DIABETES SELF-CARE ACTIVITIES IN OLDER ADULTS AND THE ABILITY OF A NUTRITION AND DIABETES EDUCATION PROGRAM TO EFFECT CHANGE by ELIZABETH H. REDMOND (Under the Direction of Mary Ann Johnson) ABSTRACT This study was designed to test several hypotheses related to diabetes translation in elders participating in Georgia’s Older Americans Nutrition Program (OANP). OANP populations are at high risk for diabetes because of advanced age, low income, and minority group status (ASA, 2003; Boyle et al., 2002; Ponza et al., 1996). This study evaluates four primary hypotheses for OANP participants with diabetes: 1) higher frequencies of diabetes self-care practices, positive health beliefs, and certain demographic variables would be associated with lower blood A1C at baseline in OANP participants with diabetes; 2) a nutrition and diabetes education program delivered at senior centers would increase the frequency of diabetes self-care activities; 3) improvements in diabetes self-care practices would be associated with decreases in blood A1C following an educational intervention; and 4) healthcare providers would report patients’ lack of ability to follow self-care behaviors, as well as their lack of confidence in facilitating change, as a barrier. Older adult participants with diabetes were a convenience sample (n = 105) of OANP participants with a mean age 73 years (58% Caucasian, 42% African American, 70% women, and 29% with < 8 years of education). Twenty-five percent of participants had an A1C blood value > 8% (poor control). In regard to diabetes self-care activities, participants were most likely to be compliant (> 5 days per week) with medication use (97%); moderately compliant with diet, glucose testing, and daily foot checks (49% to 65%); and least compliant with exercise and foot wear inspections (37% to 39%). More than half of the participants (60%) agreed that their lack of understanding of the diabetes diet was a barrier to them. Following the intervention, compliance (> 5 days/week) substantially increased from baseline for participants following a healthful diet, following an eating plan, avoiding high fat foods, spacing carbohydrates, testing blood sugar as recommended by their health care provider and inspecting shoes (p < .05). Decreases in A1C among those with an initial A1C > 7% were correlated with post-intervention self-care activities and/or increases in self-care activities related to consuming 5 servings of fruits and vegetables a day, spacing carbohydrates, physical activity, and checking shoes and feet (p < .05). Healthcare providers rated their older adult patients’ ability to undertake specific diabetes related activities as a barrier to care. Overall, providers were much more confident in their own ability to give instructions or examinations than in facilitating actual change. INDEX WORDS: A1C, Older Americans Nutrition Program (OANP), Elderly, Diabetes Self-Care Activities, diabetes translation, glucose testing, foot care, eating plan. DIABETES SELF-CARE ACTIVITIES IN OLDER ADULTS AND THE ABILITY OF A NUTRITION AND DIABETES EDUCATION PROGRAM TO EFFECT CHANGE by ELIZABETH H. REDMOND B.S. TEXAS CHRISTIAN UNIVERSITY, 1986 M.M.Sc. EMORY UNIVERSITY, 1989 A Dissertation Submitted to the Graduate Faculty of The University of Georgia in Partial Fulfillment of the Requirements for the Degree DOCTOR OF PHILOSOPHY ATHENS, GEORGIA 2004 © 2004 Elizabeth H. Redmond All Rights Reserved DIABETES SELF-CARE ACTIVITIES IN OLDER ADULTS AND THE ABILITY OF A NUTRITION AND DIABETES EDUCATION PROGRAM TO EFFECT CHANGE by ELIZABETH H. REDMOND Major Professor: Mary Ann Johnson Committee: Nancy L. Canolty Joan G. Fischer James L. Hargrove Mary Ellen Quinn Electronic Version Approved: Maureen Grasso Dean of the Graduate School The University of Georgia May 2004 DEDICATION Zoe, Molly and Reese. iv ACKNOWLEDGEMENTS I would like to thank my major Professor Dr. Mary Ann Johnson. You did a wonderful job of accommodating the life I brought to school. I would also like to thank everyone in the lab for all their help, it has been a wonderful place to work because of you. My committee members have also been helpful and supportive, thank you. Most of all I must thank all of the family and friends who have provided moral support, child care and friendship through this academic undertaking. I would never have made it without all the resources and support available and offered to me. I would specifically like to thank my parents who have been extremely supportive, even though I am too old to still be in school. Lastly, I would like to acknowledge and thank my wonderful husband and daughters, I Love You! And the fur bus was fun too! v TABLE OF CONTENTS Page ACKNOWLEDGEMENTS.............................................................................................................v LIST OF TABLES.......................................................................................................................viii CHAPTER 1 INTRODUCTION.........................................................................................................1 2 LITERATURE REVIEW..............................................................................................7 THE BURDEN OF DIABETES...............................................................................8 GLYCOSYLATED HEMOGLOBIN.......................................................................9 DIABETES SELF-MANAGEMENT.....................................................................15 SPECIAL CONCERNS OF OLDER ADULTS.....................................................21 ASSESSMENTS TOOLS IN DIABETES RESEARCH…………………….…...24 OLDER AMERICANS NUTRITION PROGRAM (OANP).................................32 PROPOSED STUDY: RATIONALE, SPECIFIC AIMS, HYPOTHESIS AND DESIGN…………………………………………………...33 REFERENCES........................................................................................................38 3 CHARACTERSTICS, DIABETES SELF-CARE ACTIVITIES, HEALTH BELIEFS AND A1C CONTROL IN OLDER ADULTS ATTENDING GEORGIA’S OLDER AMERICANS NUTRITION PROGRAMS...........................50 vi 4 CHANGES IN DIABETES SELF-CARE ACTIVITIES FOLLOWING A NUTRITION AND DIABETES EDUCATION PROGRAM IN GEORGIA’S OLDER AMERICANS NUTRITION PROGRAMS……………………………..…72 5 GEORGIA HEALHCARE PROVIDERS’ PERCEPTIONS OF DIABETES SELF-CARE ACTIVITIES IN OLDER ADULTS.....................................................95 6 SUMMARY...............................................................................................................107 APPENDICES A DIABETES TRANSLATION FRAMEWORK........................................................115 B UPDATED “EAT WELL, LIVE WELL” CONSENT FORM.................................117 C ORIGINAL “EAT WELL, LIVE WELL” CONSENT FORM.................................120 D ORIGINAL “EAT WELL, LIVE WELL” QUESTIONNAIRE...............................124 E REVISED “EAT WELL, LIVE WELL” QUESTIONNAIRE……………………..145 F “EAT WELL, LIVE WELL” FLYER ……………………………………………..149 G HEALTH CARE PROVIDER QUESTIONNAIRE …………………………….…151 H INDIVIDUAL DIABETES SELF-CARE ACTIVITIES AND DOMAINS............156 I HEALTH CARE PROVIDER RECOMMENDATIONS.........................................172 J STAGES OF CHANGE.............................................................................................182 vii LIST OF TABLES Page Table 3.1: RELATIONSHIP OF DEMOGRAPHIC AND DIABETES CHARACTERSTICS TO A1C BLOOD LEVELS......................................................67 Table 3.2: A1C RANGE, MEANS AND LEVEL OF CONTROL FOR EACH AGE GROUP............................................................................................68 Table 3.3: RELATIONSHIP OF SDSCA QUESTIONS TO LEVELS OF CONTROL FOR A1C BLOOD VALUES.............................................................69 Table 3.4: RELATIONSHIP OF PARTICIPANTS WHO AGREE OR DISAGREE WITH THE HEALTH BELIEFS IN EACH LEVEL OF CONTROL FOR A1C BLOOD VALUES.......................................................................................71 Table 4.1: BASELINE DEMOGRAPHICS..................................................................................91 Table 4.2: MEANS AND PERCENTS OF SELF-CARE ACTIVITIES FOR ALL PARTICIPANTS AND THOSE WITH LOW COMPLIANCE...................................92 Table 4.3: CORRELATIONS OF CHANGE IN SDSCA WITH CHANGES IN A1C FOR PARTICIPANTS WITH BASELINE A1C >7 %........................................94 Table 5.1: HEALTHCARE PROVIDERS REPORTS’ OF THE IMPORTANCE OF DIABETES SEFL-CARE ACTIVITIES..............................................................105 Table 5.2: HEALTHCARE PROVIDERS’ AND OLDER ADULTS’ PERCEPTIONS OF BARRIERS TO SELF-CARE ACTIVITIES..............................................................106 Table 6.1: SDSCA DOMAIN SCORES......................................................................................167 viii
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