Computer Techniques in Preclinical and Clinical Drug Development

873 Pages·2004·10.08 MB·English

by  Jackson, Robert C

Life Care Planning
and
Case Management
Handbook
Second Edition
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Life Care Planning
and
Case Management
Handbook
Second Edition
Edited by
Roger O. Weed
Ph.D., CRC, LPC, CLCP,
CCM, CDMS, FNRCA, FIALCP
Georgia State University
Atlanta, GA
CRC PR ESS
Boca Raton London New York Washington, D.C.
CRC Press
Taylor & Francis Group
6000 Broken Sound Parkway NW, Suite 300
Boca Raton, FL 33487-2742
© 1966 by Taylor & Francis Group, LLC
CRC Press is an imprint of Taylor & Francis Group, an Informa business
No claim to original U.S. Government works
Version Date: 20130723
International Standard Book Number-13: 978-1-4200-5419-4 (eBook - PDF)
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to make clear that any views or opinions expressed in this book by individual editors, authors or contributors
are personal to them and do not necessarily reflect the views/opinions of the publishers. The information or
guidance contained in this book is intended for use by medical, scientific or health-care professionals and is
provided strictly as a supplement to the medical or other professional’s own judgement, their knowledge of
the patient’s medical history, relevant manufacturer’s instructions and the appropriate best practice guide-
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FOREWORD
In 1999 the first edition of the Life Care Planning and Case Management Handbook
was published. It brought together a number of important and valuable contrib-
utors within the practice of life care planning. As is the case within our unique
area of practice, they stem from a variety of backgrounds, but they come together
to contribute as a team to our advanced practice specialty. Now Dr. Roger O.
Weed has wisely determined that it is time for an update to that important work,
and after reviewing this new contribution, I could not agree more.
Dr. Weed and I first met in 1984. This was approximately 8 years after I had
begun working on the development of the basic tenets, methodologies, and
principles of life care planning and 3 years after the publication of Damages in
Tort Actions. No one to that point in time had come to life care planning with
greater enthusiasm or interest. Since that time no one has proven to share my
vision for life care planning with greater dedication and effort. Dr. Weed has been
a dedicated colleague, researcher, writer, lecturer, teacher, and a tremendous
overall contributor to the advanced practice of life care planning. In recognition
of his work he was invited to participate in A Guide to Rehabilitation (Deutsch
& Sawyer, 1985–2003, AHAP Press, White Plains, NY). He has, without question,
been a major moving force in the advancement of life care planning for the past
two decades. He has done this by always remaining a team player who stays
focused on what is good for life care planning and the practitioners as a whole.
We have always shared a philosophy of openly contributing in our lectures and
our texts all of the latest information and research we have available. Dr. Weed
never holds anything back, and this latest text is a prime example of that
philosophy.
The 2004 edition of the Life Care Planning and Case Management Handbook
will prove to be a necessary desktop reference for every advanced practitioner
of life care planning. In its opening chapters it defines the roles played by each
of the key team members working with the life care planner. It provides life care
planners with the insights critical to successful interaction with medical, health-
related professionals and economic team members they are most likely to encoun-
ter as they work to build a successful and accurate life care plan.
The book then goes on to provide up-to-date information on the disabilities
most frequently encountered by the life care planner. Most importantly, we are
not just lecturing on current information, but we are providing critical resources
for being able to bring ourselves up to date on a day-to-day basis. This is what
makes a book a critical desktop reference.
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vi (cid:1) Life Care Planning and Case Management Handbook, Second Edition
This handbook then moves on to address issues typically left out of similar
texts — issues made critical by Daubert v. Merrell Dow in the forensic setting,
issues that should be critical even in the nonforensic setting. I refer to ethics,
standards, research, and certification, all of which are thoroughly and profession-
ally addressed within these pages.
It is easy to see that this text is the progression of a career, in which Dr. Weed
has both written and edited many other books, chapters, and articles. He has
been instrumental in not only helping to develop the advanced practice of life
care planning but also helping to develop the market for the product we produce.
Congratulations to Dr. Weed and all of the contributors on an excellent work.
Congratulations to those fortunate enough to be working with a copy of this text
on their desktop.
Paul M. Deutsch, Ph.D., C.R.C., C.C.M., C.L.C.P., F.I.A.L.C.P.,
Licensed Mental Health Counselor
Fellow — International Academy of Life Care Planning
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INTRODUCTION
As reported in the first edition, life care planning has become a profession unto
itself. It continues to grow and flourish with more training programs than ever in
existence. As this goes to press, Kaplan College has launched an online distance
learning program and has partnered with Medipro Seminars to offer the on-site
portion to qualify for certification. Instructors observe that more physicians and
allied health professionals are attending training. In addition, the Journal of Life
Care Planning was introduced in 2002, as was the Foundation for Life Care
Planning Research. Conceptually, the process, methods, and standards associated
with future care build upon the foundation of appropriate and coordinated medical
and ancillary care for people who have experienced significant medical adversity,
and the process for identifying needs is described in the following pages.
Purpose
This book is intended to bring together the many concepts regarding developing
life care plans into one publication, as well as offer current state-of-the-art thought,
beliefs, and procedures. It is the editor’s view that this highly specialized health
care industry offers a valuable contribution to managed care and quality of life
issues for persons with catastrophic disabilities. Having a solid foundation from
which to practice will advance the entire industry. The intended audience for the
book is anyone who has a role in planning for complex medical care. Families,
clients, medical professionals, allied health care professionals, and representatives
of the legal profession are included. It seems that life care planning is ideal for
managed care, if the focus is on quality of care while maximizing the purchasing
power of available resources.
Book Structure
The book is presented in four sections. The first chapter represents an overview
of the history as well as the current practice of life care planning with a view
toward the future. Section I, comprised of Chapters 2 through 11, spotlights various
professions commonly associated with developing a life care plan. The profes-
sional roles are outlined, and suggestions for planning are offered for those
unfamiliar with the various specialties. Each author was asked to provide an
overview of his or her area of specialty as well as identify specific life care
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viii (cid:1) Life Care Planning and Case Management Handbook, Second Edition
planning issues and topics. Obviously, not all contributors who possibly could
be participants are included. For example, dietitian, recreational therapist, music
therapist, and various medical specialties that are considered either too closely
aligned to the others or not routinely part of the team are not included in the book.
Section II, comprised of Chapters 12 through 21, has been expanded and
focuses on selected disabilities for which life care planning has been utilized.
Certainly, current practice seems to encompass mostly injury-related disabilities,
but the field is slowly expanding into disease and emotional disabilities if the
required care is complicated or complex. Two examples are HIV and transplan-
tation care plans. Chapters on mental illness and geriatrics have been added as
a result of emerging needs in these areas. Also, the chapter on audiology, located
in Section I, necessarily includes topics relating to a specific disability that overlap
with the section on selected disabilities.
Section III, Forensic Considerations, is included in the book given that one of
the first published uses of the life care plan was through the legal profession.
And although future care planning is much broader in contemporary times, the
legal roots are still obvious. This section represents a highly specialized civil
litigation enterprise that has different “rules” with which most people outside of
the legal profession are not familiar. The section includes basic concepts and
perspectives from both plaintiff and defense attorneys. A unique contribution is
the inclusion of the story of a father and a caregiver in a case where the life care
plan was instrumental in settling litigation. Most people cannot fully appreciate
what it must be like to have a family member involved in a traumatic injury and
have to deal with major medical decisions as well as legal issues. Therefore, this
chapter is included to offer some insight into these areas.
The fourth and final section is General Issues, and it covers important topics
that are not easily aligned with other areas. Ethical issues transcend all categories
and probably are the basis for the longevity of the life care planning industry.
Ethical life care planners who adhere to a code of conduct will assure the future.
Technology also transcends all categories and has immensely impacted the effi-
ciency and professionalism of completing the life care plan. This industry has
dramatically changed in the last 1 to 2 years and presents a major challenge for
life care planners to keep abreast of new technology. Life care planning certifi-
cation is the logical step in assuring minimum qualifications, although many
persons who call themselves life care planners are not certified or educated in
this particular area. Hopefully, voluntary use of qualified life care planners will
encourage others to pursue this specialized training. Along with qualifications and
ethics is the concept of basic research associated with the value of life care plans.
A chapter that is a reprint of initial research on reliability is included. With the
establishment of the Foundation for Life Care Planning Research, much more is
expected to be published in the near future. A chapter on the Americans with
Disabilities Act (ADA) as it relates to life care planning has been added to educate
the readers about certain specialized ADA topics not previously covered. As in
the first edition, the location of resources is a huge obstacle for beginning life
care planners. Networking among life care planners clearly reveals the tremendous
thirst for data that can be used for planning. Some sources are well known, while
others are obscure. The sources listed represent a significant amount of work and
sharing of knowledge. The final chapter is new and provides guidelines for
equipment selection and replacement.
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Introduction (cid:1) ix
This edition of the book includes three appendices: the first is the Standards
of Practice as published by the International Academy of Life Care Planners, the
second is the Standards and Code of Professional Ethics published by the Com-
mission on Health Care Certification (the board that issues the certified life care
planner credential), and the third is a list of life care planning-related references.
It is my hope that this publication will advance the profession another level and
the information will assist all who read it by improving their knowledge and
professional skills.
Roger O. Weed, Ph.D., C.R.C., C.C.M., C.D.M.S., C.L.C.P., L.P.C.
Fellow — International Academy of Life Care Planning