Competing Realities This page intentionally left blank COMPETING REALITIES The Contested Terrain of Mental Health Advocacy SUSAN MEYERS CHANDLER PRAEGER NewYork Westport, Connecticut London Library of Congress Cataloging-in-Publication Data Chandler, Susan Meyers. Competing realities : the contested terrain of mental health advocacy / Susan Meyers Chandler, p. cm. Includes bibliographical references. ISBN: 0-275-93356-3 (alk. paper) 1. Mental health services—United States. 2. Mental health policy—United States. I. Title. RA790.6.C398 1990 362.2*0973—dc20 89-22815 Copyright © 1990 by Susan Meyers Chandler All rights reserved. No portion of this book may be reproduced, by any process or technique, without the express written consent of the publisher. Library of Congress Catalog Card Number: 89-22815 ISBN: 0-275-93356-3 First published in 1990 Praeger Publishers, One Madison Avenue, New York, NY 10010 A division of Greenwood Press, Inc. Printed in the United States of America The paper used in this book complies with the Permanent Paper Standard issued by the National Information Standards Organization (Z39.48-1984). 10 9 8 7 6 5 4 32 1 This book is dedicated to all persons coping with mental illnesses. This page intentionally left blank Contents Acknowledgments ix 1 The Persistent Problems of People with Mental Illnesses 1 2 Recurring Themes: Progress and Retreat 11 3 Deinstitutionalization and the Impact of Laws on Mental Health Policy 39 4 Dollars Following Clients? The Influence of Financing Methods on Mental Health Care 53 5 Changing Models of Advocacy 69 6 Privatizing the Public Mandates 83 7 The Advocacy Organizations 97 8 The Positions (and Needs) of Mental Health Advocates 113 9 Finding the Zones of Agreement 131 10 The Joyce Brown Story 155 11 Managing Solutions 171 Bibliography 181 Name Index 189 Subject Index 193 This page intentionally left blank Acknowledgments While I was working on this book, I was frequently asked, "Why are you interested in writing about people with mental illnesses?" People asked me why I continue to go to state legislatures again and again to make the point that mental health services are inadequate, that fund ing is insufficient and planning nonexistent. People frequently ask me if I have a "sick person" in my family, as if that would explain my interest and commitment. In reality, my concern for people with mental illnesses comes from the knowledge that this problem can strike anywhere, to anyone, at any time. And this is coupled with the fact that wherever it occurs, help is usually poorly provided and effective services are few and far between. Most people just don't seem to care about this social problem or the millions of people it afflicts. That is why I have written this book. This book is based on my work over the last five years with the Mental Health Association in Hawaii. However, my earliest interest in the field of mental illness was shaped by Drs. Thomas Scheff, Steve Segal, and Troy Duster at the University of California. Later, I was continuously prodded and inspired by the intelligence, analytical skill, dedication, and compassion of Dr. Sheila Forman at the Mental Health Association in Hawaii. I wrote a significant portion of the book while at the National Center for Social Policy and Practice, National Association of Social Workers. Dr. Karen Orloff-Kaplan provided a supportive environment (along with an office and a computer) that sped the book along to completion. My colleagues at the School of Social Work at the University of Hawaii helped in a variety of ways. Ms. Hisae Tachi, in particular, is one of those people who always knows where things are and easily and graciously lends a helping hand. I would like to thank my parents, Helen and Saul Meyers (who both actually proofread the book!). Their clear vision for a better society and commitment to all disadvantaged people has been a beacon for my professional work. To my husband, David, whose good cooking
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