying Disability Theory
Embodying disability theory edited by Vlairian Corker and Tom Shakespeare A continuum Continuum The Tower Building 11 York Road London SE1 7NX First published 2002 370 Lexington Avenue New York NY 10017-6503 © Mairian Corker, Tom Shakespeare and the contributors 2002 All rights reserved. No part of this publication may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopying, recording or any information storage or retrieval system, without permission in writing from the publishers. British Library Cataloguing-in-Publication Data A catalogue record for this book is available from the British Library. ISBN 0-8264-5056-3 (hardback) 0-8264-5055-5 (paperback) Library of Congress Cataloging-in-Publication Data Disability/postmodernity : embodying disability theory / edited by Mairian Corker and Tom Shakespeare, p. cm. Includes bibliographical references and index. ISBN 0-8264-5056-3 (hbk) — ISBN 0-8264-5055-5 (pbk.) 1. Sociology of disability. 2. Disability studies. 3. Postmodernism. I. Corker, Mairian. II. Shakespeare, Tom. HV1568.2.D59 2001 305.9'0816—dc21 2001042270 Typeset by RefineCatch Limited, Bungay, Suffolk Printed and bound in Great Britain by The Cromwell Press, Trowbridge, Wiltshire Contents Contributors -— Foreword by Iris Marion Young 1 Mapping the Terrain Mairian Corker and Tom Shakespeare 2 A Journey around the Social Model Carol Thomas and Mairian Corker 3 On the Subject of Impairment Shelley I remain 4 A Postmodern Disorder: Moral Encounters with Molecular Models of Disability Jackie Leach Scully -5 Bodies Together: Touch, Ethics and Disability Janet Price and Margrit Shildrick 6 The Body as Embodiment: An Investigation of the Body by Merleau-Ponty Mi ho Iwakuma 7 Disability in the Indian Context: Post-colonial Perspectives Anita Ghai £ Cultural Maps: Which Way to Disability? Tanya Titchkosky 9 Defusing the Adverse Context of Disability and Desirability a Practice of the Self for Men with Cerebral Palsy Russell P Shuttleworth 0 Changing the Subject: Postmodernity and People with ‘Learning Difficulties’ Dan Goodley and Mark Rapley 1 Madness, Distress and Postmodernity: Putting the Record Straight Anne Wilson and Peter Beresford vi • CONTENTS 12 Countering Stereotypes of Disability: Disabled Children and Resistance 159 John Davis and Nick Watson 13 Estranged-Familiarity 175 Rod Michalko 14 Image Politics without the Real: Simulacra, Dandyism and Disability Fashion 184 Petra Kuppers 15 De-gene-erates, Replicants and Other Aliens: (Re)defining Disability in Futuristic Film 198 Johnson Cheu 16 Naming and Narrating Disability in Japan 213 James Valentine 17 The Crooked Timber of Humanity: Disability, Ideology and the Aesthetic 228 Anita Silvers Index 24S Contributors *eter Beresford is a psychiatric system survivor. He works with the Open •ervices Project and is Professor of Social Policy at Brunei University. ohnson Cheu is a doctoral candidate in English at the Ohio State Uni- ersity, where he is working on his dissertation, ‘Disabling Cure in Aventieth-century America: Disability, Identity, Literature and Culture’, on he cultural and rhetorical constructions of cure in twentieth-century Ameri- an literature and culture. His poetry has appeared in publications such as >taring Back: The Disability Experience from the Inside Out and The Ragged zdge. Aairian Corker currently holds Senior Research Fellowships at Kings College London, and the University of Central Lancashire. Her work lies at he intersection of deaf studies, disability studies and discourse studies. She is uthor of many publications, including Counselling — The Deaf Challenge 1994), Deaf Transitions (1996) (both Jessica Kingsley), Deaf and Disabled} or deafness Disabled? (Open University Press, 1998) and the forthcoming disabling Language: Analyzing Disability as Social Practice (Routledge), and o-editor, with Sally French, of Disability Discourse (Open University Press, 999). She is an executive editor of the journal Disability and Society. ohn Davis is a Research Fellow in the Research Unit in Health and behavioural Change, University of Edinburgh. An anthropologist, he has ecently engaged in ethnographic fieldwork on two ESRC-funded projects: rhe Socio-Economic and Cultural Context of Children's Lifestyles and the Pro duction of Health Variations and Lives of Disabled Children. He is the author f a number of publications on disability and childhood, including journal rticles in Disability and Society, Children and Society and the International ournal of Children’s Rights. viii • CONTRIBUTORS Anita Ghai teaches in the Department of Psychology, Jesus and Mary College, University of Delhi, India. Disability issues are central to her work as an academic and activist. She is co-author, with Anima Sen, of The Men tally Handicapped: Prediction of the Work Performance (Phoenix Publishers, New Delhi, 1996), in addition to several book chapters and articles relating to disability. She is an overseas editor for the journals Disability and Society and Disabilityy Culture and Education. Dan Goodley is a Lecturer in the Centre for Disability Studies at the University of Leeds. His research and teaching focus upon the self-advocacy of people with the label of‘learning difficulties’, and their contribution to the politics of disability and the development of a social theory of disability and impairment. Recent publications include Self-advocacy in the Lives of People with Learning Difficulties: The Politics of Resilience (Open University Press, 2000) and Arts against Disablement: The Performing Arts of People with Learning Difficulties (with Michele Moore, BILD publications, 2001). Petra Kuppers is Assistant Professor (Humanities) at Bryant College, Rhode Island, USA. She has edited Performances of Disability (Harwood Academic Press, 2001), and has published widely on representation, the body and contemporary arts. She is a practising community artist, and teaches cultural theory at the Open University. Miho Iwakuma is a doctoral candidate at the University of Oklahoma. Originally from Japan, her dissertation is about Japanese people with disabilities. Her research focuses in particular on cross-cultural understand ings of disability and communication and she has published a number of articles in both English and Japanese, which include chapters in forthcoming books Disability and the Life Course (Cambridge University Press) and Intercultural Views of People with Disabilities in Africa and Asia (Lawrence Erlbaum). Rod Michalko is Associate Professor of Sociology at St Francis Xavier University in Nova Scotia, Canada. He is author of The Mystery of the Eye and the Shadow of Blindness (University of Toronto Press, 1998) and The Two in One: Walking with Smokie, Walking with Blindness (Temple University Press, 1999). His third book, Useless Difference: Disability and the Dilemma of Suffering, will soon be published. Janet Price is an Honorary Fellow at the Liverpool School of Tropical Medi cine. She has written individually, and with Margrit Shildrick, on feminist theory and the body, postmodernism and disability, biomedicine and bio ethics, most recently co-editing the collections Vital Signs (Edinburgh, 1998) and Feminist Theory and the Body (Edinburgh, 1999). CONTRIBUTORS • ix dark Rapley is a Senior Lecturer in Psychology at Murdoch University in ’erth, Western Australia. His research interests are in ethnomethodology, nalysis and discursive psychology. Much of his work has focused on the nteractions of psychologists and people described as ‘intellectually disabled’, iis most recent book (with Alec McHoul), How to Analyse Talk in nstitutional Settings: A Casebook of Methods, will be published by Continuum n 2001, and he is currently working on The Social Construction of Intellectual disability (Cambridge University Press). ackie Leach Scully studied biochemistry at Oxford and completed her ^lD in molecular biology at Cambridge. After research fellowships in the ields of mammary cancer and later in neurodegeneration, she studied thics and theology and went on to research public attitudes towards ethical ssues in genetic manipulation. She is a Research Associate at the Institute or the History and Ethics of Medicine at Basel University, where her urrent research interests focus on how socially marginalized groups, uch as disabled people, construct ethically contentious issues in the new ;enetics. Tom Shakespeare is currently Research Development Officer at the Policy, Lthics and Life Sciences Research Institute, University of Newcastle. An ctive member of the UK disability movement, he has written and broadcast widely on disability issues. His books include The Sexual Politics of Disability Cassell, 1996), co-authored with Kath Gillespie-Sells and Dominic Davis, nd Help (Venture Press, 2000), and he edited The Disability Reader: Social Science Perspectives (Cassell, 1998). yfargrit Shildrick is SURI Research Fellow at Staffordshire University. She is he author of Leaky Bodies and Boundaries (Routledge, 1997) and co-editor vith Janet Price of Vital Signs (Edinburgh, 1998) and Feminist Theory and he Body (Edinburgh, 1999). She works and publishes extensively on the >ody, including issues of disability, and has just finished a new book called Vulnerability and Monstrous Embodiment (Sage, 2001). lussell R Shuttleworth has worked as a personal assistant for disabled men ince 1984. He is an ardent supporter of the Disability Rights Movement, ie holds a BA and MA in anthropology from California State University, lacramento, an MSW from San Francisco State University and a PhD in nedical anthropology from the joint programme at the University of "alifornia, San Francisco and Berkeley. His dissertation research dealt with he search for sexual intimacy for men with cerebral palsy. x • CONTRIBUTORS Anita Silvers is Professor of Philosophy at San Francisco State University. She has published seven books - most recently, Disability, Difference, Dis crimination: Perspectives on Justice in Bioethics and Public Policy (Rowman & Littlefield, 1998) and Americans with Disabilities: Exploring Implications of the Law for Individuals and Institutions (Routledge, 2000) — and more than a hundred book chapters and journal articles on topics in ethics and bioethics, aesthetics, social philosophy, philosophy of law, feminist philosophy, dis ability studies, education and public policy. In 1978, she was named the California Distinguished Humanist by the California Council for the Humanities, and in 1989 she received the California Faculty Association’s Equal Rights Award for her work in increasing opportunities in higher education for people with disabilities. Carol Thomas is a Senior Lecturer in the Department of Applied Social Science at Lancaster University. Her publications in disability studies include Female Forms: Experiencing and Understanding Disability (Open University Press, 1999). She has a particular research interest in the experiences of disabled women, but also researches in the fields of cancer studies and health inequalities. Tanya Titchkosky is Assistant Professor of Sociology at St Francis Xavier University, Nova Scotia, Canada. She is author of numerous articles, includ ing ‘Disability studies: the old and the new’ (Canadian Journal of Sociology, 25(2): 197-224) and ‘Disability - a rose by any other name? People-first language in Canadian society’ (Canadian Review of Sociology and Anthropology, in press). Tanya is currently revising for publication her manuscript Disability Stays: An Introduction to the Social Construction of Disability. Shelley Tremain received a PhD in Philosophy from York University (Toronto, Canada) and was the 1997-98 Ed Roberts Postdoctoral Fellow at the World Institute on Disability and the University of California at Berkeley. Tremain publishes widely on disability, sexuality, gender, feminism and cul tural politics, is the editor of a collection of essays entitled Foucault and the Government of Disability (University of Michigan Press, forthcoming) and is writing a book on Foucault, disability, gender and governmentality. James Valentine is Senior Lecturer in Sociology at the University of Stirling, and has been carrying out research on marginality in Japanese society since 1986. Through the 1990s his research increasingly focused on representa tions of people conceived as marginal through disability, ethnicity, gender and sexuality. CONTRIBUTORS • xi ick Watson is a Lecturer in the Department of Nursing Studies at the niversity of Edinburgh. He has researched and published widely in the :alth and disability field, and his current research interests include a project the social history of the wheelchair. A member of the UK disability ovement, he was, until recently, Convenor of Accessibility Lothian, a iding Scottish organization of disabled people. tine Wilson (a pseudonym) is a psychiatric system survivor and college cturer. is Marion Young is Professor of Political Science at the University of hicago. She is author of Inclusion and Democracy; Justice and the Politics cDifference (Princeton University Press, 1990), Intersecting Voices: Dilemmas cGender, Political Philosophy and Policy and Throwing Like a Girl and Other ssays in Feminist Philosophy and Social Theory (Indiana University Press, 590), and recently co-edited (with Alison Jaggar) Blackwell's Companion to eminist Philosophy.
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