Counselling Adults with Learning Disabilities Sally Hodges BASIC TEXTS IN COUNSELLING AND PSYCHOTHERAPY COUNSELLING ADULTS WITH LEARNING DISABILITIES BASIC TEXTS IN COUNSELLING AND PSYCHOTHERAPY Series Editor: Stephen Frosh This series introduces readers to the theory and practice of counselling and psy- chotherapy across a wide range of topic areas. The books will appeal to anyone wishing to use counselling and psychotherapeutic skills and will be particularly relevant to workers in health, education, social work and related settings. The books in this series are unusual in being rooted in psychodynamic and systemic ideas, yet being written at an accessible, readable and introductory level. Each text offers theoretical background and guidance for practice, with creative use of clinical examples. Published Jenny Altschuler WORKING WITH CHRONIC ILLNESS Bill Barnes, Sheila Ernst and Keith Hyde AN INTRODUCTION TO GROUPWORK Alex Coren SHORT-TERM PSYCHOTHERAPY Emilia Dowling and Gill Gorell Barnes WORKING WITH CHILDREN AND PARENTS THROUGH SEPARATION AND DIVORCE Gill Gorell Barnes FAMILYTHERAPYIN CHANGING TIMES Sally Hodges COUNSELLING ADULTS WITH LEARNING DISABILITIES Ravi Rana COUNSELLING STUDENTS Paul Terry COUNSELLING THE ELDERLYAND THEIR CARERS Jan Wiener and Mannie Sher COUNSELLING AND PSYCHOTHERAPYIN PRIMARYHEALTH CARE Shula Wilson DISABILITY, COUNSELLING AND PSYCHOTHERAPY Invitation to authors The Series Editor welcomes proposals for new books within the Basic Texts in Counselling and Psychotherapyseries. These should be sent to Stephen Frosh at the School of Psychology, Birkbeck College, Malet Street, London, WC1E 7HX (email [email protected]). Basic Texts in Counselling and Psychotherapy Series Standing Order ISBN 978-0-333-69330-8 (outside North America only) You can receive future titles in this series as they are published by placing a standing order. Please contact your bookseller or, in the case of difficulty, write to us at the address below with your name and address, the title of the series and the ISBN quoted above. Customer Services Department, Macmillan Distribution Ltd Houndmills, Basingstoke, Hampshire RG21 6XS, England C A OUNSELLING DULTS L WITH EARNING D ISABILITIES S H ALLY ODGES with contributions from NANCY SHEPPARD Forewords by SHEILA HOLLINS and VALERIE SINASON © Sally Hodges 2003 Chapters 6,7 and 8 © Nancy Sheppard 2003 Forewords © Sheila Hollins and Valerie Sinason 2003 All rights reserved.No reproduction,copy or transmission of this publication may be made without written permission. 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First published 2003 by PALGRAVE MACMILLAN Houndmills,Basingstoke,Hampshire RG21 6X5 and 175 Fifth Avenue, New York,N.Y.10010 Companies and representatives throughout the world PALGRAVE MACMILLAN is the global academic imprint of the Palgrave Macmillan division of St.Martin’s Press,LLC and of Palgrave Macmillan Ltd.Macmillan® is a registered trademark in the United States,United Kingdom and other countries.Palgrave is a registered trademark in the European Union and other countries. ISBN 978-0-333-96295-4 ISBN 978-1-4039-9019-8 (eBook) DOI 10.1007/978-1-4039-9019-8 This book is printed on paper suitable for recycling and made from fully managed and sustained forest sources. A catalogue record for this book is available from the British Library. A catalogue record for this book is available from the Library of Congress. 10 9 8 7 6 5 4 3 2 1 12 11 10 09 08 07 06 05 04 03 C ONTENTS Forewords viii Acknowledgements xii Introduction 1 1 Historical Contexts, Settings and Common Presentations 5 Historical approaches to people with learning disabilities 5 Documented approaches 6 The Welfare State 9 Current social and political contexts 9 The power of images and representation in the media 10 Developments in theoretical approaches 11 Who might benefit from a counselling approach? Settings and presenting problems 12 Summary 20 2 Theoretical Developments 21 The unconscious 21 The beginning of a psychodynamic approach 22 Countertransference 23 Transference 27 Klein’s contributions to psychodynamic counselling 28 Object Relations Theory 29 The paranoid–schizoid position 30 The depressive position 31 Defences 33 Bion and the development of thinking 34 Psychodynamic counselling and learning disabilities 36 The work of Sinason and colleagues 37 Summary 41 v CONTENTS 3 Assessment and the Beginnings of a Therapeutic Relationship 43 Assessment in different settings 44 Formal assessment for counselling: referrals and the aim of assessment 45 History taking 48 Observation 52 Communication considerations and settings 54 Evaluating a client’s response to the assessment 56 Summary 60 4 From Infancy to Old Age: Thinking about Life Stages 62 Families and a life cycle perspective 64 Birth and the early days 65 Managing separation and independence 67 Sexual development and the Oedipus complex 71 Pre-adolescence 75 Adolescence 75 Relationships in adulthood 77 Relationships with keyworkers 78 Growing older with a learning disability 81 Summary 83 5 Consideration of Specific ‘Presenting Problems’, How Can a Counselling Approach be of Use? 85 Abuse 85 Bereavement and loss 90 Challenging behaviour 95 Mental health difficulties 99 Sensory impairments 105 Summary 109 6 Relationship Issues: Families and Intimate Relationships (by Nancy Sheppard) 110 Early family relationships 110 Later experiences 113 Sibling relationships 118 Intimate relationships 121 People with learning disabilities as parents 125 Summary 129 vi CONTENTS 7 Relationship Issues: Friendships and Group Dynamics (by Nancy Sheppard) 130 Theories of group dynamics 130 Formal groups 136 Other groups for people with learning disabilities 137 Issues pertinent in setting up groups for people with learning disabilities 138 Informal groups and friendships 141 Living in a group home 145 Summary 147 8 Working with Care Staff and Organisations (by Nancy Sheppard) 149 Residential care workers 149 Supporting staff to allow therapy to take place 154 Consultation to staff groups 156 Formal training with staff 161 Summary 164 9 Research and Evaluation 165 Published outcome research into therapy with people with learning disabilities 166 The Beail Studies 167 The Tavistock Study 168 Difficulties in outcome research in learning disabilities 169 Recommendations for research 173 Summary 175 References 177 Index 191 vii F OREWORD Sheila Hollins As Sally Hodges says in page 55, ‘counselling is not just about language and words, but about understanding’. The major barrier in the way of competent counselling provision for people with learning disabilities is not the presence of a learning disability, but the lack of understanding of the relevance of counselling by potential referrers. The pathway to specialist help for people with learning disabilities is so often dependent on a third party such as a relative or a paid carer. Few people with learning disabilities refer themselves for counselling or therapy and few counselling services advertise directly to this client group. Sally Hodges has written for a wide range of professionals who work with people with learning disabilities, and introduces theoretical concepts in an accessible way by using clinical vignettes to illustrate each point. For example, paid carers need to understand how and why their own emotional reactions to the people they support can help them to understand each person better. An introduction to theory and some time spent thinking about different life stages, personal histories, presenting problems and relationship issues will provide an invaluable introduction to the emotional worlds of people with learning disabilities. Many specialist learning disability health and social care professionals have trained in cen- tres where counselling and therapy have not been recognised as valid interventions. Fortunately many such professionals are now seeking post-qualifying courses in counselling or therapy to fill this gap. Mainstream counsellors and therapists whose own train- ing denied them access to people with learning disabilities will welcome the chapters on the historical context, on life stages and relationship issues and on specific presenting problems. The clini- cal vignettes will bring it to life for them and encourage them to consider a more inclusive approach to service delivery. viii FOREWORD How appropriate that a basic textbook on counselling and learning disabilities should emerge from the Tavistock! Pioneer- ing therapeutic work at the Tavistock in the 1980s by Neville Symington, Valerie Sinason and Jon Stokes – among others – paved the way for the present clinical team to develop it further. Much encouraged by colleagues at the Tavistock, Joan Bicknell and I were simultaneously introducing psychodynamic ideas into our developing mental health services for people with learning disabilities in South London. Other psychodynamically orientated psychologists working in the United Kingdom began to evaluate therapy with people with learning disabilities – these were, notably, Nigel Beaill and Pat Frankish, while elsewhere in Europe and the USA similar work was beginning. In May 2000 the Institute of Psychotherapy and Disability was launched at a public meeting at St George’s Hospital Medical School, London, attended by nearly 100 interested therapists and professionals. The Institute has started the painstaking work of defining the core competencies of disability psychotherapists. This book will make a significant contribution to these exciting new developments and plans. Sheila Hollins Professor of the Psychiatry of Learning Disability St George’s Hospital Medical School University of London ix