Disability now. September 1996.

40 Pages·1996·14.8 MB·English

by  Scope

Disabilit
yYNO
The award
winning
newspaper
for everyone
Vi with an interest
£1.40 SEPTEMBER 1996 in disability
13 17 25 33 34
Which school is best How to bust rust on Disability politics Improve the paper — Jobs, friends,
for your child? your car and US travel guide and win prizes bargains, breaks
Disabled rights are
Slowly going places
A disabled woman and her husband have won their legal battle against a
shipping company which stopped her taking a cruise she had already paid for.
Wheelchair user June Tomlin- travel Insurance said Mrs Tom- palsy, forced Air India to back
son and husband Arthur, 58, linson could not claim because down after it removed him from
from Nottingham, won £1,266 nothing had affected her health a flight.
compensation from shipping to prevent her taking the trip. Martin, 26, was banned from
firm Cunard at Nottingham Judge Keith Matthewman QC the flight to Bombay from
County Court in August. said Cunard had tried to use its Heathrow Airport, unless he
When the couple booked the contractual power and muscle travelled with a carer.
luxury ten-day cruise, they told to prevent an honest and decent Martin was furious as his
Cunard about her disability. She woman, who happened to be in travel agent had told the com-
even had a signed medical cer- a wheelchair, from getting what pany about his disability. He sat
tificate from her GP saying she she was entitled to. it out at the airport and the air-
was fit for sea travel. Mrs Tomlinson said: “It was line eventually put him on a
But when they joined the embarrassing and distressing. flight 12 hours later.
Cunard Princess liner in Malaga, The apology means a lot. It’s a He is now carrying out volun-
staff declared Mrs Tomlinson shame it came so late.” tary work for the charity Action
unfit to travel because the 11- Cunard said it would do all it on Disability and Development.
hour journey to join the ship had could to make sure the problem “The way I have been treated is
made her legs swell. didn’t happen again. disgusting,” he said.
The couple were insured for Meanwhile, Martin Fortune, a An Air India spokesman said
the holiday, but broker Sure- wheelchair user with cerebral the airline failed to inform Mar-
tin that he should be escorted
because of his disability. Blind bowler John Sparks has been banned from a sighted bowling
Royal Association for Disabil- contest after elderly bowls club members complained of discrimina-
ity and Rehabilitation director, tion. The Bleach Green Veterans’ Club said John, 48, could not
Bert Massie, said: “These victo- compete, because they could not take part in visually impaired tour-
ries are important. naments. They also said that he was too slow.
“But disabled people should John, from Gateshead, beat club president Les Archer, 84, in the
not have to battle like this. Far same competition last year and said its members were being unfair:
better that companies review “I don’t think that they want disabled people taking part in their
their policies.” competition. They are living in the past.” NEWCASTLE EVENING CHRONICLE
Couple’s sad goodbye
BATH LIFTS, SEATS
& BOARDS
- To enable easy bathing
Pro ucts
TRAYS, An elderly couple who have savings on home care before cared for in their own house
TROLLEYS,
been married for 44 years have Nottinghamshire Social Ser- they should at least be in the
& CUTLERY
been split up and may lose their vices stepped in to meet costs. same care home,” she said.
_Tohelpwhen
home to pay for care. Now the independent agency An agency has now offered to
carrying and
Both John Welham and his providing their care is refusing care for the couple at home.
eating food ©
wife Edna, who are 68, had to care for the couple together A spokesperson for social ser-
STICKS, FRAMES __ strokes in 1994. and the pair are having their vices said it was considering
& WHEELCHAIRS They had already. spent their needs reassessed. this and other options.
To encourage mobility John Welham has already
been taken into a care home
and wife Edna may follow at
To assist in rising |
the end of August.
and support
If she does, they will have to
sell their house in Barnstone to
pay for care. But social services
For your FREE COLOUR BROCHURE, please Smiths-Nephew
complete the coupon and send to the address opposite. have not confirmed that they
NAME Leadership in Worldwide Healthcare
can stay in the same home.
ADDRESS.
Smith & Nephew HomecrLaifmitte d Daughter Eunice Rose is upset
Sidings Road, — at her parents’ predicament.
LowRmoado Inod. Ersta te, aay
Kirkby-In-ANsothtfs.i NeGl17d ,7J Z (= t*E "= “Even if they cannot both be john Welhiaih
PcPsssee eceaeeea sssn eee
Pe. Ig
on
2
|Ja Take Control
* F4o F4 . i Sandra Sherlock has!
fF 4
A WHOLE NEW WORLD IS
OPENING UP FOR SANDRA
SHERLOCK FROM EVERTON,
WHO PASSED HER DRIVING
TEST RECENTLY THANKS
TO SPECIALIST TUITION
FROM BSM INSTRUCTOR,
KEN SHEIL.
a
Sandra, who has congenital scoliosis, a form of spina bifida, took her
lessons in one of BSM’s Vauxhall Corsas which has been fitted
with a number of adaptations including hand controls and a
steering ball. Admitting to being nervous before starting her
lessons Sandra commented, “I really didn’t think I'd have
the confidence to learn to drive and found reversing
particularly difficult, but my instructor Ken put me at
ease straight away and helped me to believe in myself.”
Sandra is thrilled about her new found motoring freedom and is
already encouraging others to follow her example: “A lot of my
friends were waiting to see how I got on”, said a delighted Sandra,
“and now that I’ve proved that difficulty with mobility doesn’t prevent
you from learning to drive, I am encouraging them to have a go.”
Ify ou'd like to follow Sandra's example please contact your local BSM branch
free on 0800 700 800 or ify ou'd like more information please call the
BSM Mobility Unit on 0181-545 1390.
Plus take advantage of the special offer and use the coupon below to claim your
first lesson absolutely free.
FIRSE OR OUR “ER EE
This voucher entitles the bearer to.their first
hour of tuition free with a BSM instructor.
BSM
TERMS & CONDITIONS
1) This voucher may not be used in conjunction with any other offer or discount from BSM. 2) Offer
open to new pupils only and only to their first lesson with a BSM instructor 3) One lesson is defined
as sixty minutes 4) Standard booking conditions apply 5) Only one voucher per person 6) The
offer is only available in mainland UK and is subject to availability. Promoter: The British School of
+ Motoring Limited, as agent for BSM franchised instructors.
BSM instructors operate under a franchise with The British School of Motoring Limited, the largest organisation of its kind in the world.
SSSSHSSSSsSSHSsSesSeeeseSeeSseSeseseseseseeeseeoeeeseseeseeeeeeneeoeeeeesd
eS ET = TO BE COMPLETED BY BSM BRANCH STAFF
%s | The pass m2 asters Branch2) todey's,..::: alt<2e w sma gaaae' e ooin los a osL ae ein ea n4 B“l2
HCCOECHOS HEEHESSHCHSEHHOSHSHAEOSEOHEOTESS
Valid until 31st December 1997.
eeecoeessceoe
Disabilitynow September 1996
News 3
Loan puts
Stop press
Cost of loving « dogs on
South Cheshire Health Author-
ity has agreed to a reassessment
of the needs of Brian Parker at the spot
the Royal Hospital for Neu-
rodisability in London, after
threatening a major cut in his
care package (DN August). Guide Dogs for the Blind Associ-
ation is reviewing its operations
Giles wins therapy
after it emerged that the charity
Giles Penman, the four-year-old had given out 60 cheap loans to
with cerebral palsy, who lost staff totalling £1.7 million.
out on his occupational therapy This included £280,000 to
when his family moved from director general Julian Oxley
London to Bristol, will now get for a house in Upper Basildon.
his treatment. (DN August). He still owes £40,000, having
sold his old home for £240,000.
Parking review
An association spokesperson
Drivers and pedestrians are defended its actions. She said
being asked to comment on the charity had moved its head
new measures to tighten up the | “You couldn't afford her = she belongs to Guide nous for the Blind!” office from Windsor to Reading
orange badge scheme. Living centre at risk and had helped Mr Oxley, who
The Government plans to earns £68,000 a year, move
overhaul road traffic regula- closer to work.
tions which would require It insisted that most loans had
badge holders to produce gone to help highly-trained staff
badges on request for inspec- A Disabled Living Centre Manager Pat Shutter said if council has indicated that its relocate.
tion. It would be an offence to (DiC ntaces eclosureyar the the council lost, the centre next grant will probably be cut. “We are confident that the
refuse to produce the badge. Government wins a planning would be stuck for another suit- Director of the Disabled Liv- association’s use of its donors’
DN’s national survey of the appeal to sell its three-acre site. able building in Bristol. “It ing Centre Council, Tony money is efficient and effec-
orange badge scheme, pub- The Bristol centre at Fish- would be a shame to pull it Travis, said: “It would be scan- tive,” said association chairman
lished in June, found ponds was set up two and a half down — it’s in good condition.” dalous if it closed.” John Robertson.
widespread abuse. years ago to give advice and Bristol was one of the last big He added that the Govern- But Jill Allen-King, of the
Consultation ends 1 November. show equipment. cities in the country to get a ment had been obstructive and National Federation of the
Bristol City Council blocked a DLC and it was the first user-led had not helped the centre. | Blind, called for more blind
Tel: [phone] Government bid to sell the site centre, run by disabled people. “Many of the 41 centres in the people from the federation to
for residential use last year, but Ms Shutter said about 7,000 country are having funding be included in the Guide Dog
Disability NOW
the Government appealed in people had come in for advice problems as well. Association’s decision mak-
July. The result of the inquiry since it opened. Royal Association for Disabil- ing. “They can do this, but guide
should be known this month. The centre is also facing finan- ity and Rehabilitation director, dog users struggle to get grants
| Published by
Scope, 12 Park Crescent If the council wins, a local cial problems. After the aboli- Bert Massie, said: “These cen- to build dog toilet areas,” she
London W1N 4EQ charity, Bristol Council for Dis- tion of Avon City Council and tres are vital if we are to have said.
Editorial: 0171-636 5020 abled Adults, plans to buy the its replacement with four uni- effective community care and The charity has assets of £146
Fax: [phone]
building and rent it out to the tary authorities, the centre has the Government is simply not million and provides help to
Minicom: 0171-436 9914
DLC and other groups. had to ask each for grants. One providing the money for them.” about 4,500 people each year.
Editor Mary Wilkinson
Assistant Editor School place costs dear
Helen Gregory
HOW TO CHOOSE A
Reporter Rod Hermeston
Features/Production
A five-year-old blind girl faces a for the Blind in Merseyside —
Assistant Alison Miller POWERCHAIR OR SCOOTER
weekly 260-mile round trip to 130 miles from her home in Lin-
Editorial Assistant/
Secretary Hayley Kerr school by taxi because her local colnshire. Lincolnshire County
Design Consultant education authority claims it Council will pay her £20,000 New, free booklet explains and guides,
Nigel Tuckett cannot find a school place any annual travel costs.
ensuring that you make the right decision
CIRCULATION nearer her home. A council spokesman said the-
Manager Karen Bresloff The girl will be a weekly cost was justified as it met her Considering buying a of questions that you will
Deputy Manager boarder at the Liverpool School educational needs. mobility vehicle in the next want to ask before you
Helen Crow
few months? Then you make your mind up, giving
Assistant Davina Long
Tel: [phone] should know about a new, you all the information
providing
ADVERTISING free advisory booklet before you make the
Richard Gresham, Kingslea information which will undoubtedly important choice.
Press Ltd, 12 Dock Offices,
and advice on help you to make the right
Surrey Quays Road, London
SE16 2XU Tel: [phone] disability issues decision. Get all the facts. Produced
1362 Fax: [phone] ‘hibitiont o be held at by the Mobility Matters
TYPESETTING The easy to read booklet Network of mobility
Banbury Graphics, Suite 10, Gateshead stands contains all the answers specialists “The In’s and
Borough House, Marlborough
International Stadium you need to make sense of Out’s of buying a mobility
Road, Banbury, Oxon OX16
8TH Tel: [phone] Wednesday 16th OCTOBER 10-a 5.m00p m what can be a complicated vehicle” is available now,
affair. It tells you about all free of charge. All you have
PRINTING Thursday 17th OCTOBER 10-a 5.m00p m
CV Litho, Banbury, Oxon and the different models to do is simply call our 24
Challenge Print Management Friday 18th OCTOBER 10-a 2.m30p m available, how they work, Hour Booklet Request
Tel: [phone]
what happens when they Line on 0990 134 130 or
DISTRIBUTION For more information contact Disability North:
go wrong and the best way write to Mobility Matters,
MMC, Octagon House, White Castle Farm Road, Gosforth J
Supported by to go about buying a Dept DN9, Freepost
Hart Meadows, Ripley, Wok-
Newcastle upon Tyne NE3 1PH_ BritishGas
ing, Surrey GU23 6HR scooter or powerchair. NHO170, Kettering, NN14
ISSN 0958-4676 Tel:[phone]. Home Energy 6YA. A booklet will be
NORTHERN
The views expressed in Disability Now woes fe ELECTRIC “The In’s and Out’s of sent to you within 14 days
are not necessarily those N or
of Scope. Minicom No. 0191 285 7261 ed buying a mobility vehicle” from one of the Mobility
Copyright © 1996 Scope BUSINESS PRESS Disability North. Serving disabled people throughout the North. RegRisateyey er etd CNh arity No. 514733 also arms you with a series Matters local Distributors.
Disabilitywow September 1996
Box nightmare Gay man >
wins right
is finally over
to adopt
The mother of an epileptic girl A homosexual man has won
who was forced to live in a box the right to adopt a severely dis-
for four months has vowed to abled boy. ,
help other parents get proper For the past 18 months, the
support from social services. man and his male partner have
Kathy Brain, 13, has severe looked after the five-year-old
epilepsy, cannot walk or talk who is deaf, speech impaired
and can injure herself by bang- and has mobility problems.
ing her head, unless she is in a In July, the Court of Session in
padded room. Edinburgh overturned an ear-:
Leicestershire Social Services lier court decision which pre-
built an open-topped padded vented the 34-year-old nurse
wooden box for Kathy while from adopting him.
they decided what to do. Lord Hope said it would not
Mother Linda said Kathy was is make sense to remove the boy
in the 6 x 6ft box nearly all day, Boxed in: Kathy Brain from a caring environment
which upset the whole family. where he was settled.
Top dog: Minnie, a Collie cross Spaniel bitch, won the Best Disabled
“You wouldn’t put a dog in his wife have not had respite And in Dorset, a couple who
Dog event which was held in Eastbourne in July. Minnie had her leg
there,” she said. care since December and Linda were warned they could lose
amputated after being hit by a train earlier in the summer, but owner
Social services finally padded claimed social services even con- their disabled foster daughter
Dean Wicks, 11, from Westham in Sussex, says she is still full of life
Kathy’s bedroom in May but sidered using the box for Kathy unless they gave up smoking,
and coping well. MARK DIMMOCK her parents had to take out a while they had a break. have been told they can keep her.
loan from the authority to pay “After our struggle, I want to Dorset Social Services had
Measles link to Crohn’s
for extra construction work. help any parents facing similar said they would prefer the ten-
John Kershaw, divisional man- problems,” she said. year-old girl to be in a smoke-
Government plans to give Study Group (IBSG), says ager at social services, said: Social services now plans to free setting. She has cerebral
booster doses of the measles more research is needed into “There were a number of pro- install “a “padded area in‘ a palsy and mild asthma.
vaccine to pre-school children the consequences of using the cesses which had to be gone respite care centre in Melton In July a fostering panel in
may increase the risk of the vaccine. through. We have now supplied Mowbray. Dorchester said that she should
inflammatory bowel condition His team has suggested that it something at a quality which is stay with the couple short-
OBE for Paddy
Crohn’s disease, according to a could have trebled the incidence acceptable to them.” term.
stomach expert. of Crohn’s in children. Willliam Brain said the family Paddy Masefield, who has ME, Robin SeQueira, director of
From October, all children But Dr Huw Jenkins, consul- had been battling to get the has been awarded an OBE for Dorset Social Services, said:
offered the pre-school booster tant pediatrician at the Univer- right provision for years. He and services to the arts. “The fostering panel under-
for diphtheria, tetanus and sity Hospital of Wales in standably recognised that the
polio, will also be offered the Cardiff, who has headed a sepa- ATOn foster parents are offering
measles, mumps and rubella rate study, has warned against warmth and care for a very
(MMR) vaccine. speculation. needy child.”
RAVEL
Dr Andrew Wakefield, of the “There is only a possible link
Shoppers
Royal Free Hospital School of which is worth investigating,”
Medicine Inflammatory Bowel he said.
lose free
Warm Winters at Cool Prices
PARENTS for CHILDREN
parking
Hotels, self catering apartments and villas in the Algarve,
JASCINTA (DoB 6.5.83) Portugal. All holidays specially designed to meet the needs
of disabled people. Transfers by fully adapted minibus or
Jascinta is 13 years old and came to this Disabled shoppers have lost
standard taxis. Special rates for standard or fully adapted car
country from Nigeria when she was 2 years their free parking spaces in the
hire. Current rates for winter 96/97 from only £210.
old. She is tall and slim and physically, she Arndale shopping centre in
appears older.
Luton.
Jascinta walks well but with a slight stoop Call the specialists The centre used to offer free
and tends to move around a lot rather than Assistance Travel Service Ltd
parking to orange badge hold-
sit in one place. on tel: [phone]
ers but is now charging them
For no clear reason, Jascinta is not able to
or write to: 60p for two hours, in line with
talk. However, her carer says that once you
ATS Travel, ATS House, 1 Tank Hill other shoppers.
get to know her, she makes her needs and wishes well understood.
Road, Purfleet, Essex RM16 1SX Luton Council, which oper-
Attending a special school for children with learning disabilities,
ated the car park until recently
Jascinta looks forward to school and is gradually learning to be more ATS Travel are retail agents for ATOL holders and ALL our holidays are FULLY BONDED
accepting of other children. with a pay and display system,
Jascinta sometimes goes through periods when she wets herself and, had been able to subsidise
at times, has shown obsessive behaviour, such as regurgitation or LS charges for disabled people.
repeatedly watching the same video. Her behaviour is by no means The Disabled The Arndale centre recently
consistent but manageable, particularly if Jascinta believes her carers Drivers Association took over the car park and cen-
are consistent and firm. tre manager Brian McFarland
Jascinta usually gets on best with adults who she sometimes “winds defended the decision, as he
The UK organisation for disabled drivers and passengers OFFERS :
up”, thereby attracting the wrong sort of attention herself. said it did not receive a subsidy,
The things Jascinta enjoys most are going on outings, swimming, 50 years He said: “There are 63 wider
relaxing at home, video, tv, music and she would like a family that parking spaces for disabled peo-
could offer her these sort of activities. experience dealing with mobility problems of the disabled.
ple, out of 2,500, and we have
If you would like to know more about Jascinta, please contact:
improved access with ramps
PRAVINA GULABIVALA or BARBARA KELLER For further details contact
and have added two extra toilets
our Information Officer
Parents for Children
for disabled people.”
41 Southgate Road The Disabled Drivers Association Motoring expert Dave Allcock
London N1 3JP Ashwellthorpe, Norwich, NR16 1EX
said: “This is happening all over
Tel: [phone] Tel: [phone] Fax: [phone]
the country and, unfortunately,
Charity Reg No. 280259 Registered Charity No. 254544 Registered in Cardiff No. 897405 is the price you have to pay for
wanting equality.”
DisabilityNow September 1996
News 5
are plan slammed |!nsurance firm
uses Cp excuse
Government proposals to over- The Government has also pro- from social services.
haul the long-term care system posed that people could take a It highlights language difficul-
have been slammed by a Con- smaller initial pension, while ties, cultural and religious dif-
servative-dominated committee keeping money in reserve to pay ferences and a lack of translated An insurance company wants
of MPs. for long-term care later. The information as key reasons for to charge Bob Findlay 75 per
The proposals are designed to report says this would only discontent. Many did not want cent extra on his policy pre-
help people avoid having to sell work for a few rich people. to be seen as scrounging. mium — just because he has
their homes to pay for care, by However Health Secretary “We hope the report’s findings cerebral palsy (cp).
allowing people to match state Stephen Dorrell claimed the will influence organisations Bob, from Birmingham, is
cover with private insurance. report had endorsed many of providing services,” said deputy chairman of the British Council
A new report by the Com- the Government’s policies. general manager Les Bright. of Disabled People. He applied
mons Select Committee for Mervyn Kohler, head of public © As DN went to press, Help for an income protection policy
Health Long-term Care: Future affairs at the charity Help the the Aged was threatening court with PPP Lifetime Care and was
Provision and Funding (third Aged, said neither the Govern- action against Sefton Council in shocked to discover he would
report){ says media and public ment or the committee was tak- Merseyside, unless it paid for have to pay more.
speculation over a_ possible ing the lead on the issue: “We the care home costs of 47 pen- His building society’s finan-
funding crisis because of an need a clear agenda so that peo- sioners. cial advisor worked out the Shocked: Bob Findlay
aging population, is “based on ple can plan for the future.” The pensioners all have assets package which would have
unsound evidence, or Meanwhile a report by the of less than £10,000 and should meant a premium of £15.23 a that would put me off work.”
indeed...downright alarmist.” charity Counsel and Care, be entitled to have their care month. But when PPP received PPP spokesman Paul Bennett
It also says: “We deprecate the More than Black and White’, paid for in full, but the council his medical records, this was said cerebral palsy was judged
Government’s failure to provide says many elderly people from says it cannot afford to pay. increased to £26.65. to be a high risk factor when
costings of its various options. ethnic minorities do not always Bob said: “They did not spec- working out premiums.
“Until such costings are pro- get the support they need from ¢£11.50, from tel: [phone] ify what the problem was when “This policy pays out on
vided, the taxpayer is being their families and often have 0011 I queried the increase, but I inability to perform due to ill-
invited to sign a blank cheque.” difficulty in asking for support *£6, from tel: [phone] went back to the financial advi- ness.
sor. He made enquiries and told “Cp has the capacity to cause
Phone me it was because of my cp. recurrent periods of disability.”
“?’m very mobile and I’ve Scope insurance expert, Chris
never had anyone query the Richfield, said: “The company
perk impact of cp on my life before. is wrong to make such sweeping
“I sometimes get tension in judgements. Cp has varying
my neck muscles, but nothing degrees of disability.”
cut off
Mobility cuts take effect early
Disabled people in the London The Government has gone It means that those receiving
borough of Lambeth are losing ahead with plans to cut Mobil- the mobility component of Dis-
a council-funded perk which ity Allowance without debate in ability Living Allowance will
paid their telephone rental the Commons. lose it if they go into an NHS
charges. Many disabled people were hospital or community home
But the Royal Association for sent letters informing them that for more than four weeks.
Disability and Rehabilitation the change would take effect on The issue may not be debated
(RADAR) is challenging the 31 July. until October.
move.
It says the council is acting
unlawfully because no-one has
been re-assessed.
John Keep, head of the inde-
pendent living unit at RADAR,
said: “The local authority must Geronimo! Gary Osborne, of Singleton, West Sussex, a wheelchair
have assessed people as needing user with cerebral palsy (cp), free-falls 10,000 feet from an aeroplane
a telephone and had decided to to raise £130 for Scope and cancer research. Instructor Clemm
fully meet their needs by pro- Quinn (top) makes sure Gary has a safe landing. John Guppy, of
viding rental charges. Bognor Regis, who also has cp, made the jump too. SCOPE
“If the council has not re-
assessed them, it is acting
HEADWAY NATIONAL HEAD INJURIES ASSOCIATION
unlawfully.”
In collaboration with
Cate Heath has epilepsy and
THE BRAIN INJURY REHABILITATION TRUST
diabetes, and is one of those
who will lose out. Present
‘SEXUALITY AFTER HEAD INJURY’
She said: “I’ve had the charges
paid for me since 1989, which
28th October 1996
has really helped.
“T’m very annoyed that the at the
council can now do this, as Royal Society of Medicine
there are a lot of disabled peo- 1 Wimpole Street, London
ple, some of them elderly and A conference to explore the variety of issues of sexuality after head
dependent on the telephone, injury. The issues discussed are not simply sexual disorders such
who will be badly affected.” as disinhibition but sexual identity and gender problems together
A council spokesman said: with the relationship difficulties arising when one partner has
“We had to make a lot of cuts in become disabled.
our budget, and deciding what Cost £95.00
should go was very difficult. (to include refreshments and lunch)
“We used to pay for people’s For further details contact Diane Fecowycz
Stannah
telephone installation and Headway National Head Injuries Association Stairlifts
rental charges if they were dis- 7 King Edward Court, King Edward Street, Nottingham NG1 1EW
abled, but we can now only pay Tel: [phone] Fax: [phone] Post to: Stannah Stairlifts Limited, Dept 8699, FREEPOST, SA344, Andover, Hants SP10 3SD.
for the line installation.”
Disabilitynow September 1996
Shoppers at Tesco’s Beaumont Leys store in Leicester are finding In brief
their weekly shop can cost more than they budgeted for — if they
take up disabled people’s parking spaces (Jet).
The clamp-down at the store means some motorists are finding their
A good policy
cars are clamped and they are being forced to pay a fine to charity.
Shoppers who use disabled people’s spaces have to pay £25 or £50 to Brent Council in London is”
have the clamp removed, depending on how long they have been looking for people living of
there. working in Brent to help
The money raised is falling however, as more people find out about develop policies on disability
the fines and obey the rules, but £1,000 has already been raised for and mental health care.
local disability charities. Fifteen people are needed to
As part of the campaign to keep the 34 spaces free, store manager sit on the council’s Disabilitie
Nick Smith is now planning to erect a sign saying: “You have and Mental Health Consulta-~
pinched a disabled person’s parking space. Do you want their dis- tive Committee which provides
ability too?” ROGER BUSHBY a forum for disabled people.
Tel: [phone]
Parking perk
Orange badge holders in Liver-
No matter how willing, all carers need to recharge
pool will be involved in a pilot
their batteries from time to time and respite care is
scheme allowing them to park
an opportunity for carers to take a break from the
responsibilities of caring for a disabled relative. their cars in a pedestrianised
area.
At Queens Court we believe that those who are cared
for deserve a holiday too! And so we do our best to But Liverpool police have
ensure their stay is as comfortable and refreshing as voiced concern over the plan for
possible. Lord Street as they say the
orange badge scheme is open to
abuse.
The local traffic warden co-
ordinator in the area has—
reported that more than 100
badges have been taken from
Write, telephone or fax for an information pack or return the inappropriate users.
coupon to our FREEPOST address (no stamp required):
Queens Court offers first class respite care or Care Link, FREEPOST 647, 10-12 Promenade, Southport, PR8 1BR. Winning Wales
convalescence in pleasant informal surroundings TEL: [phone] Fax: [phone] The National Lottery Charities .
Qualified nursing staff and resources are on hand
Board in Wales has awarded
twenty-four hours a day to meet the needs of all our
£53,000 in grants to 18 charities.
(PLEASE COMPLETE COUPON IN BLOCK CAPITALS) pno6 §
guests.
They are the first awards to be
Holiday breaks can be taken with or without the NAME (Mr., Mrs., Miss etc.)
made under the Board’s Small
guest’s regular carer; in either case, our aim is to
ADDRESS Grant Scheme.
ensure the change of routine is beneficial to both.
Cash hand-outs include”
£5,000 which is being given to—
the Memorial Hall in Whitland-
Care Link
to provide toilet facilities for
Queens Court Residential Care and Nursing Home,
disabled people, and £4,000 for
487 Abergele Road, Old Colwyn, Colwyn Bay, LL29 9AE
Carers for Disabled Holidays to—
Tel: [phone] Fax: [phone]
fund a holiday for disabled peo- |
ple and their carers.
Working group
The New Volkswagen Caravelle
Disabled people who have suc-
cessfully tackled barriers to_
by Invatravel Conversions
employment are needed to con-
INVATRAVEL tribute their experience to a
CONVLASIONS
study being carried out by
Scope in Wiltshire. :
The Living Options team in~
Swindon is doing an employ-
ment feasibility study which
aims to identify innovative work- |
ing opportunities in the area.
Tel: [phone]
Housing service
The National Disabled Persons
Housing Service has set up its
national office at Brunswick
Various options of wheelchair access available on this super new model, including:
House, Deighton Close,
* underfloor electro-hydraulic lifts Wetherby, West Yorkshire LS22
7GZ. Tel: [phone].
* hydraulic lowering rear suspension with spring assisted alloy ramp
Holiday help
* manual ramps, etc
The Holiday Care Service has
Disabled driver options for full independence.
compiled a directory of infor-
Prices start from £15,500 on the road excluding all taxes from which mation sheets featuring respite
care accommodation at more
disabled users are exempt.
than 2,000 establishments
Contact Paul Cassidy or David Reid, tel: [phone], APPROVED CONVERTER OF throughout the UK.
Fax: [phone]. 66 Knob Hall Lane, Southport PR9 9QSs. THE VOLKSWAGEN
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Disabilitynow September 1996
News 7
Toilet trouble Anger over
pool closure
A disabled woman is furious This was then locked on the secured Diane’s release.
after getting stuck in the toilet inside, but when Diane came to A Railtrack spokesman said
at Kings Cross station for leave, she could not operate the the station had had problems
nearly two hours. lock and got no response from with drug users getting hold of
Diane Hyatt, 52, who has the panic button for one and the keys. Combination locks on Disabled people in Bath are
osteo-arthritis and epilepsy, three-quarter hours. the inside and outside of the fighting a council decision to
says she was a virtual prisoner “It was a really awful experi- door had been installed in an close their local swimming
in the toilet for disabled people, ence and it was lucky I did not attempt to prevent this. She said pool.
as no one came to her help have a fit,” she said. the inside lock had now been The small, warm pool at the
when she repeatedly pressed the “IT screamed and banged on removed. Bath Leisure Centre was refur-
panic button. the door which made my left “The lock on the outside has bished in April and re-opened
Diane, from Stevenage, was hand swell up. I even had a been moved further down to as a fun pool for children,
on the way to meet her cousin cigarette in the hope that the make it more accessible.” which the protesters say means
when she popped into the toilet smoke alarm would go off — She denied there was a prob- disabled people can no longer
and was let in by a guard who which it didn’t.” lem with the panic button: “It use It.
had to unlock a combination Eventually another passenger was working and no one heard The height and temperature
lock on the outside of the door. was let into the toilet which it? of the pool have been lowered
which they say puts it out of
Benefit Protester: Susan Charles
bounds and means that many
BRISTOL EVENING POST
people’s health is failing due
to a lack of water therapy. “If Bath is the leading spa
shake-up
Bath and North East Somerset town in this country, why is it
Council has offered to raise the unable or unwilling to provide
on way temperature in the main pool remedial spa facilities to its resi-
once a week but campaigner dents?”
Susan Charles, who has a spinal Ms Charles and fellow cam-
injury, says this is not effective. paigners hope they can per-
A major shake-up in the way She believes at least 500 other suade the council to make
benefits are paid to unemployed disabled people in the area are improvements to the work.
people will come into effect on losing out. If this fails, she hopes to
7 October, with worrying impli- “At 3ft, the new pool is too encourage them to upgrade a
cations for disabled people. shallow and not warm enough derelict spa pool in the city.
Those looking for work will for many people like myself Council leisure services direc-
get Jobseekers Allowance (JSA) who need hydrotherapy at least tor, Robbie Hazelhurst, said
instead of Unemployment Ben- three times a week. If |d on’t get people with disabilities would
efit or Income Support. it, |c an’t walk,” she said. be no worse off.
Income Support will still be tt ey “Heating up the big pool “We have made the pool more
paid to those who cannot work, Practice makes perfect: Minister for Disabled People, Alistair Burt, doesn’t work and there is no accessible as the pool starts
for example, some disabled peo- (right) and Lord Henley, Minister for Education and Employment, other pool in the area to use from a beach.”
ple and carers. (left) launch the Codes of Practice which relate to the Disability Dis- apart from hydrotherapy pools He added that the pool was
Like Unemployment Benefit, crimination Act. Keeper Andy Hallsworth and his owl Max look on at the local hospitals which cost not designed as a hydrotherapy
JSA will be paid for only six at London Zoo, which was commended for its friendly service to dis- more, and are too warm for pool and was for public swim-
months before it becomes abled people. ALISON MILLER some. ming.
means tested.
People who have not made —_———- The
enough National Insurance
DANAID
contributions will go straight
on to this means tested bene- Comfort
fit.
Pauline Thompson, director of
the Disablement Income Group,
is worried that disabled people
WHEELCHAIR
with savings of more than
£8,000 could take longer to find
new jobs, and could be Easy to operate
penalised by the means test after Adjustable - no tools required.
six months. Simple, elegant design
“Disabled people will be - choice of colours.
severely disadvantaged if they Posture support.
do not find work within the Pressure sore
relieving design.
first six months,” she said.
She was also concerned that Elevating footrests.
people who had failed the Optional equipment
includes: den
already toughened test for Inca-
Electric tilt &
pacity Benefit (which replaced
recline
Invalidity Benefit and Severe Headrests
Disablement Allowance _ last Table The ‘Royale’ is a new addition to the Newton range of powered
Pomme}ls wheelchairs. The compact and easily foldable design of the
year) might fail to meet the
Harnesses wheelchair is equally at home indoors and with 200mm castors,
tougher rules for JSA because Body & side supports rear wheel traction and kerbclimber, outdoors. The Royale's high
Available Only From
their disability still restricted Optional Five Year Guarantee. manouverability, smooth comfortable ride and high specification
them. ¢ Competitively Priced. sets a new standard in its class. Additional seating options are
These new rules were designed e Power driven option available available to upgrade this wheelchair to even higher standards.
from September. MN (i Return the coupon below to Newton Products
to ensure that unemployed peo-
Garretts Green Lane Birmingham B33 0SQ for further details:
ple were seriously looking for Phone [phone] AIDS
work. for brochure/information or write to:
The Benefits Agency has Comfort Aids, 24/26 Glasshouse Street,
Address
insisted that the rules will be Nottingham, NG1 3LW. OR CALL THE SALES HOTLINE: [phone]
slacker for disabled people.
Disabilitynow September 1996
8 News
Airbourne pligh t |M P claims disabled
refugees lose out
A family is asking an airline to
show compassion so their dis-
Disabled refugees in Britain cials appear not to know thei
abled son can fly to New
could be losing benefits due to own regulations,” Mr Gran
Zealand in comfort.
Nigel and Nicky Faulkner, of mistakes made by the Benefits said. “I am demanding that th
Horley in Oxfordshire, are tak- Agency. Benefits Agency does a trawl o
ing their six-year-old son Tottenham MP Bernie Grant all similar cases to ensure othe:
fears hundreds of refugees are errors are corrected.”
Thomas, who has cerebral
palsy, on the 24-hour flight to missing out after one of his con- Claude Moraes, director o:
visit Nigel’s family. stituents, a Sri Lankan man the Joint Council for the Wel.
Thomas has great difficulty with one hand, was told his Dis- fare of Immigrants, said many
relaxing and sleeping and has ability Living Allowance would refugees around the country}
jerky movements. To sleep he Thomas makes the trip as line carried a lot of disabled be withdrawn. were in distress.
has to lie flat. Nigel’s father is ill. people, but could not afford to Mr K Kanapathypillai, 39, “Disabled refugees are espe
However Air New Zealand “T can’t believe that Air New give free seats away. who has lived in Britain for six cially vulnerable,” he said
has told the family that if they Zealand has never come across “No other airline would do years with his wife and young “These people do not know
want to let him do this safely, this before.” this either, it’s not as if we are child, has exceptional leave to what they are entitled to.”
the only option is to buy The Royal Association for being unfair. We have done our remain in Britain. This means Mr Moraes said the Govern:
another seat, costing £600. Disability and Rehabilitation best to be accommodating for he is entitled to benefit which he ment was taking advantage o:
Nicky Faulkner said they (RADAR) has taken up the case the family.” has received since 1995. The the situation by not giving then
could not afford the extra cost and is urging the airline to make Ms McKay said the airline had Benefits Agency reviewed his enough information.
and that, instead, Thomas special arrangements. offered to try and fit Thomas’s case in June but later repealed “They are waiting for peopl
would have to lie across them. Air New Zealand spokesper- special car seat into the aero- the decision. to be thrown into chaos before
“Tt’s very important for us that son, Claire McKay, said the air- plane instead. “T am shocked that these offi- acting.”
A disabled -activist has been Coma is
prosecuted for throwing
coloured water at the Depart-
not so
ment of Health during a protest
over Incapacity Benefit in June
(see left).
clear cut
At Bow Street Magistrates
Court in London, Barry Shau-
fler admitted criminal damage Almost half of the people
and was given a two-year con- thought to be in a persistent
ditional discharge. vegetative state may have been
Barry, who is visually impaired, misdiagnosed says a study.
must also pay £500 compensa- Specialists at the Royal Hospi-
tion to the Government as well tal for Neurodisability in Lon-
as £50 costs. don, led by Dr Keith Andrews,
He said: “There was no mali- found that 17 out of 40 patients
cious intention —I just wanted to had been wrongly diagnosed as
show how unfair it was. I’ll be being in a coma.
struggling to find the money.” These people were able to
BMROEONRTE
communicate with buzzers and
some could spell out letters.
Adoptive families are needed for
People in comas are unaware
Ease walking difficulties and simplify travel
Archie (02/02/93) and Aaron (29/12/93) with Britain’s most compact folding lightweight of their surroundings and make
wheelchair. only reflex responses, although
they can breathe on their own.
The team found that 65 per
cent of those misdiagnosed
were visually impaired or blind,
making it impossible for them
to blink when threatened, or
follow objects with their eyes —
Just look at these features - two traditional tests.
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Archie and Aaron are brothers of white European/Asian ®@ Folding armrests ease side transfer Healthcare dilemma for families applying
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origin. They need separate families with experience of
@ Finger adjustable footrests remove the feeding tubes from
disability, who can accept uncertainty about their future ® Attractive durable paintwork i
development and have the time and commitment to help ® Self propelled version relatives in coma.
them achieve their full potential. Both boys have available. The debate was ignited in
developmental delays and may have learning difficulties. 1992 when the House of Lords
ruled that doctors could allow
Archie is making good progress, his mobility and sight are Tony Bland to die after he was
good, but so far he has not developed speech and his Sfuelln dd etfaoirl s! left in a persistent vegetative
behaviour at times can be demanding. state, following the Hillsbor-
Aaron’s needs are complex. He had limited vision and ough disaster.
although he is making progress he is severely delayed. “One of our main findings is
that the vegetative state is
If you live within 1.5 hours driving time of Hertfordshire extremely rare and difficult to
and would like to learn more, please Post Code diagnose,” said Dr Andrews.
contact: Janet Holmes, Social Worker, fA REMPLOY He is calling for multi-disci-
Hertfordshire Social Services, Permanent Healthcare plined tests to identify the state.
Families Team, 16 Warren Park Road, JNuobritlheeu mbInedr.l aEnsdta teN,E 6A3s hi8nUgEt on At present there are up to
Bengeo, Hertford SG14 3JD, tel: 01992 Hertfordshire Tel [phone] Fax [phone],500 people in Britain who
509437.
have been diagnosed with the
condition.
DisabilityNow September 1996
International news 9
Cm |A xe falls on |Rights on the line
Violence on the up
Helios fund The European Commission is tunities for Persons with Dis-
Violence against disabled peo- calling on member states of the abilities, it calls on countries to
ple in the European Union is on European Union to adopt a remove the social barriers faced
the increase. rights-based approach to dis- by disabled people.
A report by the European Dis- ability. “They don’t have the power to
ability Forum, which gives an A Europe-wide programme The Commission has put for- enforce this unless we get a
overview of small national sur- which gives support to disabil- ward a resolution on rights for clause in the Treaty of the Euro-
veys, says crimes often go unre- ity programmes will be axed in adoption by the council, which pean Union, but this is a positive
ported because people fear they 1997, is made up of ministers from step,” said Rachel Hurst, chair-
will not be taken seriously. The European Commission individual countries, who have person of Disabled People’s
They also often fear reprisals. has also proposed to halve the the final say over decision mak- International European Region.
The report highlights one budget for smaller schemes ing in the Union. The communication also
national survey which showed which will replace it, to just And following a proposal by includes concrete proposals,
that disabled people were three £5.4 million. Padraig Flynn, Commissioner such as getting a coherent
times more likely to be the vic- The Helios programme began with responsibility for Employ- approach to employment issues
tims of crime than able-bodied in 1992 and gets its funding ment and Social Affairs, it has by 1997, on which the Commis-
people. from the European Union. issued a “communication” out- sion is taking action.
Half of them had experienced Germany is opposed to fund- lining its ideas and plans. In line The Commission — hopes
some form of violence or har- ing such programmes because it Richard Howitt MEP with the United Nations’ 1993 money will be made available
rassment in the year leading up feels social policies should be resolution on Standard Rules from the £4.9 billion Structural
to the report. decided by individual states. European Parliament, accused for the Equalisation of Oppor- Fund.
The report, which is free of The European Parliament, the European Commission of
charge, defines violence as which has the final say over not trying hard enough to
ranging from physical abuse to budgets, has now proposed to face up to individual govern- HOLIDAYS
inappropriate medication. retain funding for smaller ments.
for DISABLED
replacement schemes at £11.7 “The British are just as bad as
Tel: [phone] million using an alternative the Germans on this, but it also
method which has no legal shows that disabled people are
Canada’s time warp basis. Britain is challenging this pretty low on the Commission’s PEOPLE
Disabled people in Canada still type of funding. list of priorities and not even
face discrimination ten years Arthur Verney, development worth fighting for.”
Flights from London, Manchester,
after the country passed civil worker with Disabled People’s Meanwhile, Britain is urging
Birmingham & Glasgow to
rights legislation. International European Union European leaders to exclude a
The Canadian Human Rights Committee, said: “It’s a catch- disability discrimination clause Amsterdam, Dublin, Paris, Florida, Majorca,
Act of 1985 made it illegal to 22 situation. We have both a from the revised Treaty of the Costa Almeria, Tenerife & Algarve,
discriminate against any group, legal basis for funding and a European Union (TEU). Gites and canal cruisers in France.
including disabled people. more informal source, neither At the moment governments
Winter ’96 holidays in Norway
But the Canadian Human of which we can use.” ~ are leaning towards the inclu-
Accessible Accommodation Guaranteed.
Rights Commission (CHRC) Helios provides funding to sion of a clause on gender and
Annual Report 1995 says that promote good practice in hous- racial equality but not for age,
“reasonable accommodation” ing, employment, education disability or sexual orientation.
is still not being made to meet and training. Mr Howitt warned that the
the needs of disabled people. Richard Howitt MEP, who is Labour party line was uncer-
Access Travel (Lancs) Ltd. 16 Haweswater Ave,
Meanwhile, government fig- co-president of the All Party tain and that it “had not made a
Astley, Lancs M29 7BL. Tel: [phone].
ures show that spending on Disablement Group of the clear commitment”.
employment for disabled peo-
ple has fallen by $12 million
despite the National Strategy
THE ULTRA LIGHTWEIGHT
for the Integration of Persons
TVS BRACE
with Disabilities having $159
million to spend over a five-year
period on disability pro-
FOR ARTHRITIC KNEES
grammes.
TELESCOPIC VALGUS (KNOCK KNEE)/VARUS (BOW LEG) SUPPORT
US genetic law
New Jersey has passed the most he primary function of the brace is to align or
comprehensive law protecting straighten the limb, which may have deformed to a
genetic information in the
bow or knock knee position, due to weakness of the
United States.
joint. This is usually caused by an arthritic condition,
Under the Genetic Privacy Act
resulting in pain or undue aching when standing or
employers cannot turn down
walking. The brace gives full freedom of leg movement
someone’s job application if
and in many cases helps with hyperextention, where
they refuse a genetic test.
the knee allows the leg to bend to the rear.
It is also illegal to gather, Making wheelchair accessible
keep, or disclose someone’s
genetic information without transport affordable
their written permission.
It also offers protection to Sy
people seeking life or disability
insurance, limiting how much
genetic information can be
* 3
used in determining premiums. Knock Knee (Vaigus) Before Knock Knee (Valgus) After Knock Knee (Valgus) Before Knock Knee (Vaigus) After Send for the latest colour brochure
A cy NHS
No mine ban ®AZy |E098 Contact Peter Scullion or John Adair
The Lewis Reed Group
The United Nations has failed
to agree to a ban on landmines,
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leading to estimates that 80,000 ST. CLARE ENGINEERING LTD (MEDICAL DIVISION) Merseyside L43 0SE Fax: [phone]
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Disabilitvywow September 1996
Games first
Double blow
Britain’s male and female goal- The first UK Pan Disabili
ball teams managed a remark- Athletics Championships took
able double in June — by both place in Birmingham in June. _,
finishing last in the game for More than 250 British and for-
blind people, at an interna- eign athletes with physical,
tional event on home territory learning and sensory disabilities
in Gravesend. took part in the competition.
Spain won the men’s tourna- John Nethercott, of Wales,
ment while the United States of and Purificacion Santamarta, of
America took the honours in Spain, won the male and female
the women’s event. athlete award.
Poles apart: Poland shot their way to victory in the European Football Championship for players with
learning disabilities in June. But the Poles faced stiff competition in the final of the championships,
which were held in Leicester. The highly skilled Belgian team took the lead with a lightning strike from
Olivier Lambeau early in the first half. A thrilling volley from Marek Prosowski brought it back to level
pegging. The final score was 4-2. Ten teams took part in the contest. England finished in eighth place,
and the Scottish team finished seventh. ROCK KITCHEN HARRIS
Golfer is in seventh heaven
@y ; (
§ ie s Wl
Australian golfing ace Geoff Canada and Michael Horsley For the third time, the
Nicholas won the British Open from Derby. women’s title went to Canadian A mountainous task: Jon Amos climbed 3,000ft up the Great Gable
Amputee title for the seventh He fought off a 90-strong field Zdenka Kitagawa, a below- peak in the Lake District— in a wheelchair. Jon, 38, from Bitton’
consecutive time in July. from Canada, Denmark, the the-elbow amputee, who fin- who is paraplegic, managed the climb in just over nine hours, helpec
Nicholas, a below-the-knee USA, England, Scotland and ished two strokes ahead of Ada by a team of Hull prison officers. They raised £3,500 for the British l
amputee, built on a first Wales, to take victory in the Myers. Weightlifting Association of the Disabled, but managed to brea |
round lead of four strokes to Endolite-sponsored —_tourna- Zdenka has won the Cana- Jon’s wheelchair in the process. Jon said: “I don’t believe anyone ha
win the second round 19 ment at Staverton Park nine- dian Amputee Open Ladies’ | ever managed to climb a mountain in a wheelchair in this country
strokes ahead of joint runners stroke — golf course in Championship’ three times | before. It was desperately dangerous but you have to do outrageou!
up Robert McDermott of | Northamptonshire. since 1990. stunts like this to get any publicity.” i
H
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Appendix B of “RELIEF
won't be long before you see one driving by; such is the popularity of these vehicles. Choose from the 2.2i Petrol at £12,895 or 2.1 Diesel at £13,195. FROM VAT” as amended
in the 1993 Acts. Including
The NISSAN VANETTE VERSA is the newest in our range and offers an outstandin g combination of style, comfort and design innovations for th delivery, number plates
wheelchair passenger. Priced at £12,895 for a 2.3 Diesel with power steering. ‘ 3 He and assumes exemption
from road fund license.
T1h.9e DiResEelN AatU £L1T0, 69E5 XoTr Ra A1 .4: VPEeRtrSoAl ,a t > £a1l 1t,h1o9u5g.h the smallest in our fleet. , off offers a “b“ib ig vehicilcel”e ” rangran. e of design features to make t i j epe erienMceee!
, : 15 sled amen ania an MOTTABIALITLiaY IFIN ANCE
Available e iin n eietithhe r unlleaedaedde d petrol I or diesel versions. J l = = 2 _ . e ME
1“choicce omfomru nniutrysi ntgr ahnosmpeosr,t cahnadr iftaambillei eso rgaalinkies.a tions, , St A S Ci Ci b Sg
Speci COMFORT PACKW éhtions includ sunroofs; | he latest exciting addition to our range is the new\ <y
'e nwood RDS security stereo/radio cassette Ve rsa Cab - W Watch out for these Wheelchair
with S4 espneakheras, reaamdo tie econetrol soenice a larm, Fri° endly Taxis° after January ‘96 and if your locai l RENAULT
A eine os taxi ae hasn’t ordered one yet, show them this ad. SYotability
‘Winea s ae pe | They'll quickly see how they can have the edge over their
bf ae Lane,W idnes, Cheshire, competition if they can supply the needs of the vast Contact
Howard Samuels for a
Tel: [phone] wheelchair users market. Don’t struggle - demand a full information pack.
Fax: [phone] Certificate Number FS 33479 wheelchair friendly taxi. Prices from £16,300 on the road. Monday - Friday
9.00am - 5.30pm
DisabilityNow September 1996