DIETARYADHERENCEAMONGRURALAFRICAN-AMERICANELDERS WITHHYPERTENSION:ANETHNOGRAPHICAPPROACH By NANCYELLENSCHOENBERG ADISSERTATIONPRESENTEDTOTHEGRADUATESCHOOL OFTHEUNIVERSITYOFFLORIDAINPARTIALFULFILLMENT OFTHEREQUIREMENTSFORTHEDEGREEOF DOCTOROFPHILOSOPHY UNIVERSITYOFFLORIDA 1994 ACKNOWLEDGMENTS Iwishtoexpressmydeepestgratitudetoallwhohaveinstructedand encouragedmeduringthislongjourneytowardintellectualenlightenment. ChiefamongtheseisDr.LeslieSueLieberman,amentorandfriend,whoset meonthispathandofferedunfailingenthusiasm,support,andassistance alongtheway. Seldominlifedoesoneencountersuchunrelenting commitmenttohelpingpeoplereachtheirgoals. IsimilarlyacknowledgeDr. R.PaulDuncan'sinvaluableinvolvementinmyacademiccareer. Ihave benefitedfromoureveryinteraction,fromhissignificantclasstofuture researchinvolvements. Dr.OttovonMering'sscholarlycommitmentto boththedisciplineofanthropologyandtomany,manystudentshasenriched myacademicexperience. IwishtoexpressmyappreciationtoDr.Mickey Dougherty,whoisarolemodelwithherfinescholarship,unending encouragementandsupport,andunparalleledorganization. Throughout mystudies.Dr.ClaudiaProbarthasofferedvaluableinsightsandencouraging words. Finally,IamgratefultoDr.LindaB.Bc>broffforhergraciousand generousinvolvementwithmydoctoraldissertation. Allofthesecommittee membershaveofferedvaluableinsightsandhavebeenunderstandingand generouswiththeirprecioustime. Ialsowouldliketoacknowledgethe DepartmentofAnthropology,theCollegeofLiberalArtsandSciences,and theNationalScienceFoundationfortheirsupport. Onapersonallevel,Iwishtoacknowledgethecontributionsofall familyandfriendswho,overtheyears,havecontributedtomygrowthand 11 development. Withouttheinformational,instrumental,and,most importantly,affectivesupportofmyhusband,Mark,Iwouldnothave enjoyedthisdoctorate(aswellasmylife)nearlyasmuch. Markhasalso contributedtomywell-beingbycreatingandsharingintheraisingofour wonderfuldaughter,Rachel. Whileattimesmyproductivityhassuffered, thesetwoindividualshavehelpedkeeplifeinperspectiveforme. Ialsowish toexpressmylifelonggratitudetoourfamilies,particularlyourparents, grandparents,andsistersandtheirfamilies,whohavebeenunsurpassedin theirlove,timeandresourcecommitments,andinterestinourlives. Finally,Iwouldliketoacknowledgetheessentialcontributionsofthe studysample,withoutwhomthisdissertationwouldnotexist. Ihopethatby givingthemthelastwordinthiswork,Icanconvincethemofthe importanceoftheiropinionsandlives. iii TABLEOFCONTENTS page ACKNOWLEDGMENTS. ...ii-iii ABSTRACT vii-ix CHAPTERS 1 INTRODUCTION PurposeandApproachoftheStudy HypertensionEpidemiology ...1 Adherence ...2 Diet ...5 Hypotheses ...7 ResearchDesign ...8 ResearchMethods ..9 Summary 15 19 2 ADHERENCE ,20 STMtheueadsSyutraRteeemsueolfnttAsdohfeArdehnecreeRnecseearch ''7 ..2204 SUSnoudcmeimrosdateramyongdrianpghDiicetDaertyerAmdihnearnetnsceo:fATdhheerCehnaclelengeofModification ..,433168 44 3 DIETARYPATTERNS AEfatriincgana-sAameCrulitcuarnalDiIensttitution .45 .48 Fat 3ZZZZZZZZ .57 Salt DietaryChange .63 "Fresh": NotallIt’sCrackedUptoBe ..7730 SpecialDiets OtherFactorsInfluentialinDietarySelection ..7753 Obesity Summary .78 85 IV 4 AFRICAN-AMERICANHEALTHBELIEFS 87 TheConceptof"Traditional"HealthBeliefs 87 HypertensionandHighBloodPressure 89 Hyper-Tension HighBloodPressure HealthLocusofControl 103 Health"Knowledge"andAdherence IO7 Information Sources HO Media Hi SocialContacts H2 TheDebateover"Rationality"andtheCultureofPoverty 115 Summary H8 5 SOCIALSUPPORT HO Definitions I2i MeasurementIssues Hi TheStateofSocialSupportResearch 123 StructuralisticorFormalSupport IndividualisticorInformalSupport ...125 EvaluationsofIndividualisticandStructuralSocialSupport Classification H7 AAffrriiccaann--AAmmeerriiccaannSHoocuisalehSoulpdpoSrttructure "!.!.!"!!!ll3325 EvaluationsofSocialSupport 1...139 StudyResults H3 Summary 6 ECONOMICACCESSTOHEALTHRESOURCES 150 BarrierstoAdherence H2 TheConnectionbetweenLowSES,HBP,andbeingAfrican- American 1^1 AffordabilityofMedicalRecommendations 164 EnablersofMedicalCare I57 StudyStudy'sAccesstoHealthCareProfessionals 176 SAcucmemssartoyCareVersusUtilization !!l."...."l78 IgQ 7 PATIENT-PRACTITIONERRELATIONS 182 HealingSpecialists H3 StudyingPatient/PhysicianRelations 184 TThheeSPtartuicetnutr-ePhaynsdicNiaatnuRreelaotfiPonhsyhsiipc'isanReVilseivtasncetoAdherence ...119805 V Physicians’Characteristics TheImportanceofBeingSatisfied Summary 205 8 CONCLUDINGSUMMARYANDRECOMMENDATIONS 207 SummaryofFindings 207 Recommendations 212 APPENDICES AB.. SIUNMSMTRAURMYENOTFSINFORMANTINFORMATION ."!.1....""!!Z."221293 REFERENCES 225 BIOGRAPHICALSKETCH oaq vi AbstractofDissertationPresentedtotheGraduateSchool oftheUniversityofFloridainPartialFulfillmentofthe RequirementsfortheDegreeofDoctorofPhilosophy DIETARYADHERENCEAMONGRURALAFRICAN-AMERICANELDERS WITHHYPERTENSION: ANETHNOGRAPHICAPPROACH By NancyEllenSchoenberg December,1994 Chairman: LeslieSueLieberman MajorDepartment: Anthropology Thisstudyassessedtheinfluencesofeconomic,socialandcultural variablesonprescribeddietarybehaviorsinchronichypertension managementamongforty-oneruralsouthernAfrican-Americansoverage 65. Despitetheoverwhelmingprevalenceofhypertension-relatedmorbidity andmortalitywithinthisstudy,researcheffortstendtobefragmented, interventionsinappropriate,andadherencetorecommendationsreportedly limited. Adherencewasevaluatedthroughatwenty-fourhourdietaryrecall andafoodfrequency inventory,physicians’opinionsandweightcharts. Vll Outcomeswereplacedonanordinalscaleand,usingstandardtestsof association,werecorrelatedwithHealthBeliefModel-basedvariablesand others. Suchvariablesincludesociodemographicfactors,treatmentduration, healthbeliefsandlocusofcontrol,socialsupport,medicalcareaccessand patient/practitionerrelations. Instrumentsincludeethnomedicalopen- endedquestionnaires,theNorbeckandIPRIsocialsupportscales,andtwo Likertscaleinstrumentsmeasuringhealthlocusofcontroland patient/practitionerrelations. Statisticalanalysesandethnographicinterviewsrevealhigheroverall adherencetodietaryrecommendationsthanreportedinmostresearch. Nearlytwo-thirdsofthestudysamplemettheirphysicians'guidelinesfor weightreductionandfatintake; however,fewerthanone-thirdsuccessfully limitedtheirsodiumintake. Thedataindicatefewsignificantassociations,probablyduetofactors associatedwithsmallsamplesize. Ofthesociodemographicvariables,only educationhasasignificantpositivecorrelationwithadherence. Treatment durationisinverselyrelatedtothelevelofadherence. Theinfluenceof healthbeliefsondietarychoicesiscomplexbecausestudymembersmaintain both"traditional"andbiomedicalhealthorientationsandbehaviors. While physicians'carewashighlyappraised,therewasnoassociationbetween dietaryadherencelevelandassessmentofthepractitioneroraccesstohealth facilities. Similarly,whilestudyparticipantspositivelyevaluatesocial support,statisticalassociationbetweenadherenceandperceptionofsupport wasonlyfoundifthefamilymemberorfriendisahealthcareprofessional. Theauthorconcludesbyissuingsubstantiveandculturallyappropriate recommendationstoresearchers,policymakers,andhealthcareprofessionals Vlll designedtofacilitatetreatmentadherenceandreducetherisksof hypertension-relatedmorbidityandmortality. IX CHAPTER 1 INTRODUCTION PurposeandApproachoftheStudy Forcenturies,anthropologistshavebeenengagedinthecollection, recording,andanalysisofinformationaboutvarioussocietiesandpeoples. In sodoing,theymaybetestingnewhypothesesorre-testingonestheybelieve lackvalidityduetoculturalchangeorinadequateresearchdesign. Alternatively,ethnographersmayseektodeterminetheapplicabilityof anthropologicalprinciplesorideastoaculturewiththeultimategoalof achieving"practicalends"forthebettermentofpeople. Increasingly, contemporarysocialscientistshaverecognizedthenecessityofachieving suchimprovementsbyundertaking mulitdisciplinaryapproaches,or studyingtheentire"problem"orissue.Usingabroadrangeof anthropologicalandothermethods,Ihaveattemptedtoconstructamore comprehensive"ethnographyofadherence"toanti-hypertensivedietary recommendations. Likemoretraditionalethnographies,Ihaveundertakenamultifaceted investigationofthepossibleconsiderationsinvolvedinhealthdecision- making. Specifically,Ihavechosentoinvestigate factorsthatinfluence whetherolderruraldwellingAfrican-Americanlhypertensivesfollowtheir doctors'recommendationsondietandweightcontrol. ^Throughoutthisdissertation,Ialternatebetweentheterms"African- American"and"black." Whiletheformerisgenerallyacceptedinthe scholarlycommunity,participantsinmystudypreferthelatter. Tothem, "African-American"impliesadirectconnectiontoAfricaevocativeof 1