Challenges and Solutions: Narratives of Patient-Centered Care PDF
Preview Challenges and Solutions: Narratives of Patient-Centered Care
Challenges and Solutions: Narratives of Patient-Centered Care RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd ii 0066//1100//1111 99::2277 PPMM Challenges and Solutions: Narratives of Patient-Centered Care Edited by JUDITH BELLE BROWN, Ph.D. Professor, Centre for Studies in Family Medicine Department of Family Medicine Schulich School of Medicine and Dentistry The University of Western Ontario TANYA THORNTON, M.D., CCFP, M.Cl.Sc.(FM) Adjunct Professor of Family Medicine Department of Family Medicine Schulich School of Medicine and Dentistry The University of Western Ontario and MOIRA STEWART, Ph.D. Professor, Centre for Studies in Family Medicine Department of Family Medicine Schulich School of Medicine and Dentistry The University of Western Ontario Radcliffe Publishing London (cid:129) New York RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd iiiiii 0066//1100//1111 99::2277 PPMM Radcliffe Publishing Ltd 33–41 Dallington Street London EC1V 0BB United Kingdom www.radcliffepublishing.com © 2012 Judith Belle Brown, Tanya Thornton and Moira Stewart Judith Belle Brown, Tanya Thornton and Moira Stewart have asserted their right under the Copyright, Designs and Patents Act 1998 to be identifi ed as the author of this work. All rights reserved. No part of this publication may be reproduced, stored in a retrieval system or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, without the prior permission of the copyright owner. British Library Cataloguing in Publication Data A catalogue record for this book is available from the British Library. ISBN-13: 978 184619 496 2 Typeset by KnowledgeWorks Global Ltd, Chennai, India RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd iivv 0066//1100//1111 99::2277 PPMM Contents About the Editors ix List of Contributors xi Acknowledgments xv Introduction 1 Component I: Exploring Health, Disease and the Illness Experience 7 Moira Stewart, Judith Belle Brown, W. Wayne Weston, Carol L. McWilliam and Thomas R. Freeman Narratives Illustrating Component I: Exploring Health, Disease and the Illness Experience 1 Loss of Voice – Loss of Self 14 Michelle Levy, Judith Belle Brown and Tanya Thornton 2 The Lonely Journey with Lupus 17 Ascia Hassan Abdi and Judith Belle Brown 3 Frozen 20 Joshua Shadd 4 A Falling Star 23 Barry Lavallee and Judith Belle Brown 5 Living with a Chronic Illness 26 Sudha Koppula and Judith Belle Brown 6 The Bear that Saved Her Life 29 Sudha Koppula and Judith Belle Brown 7 Conquering Pain and Fear 33 Dori Seccareccia and Judith Belle Brown 8 Facing an Incurable Condition 36 Sharon Nur Hatcher and Judith Belle Brown 9 Clearing the Path 39 Jana Malhotra and Judith Belle Brown 10 A Ray of Hope 43 Nusrat Jamil and Judith Belle Brown Component II: Understanding the Whole Person 47 Judith Belle Brown, W. Wayne Weston and Thomas R. Freeman Narratives Illustrating Component II: Understanding the Whole Person 11 Losses and Gains 56 Lisa Graves and Judith Belle Brown RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd vv 0066//1100//1111 99::2277 PPMM 12 “I Am Just an Addict – Can I Trust You? – Can You Trust Me?” 59 Susan Woolhouse and Judith Belle Brown 13 The Issue at Hand 62 Michael Lee-Poy and Judith Belle Brown 14 “I Want to Die at Home” 65 Michelle Levy and Judith Belle Brown 15 A Young Boy’s Journey 68 Sharon Nur Hatcher 16 Victor Brings Victory 71 Larry Schmidt and Judith Belle Brown 17 New Beginnings 74 Barbara Jones, Judith Belle Brown and Tanya Thornton 18 The Onlookers 77 Rochelle Dworkin, Judith Belle Brown and Tanya Thornton 19 The Criminal 80 Peter MacKean, Judith Belle Brown and Tanya Thornton 20 Understanding the Whole Person without Knowing the Whole Person 83 Barbara Jones and Judith Belle Brown Component III: Finding Common Ground 87 Judith Belle Brown, Moira Stewart and W. Wayne Weston Narratives Illustrating Component III: Finding Common Ground 21 Let It Be 96 Susan Woolhouse 22 The Alliance 99 Sofi an Al-Samak, Tanya Thornton and Judith Belle Brown 23 Infusing Humanity into the Resuscitative Context 103 Tanya Thornton and Judith Belle Brown 24 A Tale of Spunk and Smoke 106 Susan Woolhouse and Judith Belle Brown 25 Indelible Ink – Part 1 109 Dori Seccareccia, Judith Belle Brown and Tanya Thornton 26 Indelible Ink – Part 2 112 Dori Seccareccia, Judith Belle Brown and Tanya Thornton 27 Growing Into a Mom 115 Lisa Graves, Judith Belle Brown and Tanya Thornton 28 “You’re Not Listening to Me!” 119 Jill Konkin and Judith Belle Brown 29 A Sad Refrain 123 Jana Malhotra and Judith Belle Brown 30 Unexplored Territory – Part 1 126 Joshua Shadd and Judith Belle Brown RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd vvii 0066//1100//1111 99::2277 PPMM Component IV: Enhancing the Patient-Doctor Relationship 129 Moira Stewart and Judith Belle Brown Narratives Illustrating Component IV: Enhancing the Patient-Doctor Relationship 31 Unexplored Territory – Part 2 136 Joshua Shadd and Judith Belle Brown 32 A Healing Presence 138 Joseph Lee, Judith Belle Brown and Tanya Thornton 33 A Familiar Kiss Goodbye 141 Eric Wong and Tanya Thornton 34 A Gift Offered – a Gift Received 144 Jeff Sisler and Judith Belle Brown 35 A Misalignment Offers Understanding 147 Lemmese Al-Watban and Judith Belle Brown 36 The Depth of Shame – Part 1 150 Judith Belle Brown and Susan Woolhouse 37 The Depth of Shame – Part 2 153 Judith Belle Brown and Susan Woolhouse 38 An Urgent Request – a Delayed Response 156 Judith Belle Brown, W. Wayne Weston and Moira Stewart 39 The Patient-Physician Relationship over Time 159 Bridget L. Ryan 40 Restoring the Healer 162 Sabrina Lim and Judith Belle Brown The Four Interactive Components of the Patient-Centered Clinical Method 165 Judith Belle Brown and Tanya Thornton Narratives Illustrating the Four Interactive Components of the Patient-Centered Clinical Method 41 Looking for Hope – Finding Compassion: Part 1 168 Jane Uygur and Judith Belle Brown 42 Looking for Hope – Finding Compassion: Part 2 172 Jane Uygur and Judith Belle Brown 43 Itching to Be Treated 175 Tanya Thornton 44 Not a Typical Teenager – Part 1 178 Bridget L. Ryan 45 Not a Typical Teenager – Part 2 181 Bridget L. Ryan 46 More Than Just a Tummy Ache 185 Lemmese Al-Watban and Judith Belle Brown 47 Continuity Equals Care 189 Adrienne Watson and Judith Belle Brown RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd vviiii 0066//1100//1111 99::2277 PPMM 48 The Heartsink Patient 192 Hugh Hindle and Judith Belle Brown 49 A Case in Complexity – Part 1 195 Susan Woolhouse, Tanya Thornton and Judith Belle Brown 50 A Case in Complexity – Part 2 199 Susan Woolhouse, Tanya Thornton and Judith Belle Brown References 203 Index 209 viii RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd vviiiiii 0066//1100//1111 99::2277 PPMM About the Editors Judith Belle Brown, Ph.D., earned her degree in social work from Smith College, Northampton, MA, and is a professor in the Centre for Studies in Family Medicine, the Department of Family Medicine, Schulich School of Medicine and Dentistry at The University of Western Ontario (UWO), and in the School of Social Work at King’s University College, London, Ontario, Canada. She is the Chair of the Masters in clinical science (M.Cl.Sc.) and Ph.D. programs in family medicine at UWO, both of which are offered via distance education. She has been conducting research on the patient-c entered clinical method for over three decades. Dr. Brown has presented papers and conducted workshops both nationally (Canada and the United States) and internationally (UK, Holland, Spain, Hong Kong, Sweden, New Z ealand, Australia, Denmark, Argentina, Brazil, Japan) on the patient-centered method. She is the co-author of Patient-Centered Medicine: transforming the clinical method and is a series editor along with Moira Stewart and Thomas R. Freeman of the following books: Substance Abuse: a patient-centered approach; Chronic Fatigue Syndrome: a patient-centered approach; Chronic Myofascial Pain: a patient-centered approach; Eating Disorders: a patient-centered approach; Patient-Centred Prescrib- ing: seeking concordance in practice; Palliative Care: a patient-c entered approach; and Pregnancy and Childbirth: a woman-centered approach. She has also published papers dealing with patient-doctor communication in Social Science & Medicine; Family Practice: an international journal; Patient Education and Counseling; Canadian Family Physician; and Journal of Family Practice. Dr. Brown was a co-recipient of the American Academy on Phy- sician and Patient Award for Outstanding Research in 1996. In the same year, Dr. Brown was made an Honorary Member of the College of Family Physicians of Canada. She was a co-recipient of the College of Family Physi- cians of Canada Best Original Research Article Award (2009) and the Dean’s Award of Excellence – Team Award for the Centre for Studies in Family Medicine, the Schulich School of Medicine and Dentistry, The University of Western Ontario (2010). Tanya Thornton, M.D., CCFP, M.Cl.Sc.(FM), graduated from medicine at the University of Toronto and completed postgraduate training, a fellowship ix RRAADD--BBRROOWWNN--1111--00770022--000011--FFMM--CCaaddmmuuss..iinndddd iixx 0066//1100//1111 99::2277 PPMM
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