Routledge Advances in Health and Social Policy DEATH, GRIEF AND LOSS IN THE CONTEXT OF COVID-19 Edited by Panagiotis Pentaris Death, Grief and Loss in the Context of COVID-19 This book provides detailed analysis of the manifold ways in which COVID-19 has influenced death, dying and bereavement. Through three parts: Reconsidering Death and Grief in Covid-19; Institut- ional Care and Covid-19; and the Impact of COVID-19 in Context, the book explores COVID-19 as a reminder of our own and our communities’ fragile existence, but also the driving force for discovering new ways of meaning- making, performing rites and rituals, and conceptualising death, grief and life. Contributors include scholars, researchers, policymakers and practitioners, accumulating in a multi-disciplinary, diverse and international set of ideas and perspectives that will help the reader examine closely how Covid-19 has invaded social life and (re)shaped trauma and loss. It will be of interest to all scholars and students of death studies, biomedicine, and end of life care as well as those working in sociology, social work, medicine, social policy, cultural studies, anthropology, psychology, counselling and nursing more broadly. Panagiotis Pentaris is an Associate Professor of Social Work and Thanatology in the School of Human Sciences at the University of Greenwich, London, England, UK, where he is also a member of the Institute for Lifecourse Development, an internationally recognised Institute focusing on inter- disciplinary research across the lifespan. Pentaris is a council member for the Association for the Study of Death and Society, and over the last ten years he has researched and published on death, dying, bereavement, culture and religion, social work, social policy and LGBTQIA+ issues. Routledge Advances in Health and Social Policy Effective Interventions for Unemployed Young People in Europe Social Innovation or Paradigm Shift? 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All rights reserved. No part of this book may be reprinted or reproduced or utilised in any form or by any electronic, mechanical, or other means, now known or hereafter invented, including photocopying and recording, or in any information storage or retrieval system, without permission in writing from the publishers. Trademark notice: Product or corporate names may be trademarks or registered trademarks, and are used only for identification and explanation without intent to infringe. British Library Cataloguing-in-Publication Data A catalogue record for this book is available from the British Library Library of Congress Cataloging-in-Publication Data Names: Pentaris, Panagiotis, editor. Title: Death, grief and loss in the context of COVID-19 / edited by Panagiotis Pentaris. Description: Abingdon, Oxon ; New York, NY : Routledge, 2021. | Series: Routledge advances in health and social policy | Includes bibliographical references and index. Identifiers: LCCN 2021005383 (print) | LCCN 2021005384 (ebook) Subjects: LCSH: Death. | Loss (Psychology) | Grief. | COVID-19 (Disease)--Psychological aspects. Classification: LCC HQ1073 .D425 2021 (print) | LCC HQ1073 (ebook) | DDC 155.9/37--dc23 LC record available at https://lccn.loc.gov/2021005383 LC ebook record available at https://lccn.loc.gov/2021005384 ISBN: 978-0-367-64732-2 (hbk) ISBN: 978-0-367-64739-1 (pbk) ISBN: 978-1-003-12599-0 (ebk) Typeset in Times New Roman by MPS Limited, Dehradun In memory of Maria Yerosimou Your smile, grace, love and kindness are kept in my heart. You shan’t be forgotten. Contents List of Figures xiii List of Tables xiv List of Contributors xv Acknowledgements xxii List of Abbreviations xxiii Introduction: capturing the beginning of a long journey of loss, trauma and grief 1 PANAGIOTIS PENTARIS Referring to SARS-CoV-2 and Covid-19 5 Part I: Reconsidering death and grief in Covid-19 6 Part II: Institutional care and Covid-19 8 Part III: Impact of Covid-19 in context 10 References 12 PART I Reconsidering death and grief in Covid-19 15 1 Familiarity with death 17 PANAGIOTIS PENTARIS AND KATE WOODTHORPE Introduction 17 The pre-Covid-19 visibility of death 18 The visibility of death in the face of the pandemic 20 Inequalities 22 A politicisation of death 23 Conclusion 24 Notes 24 References 24 viii Contents 2 Grief in the COVID-19 pandemic 29 KENNETH J. DOKA Introduction 29 COVID-19 in context 30 Populations at risk for grief in the pandemic 31 Coping with grief 34 Interventive approaches 36 Conclusion 38 References 38 3 Apocalypse now: COVID-19 and the crisis of meaning 40 ROBERT A. NEIMEYER, EVGENIA MILMAN, AND SHERMAN A. LEE Anxiety in the context of COVID-19 41 Coronavirus Anxiety Scale (CAS) 42 Grief in the time of corona 44 Pandemic Grief Scale (PGS) 46 From screening to meaning: prescriptions for practice 51 Coda 54 References 54 4 Physically distant but socially connected: streaming funerals, memorials and ritual design during COVID-19 60 STACEY PITSILLIDES AND JAYNE WALLACE Make do and mending: the technologies and memorials of COVID-19 60 Funeral directors’ creative uses of communication technologies and presence 64 What could technology do? 67 Conclusion: design directions for COVID-19 70 Notes 71 References 71 5 Social death in 2020: Covid-19, which lives matter and which deaths count? 77 JANA KRÁLOVÁ Introduction 78 ‘Archaeology’ of social death: three schools of thought 80 The exceptions 84 Contents ix Covid-19: which lives matter and which deaths count? 88 Concluding remarks 92 References 93 PART II Institutional care and Covid-19 99 6 End-of-life decision-making in the context of a pandemic 101 NATALIE PATTISON AND LUCY RYAN End-of-life decisions – a global rationing context 101 Rationing resources: a necessary evil during COVID-19? 102 Factors that influence health care decisions at the end of life: application to COVID-19 105 Decision-making principles in COVID-19 107 Decision aides and shared decision-making 110 Advanced Care Planning in a pandemic 111 Achieving best practice principles 113 References 114 7 NHS values, ritual, religion, and Covid19 death 121 DOUGLAS DAVIES Worldview, ideas-identity-destiny 121 Conclusion 132 References 132 8 Non-COVID-19 related dying and death during the pandemic 134 WAI YEE CHEE, SAMUEL S.Y. WANG, WINNIE Z.Y. TEO, MELISSA FONG, ANDY LEE, AND WOON CHAI YONG Case 1 The effects of COVID-19 on a non-COVID-19 related, hospitalised palliative patient during the pandemic: dying, death and grieving in a foreign land 135 Discussion 136 Case 2 The effects of COVID-19 on the care plans of a non-COVID home palliative patient during the pandemic: overtreatment, ethical concerns and funerary constraints 139 Discussion 140 Grieving other non-COVID-19 related deaths during the pandemic 142