Dancing With Dementia: My Story Of Living Positively With Dementia PDF
Preview Dancing With Dementia: My Story Of Living Positively With Dementia
Dancing with Dementia of related interest Hearing the Voice of People with Dementia Opportunities and Obstacles Malcolm Goldsmith Preface by Mary Marshall ISBN 1 85302 406 6 The Spiritual Dimension of Ageing Elizabeth MacKinlay ISBN 1 84310 008 8 A Guide to the Spiritual Dimension of Care for People with Alzheimer’s Disease and Related Dementia More than Body, Brain and Breath Eileen Shamy Forewords by Richard Sainsbury, Robert Baldwin and Albert Jewell ISBN 1 84310 129 7 Perspectives on Rehabilitation and Dementia Edited by Mary Marshall ISBN 1 84310 286 2 Understanding Dementia The Man with the Worried Eyes Richard Cheston and Michael Bender ISBN 1 85302 479 1 Dancing with Dementia My Story of Living Positively with Dementia Christine Bryden Jessica Kingsley Publishers London and Philadelphia Cover photograph by Danny O’Neill First published in 2005 by Jessica Kingsley Publishers 116 Pentonville Road London N1 9JB, UK and 400 Market Street, Suite 400 Philadelphia, PA 19106, USA www.jkp.com Copyright © Christine Bryden 2005 All rights reserved. No part of this publication may be reproduced in any material form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner except in accordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of a licence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road, London, England W1T 4LP. Applications for the copyright owner’s written permission to reproduce any part of this publication should be addressed to the publisher. Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim for damages and criminal prosecution. The right of Christine Bryden to be identified as author of this work has been asserted by her in accordance with the Copyright, Designs and Patents Act 1988. Reprinted twice in 2005 Library of Congress Cataloging in Publication Data Bryden, Christine, 1949- Dancing with dementia : my story of living positively with dementia / Christine Bryden. p. cm. Includes bibliographical references. ISBN 1-84310-332-X (pbk.) 1. Bryden, Christine, 1949---Mental health. 2. Dementia--Patients--Biography. 3. Alzhei- mer's disease--Patients--Biography. I. Title. RC523.3.B79 2005 362.196'831'0092--dc22 2004021146 British Library Cataloguing in Publication Data A CIP catalogue record for this book is available from the British Library ISBN-13: 978 1 84310 332 5 ISBN-10: 1 84310 332 X ISBN pdf eBook: 1 84642 095 4 Printed and Bound in Great Britain by Athenaeum Press, Gateshead, Tyne and Wear To my husband Paul, who is God’s precious gift to me, walking alongside me in faith and hope for our future. To my daughters Ianthe, Rhiannon and Micheline, who continue to be my best friends as we travel this roller-coaster of life together. To Rachel, Ianthe’s partner, for her unfailing love and support to us as a family from the day that we all began this dance. Christine Contents PREFACE 9 1 A ‘Roller-coaster’ Journey Since Early 1998 15 I’m really getting better!!!! 15 A new lease of life! 23 2 ‘Coming Out’ With Dementia 39 Challenging the stereotype 39 Taking the first step 51 Going global 57 Whatever next! 74 Round the world in 80 days 76 I wouldn’t recommend that you move… 85 3 Let’s Talk About Having Dementia 89 The medical journey 89 What it feels like to live with dementia 97 There are many ways to help 122 4 I Know Who I’ll Be When I Die 155 An identity crisis! 155 The fear of ceasing to be 157 Who am I becoming? 158 Dancing with dementia 163 Choosing to dance 166 AFTERWORD 173 APPENDIX 1: DO YOU BELIEVE IN MIRACLES? 175 APPENDIX 2: FREQUENTLY ASKED QUESTIONS 182 APPENDIX 3: WHERE TO GO FOR HELP 197 ENDNOTES 198
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