HALTON Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© Table of Contents Section 1 Introduction Section 2 Mental Health Disorders/Illnesses Section 3 Crisis Services Section 4 Finding Support Section 5 Financial/Legal Section 6 How to Advocate for Your Child Section 7 Special Education Section 8 Website Resources Section 9 Glossary of Terms Appendix – What to Expect When Navigating the Child and Youth Mental Health System Last update: 22-Apr-13 www.pcmh.ca 1 Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© Disclaimer The material in this resource guide is intended to help families, caregivers, and members of the community assist navigating and understanding the child and youth mental health system. It will hopefully help you to understand mental illness, the support services and resources available for children and their families, and how you can advocate for better support and acceptance from the community and your child’s school. By its nature, this resource guide provides information about all of these topics, but is not a complete review of the issues raised or services available for the support and treatment of children’s mental health problems. This resource guide is current to March 2013. The resource guide is for general reference, and is intended to help connect to other, more complete sources of information about supports and resources available. The guide is not intended to cover every possible issue that you may encounter when struggling with children and youth mental health problems. The resource guide should not be relied on as legal advice or a professional opinion. You may contact Children’s Mental Health Ontario or EMental Health.ca for more information about services in the province and your local community. If you have a question about your legal rights, you may wish to consult a lawyer. Copyright© Parents for Children’s Mental Health. All rights reserved. Resource Guide Committee Sarah Cannon, Executive Director, Parents for Children’s Mental Health Sue Brooks, Co-ordinator, Halton Student Support Leadership Initiative Darlene Wierski-Devoe, Family Engagement Co-ordinator, ROCK Tony McKee, Co-Facilitator, PCMH Family Support Group, Burlington Erika Norris, Public Health Nurse, Halton Regional Health Department To access resources in the Halton Region visit: www.ementalhealth.ca or call 211 Last update: 22-Apr-13 www.pcmh.ca 2 Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© Welcome to Holland ©1987 by Emily Perl Kingsley. All rights reserved I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland. Last update: 22-Apr-13 www.pcmh.ca 3 Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© Who Is This Guide For? As families, Parents for Children’s Mental Health (PCMH - 1 in 5 children in Ontario see below) recognizes that child and youth mental between the ages of 3 and 17 illnesses are among the least talked about yet one of the most common childhood problems today. In our vastly have a diagnosable mental health varied experiences, we have found that one of the most disorder. 3/5 or about 300,000 common problems families face raising a child with a of them have more than one mental illness or mental health disorder is the lack of disorder. information and understanding available for those seeking (Source: Children’s Mental Health Ontario) services and resources in their communities. Another common statement made by families is they experience a lack of support in their community, potentially due to ignorance, intolerance or disbelief. It is our sincere hope that families, educators and caregivers will benefit from this combined collection of child and youth mental health information, services and supports available to you and your family. It is the goal of this guide to share with families some information to enable them to find the answers and assistance they so desperately need. Who is this guide for? • Families/caregivers who are struggling with their child/youth’s mental health concerns at home or school • Families/caregivers seeking emotional and/or financial support • Families seeking advice regarding school concerns • Families who suspect something is the matter, but don’t know where to start • Families/caregivers not sure what mental illness means, or how to go about getting help • Families/caregivers seeking to support or advocate for their special needs child What Is Parents For Children’s Mental Health (PCMH)? Parents for Children’s Mental Health (PCMH) is the only family-led, Ontario Provincial, non-profit organization that provides a voice for families who face the challenges of child and youth mental illness and mental health disorders. PCMH provides support, education and empowerment by linking networks of families, communities, agencies and government. PCMH believes in the promotion of family centred care and principles of care. PCMH envisions a future in which children and youth with mental illness enjoy a high quality of life in welcoming and supportive communities. For more information about PCMH, please visit the provincial website at www.pcmh.ca. To access resources in th e Halton Region visit: www.ementalheal th.ca or call 211 Last update: 22-Apr-13 www.pcmh.ca 4 Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© What is Mental Illness? Mental illness and mental health disorders are not easy to define. Misunderstandings lead to misuse and abuse of the terms, reinforce myths, and even prevent people from getting help when it is really needed. In general, mental illness refers to clinically significant patterns of behavioural or emotional functioning that are associated with some level of distress, suffering (pain, death), or impairment in one or more areas of functioning (such as school, work, or social and family interactions). The basis of this impairment is a behavioural, psychological, or biological dysfunction, or a combination of these. (Definition: Canadian Psychiatric Association) What is Mental Health? Mental Health refers to a broad array of activities directly or indirectly related to the mental well- being component included in the WHO's definition of health: "A state of complete physical, mental and social well-being, and not merely the absence of disease". It is related to the promotion of well- being, the prevention of mental disorders, and the treatment and rehabilitation of people affected by mental disorders. (Definition: World Health Organization) When our son was first diagnosed we were in denial and gradually found ourselves more and more isolated from family and friends. Finding the support of others who had walked our journey before us gave us the belief that this was not a challenge that could not be overcome. We are lucky enough to see our son now thriving, and we owe much of that to the support we have received from other families and the knowledge they were able to share with us. (Member, PCMH) To access resources in the Halton Region visit: www.ementalhea lth.ca or call 211 Last update: 22-Apr-13 www.pcmh.ca 5 Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© Signs and Symptoms of Children’s Mental Health Issues The way a child thinks, feels and behaves may be a sign that he or she needs help with a mental health problem. It can sometimes be difficult to decide if a child is acting “appropriately” for his or her age or if the child does, in fact, have a mental health need. Although many children and youth will show some of the following characteristics and behaviours at various times during normal childhood development, it is the degree and frequency to which these characteristics effect their day-to-day living. This list serves as a guide and is by no means complete. Signs & Symptoms • declining grades, multiple • physical complaints suspensions/expulsions (headaches, stomach aches) • persistent nightmares • severe worry and anxiety • avoiding friends and family • stop caring about appearance • outbursts of anger and rage • obsession /preoccupation with weight • hyperactivity or low energy • decreased energy and motivation • decreased appetite • hitting or bullying other children • difficulty sleeping • trying to injure self • rebelling against authority • mood swings • abusing alcohol or drugs • personality changes • stop doing things used to enjoy • threatening to run away • damaging others' property Links or Useful Resources for SIGNS AND SYMPTOMS: Children’s Mental Health Ontario -‐ www.kidsmentalhealth.ca/parents/resources_parents.php eMental Health: www.ementalhealth.ca Parents For Children’s Mental Health -‐ www.pcmh.ca Last update: 22-Apr-13 www.pcmh.ca 6 Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© Psychological Assessments If you are asked to have an assessment performed on your child, we feel you should be aware of the benefits of having one done. It is a tool to help you decide the best course of action for the best interests of your child. It can be a relief to know the true nature of the difficulty you are presented with or to have a diagnosis for a variety of reasons: • you can do your own research on the subject • you can join a local support group of peers experiencing similar issues • you may benefit from proven strategies at home and school • you can help educate other friends, family members about the subject • you may be eligible for special services or funding There are a number of different psychological assessments. It is important to do your research and understand the nature of the assessment that has been recommended to you. Your child’s school may suggest a psycho-educational* or psychological assessment to be done and refer you to their team. For most school boards there is a waiting list for these types of assessments, you will want to know what the expected wait list is for your child to receive the assessment through your school board as there are other options such as having your own assessment done privately. You can expect to pay anywhere from $800 - $4,000 to have this assessment completed privately. Some benefits and/or Employee Assistance Programs (EAP) include coverage for such assessments, it will be important for you to explore whether coverage is available through your work. Finding a Therapist: The Ontario Psychological Association can direct you to local therapists, as should your family doctor or pediatrician. Links or Useful Resources: S ee “Finding A Therapist” page under Finding Support Canadian Academy of Psychologists in Disability Assessment – www.capda.ca Finding a Therapist -‐ www.mooddisorders.ca – 1-‐888-‐486-‐8236 O ntario Psychological Association – www.psych.on.ca -‐ click on referral service or 1-‐800-‐268-‐0069 See “What You Can Expect from a Mental Health Professional – www.cymhin.ca/downloads/What%20to%expect.pdf – Child and Youth Mental Health Information Network ( CYMHIN) The Association of Chief Psychologists with Ontario School Boards – www.acposb.on.ca Last update: 22-Apr-13 www.pcmh.ca 7 Children & Youth Mental Health & Addictions A Guide for Families Prepared by Parents for Children’s Mental Health© Now You Have a Diagnosis If your child has just been diagnosed, don’t panic! There “Even though we received this are other people who understand what you are going news about our child, our child is through. There are also sources of information, which can help you handle problems now and in the future. the very same one we loved yesterday, a diagnosis has not A first step would be to find and join a local support group. changed that. We love the gifts Talking to other families experiencing similar difficulties can help you get perspective. They will often have resources that are also a part of his such as books and videos that will help to answer your disability.” burning questions. They can be a wonderful source of possible new friends for your child and for families/caregivers also. It is comforting to be around other people who “get it”. Don’t forget to utilize local libraries and the internet to help with your research. The diagnosis however is only the first step in what can potentially be a long journey. Like any journey, it will be important for you to prepare for the trip and ensure you provide yourself, your family, friends, and networks the supplies, tools, and other items necessary to navigate your journey successfully. You will also need to remember that this is a marathon, not a sprint, and if you are not taking care of you, success will be limited. Self-care is as important as effective care and treatment for your loved one, and their success will largely depend on your capacity to cope, advocate, and support them. You will not be able to do that effectively if you are not taking care of you too! To access resources in the Halton Region visit: www.ementalhealth.ca or call 211 Last update: 22-Apr-13 www.pcmh.ca 8
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