‘Disability concerns us all – and this nuanced, rigorous, timely account chartsforthefirsttimethepoliticsofdisabilityadvocacyandnewmedia. Essentialreading.’ GerardGoggin,UniversityofSydney,Australia ‘Trevisanhasproducedapersuasive,empirically-richstudythatmakesan importantcontributiontohowweunderstandthecontemporarydisability rights movement, not just in the UK, but around the world. This study illuminatestheroleofsocialmediainformulatingandadvancingarights- basedpolicyagenda,andhowtheInternetcanbeusedtocombatthestigma sometimes still surrounding persons with disabilities. The result is a fas- cinatingreadfordisabilityexperts,butalsomorebroadlyforscholarsof progressivepoliticalmovements.’ DerrickL.Cogburn,SchoolofInternationalService, AmericanUniversity,USA This page intentionally left blank Disability Rights Advocacy Online Disability rights advocates in the United Kingdom and the United States recentlyembracednewmediatechnologiesinunexpectedandinnovative ways. Thisbook shedslightonthisprocessofrenewalandaskswhether the digitalisation of disability rights advocacy can help re-configure political participation into a more inclusive experience for disabled Internetusers,enhancingtheirstakesindemocraticcitizenship.Through the examination of social media content, Web link analysis, and inter- views with leading figures in grassroots groups on both sides of the Atlantic, Filippo Trevisan reveals the profound impact that the Internet has had on disability advocacy in the wake of the austerity agenda that followed the 2008 global financial crisis. In Britain, a new, tech-savvy generation of young disabled self-advocates has emerged from this process. The role of social media platforms such as Facebook in helping politically inexperienced users make sense of complex policy changes through the use of personal stories is discussed also. In addition, this book explains why British disability advocates adopted more innovative and participatory strategies compared to their American counterparts whenfacedwithsimilarpolicycrises.Thisbookreviewstheimplications of this unexpected digital transformation for the structure of the dis- ability rights movement, its leadership, and the opportunity for disabled citizenstoparticipatefullyindemocraticpoliticsvis-a`-vispersistingWeb accessandaccessibilitybarriers.Anoriginalperspectiveontherelationship betweendisabilityandtheInternet,andanindispensablereadforscholars wishing to contextualize and enrich their knowledge on digital disability rights campaigns in the broader ecology of policy-making. FilippoTrevisanisAssistantProfessorintheSchoolofCommunicationat American University in Washington, DC, where he is also Deputy Director of the Institute on Disability and Public Policy. His research interests include new media technologies, political participation, grass- roots advocacy, disability and inequality. Routledge Studies in Global Information, Politics and Society Edited by Kenneth Rogerson, Duke University and Laura Roselle, Elon University International communication encompasses everything from one-to-one cross-culturalinteractionstotheglobalreachofabroadrangeofinforma- tionandcommunicationstechnologiesandprocesses.RoutledgeStudiesin Global Information, Politics and Society celebrates – and embraces – this depth and breadth. To completely understand communication, it must be studiedinconcertwithmanyfactors,since,mostoften,itisthefoundational principleonwhichothersubjectsrest.Thisseriesprovidesapublishingspace for scholarship in the expansive, yet intersecting, categories of communi- cationandinformationprocessesandotherdisciplines. The Power of Information Networks New Directions for Agenda Setting Edited by Lei Guo and Maxwell McCombs Television News and Human Rights in the US & UK The Violations Will Not Be Televised Shawna M. Brandle Beyond the Internet Unplugging the Protest Movement Wave Edited by Rita Figueiras and Paula do Espı´rito Santo Twitter and Elections Around the World Campaigning in 140 Characters or Less Edited by Richard Davis, Christina Holtz-Bacha, and Marion Just Political Communication in Real Time Theoretical and Applied Research Approaches Edited by Dan Schill, Rita Kirk, and Amy Jasperson Disability Rights Advocacy Online Voice, Empowerment and Global Connectivity Filippo Trevisan Disability Rights Advocacy Online Voice, Empowerment and Global Connectivity Filippo Trevisan Firstpublished2017 byRoutledge 711ThirdAvenue,NewYork,NY10017 andbyRoutledge 2ParkSquare,MiltonPark,Abingdon,Oxon,OX144RN RoutledgeisanimprintoftheTaylor&FrancisGroup,aninforma business ©2017Taylor&Francis TherightofFilippoTrevisantobeidentifiedasauthorofthiswork hasbeenassertedbyhiminaccordancewithsections77and78of theCopyright,DesignsandPatentsAct1988. Allrightsreserved.Nopartofthisbookmaybereprintedor reproducedorutilisedinanyformorbyanyelectronic, mechanical,orothermeans,nowknownorhereafterinvented, includingphotocopyingandrecording,orinanyinformation storageorretrievalsystem,withoutpermissioninwritingfromthe publishers. Trademarknotice:Productorcorporatenamesmaybetrademarks orregisteredtrademarks,andareusedonlyforidentificationand explanationwithoutintenttoinfringe. LibraryofCongressCataloginginPublicationData Names:Trevisan,Filippo,author. Title:Disabilityrightsadvocacyonline:voice,empowermentand globalconnectivity/FilippoTrevisan. Description:NewYork,NY:Routledge,2017.|Series:Routledge studiesinglobalinformation,politicsandsociety;13|Includes bibliographicalreferencesandindex. Identifiers:LCCN2016018726|ISBN9781138847828(hbk)| ISBN9781315726489(ebk) Subjects:LCSH:Peoplewithdisabilities–Civilrights–GreatBritain.| Peoplewithdisabilities–Civilrights–UnitedStates.|Social advocacy–GreatBritain.|Socialadvocacy–UnitedStates.|Internet andactivism–GreatBritain.|Internetandactivism–UnitedStates. Classification:LCCHV1559.G6T742017|DDC323.3–dc23 LCrecordavailableathttps://lccn.loc.gov/2016018726 ISBN:978-1-138-84782-8(hbk) ISBN:978-1-315-72648-9(ebk) TypesetinSabon bySunriseSettingLtd.,Brixham,UK For my parents, Anna and Milvio This page intentionally left blank Contents List of Figures x List of Tables xi Series Editor’s Foreword xiii Acknowledgements xiv List of Abbreviations xvi Introduction 1 1 Disabled People, Citizenship and New Media 9 2 Online Mobilisation in Times of Crisis 48 3 Keep Calm and Tweet On: British Disability Advocacy Goes Digital 81 4 Policy Issues and Storytelling on Facebook 119 5 Communication Flows, Leadership and The Emergence of ‘Peer-Mediated’ Citizenship 150 6 One Size Fits All? British Innovators and American ‘Conservatives’ 180 7 New Directions in Disability Rights Advocacy 218 Appendix A: Semi-Structured Interview Guide 236 Appendix B: Online Media Inventory Matrix 238 Appendix C: Facebook Content Coding Frame 240 Index 244
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