Children, Ethics, and Modern Medicine PDF
Preview Children, Ethics, and Modern Medicine
CHILDREN, ETHICS, AND MODERN MEDICINE Medical Ethics . . , Mary Anderlik. The Ethics of Managed Care: A Pragmatic Approach Norman L. Cantor. Advance Directives and the Pursuit of Death with Dignity Norman L. Cantor. Legal Frontiers of Death and Dying Arthur L. Caplan. Am I My Brother’s Keeper? The Ethical Frontiers of Biomedicine Arthur L. Caplan. If I Were a Rich Man Could I Buy a Pancreas? And Other Essays on the Ethics ofHealth Care James F. Childress. Practical Reasoning in Bioethics: Principles, Metaphors, and Analogies Cynthia B. Cohen, ed. Casebook on the Termination of Life-Sustaining Treatment and the Care of the Dying Cynthia B. Cohen, ed. New Ways of Making Babies: The Case of Egg Donation Roger B. Dworkin. Limits: The Role of the Law in Bioethical Decision Making Larry Gostin, ed. Surrogate Motherhood: Politics and Privacy Christine Grady. The Search for an AIDS Vaccine: Ethical Issues in the Development and Testing of a Preventive HIV Vaccine A Report by the Hastings Center. Guidelines on the Termination of Life-Sustaining Treatment and the Care of the Dying Paul Lauritzen. Pursuing Parenthood: Ethical Issues in Assisted Reproduction Joanne Lynn, M.D., ed. By No Extraordinary Means: The Choice to Forgo Life-Sustaining Food and Water, expanded edition William F. May. The Patient’s Ordeal Richard W. Momeyer. Confronting Death Thomas H. Murray, Mark A. Rothstein, and Robert F. Murray, Jr., eds. The Human Genome Project and the Future of Health Care Jennifer A. Parks. No Place Like Home? Feminist Ethics and Home Health Care Susan B. Rubin. When Doctors Say No: The Battleground of Medical Futility David H. Smith, Kimberly A. Quaid, Roger B. Dworkin, Gregory P. Gramelspacher, Judith A. Granbois, and Gail H. Vance. Early Warning: Cases and Ethical Guidance for Presymptomatic Testing in Genetic Diseases Lois Snyder and Arthur L. Caplan. Assisted Suicide: Finding Common Ground S. Kay Toombs, David Barnard, and Ronald Carson, eds. Chronic Illness: From Experience to Policy Robert M. Veatch. The Patient as Partner: A Theory of Human-Experimentation Ethics Robert M. Veatch. The Patient–Physician Relation: The Patient as Partner, Part 2 Leonard Weber. Business Ethics in Healthcare Robert F. Weir, ed. Physician-Assisted Suicide Children, Ethics, and Modern Medicine RICHARD B. MILLER Publication ofthis book is made possible in part with the assistance ofa Challenge Grant from the National Endowment for the Humanities, a federal agency that supports research, education, and public programming in the humanities. This book is a publication of Indiana University Press 601 North Morton Street Bloomington, IN 47404-3797 USA http://iupress.indiana.edu Telephone orders 800-842-6796 Fax orders 812-855-7931 Orders by e-mail [email protected] © 2003 by Richard B. Miller All rights reserved No part of this book may be reproduced or utilized in any form or by any means, electronic or mechanical, including photocopying and recording, or by any information storage and retrieval system, without permission in writing from the publisher. The Association of American University Presses’ Resolution on Permissions constitutes the only exception to this prohibition. The paper used in this publication meets the minimum requirements ofAmerican National Standard for Information Sciences—Permanence ofPaper for Printed Library Materials, .-. Library of Congress Cataloging-in-Publication Data Miller, Richard B. Children, ethics, and modern medicine / Richard B. Miller. p. cm. — (Medical ethics) Includes bibliographical references and index. ISBN 0-253-34222-8 (cloth : alk. paper) 1. Pediatrics—Moral and ethical aspects. 2. Medical ethics. 3. Children—Diseases—Treatment—Moral and ethical aspects. [DNLM: 1. Ethics, Clinical. 2. Pediatrics. 3. Ethics, Medical. WS 21 M649c 2003] I. Title. II. Series : Medical ethics series. RJ47 .M55 2003 174’.2—dc21 2002014748 1 2 3 4 5 08 07 06 05 04 03 For my mother, Lucille Dean Miller Oh! mystery of Man, from what a depth Proceed thy honours! I am lost, but see In simple childhood something of the base On which thy greatness stands —Wordsworth, The Prelude, bk. 11 CONTENTS ⁄ xi ⁄ 1 Part I. Moral Contours 1. Parental Responsibility in Fear and Trembling 15 2. The Duty to Care 25 3. Pediatric Paternalism 51 4. Representing Patients 84 5. Basic Interests 118 Part II. Practical Cases 6. A Fighter, Doing God’s Will: Technologically Tethered, Retaining Fluids, on Steroids, Sedated, and Four Years Old 149 7. Respecting Jackson Bales’s Religious Refusal: On What Grounds? 164 8. Ericka’s Sepsis, Lia’s Convulsions, and Cultural Differences 181 9. (Properly) Marginalized Altruism: Screening Organ Donations from Strangers 203 10. The Politics and Ethics of a Hospital Ethics Committee 220 11. Ethical Issues in Pediatric Research 238 : 268 ⁄ 275 ⁄ 301
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