Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis PDF
Preview Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis
Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis Committee on Improving the Quality of Cancer Care: Addressing the Challenges of an Aging Population Board on Health Care Services Laura Levit, Erin Balogh, Sharyl Nass, and Patricia A. Ganz, Editors Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001 NOTICE: The project that is the subject of this report was approved by the Governing Board of the National Research Council, whose members are drawn from the councils of the National Academy of Sciences, the National Academy of Engineering, and the Institute of Medicine. The members of the committee responsible for the report were chosen for their special competences and with regard for appropriate balance. This study was supported by Contract Nos. HHSN261200900003C and 200-2011-38807, TO #13 between the National Academy of Sciences and the National Cancer Institute and the Centers for Disease Control and Prevention. This study was also supported by AARP; the American Cancer Society; the American College of Surgeons, Commission on Cancer; the American Society for Radiation Oncology; the American Society of Clinical Oncology; the American Society of Hematology; the California HealthCare Foundation; LIVESTRONG; the National Coalition for Cancer Survivorship; the Oncology Nursing Society; and Susan G. Komen for the Cure. Any opinions, findings, conclusions, or recommendations expressed in this publication are those of the author(s) and do not necessarily reflect the view of the organizations or agencies that provided support for this project. ISBN 978-0-309-28660-2 Additional copies of this report are available from the National Academies Press, 500 Fifth Street, NW, Keck 360, Washington, DC 20001; (800) 624-6242 or (202) 334-3313; http://www.nap.edu. For more information about the Institute of Medicine, visit the IOM home page at: www.iom.edu. Copyright 2013 by the National Academy of Sciences. All rights reserved. Printed in the United States of America The serpent has been a symbol of long life, healing, and knowledge among almost all cultures and religions since the beginning of recorded history. The serpent adopted as a logotype by the Institute of Medicine is a relief carving from ancient Greece, now held by the Staatliche Museen in Berlin. Cover credit: Original oil painting, “Day 15 Hope,” reproduced by permission from Sally Loughridge, Rad Art: A Journey Through Radiation Treatment (Atlanta: American Cancer Society, 2012), 31. Suggested citation: IOM (Institute of Medicine). 2013. Delivering high-quality cancer care: Charting a new course for a system in crisis. Washington, DC: The National Academies Press. Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis The National Academy of Sciences is a private, nonprofit, self-perpetuating society of distinguished scholars engaged in scientific and engineering research, dedicated to the furtherance of science and technology and to their use for the general welfare. Upon the authority of the charter granted to it by the Congress in 1863, the Academy has a mandate that requires it to advise the federal government on scientific and technical matters. Dr. Ralph J. Cicerone is president of the National Academy of Sciences. The National Academy of Engineering was established in 1964, under the charter of the National Academy of Sciences, as a parallel organization of outstanding engineers. It is autonomous in its administration and in the selection of its members, sharing with the National Academy of Sciences the responsibility for advising the federal government. The National Academy of Engineering also sponsors engineering programs aimed at meeting national needs, encourages education and research, and recognizes the superior achievements of engineers. Dr. C. D. Mote, Jr., is president of the National Academy of Engineering. The Institute of Medicine was established in 1970 by the National Academy of Sciences to secure the services of eminent members of appropriate professions in the examination of policy matters pertaining to the health of the public. The Institute acts under the responsibility given to the National Academy of Sciences by its congressional charter to be an adviser to the federal government and, upon its own initiative, to identify issues of medical care, research, and education. Dr. Harvey V. Fineberg is president of the Institute of Medicine. The National Research Council was organized by the National Academy of Sciences in 1916 to associate the broad community of science and technology with the Academy’s purposes of furthering knowledge and advising the federal government. Functioning in accordance with general policies determined by the Academy, the Council has become the principal operating agency of both the National Academy of Sciences and the National Academy of Engineering in providing services to the government, the public, and the scientific and engineering communities. The Council is administered jointly by both Academies and the Institute of Medicine. Dr. Ralph J. Cicerone and Dr. C. D. Mote, Jr., are chair and vice chair, respectively, of the National Research Council. www.national-academies.org Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis COMMITTEE ON IMPROVING THE QUALITY OF CANCER CARE: ADDRESSING THE CHALLENGES OF AN AGING POPULATION PATRICIA A. GANZ, (Chair), Distinguished University Professor, University of California, Los Angeles Schools of Medicine & Public Health, and Director, Cancer Prevention & Control Research, Jonsson Comprehensive Cancer Center HARVEY JAY COHEN, Walter Kempner Professor of Medicine, and Director, Center for the Study of Aging and Human Development, Duke University Medical Center TIMOTHY J. EBERLEIN, Bixby Professor and Chair, Department of Surgery, Washington University School of Medicine; Spencer T. and Ann W. Olin Distinguished Professor; and Director, Siteman Cancer Center at Barnes-Jewish Hospital, Washington University School of Medicine THOMAS W. FEELEY, Helen Shafer Fly Distinguished Professor of Anesthesiology, Head, Institute for Cancer Care Innovation, and Head, Division of Anesthesiology and Critical Care, The University of Texas MD Anderson Cancer Center BETTY R. FERRELL, Professor and Research Scientist, City of Hope National Medical Center JAMES A. HAYMAN, Professor, Department of Radiation Oncology, University of Michigan KATIE B. HORTON, Research Professor, George Washington University, School of Public Health and Health Services ARTI HURRIA, Associate Professor, and Director, the Cancer and Aging Research Program, City of Hope MARY S. MCCABE, Director, Survivorship Program, and Lecturer, Division of Medical Ethics, Weill Medical College, Memorial Sloan-Kettering Cancer Center MARY D. NAYLOR, Marian S. Ware Professor in Gerontology, and Director, New Courtland Center for Transitions and Health, University of Pennsylvania, School of Nursing LARISSA NEKHLYUDOV, Associate Professor, Department of Population Medicine, Harvard Medical School, and Internist, Department of Medicine, Harvard Vanguard Medical Associates MICHAEL N. NEUSS, Chief Medical Officer, and Professor, Department of Medicine, Vanderbilt- Ingram Cancer Center, Vanderbilt University Medical Center NOMA L. ROBERSON, Cancer Research Scientist, Roswell Park Cancer Institute (Retired) YA-CHEN TINA SHIH, Associate Professor, Section of Hospital Medicine, and Director, Program in the Economics of Cancer, Department of Medicine, The University of Chicago GEORGE W. SLEDGE, JR., Chief of Oncology, Department of Medicine, Stanford University THOMAS J. SMITH, Director and Harry J. Duffey Family Professor of Palliative Medicine and Professor of Oncology, Johns Hopkins School of Medicine NEIL S. WENGER, Professor, University of California, Los Angeles, School of Medicine Study Staff LAURA LEVIT, Study Director ERIN BALOGH, Associate Program Officer PAMELA LIGHTER, Research Assistant MICHAEL PARK, Senior Program Assistant PATRICK BURKE, Financial Associate SHARYL NASS, Director, National Cancer Policy Forum ROGER HERDMAN, Director, Board on Health Care Services Consultants DANIEL MASYS, Affiliate Professor, Biomedical and Health Informatics, University of Washington TRACY SPINKS, Project Director, The University of Texas MD Anderson Cancer Center v Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis VICKIE WILLIAMS, Project Coordinator, Young Breast Cancer Survivorship Program, UCLA-LIVESTRONG Survivorship Center of Excellence, Jonsson Comprehensive Cancer Center vi Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis REVIEWERS This report has been reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise, in accordance with procedures approved by the National Research Council's Report Review Committee. The purpose of this independent review is to provide candid and critical comments that will assist the institution in making its published report as sound as possible and to ensure that the report meets institutional standards for objectivity, evidence, and responsiveness to the study charge. The review comments and draft manuscript remain confidential to protect the integrity of the deliberative process. We wish to thank the following individuals for their review of this report: ROBERT M. ARNOLD, UPMC Palliative and Supportive Institute EDWARD J. BENZ, JR., Harvard Medical School and Dana-Farber Cancer Institute AMY BERMAN, John A. Hartford Foundation CATHY BRADLEY, Virginia Commonwealth University DEBORAH BRUNER, Emory University KAREN S. COOK, Stanford University DEBRA GORDON, University of Washington School of Medicine DEBRA J. HOLDEN, RTI International J. RUSSELL HOVERMAN, The U.S. Oncology Network and Texas Oncology, P.A. CARLOS ROBERTO JAÉN, University of Texas Health Science Center at San Antonio School of Medicine KENNETH W. KIZER, University of California, Davis RUTH McCORKLE, Yale University School of Nursing DIANE E. MEIER, Mount Sinai School of Medicine LEE NEWCOMER, UnitedHealthcare DAVID B. REUBEN, University of California, Los Angeles LAWRENCE N. SHULMAN, Dana-Farber Cancer Institute EDWARD H. WAGNER, Group Health Research Institute Although the reviewers listed above have provided many constructive comments and suggestions, they were not asked to endorse the conclusions or recommendations nor did they see the final draft of the report before its release. The review of this report was overseen by HAROLD C. SOX, Dartmouth Institute for Health Policy and Clinical Practice, and PATRICIA FLATLEY BRENNAN, University of Wisconsin–Madison. Appointed by the National Research Council and Institute of Medicine, they were responsible for making certain that an independent examination of this report was carried out in accordance with institutional procedures and that all review comments were carefully considered. Responsibility for the final content of this report rests entirely with the authoring committee and the institution. vii Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis Copyright © National Academy of Sciences. All rights reserved. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis ACKNOWLEDGMENTS The committee and staff are indebted to a number of individuals and organizations for their contributions to this report. The following individuals conducted background research for the committee: Lindsay Forbes, Intern, Institute of Medicine (Summer 2011) Randy Gale, Fellow, Institute of Medicine (2010-2011) Ana Hincapie, Mirzayan Science and Technology Fellow, Institute of Medicine (Winter 2012) Adam Schickedanz, Intern, Institute of Medicine (Summer 2012) We extend thanks to Eric Slade and Eric Slade Productions for working with the committee to produce the dissemination video for this report. We also extend special thanks to the following individuals who were essential sources of information, generously giving their time and knowledge to further the committee’s efforts. Peter Bach, Attending Physician, Memorial Sloan-Kettering Cancer Center Dikla Benzeevi, 11-year Metastatic Breast Cancer Survivor, Breast Cancer Patient Advocate Amy Berman, Senior Program Officer, Hartford Foundation Helen Burstin, Senior Vice President for Performance Measures, National Quality Forum Eric Fennel, Senior Advisor of Policy and Programs, Center for Medicare and Medicaid Innovation John Frenzel, Chief Medical Information Officer, MD Anderson Cancer Center Kristen McNiff, Director, Quality and Performance Measurement, American Society of Clinical Oncology Mark Miller, Executive Director, MedPAC Stephen Palmer, Director, Office of e-Health Coordination, Texas Health and Human Services Commission Maddie Peterson, Cancer Survivor Willie C. Roberson, Clergyman/Pastor, Saint's Home Church of God in Christ Joesph V. Simone, President, Simone Consulting Ron Walters, Associate Vice President of Medical Operations and Informatics, The University of Texas MD Anderson Cancer Center Peter Yu, Chair, Health Information Technology Work Group, American Society of Clinical Oncology In addition, we thank the individuals who spoke at the October 2012 National Cancer Policy Forum workshop, Delivering Affordable Cancer Care in the 21st Century. Workshop presentations and discussions informed committee deliberations. Speakers included Denise R. Aberle, Professor of Radiology and Bioengineering, David Geffen School of Medicine, University of California, Los Angeles Amy P. Abernethy, Associate Professor, Duke University School of Medicine Peter B. Bach, Attending Physician, Memorial Sloan-Kettering Cancer Center Justin E. Bekelman, Assistant Professor of Radiation Oncology, Member, Abramson Cancer Center Otis W. Brawley, Chief Medical Officer, American Cancer Society Renzo Canetta, Vice President, Oncology Global Clinical Research, Bristol-Myers Squibb Company Susan Dentzer, Editor-in-Chief, Health Affairs ix Copyright © National Academy of Sciences. All rights reserved.
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