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Controlling Our Destinies: Historical, Philosophical, Ethical, and Theological Perspectives on the Human Genome Project PDF

572 Pages·2000·68.921 MB·English
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Phillip R. Sloan, Editor Digitized by the Internet Archive 2010 in http://www.archive.org/details/controllingourdeOOsloa Controlling Our Destinies Studies in Science and the Humanities from the Reilly Center for Science, Technology, and Values VOLUME 5 Controlling Our Destinies Historical, Philosophical, Ethical, AND Theological Perspectives ON THE Human Genome Project Edited by Phillip R. Sloan University ofNotre Dame Press Notre Dame, Indiana Copyright © 2000by University ofNotre Dame Press Notre Dame, Indiana 46556 All RightsReserved LibraryofCongress Cataloging-in-PublicationData Controlling ourdestinies the Human Genome Projectfrom historical, : philosophical, social, andethical perspectives /edited by PhillipR. Sloa—n. p. cm. (Studies in science and the humanities from the Reilly Centerfor Science, Technology, and Values ; v. 5) Includes bibliographical references—and index. ISBN 0-268-00818-3 (alk. paper). ISBN 0-268-00820-5 (pbk. alk. paper) 1. Human Genome Project. I. Sloan, PhillipR. II. Series. QH445.2.C65 1997 573.2'1-k1c20 96-9755 CIP For my father, Reid Sloan, whofirst awakened my interest in the intellectual life, andfor my mother, MaRee Sloan, who taughtme whatdedication to ideals means. CONTENTS List of Illustrations x Contributors xii Acknowledgments xx Preface xxii INTRODUCTORY ESSAY: 1. Completing the Tree of Descartes Phillip R. Sloan 1 PART ONE: ORIGINS OF THE GENOME PROJECT: INTRODUCTORY COMMENTS 27 2. The Manhattan Project for Biomedicine Timothy Lenoir and Marguerite Hays 29 3 Whose Work Shall We Trust? Genetics, Pedia- . trics, and Hereditary Diseases in Postwar France Jean-Paul Gaudilliere 63 Commentary: Robert A. Bud 95 A Book of Life? How a Genetic Code Became a Language Lily E. Kay 99 Commentary: Hans-Jorg Rheinberger 125 iS^-Origins of the U.S. Human Genome Project: The ^ Changing Relationships Between Genetics and National Security John Beatty 131 ^\ 6. Metaphors of Morality in the Human Genome ' Project ^ Alice Domurat Dreger 155 Vll PART TWO: THE GENOME PROJECT AND EUGENICS: INTRODUCTORY COMMENTS 185 7. Defining the Defective: Eugenics, Esthetics, and Mass Culture in Early Twentieth-Century America Martin S. Pernick 187 at's Morally Wrong with Eugenics? Arthur L. Caplan 209 Commentary: Timothy Murphy 223 Utopian Eugenics and Social Inequality ,_^^/:^ Philip Kitcfwr 229 Commentary: Diane R. Paul 263 PART THREE: IS A STRONG GENETIC REDUCTIONIST PROGRAM POSSIBLE?: INTRODUCTORY COMMENTS 269 10. Is There an Organism in This Text? Evelyn Fox Keller 273 Commentary: Jean Gayon 291 vJpl1 Reductionism and Determinism in Human . 5^ Genetics: Lessons from Simple Organisms Kenneth F. Schajfner 301 Commentary: Edward Manier 327 PART FOUR: REDUCTIONISM, DETERMIN- ISM AND THEOLOGICAL HUMANISM: INTRODUCTORY COMMENTS 341 12. Relating Genetics to Theology on the Map of Scientific Knowledge Arthur R. Peacocke 343 vui

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