Disability Studies in India: Global Discourses, Local Realities

462 Pages·2013·5.878 MB·English

by  Renu Addlakha

Disability Studies in India

Disability Studies in India
Global Discourses, Local Realities
Editor
Renu Addlakha
LONDON NEW YORK NEW DELHI
First published 2013 in India
by Routledge
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Simultaneously published in the UK
by Routledge
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First issued in paperback 2015
Routledge is an imprint of the Taylor & Francis Group, an informa business
© 2013 Centre for Women’s Development Studies (CWDS), New Delhi
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British Library Cataloguing-in-Publication Data
A catalogue record of this book is available from the British Library
ISBN 13: 978-1-138-66029-8 (pbk)
ISBN 13: 978-0-415-81212-2 (hbk)
CONTENTS
ª
List of Tables viii
List of Figures ix
List of Plates x
List of Abbreviations xiii
Glossary xvi
Acknowledgements xix
Introduction 1
RENU ADDLAKHA
PART I: Disability Movement, Disability Rights and
Disability Studies
1. Historicising Disability in India: Questions of
Subject and Method 35
SHILPAA ANAND
2. Disability Rights and the Emergence of Disability Studies 61
JAGDISH CHANDER
3. Tracking Disability through the United Nations 78
N. SUNDARESAN
PART II: Family, Care and Work
4. Prenatal Diagnosis: Where do We Draw the Line? 97
ANITA GHAI AND RACHANA JOHRI
5. Burden of Caring: Families of the Disabled in
Urban India 122
UPALI CHAKRAVARTI
6. Exploring Constructs of Intellectual Disability and
Personhood in Haryana and Delhi 145
NILIKA MEHROTRA AND SHUBHANGI VAIDYA
vi ö Disability Studies in India
7. Corporeality, Mobility and Class: An Ethnography of
Work-related Experiences in Urban India 169
AMIT UPADHYAY
PART III: Gender and Disability
8. Bhalo Meye: Cultural Construction of Gender and
Disability in Bengal 201
NANDINI GHOSH
9. Body Politics and Disabled Femininity: Perspectives of
Adolescent Girls from Delhi 220
RENU ADDLAKHA
10. Identity Formation and Transnational Discourses:
Thinking beyond Identity Politics 241
MICHELE FRIEDNER
11. The Inner World of Adolescent Girls with Hearing
Impairment: Two Case Studies 263
SANDHYA LIMAYE
PART IV: Assertion of Difference through Art and
Communication
12. Body/Text: Art Project on Deafness and Communication 285
JOSÉ ABAD LORENTE
13. Blind With Camera: Photographs by the Visually Impaired 303
PARTHO BHOWMICK
PART V: Contesting Marginality at Micro- and Macro-
levels
14. From Mental Illness to Disability: Choices for Women Users/
Survivors of Psychiatry in Self and Identity Constructions 333
BHARGAVI V. DAVAR
15. Need for a Framework for Combined Disability and
Gender Budgeting 363
ASHA HANS, AMRITA PATEL AND S. B. AGNIHOTRI
16. Sameness and Difference: Twin Track Empowerment
for Women with Disabilities 390
AMITA DHANDA
Contents ö vii
17. Participation, Inclusion and the Law: Moving beyond
Rhetoric 414
JEEJA GHOSH
About the Editor 423
Notes on Contributors 424
Index 429
LIST OF TABLES
ª
1.1 Disability Historiography 37
1.2 Sample Survey of Histories of Disablement in India 45
2.1 Disability Models 69
15.1 Allocation Ratio per Person with Disability in Andhra
Pradesh, West Bengal, Orissa and Chhattisgarh 375
15.2 Disability Allocation as a Percentage of State
Expenditure 375
15.3 Benefciaries of the NHFDC 381
LIST OF FIGURES
ª
15.1 Total Central Budget Estimate and Expenditure for
Welfare of PWDs (in millions) 371
15.2 Central Plan and Non-Plan Budget Estimate for the
Welfare of PWDs (in millions) 372
15.3 Central Plan and Non-Plan Expenditure for
Welfare of PWDs (in millions) 372
15.4 Disability Budget Analysis of Orissa: Total BE
(in millions) 373
15.5 Disability Budget Analysis of West Bengal:
Total BE (in millions) 373
15.6 Disability Budget Analysis of Andhra Pradesh:
Total BE (in millions) 374
15.7 Disability Budget Analysis of States: Total BE
(in millions) 374
15.8 Disability Budget Analysis of Orissa: Non-Plan BE
(in millions) 376
15.9 Disability Budget Analysis of Andhra Pradesh:
Non-Plan BE (in millions) 376
15.10 Disability Budget Analysis of West Bengal for
2004–5: BE Components (in millions) 377
15.11 Disability Budget Analysis of Chhattisgarh
(Non-Plan and Plan) for 2005–6 377
15.12 Disability Budget Analysis of West Bengal: Components 378
15.13 Disability Budget Analysis: Central Plan Allocation
(in millions) 378
15.14 Disability Budget Analysis of Orissa: Total AE
(in millions) 379
15.15 Disability Pension in States (in millions) 381