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Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System PDF

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EVIDENCE-BASED RESOURCE GUIDE SERIES Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System Acknowledgments This guide was prepared for the Substance Abuse and Mental Health Services Administration (SAMHSA) under contract number HHSS283201700001 / 75S20319F42002 with SAMHSA, U.S. Department of Health and Human Services (HHS). Donelle Johnson served as the contracting officer representative. Disclaimer The views, opinions, and content of this publication are those of the authors and do not necessarily reflect the views, opinions, or policies of SAMHSA. Nothing in this document constitutes a direct or indirect endorsement by SAMHSA of any non-federal entity’s products, services, or policies, and any reference to a non-federal entity’s products, services, or policies should not be construed as such. Public Domain Notice All material appearing in this publication is in the public domain and may be reproduced or copied without permission from SAMHSA. Citation of the source is appreciated. However, this publication may not be reproduced or distributed for a fee without the specific, written authorization of the Office of Communications, SAMHSA. Electronic Access This publication may be downloaded from http://store.samhsa.gov. Recommended Citation Substance Abuse and Mental Health Services Administration (SAMHSA). Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System. SAMHSA Publication No. PEP22-06-01-005. Rockville, MD: National Mental Health and Substance Use Policy Laboratory. Substance Abuse and Mental Health Services Administration, 2022. Originating Office National Mental Health and Substance Use Policy Laboratory, Substance Abuse and Mental Health Services Administration, 5600 Fishers Lane, Rockville, MD 20857, Publication No. PEP22-06-01-005. Released 2022. Nondiscrimination Notice The Substance Abuse and Mental Health Services Administration (SAMHSA) complies with applicable Federal civil rights laws and does not discriminate on the basis of race, color, national origin, age, disability, religion, or sex (including pregnancy, sexual orientation, and gender identity). SAMHSA does not exclude people or treat them differently because of race, color, national origin, age, disability, religion, or sex (including pregnancy, sexual orientation, and gender identity). Publication No. PEP22-06-01-005 Released 2022 Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System I Acknowledgments Abstract By engaging community members, prevention systems learn firsthand from individuals and community systems about substance use problems and social determinants that influence behavioral health. Community engagement brings together the skills, knowledge, and experiences of diverse groups to create and/or implement solutions that work for all members of the community. This guide focuses on how community engagement can play a critical role in the equitable scale-up of evidence-based programs and policies within the substance use prevention system. The guide presents what we know about community engagement from research studies, reporting on common community engagement activities and outcomes. It also discusses practical considerations drawn from on-the-ground experience regarding how to participate effectively in community engagement. Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System II Abstract MESSAGE FROM THE ASSISTANT SECRETARY FOR MENTAL HEALTH AND SUBSTANCE USE, U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES As the Assistant Secretary for Mental Health and Substance Use in the U.S. Department of Health and Human Services and the head of the Substance Abuse and Mental Health Services Administration (SAMHSA), I am pleased to present this new resource—Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System. SAMHSA is committed to improving prevention, treatment, and recovery support services for individuals with mental illnesses and substance use disorders. SAMHSA’s National Mental Health and Substance Use Policy Lab developed the Evidence-Based Resource Guide Series to provide communities, clinicians, policymakers, and others with the information and tools to incorporate evidence-based practices into their communities or clinical settings. As part of the series, this guide shares practical considerations for state, community, and tribal leadership in using community engagement to create and/or implement solutions that work for all members of the community. This guide and others in the series address SAMHSA’s commitment to behavioral health equity, including providing equal access for all people to evidence-based prevention, treatment, and recovery support services regardless of race, ethnicity, religion, income, geography, gender identity, sexual orientation, and disability. Each guide recognizes that substance use disorders and mental illnesses are often rooted in structural inequities and influenced by the social determinants of health. Behavioral health practitioners and community stakeholders must give attention to health equity to improve individual and population health. Community engagement plays a pivotal role in the equitable scale-up of evidence-based practices, programs, and policies within the substance use prevention system. I encourage you to use this guide, as meaningful participation of community members ensures accountability to those most affected by problems related to substance use. Miriam E. Delphin-Rittmon, PhD Assistant Secretary for Mental Health and Substance Use U.S. Department of Health and Human Services Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System III Message from the Assistant Secretary for Mental Health and Substance Use Evidence-Based Resource Guide FOREWORD Series Overview The Substance Abuse and Mental Health Services A priority for SAMHSA is ensuring that behavioral Administration (SAMHSA), and specifically, its health services reach under-resourced populations National Mental Health and Substance Use Policy for prevention, treatment, and recovery supports. Laboratory (Policy Lab), is pleased to fulfill the Implementation of evidence-based practices, policies, charge of the 21st Century Cures Act. This charge is to and programs can reduce mental health and substance disseminate information on evidence-based practices use problems for individuals and communities. and service delivery models. However, implementation and uptake of EBPs can be challenging, and only a small percentage of The Evidence-Based Resource Guide Series is a communities have implemented them. Even when comprehensive set of modules with resources to communities implement EBPs, not all populations improve health outcomes for people at risk for, experience their benefits equally, including those in experiencing, or recovering from mental health and/or greatest need. Health disparities may worsen as a result, substance use disorders. It is designed for practitioners, despite the goal of equity. administrators, community leaders, health professions educators, and others considering an intervention for Prevention researchers have identified community their organization or community. engagement as a critical factor that influences the equitable scale-up of EBPs and subsequently Expert panels of federal, state, and non-governmental contributes to improvements in population health.1 This participants provided input for each guide in this guide reviews research on community engagement in series. The panels include accomplished researchers, substance use prevention, outlining common community educators, service providers, community members engagement activities and outcomes. It is one piece of with lived experience (including families), community an overall approach to implement and sustain change. administrators, and federal and state policymakers. Readers are encouraged to review the SAMHSA Members provide input based on their lived expertise website for additional tools and technical assistance and knowledge of healthcare systems, implementation opportunities. strategies, evidence-based practices (EBPs), provision of services, and policies that foster change. 1 Cooper, B., Hill, L., Parker, L., Jenkins, G., Taylor, G., & Graham, P. (2019). Prevention works: A call to action for the behavioral health system. Society for Prevention Research. https://www.preventionresearch.org/wp-content/uploads/2019/06/SPR-Behavioral- Health-Brief_FINAL.pdf Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System IV Evidence-Based Resource Guide Series Overview Behavioral health equity is the right to access high-quality and affordable healthcare services and supports for all populations, including Black, Latino, and Indigenous and Native American persons, Asian Americans and Pacific Islanders, and other persons of color; members of religious minorities; lesbian, gay, bisexual, transgender, queer/questioning and intersex (LGBTQI+) persons; persons with disabilities; persons who live in rural areas; and persons otherwise adversely affected by persistent poverty or inequality. As population demographics continue to evolve, behavioral healthcare systems will need to expand their ability to fluidly meet the growing needs of a diverse population. By improving access to behavioral health care, promoting quality behavioral health programs and practice, and reducing persistent disparities in mental health and substance use services for under-resourced populations and communities, recipients can ensure that everyone has a fair and just opportunity to be as healthy as possible. In conjunction with promoting access to high-quality services, behavioral health disparities can be further mitigated by addressing social determinants of health, such as social exclusion, unemployment, adverse childhood experiences, and food and housing insecurity. In all areas, including community engagement, SAMHSA is committed to behavioral health equity. Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System V Evidence-Based Resource Guide Series Overview Content of the Guide FOCUS OF THE GUIDE For years, practitioners and researchers This guide contains a foreword (FW) and five chapters (1-5). Each in the prevention field have widely chapter is designed to be brief and accessible to practitioners, recognized community engagement as administrators, community leaders, health professions educators, important and necessary. By engaging and others considering community engagement strategies and community members, prevention systems activities to support the equitable scale-up of evidence-based learn firsthand from individuals and practices, programs, and policies. community systems about substance use problems and social determinants that FW Evidence-Based Resource Guide Series influence behavioral health. Overview This guide highlights research on Introduction to the series. community engagement in substance use prevention and provides practical 1 Issue Brief guidance for implementing and evaluating community engagement strategies and This chapter provides definitions of community activities. engagement; describes how community engagement can support the equitable scale-up of evidence- The guide does not focus on specific based practices, programs, and policies; and reviews evidence-based practices, programs, or community engagement principles and proposed policies, but instead provides an overview benefits. of how community engagement can play a pivotal role in the uptake of EBPs broadly 2 What Research Tells Us across the substance use prevention This chapter highlights research on community system. engagement in substance use prevention, outlining common community engagement activities and outcomes. 3 Guidance for Community Engagement This chapter presents key considerations and strategies for incorporating community engagement in substance use prevention. 4 Examples of Community Engagement for Substance Use Prevention This chapter highlights three organizations using community engagement in their substance use prevention interventions. 5 Resources for Evaluation This chapter provides guidance and resources for evaluating community engagement strategies and activities. Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System VI Content of the Guide CHAPTER 1 Issue Brief The World Health Organization (WHO) defines connect with community, and carry out activities of community engagement as “a process of developing daily life. Substance use affects all Americans and all relationships that enable stakeholders to work together communities—the young and old, all racial and ethnic to address health-related issues and promote well-being groups, people of all abilities, and people of all sexual to achieve positive health impact and outcomes.”1 orientations, gender identities, or sex characteristics.3-7 Community engagement brings together the skills, Substance use affects both under-resourced and affluent knowledge, and experiences of diverse groups to create neighborhoods. It impacts all community sectors: and/or implement solutions that work for all members business, education, health care, law enforcement, social of the community. Practitioners and researchers in the services, and more.8 prevention field have recognized community engagement Prevention systems aim to: as important and necessary for years. However, researchers have not systematically studied community engagement • Protect community members across lifespans in ways that have yielded the practical guidance necessary from substance use and SUDs to promote more widespread use. This guide presents • Minimize the negative consequences of what we know about community engagement from substance use on individuals and society research studies. It also discusses practical considerations • Advance equity and population health drawn from on-the-ground experience regarding how to effectively participate in community engagement. Achievement of these goals depends on scaling up evidence-based practices (EBPs). Dozens of prevention- Preventing Substance Use focused EBPs have been developed for community Disorders Depends on settings with various populations and conditions.9 The Substance Abuse and Mental Health Services Expansion of Evidence- Administration (SAMHSA) provides guidance in Based Programs and determining what EBPs could be applied or adapted to a community.10 However, only a small percentage Policies of communities have implemented EBPs.9 Even when Substance use disorders (SUDs) are among the most communities implement EBPs, the benefits are often not common disabling conditions in the United States.2 experienced by all populations equally, especially those They have the potential to impair a person’s ability to in greatest need.11 Health disparities may worsen as a work, engage in relationships, maintain mental health, result, despite the goal of equity. Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System 1 Issue Brief Community engagement is a critical factor that • Implementation and evaluation of EBPs to influences the equitable scale-up of EBPs and measure improvements in community conditions contributes to improvements in population health.12 and behavioral health As stated in the White House Office of National Drug • Assessment of the community engagement Control Policy’s (ONDCP’s) 2022 National Drug process to ensure it is equitable, meaningful, and Control Strategy, “implementing evidence-based continual policies, environmental strategies, and programs • Obtaining feedback from community members requires an understanding of a community’s challenges to ensure outcomes from EBPs are consistent and knowing which strategies will effectively address with community priorities, expectations, and a community’s specific challenge.”13 By engaging lived experiences community members, prevention systems learn firsthand from affected individuals and community systems about Community Engagement substance use problems and the social determinants that Requires Trust affect behavioral health. Within prevention systems, community engagement often consists of: Community engagement begins by “gathering the community,” or assembling a group of community • Engaging community members with needs members. Relationships and the trust upon which they assessments and prevention planning are built need to be in place. Authentic community • Building community capacity engagement efforts recognize that there may be distrust in • Selecting and implementing EBPs the community. • Evaluating EBPs’ effectiveness over time Community engagement within prevention systems Structural racism is a system in which integrates meaningful participation of community public policies, institutional practices, cultural representations, and other norms work in various, members who have diverse experiences, values, cultures, often reinforcing ways to perpetuate racial group and perspectives. Community engagement also ensures inequity.14 It remains a root cause of persistent accountability to those most affected by problems related health disparities in the United States. to substance use. Historical trauma is collective, multigenerational Effective Scale-Up Efforts Are Informed and trauma experienced over time by a group of people who share an identity, affiliation, or Executed at the Community Level circumstance; it is frequently linked to health Developing an effective community-based prevention disparities. strategy to address substance use depends on assessment and engagement at the community level. It requires: The process of establishing trust starts with dispelling • Community voice concerning how substance use myths and honestly acknowledging community affects individuals, families, neighborhoods, and members’ shared traumatic history, structural racism that community sectors (e.g., child welfare, health perpetuates inequities, and other trauma experienced care, law enforcement) by communities, including the LGBTQI+ community. • Assessment of historical trauma and When distrust exists, communities need to promote neighborhood-level risk and protective factors healing and reconciliation, so that meaningful, trusting for substance use, as well as other social relationships can develop. This process involves actively determinants of health seeking information, visualizing what needs to change, • Capacity building to enable SUD prevention and engaging in shared learning. systems, partner organizations, prevention Formally acknowledging a community’s shared professionals, and others to deliver EBPs successfully traumatic history is a fundamental step in preparing for and planning community engagement efforts that address • Collaboration among community partners health inequities. to identify EBPs that can effectively address problems the community experiences Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System 2 Issue Brief Community Engagement Sustained engagement and participatory Is Based on Core culture. Community engagement is ongoing. All participants are valued for their Principles but May Differ contributions. Information and resources are shared in Implementation among community members and stakeholders to advance outcomes and build community capacity. Community engagement can take many forms, and has several core principles.15, 16 Community Stakeholder Examples Transparency and trust. Community engagement creates an environment in • Youth which all ideas are respected and considered; • Parents and family members discussions and input of participants are documented and • People in recovery shared; and there is mutual understanding of stakeholders’ • Businesses (e.g., barbershops, salons, gyms) and community members’ needs, capacities, and goals. • Media Careful planning and preparation. • Schools and other educational institutions Community engagement is a strategic process of planning around an issue of interest. Those • Youth-serving organizations involved continually reflect on the best ways to engage • Public safety and law enforcement community members, stakeholders, and the needs of • Faith-based organizations participants. • Fraternal organizations Inclusion and demographic diversity. • Civic and volunteer organizations Community engagement involves leaders • Health care (e.g., pharmacists, veterinarians, from different sectors of the community, as dentists, physicians, nurses, other prescribers) well as community members at large. Individuals and • State, local, and tribal governments sectors participating in community engagement represent the community’s diversity and bring various perspectives • Other organizations involved in reducing and expertise. substance use (e.g., philanthropic organizations, community gatekeepers or champions) Collaboration and shared purpose. Community engagement brings organizations and individuals together around a shared Multiple community engagement frameworks are purpose, such as prevention of substance use. available, using various terminologies and outlining Community engagement involves shared decision- areas of emphasis, such as level of engagement. making and equity among participants. • The Active Community Engagement (ACE) Openness and learning. Participants in the Continuum17 identifies three levels of community engagement process are open to engagement—consultative, cooperative, and data, information, and ideas from all relevant collaborative—and five types of engagement: sources. They listen to others’ views and experiences, community involvement in assessment; access to develop an informed, data-driven plan for addressing to information; inclusion in decision-making; community issues. local capacity to advocate to institutions and governing structures; and accountability of Impact and action. Community engagement institutions to the public. focuses on making a difference in the • The WHO proposes four engagement approaches: community and having an impact on the community-oriented, community-based, identified problem. Community engagement is intended community-managed, and community-owned.1 to move communities toward desired outcomes. Community Engagement: An Essential Component of an Effective and Equitable Substance Use Prevention System 3 Issue Brief

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