Dementia And Social Inclusion: Marginalised Groups And Marginalised Areas Of Dementia Research, Care And Practice PDF
Preview Dementia And Social Inclusion: Marginalised Groups And Marginalised Areas Of Dementia Research, Care And Practice
Dementia and Social Inclusion of related interest Healing Arts Therapies and Person-centred Dementia Care Edited by Anthea Innes and Karen Hatfield Bradford Dementia Group Good Practice Guides ISBN 1 84310 038 X Training and Development for Dementia Care Workers Anthea Innes Bradford Dementia Group Good Practice Guides ISBN 1 85302 761 8 Understanding Dementia The Man with the Worried Eyes Richard Cheston and Michael Bender ISBN 1 85302 479 1 Hearing the Voice of People with Dementia Opportunities and Obstacles Malcolm Goldsmith Preface by Mary Marshall ISBN 1 85302 406 6 Social Work and Dementia Good Practice and Care Management Margaret Anne Tibbs Foreword by Murna Downs ISBN 1 85302 904 1 The Perspectives of People with Dementia Research Methods and Motivations Edited by Heather Wilkinson ISBN 1 84310 001 0 Creative Writing in Health and Social Care Edited by Fiona Sampson Foreword by Christina Patterson ISBN 1 84310 136 X Ageing, Spirituality and Well-being Edited by Albert Jewell ISBN 1 84310 167 X Dementia and Social Inclusion Marginalised Groups and Marginalised Areas of Dementia Research, Care and Practice Edited by Anthea Innes, Carole Archibald and Charlie Murphy Jessica Kingsley Publishers London and Philadelphia All rights reserved. No part ofthis publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use ofthis publication) without the written permission ofthe copyright owner except in accordance with the provisions ofthe Copyright, Designs and Patents Act 1988 or under the terms ofa licence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road, London, England W1T 4LP. Applications for the copyright owner’s written permission to reproduce any part of this publication should be addressed to the publisher. Warning: The doing ofan unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. The right ofthe contributors to be identified as authors ofthis work has been asserted by them in accordance with the Copyright, Designs and Patents Act 1988. First published in 2004 by Jessica Kingsley Publishers 116 Pentonville Road London N1 9JB, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright © Jessica Kingsley Publishers 2004 Library ofCongress Cataloging in Publication Data Dementia and social inclusion : marginalised groups and marginalised areas ofdementia research, care and practice / edited by Anthea Innes, Carole Archibald and Charlie Murphy. p. cm. Includes bibliographical references and index. ISBN 1-84310-174-2 (pbk.) 1. Dementia--Patients--Care. 2. Dementia--Patients--Services for. I. Innes, Anthea. II. Archibald, Carole. III. Murphy, Charlie, 1960- RC521.D45335 2004 616.8'3--dc22 2004010960 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library ISBN-13: 978 1 84310 174 1 ISBN-10: 1 84310 174 2 ISBN pdfeBook: 1 84642 025 3 Printed and Bound in Great Britain by Athenaeum Press, Gateshead, Tyne and Wear For Colin Bell, an inspirational social scientist and mentor Acknowledgements Thanks to the British Academy and Janssen-Cilag for their sponsorship of the symposium that led to the book. In addition there are three people who in particular have influenced the production of this book. The first is the late Colin Bell who helped nurture the initial idea for this book, perhaps without realising he did so. We would like to thank Alison Bowes for overseeingtheeditingprocessofthebookduringAntheaInnes’ maternityleaveandJenniferGordon forherexcellentsecretarial support. Editors’ Note Names and personal details of the subjects of the case studies in this book have been changed to protect the identity of those involved. Contents Introduction 11 Anthea Innes, Carole Archibald and Charlie Murphy, University of Stirling PART 1: Dementia and Social Change 1. Dementia and Social Change: Views from a Sociologist of the Community 21 Colin Bell, University of Stirling 2. Rural Communities 32 Anthea Innes, University of Stirling, and Kirsty Sherlock, Macaulay Institute 3. Improving Domiciliary Care for People with Dementia and their Carers: The Raising the Standard Project 50 Noni Cobban, University of Stirling PART 2: Marginalised Socio-Cultural Issues in Dementia 4. The Role of Spirituality in Providing Care to Dependent Elders among African American Family Caregivers 69 Peggye Dilworth-Anderson, University of North Carolina at Chapel Hill 5. Death and Dying 84 Sylvia Cox, University of Stirling, and Karen Watchman, Scottish Down’s Syndrome Association 6. Sexuality and Dementia: Beyond the Pale? 96 Carole Archibald PART 3: Marginalised Dementia Care Issues 7. Faecal Incontinence 113 Christian Müller-Hergl, Meinwerk-Institut, Germany 8. Social Exclusion (and Inclusion) in Care Homes 123 Errollyn Bruce, University of Bradford 9. Risk Taking 137 Jill Manthorpe, King’s College London PART 4: Representations and Re-Presentations of People with Dementia 10. Top-Dogs and Under-Dogs: Marginalising Problematic Voices 153 Rik Cheston, Avon and Wiltshire Mental Health Partnership 11. Images, Constructs, Theory and Method: Including the Narrative of Dementia 169 Gillian McColgan, University of Stirling 12. Reaching Out with the Arts: Meeting with the Person with Dementia 184 Claire Craig, Sheffield Hallam University Postscript by John Killick, University of Stirling PART 5: Future Directions 13. Medical Perspectives 201 Michael Bradbury, Newcastle General Hospital, Clive Ballard, King’s College London, and Andrew Fairbairn, Newcastle, North Tyneside and Northumberland Mental Health NHS Trust 14. Social Science Theory on Dementia Research: Normal Ageing, Cultural Representation and Social Exclusion 220 John Bond, Lynne Corner and Ruth Graham, University of Newcastle
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