Disability and impairment : working with children and families PDF
Preview Disability and impairment : working with children and families
Disability and Impairment bythesameauthor SocialWorkandDisadvantage AddressingtheRootsofStigmathroughAssociation EditedbyPeterBurkeandJonathanParker ISBN9781843103646 BrothersandSistersofDisabledChildren PeterBurke ISBN9781843100430 of relatedinterest DifferentDads Fathers’StoriesofParentingDisabledChildren EditedbyJillHarrison,MatthewHendersonandRobLeonard ForewordbyRt.Hon.DavidCameronMP ISBN9781843104544 MotheringSpecialNeeds ADifferentMaternalJourney AnnaKarinKingston ISBN9781843105435 ChildrenwithComplexandContinuingHealthNeeds TheExperiencesofChildren,FamiliesandCareStaff JaquiHewitt-Taylor ISBN9781843105022 SpecialBrothersandSisters StoriesandTipsforSiblingsofChildrenwithSpecialNeeds, DisabilityorSeriousIllness EditedbyAnnetteHamesandMonicaMcCaffrey ISBN9781843103837 TheViewsandExperiencesofDisabledChildrenandTheirSiblings APositiveOutlook ClareConnorsandKirstenStalker ISBN9781843101277 ParentalLearningDisabilityandChildren’sNeeds FamilyExperiencesandEffectivePractice HedyCleaverandDonNicholson ISBN9781843106326 PlanningandSupportforPeoplewithIntellectualDisabilities IssuesforCaseManagersandOtherProfessionals EditedbyChristineBigby,ChrisFyffeandElizabethOzanne ISBN9781843103547 PersonCentredPlanningandCareManagement withPeoplewithLearningDisabilities EditedbyPaulCambridgeandStevenCarnaby ISBN9781843101314 Disability and Impairment Working with Children and Families Peter Burke Jessica Kingsley Publishers London and Philadelphia Firstpublishedin2008 byJessicaKingsleyPublishers 116PentonvilleRoad LondonNl9JB,UK and 400MarketStreet,Suite400 Philadelphia,PA19106,USA www.jkp.com Copyright ©PeterBurke2008 Allrightsreserved.Nopartofthispublicationmaybereproducedinanymaterialform (includingphotocopyingorstoringitinanymediumbyelectronicmeansandwhetherornot transientlyorincidentallytosomeotheruseofthispublication)withoutthewritten permissionofthecopyrightownerexceptinaccordancewiththeprovisionsofthe Copyright,DesignsandPatentsAct1988orunderthetermsofalicenceissuedbythe CopyrightLicensingAgencyLtd,SaffronHouse,6–10KirbyStreet,LondonEC1N8TS. Applicationsforthecopyrightowner’swrittenpermissiontoreproduceanypartofthis publicationshouldbeaddressedtothepublisher. Warning:Thedoingofanunauthorisedactinrelationtoacopyrightworkmayresultinboth acivilclaimfordamagesandcriminalprosecution. LibraryofCongressCataloginginPublicationData Burke,Peter(PeterC.) Disabilityandimpairment:workingwithchildrenandfamilies/Peter Burke.--1st Americanpaperbacked. p.cm. Includesbibliographicalreferences. ISBN978-1-84310-396-7(pb:alk.paper)1.Socialworkwithchildrenwithdisabilities. 2. Childrenwithdisabilities--Familyrelationships. I.Title. HV888.B872008 362.4--dc22 2007033243 BritishLibraryCataloguinginPublicationData ACIPcataloguerecordforthisbookisavailablefromtheBritishLibrary ISBN9781843103967 ISBNpdfeBook9781846427534 PrintedandboundinGreatBritainby AthenaeumPress,Gateshead,TyneandWear Contents ACKNOWLEDGEMENTS:APROFESSIONALANDPERSONALDEDICATION 7 Introduction 9 1 Disability and Impairment: Theory and Practice 11 2 Stigma, Need and Service Provision 27 3 The Impact of Childhood Disability: The Family Experience 42 4 The Impact of Childhood Disability: Professional Understanding 59 5 Support Across Early Life Transitions 74 6 Siblings of Disabled Children 88 7 Listening to Children with Special Needs 102 8 Support Groups for Children and Young People 116 9 A Positive Framework for Empowerment and Inclusion in Social Care 128 APPENDIX:THERESEARCHPROCESS 143 REFERENCES 154 INDEX 163 Figures Figure2.1 Circleofinfluence:stigma,associativedisadvantage andpracticerelationships 32 Figure3.1 Ageatdiagnosisofdisability 44 Figure3.2 Typeofreporteddisabilityinchild 45 Figure4.1 Child-centredframework 66 FigureA.1 Familyinteractionmodelreflectingtheresearchstrategy 144 FigureA.2 Generalresearchdesign 149 FigureA.3 TheresultsfromTableA.1 153 Tables Table7.1 SpecialneedsintheYorkshiregroup 106 TableA.1 Responses 152 Acknowledgements: A Professional and Personal Dedication Iwouldliketodedicatethisbooktothosepeopleandorganisationsthat provided the opportunity to undertake a series of research studies that madethetextpossible.Iremaingratefultothesourcefundingprovided bytheChildren’sResearchFund,theNuffieldFoundation,andfunding derived,viatheUniversityofHull,fromtheHigherEducationFunding CouncilinEngland;withoutfinancialinputandencouragementduring theinitialstagesofinvestigationtheresearchcouldnothavebeencom- pleted.Iwasfortunatetobesupportedbythreecolleagues,KatyCigno, SueMontgomeryandBenFell,whowereemployedatdifferenttimesas research assistants and this is reflected in the publication of various reports as the research progressed and developed. However, the book would not have been written at all if my son, a previouslyhealthyandlivelychild,hadnot,followingtreatmenttocure leukaemia at the age of three in 1989, acquired severe brain injury, leavinghimspastic–quadriplegic.Thisencounterwithdisabilitychanged the life of my family. Further, my daughter, born during the time of her brother’streatment,laterreflectedacaringattitudetowardsherbrother whichinspiredthefiel dworkforthebookBrothersandSistersof Disabled Children (Burke 2004). Her younger brother was born three months prematurelyinNovember1990.He,attheageof18months,wasdiag- nosed with spastic diplegia, and at the time of writing uses a powered wheelchair to enable his mobility. My family experience motivated my research interest in understanding the situation of other families living with childhood disability. Mypersonaldedicationistomyfamily,Heathermypartner,andour children, Marc, Sammy and Joe. 7
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