Disability on equal terms PDF
Preview Disability on equal terms
French-3638-Prelims.qxd 12/20/2007 7:40 PM Page i Disability on Equal Terms French-3638-Prelims.qxd 12/20/2007 7:40 PM Page ii French-3638-Prelims.qxd 12/20/2007 7:40 PM Page iii Disability on Equal Terms Edited by John Swain and Sally French French-3638-Prelims.qxd 12/20/2007 7:40 PM Page iv Editorial Arrangement © John Swain and Sally French,2008 Chapter 2 © Tom Shakespeare,2008 Chapter 13 © Anna-Stina,2008 Chapter 3 © Margaret Taylor,2008 Chapter 14 © Carole Pound,2008 Chapter 4 © Colin Goble,2008 Chapter 15 © Rae Spain,2008 Chapter 5 © Martina Higgins,2008 Chapter 16 © Maureen Gillman,2008 Chapter 7 © Alan Sutherland,2008 Chapter 17 © Clare Evans,2008 Chapter 8 © Toby Brandon and Alice Elliot,2008 Chapter 9 © Karen Beeton,2008 Chapter 12 © Elaine Ballantyne and Andrew Muir,2008 First published 2008 Apart from any fair dealing for the purposes of research or private study,or criticism or review,as permitted under the Copyright,Designs and Patents Act,1988,this publication may be reproduced,stored or transmitted in any form,or by any means, only with the prior permission in writing of the publishers,or in the case of reprographic reproduction,in accordance with the terms of licences issued by the Copyright Licensing Agency.Enquiries concerning reproduction outside those terms should be sent to the publishers. SAGE Publications Ltd 1 Oliver’s Yard 55 City Road London EC1Y 1SP SAGE Publications Inc. 2455 Teller Road Thousand Oaks,California 91320 SAGE Publications India Pvt Ltd B 1/I 1 Mohan Cooperative Industrial Area Mathura Road New Delhi 110 044 SAGE Publications Asia-Pacific Pte Ltd 33 Pekin Street #02-01 Far East Square Singapore 048763 Library of Congress Control Number:2007931606 British Library Cataloguing in Publication data A catalogue record for this book is available from the British Library ISBN 978-1-4129-1987-6 ISBN 978-1-4129-1988-3 (pbk) Typeset by C&M Digitals Pvt Ltd,Chennai,India Printed in Great Britain by The Cromwell Press Ltd,Trowbridge,Wiltshire Printed on paper from sustainable resources French-3638-Prelims.qxd 12/20/2007 7:40 PM Page v Contents Acknowledgements for Disability on Equal Terms vii Introduction 1 Section I The Tragedy View of Impairment and Disability 5 1 There but for Fortune 7 Sally French and John Swain 2 Disability,Genetics and Eugenics 21 Tom Shakespeare 3 Disabled in Images and Language 31 Margaret Taylor 4 Institutional Abuse 42 Colin Goble 5 The Narratives of Disabled Survivors of Childhood Sexual Abuse 52 Martina Higgins Section II From a Different Viewpoint 63 6 Affirming Identity 65 John Swain and Sally French 7 Choices,Rights and Cabaret:Disability Arts and Collective Identity 79 Allan Sutherland French-3638-Prelims.qxd 12/20/2007 7:40 PM Page vi vi Contents 8 The Art of Affirming Identity 90 Toby Brandon and Alice Elliott 9 An Exploration of the Quality of Life of Adults with Haemophilia 104 Karen Beeton 10 Disabled People’s Testimonies 115 Jasvinder,Arlene,Geoffand Alice Section III On Equal Terms 127 11 On Equal Terms 129 Sally French and John Swain 12 In Practice from the Viewpoint of an Occupational Therapist 142 Elaine Ballantyne and Andrew Muir 13 In Practice from the Viewpoint of a Physiotherapist 150 Anna-Stina with Sally French and John Swain 14 Communication Disability:Exploring New Personal and Professional Narratives 156 Carole Pound 15 In Practice from the Viewpoint of a Disabled Nurse 164 Rachael Spain 16 In Practice from the Viewpoint of a Social Worker 171 Maureen Gillman 17 In Practice from the Viewpoint of Disabled People 177 Clare Evans Conclusion:Some Reflections on Key Questions 184 References 187 Index 206 French-3638-Prelims.qxd 12/20/2007 7:40 PM Page vii Acknowledgements for Disability on Equal Terms Every effort has been made to trace all the copyright holders, but if any have been inadvertently overlooked the publishers will be pleased to make the necessary arrange- ment at the first opportunity. Grateful acknowledgement is made to the following sources for permission to repro- duce material in this book. Macfarlane,A.(1994) Watershed,in Keith,L.(ed.) Mustn’t Crumble:writing by disabled women.London:The Women’s Press.Reproduced with kind permission of the author Cameron, C. (1998) “Sub Rosa” in Sub Rosa:Clandestine Voices.Tyneside Disability Arts,Wallsend.Reproduced with kind permission of the author Sinclair, G. (1999) “Co ming Out” in Transgressions. Tyneside Disability Rats, Wallsend.Reproduced with kind permission of the author Higgins, M., and I. Stanton. “Tragic but Brave” http://www.johnnypops. demon.co.uk/poetry/songs/incurables.html Brisenden, S. (undated) “Scars”, from Poems for Perfect People. Self-published. http://www.leeds.ac.uk/disability-studies/archiveuk/brisenden/Poems.pdf Brandon, D. (1990) “Brockhall Hospital” from Strange Places: experiences in mental handicap hospital.Salford:University College Salford.Reproduced with permission of the author’s estate Brandon, D. (1981) “The Barrier” from Voices of experience consumer perspectives of psychiatric treatment.MIND.Reproduced with permission of the author’s estate Ireland,C.(undated) “Creative Window Truthteller”From the collection Epochs and Elispe and Epics,not yet published.Reproduced with kind permission of the author French-3638-Prelims.qxd 12/20/2007 7:40 PM Page viii French-3638-Introduction.qxd 12/20/2007 7:40 PM Page 1 Introduction Over the past ten to twenty years there has been a growing literature that has addressed disability from a social model viewpoint, that is analysing the barriers within a disablist society and challenging individual,particularly medical,models that site the problem within the person with an impairment. Such texts can be found throughout the social sciences,some in the arena of sociology,some in disability stud- ies as an academic discipline in its own right, and some directed to specific profes- sional audiences.This book builds on this existing literature but has a particular focus. It sets out to challenge the tragedy model of disability and impairment.It confronts presumptions about disabled people’s lifestyles,quality of life,aspirations and needs. In doing so it explores the disablism inherent in western culture,within the disablist language,images and ideologies that are the warp and weft of daily living.It also chal- lenges the professional policy,provision and practice founded in presumptions about disabled people, and looks towards possibilities for change generated by the proud, angry and strong voices of disabled people. As editors,our starting points came from two directions.The first was the need for a second edition or update of a text edited by Sally French:On Equal Terms:Working with Disabled People (1994a).This text has been widely used within disability studies and although the present text is not a second edition,we wanted to retain some of its qualities and aspirations,particularly in addressing the implications for the develop- ment of professional services.To signal this we retained the phrase ‘on equal terms’. Our second starting point came from the wish to develop the notion of an affirmative model of impairment and disability that we had tentatively explored in previous pub- lications (such as French and Swain,2004).The imperative to do so comes from many directions.Evidence of the continuing and pervasive dominance of the tragedy view of disability confronts us all again and again.For example,the front-page headline in the Sunday Times (5 November 2006) read:‘Doctors: Let Us Kill Disabled Babies’. Whatever the ins and outs of the debate in the report, the headline speaks directly to the crux of the tragedy model:better dead than disabled.The continuing abuse of
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