Celiac Disease, Second Edition: A Guide to Living with Gluten Intolerance

233 Pages·2014·0.84 MB·English

by  Sylvia Llewelyn Bower RN, Mary Kay Sharrett SM RD LD CNSD, Steve Plogsted PharmD

AN INDISPENSABLE GUIDE FOR THOSE WITH CELIAC DISEASE, THEIR FAMILIES,
AND ANYONE SUFFERING WITH SYMPTOMS (SUCH AS STOMACH PAIN, BLOATING,
SYLVIA LLEWELYN BOWER, RN
FATIGUE, HEADACHES, AND ANEMIA) WHO SUSPECTS GLUTEN INTOLERANCE.
with Mary Kay Sharrett, MS, RD, LD, CNSD,
and Steve Plogsted, PharmD
Celiac disease is an autoimmune disorder characterized by an inability to digest gluten, a protein
found in wheat and other grains. It affects as many as 1 in 133 Americans yet remains frequently
undiagnosed. Written by a nurse, dietitian, and clinical pharmacist, CELIAC DISEASE provides
everything you need to know about how to get diagnosed, manage your symptoms, and adjust
to living a gluten-free lifestyle, including how to:
• Eat gluten free and avoid hidden glutens, especially in common medications.
• Prevent the most prevalent complications of celiac disease.
• Cook and bake gluten free using delicious, easy-to-prepare recipes.
“A comprehensive guide to living with celiac disease and gluten sensitivity. As Sylvia points
out, we’ve taken ‘giant steps’ forward in the diagnosis and treatment of celiac disease since
the publication of her frst book in 2006. With this edition, Sylvia offers the same down-
to-earth guidance for the newly diagnosed, and Mary Kay provides terrifc guidance about
navigating the gluten-free diet. I would defnitely recommend this book for anyone wishing
to learn more about how to live both gracefully and gratefully with celiac disease and
gluten-related disorders.”
CELIAC DISEASE
—ALESSIO FASANO, MD, Director, Center for Celiac Research, Massachusetts General Hospital
Sylvia Bower, RN, lives with celiac disease and has been a practicing nurse for 50 years.
She has participated in the Gluten-Free Gang, one of the frst celiac disease support groups,
for over 16 years. Bower is the author of What Nurses Know…Gluten-Free Lifestyle and
has published articles in a variety of media outlets including the Gluten Intolerance
Group Magazine.
Mary Kay Sharrett, MS, RD, LD, CNSD, is a clinical dietitian at Columbus Children's Hospital
in Columbus, Ohio. She is the clinical liaison to the Columbus Children's Hospital Gluten-Free
Gang Support Group.
Steve Plogsted, PharmD, is a pharmacist at Columbus Children's Hospital in Columbus,
Ohio. He specializes in the prescription and over-the-counter medication needs of patients
with celiac disease.
ALSO AVAILABLE AS AN EBOOK
a guide to living with
SECOND
EDITION
1 W. 42nd Street, 15th Floor GLUTEN INTOLERANCE
New York, NY 10036-8002
www.demoshealth.com second edition
$18.95 cover design by carlos maldonado
a guide to living with
BOWER with Sharrett and Plogsted
CELIAC DISEASE GLUTEN INTOLERANCE
Celiac Disease
Also by Sylvia Llewelyn Bower, RN
What Nurses Know . . . Gluten-Free Lifestyle
Celiac
Disease
A Guide to Living with
Gluten Intolerance
Second Edition
Sylvia Llewelyn Bower, rn
with
Mary Kay Sharrett, ms, rd, ld, cnsd,
and Steve Plogsted, pharmd
NEW YORK
Visit our website at www.demoshealth.com
ISBN: 978-1-936303-63-2
e-book ISBN: 978-1-617052-06-4
Acquisitions Editor: Julia Pastore
Compositor: diacriTech
© 2014 by Sylvia Llewelyn Bower, Mary Kay Sharrett, and Steve Plogsted. All rights reserved.
This book is protected by copyright. No part of it may be reproduced, stored in a retrieval
system, or transmitted in any form or by any means, electronic, mechanical, photocopying,
recording, or otherwise, without the prior written permission of the publisher.
Medical information provided by Demos Health, in the absence of a visit with a health care
professional, must be considered as an educational service only. This book is not designed
to replace a physician’s independent judgment about the appropriateness or risks of a
procedure or therapy for a given patient. Our purpose is to provide you with information
that will help you make your own health care decisions.
The information and opinions provided here are believed to be accurate and sound, based
on the best judgment available to the authors, editors, and publisher, but readers who fail
to consult appropriate health authorities assume the risk of injuries. The publisher is not
responsible for errors or omissions. The editors and publisher welcome any reader to report
to the publisher any discrepancies or inaccuracies noticed.
Library of Congress Cataloging-in-Publication Data
Bower, Sylvia Llewelyn.
Celiac disease : a guide to living with gluten intolerance / Sylvia Llewelyn Bower, RN
with Mary Kay Sharrett, MS, RD, LD, CNSD, and Steve Plogsted, PharmD[M01]. —Second
edition.
pages cm
Includes bibliographical references and index.
ISBN 978-1-936303-63-2
1. Celiac disease—Popular works. 2. Gluten-free diet—Popular works. I. S harrett, Mary
Kay. II. Plogsted, Steve. III. Title.
RC862.C44B69 2014
616.3’99--dc23
2014014102
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This book is dedicated to my husband Jack Bower who has
been by my side and encouraged me through it all.
Contents
Foreword by Ivor Hill, MD . . . . . . . . . . . . . . . . . . . . . . . . . . . ix
Preface . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xi
Acknowledgments . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . xiii
Share Celiac Disease, Second Edition
1. What Is Celiac Disease? . . . . . . . . . . . . . . . . . . . . . . . . .1
2. Diagnosis and Treatment . . . . . . . . . . . . . . . . . . . . . . .19
3. Dermatitis Herpetiformis . . . . . . . . . . . . . . . . . . . . . .33
4. A Healthy Gluten-Free Diet
Mary Kay Sharrett . . . . . . . . . . . . . . . . . . . . . . . . . . . .43
5. Complications . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .55
6. Tackling the Emotional Side of Celiac Disease . . . .65
7. Raising a Child with Celiac Disease . . . . . . . . . . . . .75
8. The Gluten-Free Kitchen . . . . . . . . . . . . . . . . . . . . . . .85
9. Eating Out and Enjoying It . . . . . . . . . . . . . . . . . . . . .97
10. Managing Celiac Disease . . . . . . . . . . . . . . . . . . . . . .107
1 1. Pulling It All Together . . . . . . . . . . . . . . . . . . . . . . . .113
12. Gluten in Medications
Steve Plogsted . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .125
13. The Future for Celiac Disease . . . . . . . . . . . . . . . . . .135
FAQ . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .139
Recipes . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .143
vii
viii
Resources
Mary Kay Sharrett . . . . . . . . . . . . . . . . . . . . . . . . . . .183
Bibliography . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .197
Glossary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .205
Index . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .211
CeliaC Disease
Foreword
Celiac disease is now considered to be one of the most com-
mon chronic conditions affecting mankind and occurs in
about 1% of the general population in the United States.
While it has been gratifying to see the diagnosis made more
frequently in the past two decades, there are still many
people with celiac disease who remain undiagnosed or go
for prolonged periods with symptoms before the condition
is recognized. Confrming a diagnosis of celiac disease can
bring relief to those who have suffered unexplained symp-
toms for long periods of time but may lead to a host of new
concerns that go with the major lifestyle changes that occur
with treatment. Maintaining a strict gluten-free diet for life
is essential for the health and well-being of people with
celiac disease. A gluten-free diet can be cumbersome to fol-
low, increase the cost of living, and impose new restrictions
on one’s lifestyle. For these reasons it is important to be
certain of the diagnosis and not confuse celiac disease with
other “gluten” sensitive conditions for which such strict
adherence to the diet may not be necessary.
The second edition of Celiac Disease: a Guide to Living with
Gluten Intolerance by Sylvia Llewelyn Bower is both timely
and a delight to read. The author takes one through a brief
history of celiac disease before describing the variable clini-
cal manifestations that make the condition so unique and
interesting. Tests to identify those who might have celiac
disease are covered and the importance of confrming the
diagnosis by means of an intestinal biopsy is emphasized.
ix